We are 224,910 members in 82 forums discussing 158,006 topics.

Help with Abbreviations

Topic: Pinktober Revolution

Forum: Emotional Crises: Anxiety, Depression & Other Emotional Effects —

Meet and support others who are affected by these issues around breast cancer fears, diagnosis and treatment.

Posted on: Aug 2, 2012 02:03AM - edited Dec 23, 2015 10:34PM by sas-schatzi

sas-schatzi wrote:

We support the efforts to bring awareness to breast cancer during the month of October, but we are frustrated by Pinking and Pinkwashing. Please, join us as we seek to improve knowledge re: breast cancer.

Vision Statement:To bring full awareness of the reality of breast cancer to the general public; the surgeries, the treatments and the horror that there is NO cure. To ensure that proceeds donated to the cause are publically noted and distributed in an appropriate manner for the community in which the funds were raised. To keep corporations accountable for the use of pink products and the medical field driven to move the cure closer to the finish line.

A Look at Charitable & Non-Charitable Organizations

Archive storage for Pintober Revolution-non discussion area

This is just a sampling of the bonehead comments we hear all the time. Thanks Scuttlers for finding this :)

scuttlers wrote: I may make a copy, put on the fridge, and play bingo for one week. If I get a "Bingo", hubby takes me to dinner. If I get a "full card", I get a full spa treatment. Then all those idiots would be wondering why I jump up and down and scream happily at their stupid and asinine remarks. :-). !!!!!

Breast Cancer Action webinar on Sexualization of breast cancer.

http://www.bcaction.org/resources/webinars/free-webinar-please-stop-staring-at-my-breasts-the-sexualization-of-breast-cancer/ Traveltext, 2015

Please ask Look Good Feel Better To Stop Giving Carcingoneic Products to Breast Cancer Patients through the Look Good Feel Better program JackBirdie, 2015.

American Cancer Society, Stop Giving Carcinogenic Cosmetics to Women With Cancer

Thurs. 29 October 2015 By Katy Skahill, Truthout | Op-Ed (BCO member Jackbirdie)

https://community.breastcancer.org/forum/102/topics/791442?page=89#post_4539402

Google hits sexualization Oct 2015 43,100

http://pinktobersucks.com/


Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
Log in to post a reply

Page 109 of 109 (3,258 results)

Posts 3241 - 3258 (3,258 total)

Log in to post a reply

Nov 1, 2019 02:05PM kathindc wrote:

Amen to that! 🙏

Log in to post a reply

Nov 1, 2019 05:48PM Artista928 wrote:

still seeing it! It's Nov 1st guys!

Dx'd at 50. Doing it all, all by myself. Stopped Letrozole after 5 weeks. Debilitating se's. Back on Tamox now. Dx 6/2/2015, IDC, Left, 6cm+, Stage IIIA, Grade 3, 1/4 nodes, ER+/PR+, HER2- (DUAL) Surgery 8/6/2015 Lymph node removal: Left, Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/3/2015 AC + T (Taxotere) Radiation Therapy 5/2/2016 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 6/28/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 12/9/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 2/14/2017 Femara (letrozole) Hormonal Therapy 3/26/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 9/1/2017 Reconstruction (right): Fat grafting, Silicone implant
Log in to post a reply

Nov 1, 2019 08:48PM AliceBastable wrote:

Its November; let's unpink!

Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Cancer's a bitch, but I'm a bigger one with more practice. Dx 5/2018, ILC/IDC, Left, 2cm, Stage IA, Grade 2, 1/1 nodes, ER+/PR+, HER2- Surgery 7/10/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/7/2018 Radiation Therapy 10/28/2018 Whole-breast: Breast, Lymph nodes
Log in to post a reply

Nov 2, 2019 12:25AM ChiSandy wrote:

Whew! Can finally wear pink again just because I feel like it, looks good on me, matches what else I've got on, and the shirt or blouse is clean--no dumb questions, pitying looks, or "my friend beat breast cancer and so can you." Although I do buy Advocate Health Care/