Meet and support others who are affected by these issues around breast cancer fears, diagnosis and treatment.
Posted on: Aug 2, 2012 01:03AM - edited Dec 23, 2015 09:34PM by sas-schatzi
We support the efforts to bring awareness to breast cancer during the month of October, but we are frustrated by Pinking and Pinkwashing. Please, join us as we seek to improve knowledge re: breast cancer.
Vision Statement:To bring full awareness of the reality of breast cancer to the general public; the surgeries, the treatments and the horror that there is NO cure. To ensure that proceeds donated to the cause are publically noted and distributed in an appropriate manner for the community in which the funds were raised. To keep corporations accountable for the use of pink products and the medical field driven to move the cure closer to the finish line.
This is just a sampling of the bonehead comments we hear all the time. Thanks Scuttlers for finding this :)
scuttlers wrote: I may make a copy, put on the fridge, and play bingo for one week. If I get a "Bingo", hubby takes me to dinner. If I get a "full card", I get a full spa treatment. Then all those idiots would be wondering why I jump up and down and scream happily at their stupid and asinine remarks. :-). !!!!!
Breast Cancer Action webinar on Sexualization of breast cancer.
Thurs. 29 October 2015 By Katy Skahill, Truthout | Op-Ed (BCO member Jackbirdie)
Google hits sexualization Oct 2015 43,100
Posts 3241 - 3261 (3,261 total)
Nov 1, 2019 04:48PM Artista928 wrote:
still seeing it! It's Nov 1st guys!
Nov 1, 2019 07:48PM AliceBastable wrote:
Its November; let's unpink!
Nov 1, 2019 11:25PM ChiSandy wrote:
Whew! Can finally wear pink again just because I feel like it, looks good on me, matches what else I've got on, and the shirt or blouse is clean--no dumb questions, pitying looks, or "my friend beat breast cancer and so can you." Although I do buy Advocate Health Care/Chicago Bears "Real Bears Fans Wear Pink" tees each year...because the proceeds go to Advocate's breast cancer centers, they're (usually) navy blue, my DH is an attending doc at an Advocate hospital, and we are Bears fans (otherwise known as masochists). Besides, this year's shirt finally has long sleeves.
Nov 2, 2019 01:38AM ShetlandPony wrote:
Time to get out my tote bag that says, “I survived breast cancer awareness month”.
Nov 2, 2019 07:40AM DogMomRunner wrote:
Shetland - I would love a bag or shirt withthat.
Nov 2, 2019 01:35PM Artista928 wrote:
now that's a shirt I'd wear! Lol
Nov 2, 2019 02:24PM Traveltext wrote:
This Pinktober saw an upsurge in media reporting about male breast cancer. I get Google alerts on the topic and, compared to previous years, my inbox overflowed with links to stories about men with this disease. Perhaps people here caught it, but Beyoncé’s dad, Mathew Knowles, came out to talk about his recent diagnosis and treatment. When a famous person Is prepared to spread the word, awareness levels about the genderless nature of this disease jump many points.
I spent the month over at Twitter reporting every article and piece of research news I could. The biggest story was the Vanderbilt meta data study that compared male and female outcomes of many thousands of people treated for bc. The results backed up much of what bc men knew for years about our poorer outcomes. There’s a succinct summary of the results here:
It was again fantastic to read the BCO posts here this year. What more can we say about Pink! Nothing, but ya gotta have a laugh or two.
Nov 2, 2019 09:29PM SuQu31 wrote:
ChiSandy, I feel the same way. I like wearing all shades of pink, and I felt especially uncomfortable wearing pink in October this year. Most of the “regular" Pinktober things don't really bother me, but I don't like that it has made me feel like I'm drawing attention to my cancer by wearing a color I happen to love.
Nov 3, 2019 08:12PM rubyredslippers wrote:
Re the pink parking lines - I think it's wrong for the same reason all of the rest of it is wrong. It's prettying up cancer, making it girly (when men can get it) and sending the idea that breast cancer is somehow feminine and ladylike.
Nov 16, 2019 01:40AM VLH wrote:
Traveltext, when I saw the Knowles segment, I immediately thought of you and your tireless quest to increase knowledge about male breast cancer. I think his unfortunate experience will make men not only more aware of the disease, but less embarrassed to broach the topic with their doctors.
The article you linked shows how important it is to include men in clinical studies. Women were excluded from cardiac studies for decades, even if not of childbearing age, so we should be especially supportive of the men facing breast cancer. Abusive pinkwashing aside, I think that the Susan G. Komen races and similar events helped us to be able to talk openly about breast cancer. I'm old enough to remember when it was only discussed in whispers.
The imaging center I go to is decorated in an ornate style I dislike and I think the capes (which I hate) are pink. Their radiologist is exceptional, but I can't imagine a man being comfortable seeking testing there. Statistically, it's logical that breast cancer facilities cater to the 99% rather than the 1%, but I hope that the hard work that you and others do will ensure that future designs will be more gender neutral.
P.S. I don't understand the pink parking lines at all. I had such a difficult time with chemo that I had to rest three times shuffling into the infusion center from a distant parking spot. That's a dilemma that could be related to any type of cancer. We needed more handicapped spots, not designated pink spots.
Nov 16, 2019 02:10AM Traveltext wrote:
Yes, VLH, the publicity around Knowles’ diagnosis and treatment is huge and great for the cause of awareness of the genderless nature of this disease. Good on him for speaking out, most men don’t. And, yes, I’m aware of the discrimination against women in cardiac studies and heart disease research. Hopefully that will change. The FDA has just recommended men be included in bc clinical trials. Can the cardiac women be far behind?
Re the pinkness thing. I do know how much of a minority we are and I do get what the fundraising is for, although I’ve researchedpink charity fundraising costs and they are over 50%. Give a dollar and half gets to somewhere useful. No, my gripe is that all the pinkness makes people think it’s a women only disease. Men present later and we have a poorer prognosis. Okay, we’re only one percenters, but the disease is just as problematic for us.
Nov 16, 2019 08:06AM Scrafgal wrote:
We also need more Black women to be included in BC clinical trials, given the disproportionate access to equitable healthcare and negative outcomes for the large number who are diagnosed.
Nov 16, 2019 11:33AM VLH wrote:
Fortunately, strides have been made in including women in cardiac studies. I only mentioned it as a striking example of how gender bias can result in clinical studies inappropriately excluding people who could benefit from research. Great news about the FDA recommendation!
I totally agree that too many breast cancer charities are inefficient fundraisers. I also think that their marketing has historically focused on attractive women in perfect makeup triumphantly celebrating their victory over the disease while failing to properly acknowledge the devastation of metastatic cancer. I do think it's important to recognize the good done by breast cancer charities while remaining vocal about areas requiring improvement.
I understand your frustration with all the "pinkness" ignoring the men facing breast cancer. It's encouraging that nearly every segment I saw on breast cancer this October specifically mentioned that men can get breast cancer. Besides Mr. Knowles' public comments, having a man with breast cancer on the popular U.S. TV series "A Million Little Things" should also help spread the word.
I hope you didn't see my remark about the 99% / 1% incidence as somehow being dismissive of the toll breast cancer has exacted from men. Rather, I was pointing out that businesses, and imaging centers are very much a business in the U.S., have skewed their appeal to the majority of their demographic; however, I was hopeful that they would be more sensitive to men with BC in the future. The work you and others have done is definitely bearing fruit. Well done!
Nov 16, 2019 12:54PM Traveltext wrote:
Yes, attractive younger women, often with little kids, are used a lot in ad campaigns when the average age women get bc is 57. Never a man, of course. A bc marketing person told me that this evokes the greatest fundraising response.
I know you’re not dismissing us, definitely you’re not, it’s just that our tiny cohort gets tiny attention. That said, this year has seen this turn around, and there have been lots of media stories on men, around three times that of previous years. Now we just have to get men to take their health seriously!
Dec 17, 2019 04:52AM - edited Dec 17, 2019 04:56AM by Traveltext
A late addition:
"Gaslighting is deliberate psychological manipulation that causes someone to question their own sanity while making them feel dependent on the perpetrator of that harm. And it's clear that pink-ribbon culture is sanctioned gaslighting, celebrated during its very own pink month."
Dec 18, 2019 10:37PM Mominator wrote:
Thank you, Traveltext, for another enlightening article on Pinktober.
We get a double dose of Pinktober in my area, both in October as well as May. The local hospital conglomerate has designated May as "Paint the Town Pink" month in honor of mothers and breast cancer awareness. Big bows and huge pink banners appear everywhere in towns served by this hospital group. Local towns have their names changed to include pink, such as Red Bank becomes Pink Bank. Local town councils and PTAs and other community groups jump on the pink bandwagon, having fundraisers, and probably drinking the pink cool-aid as well.
Dec 18, 2019 11:23PM AliceBastable wrote:
I'm on a different cancer type forum, and a gentleman there was describing having to go to a breast center for one of his tests, and how weird and awkward he felt. I was happy to give him information on male breast cancer, and how attitudes like his are part of the reason men get tested later with higher stages. I wish there was a way to educate EVERYBODY about it.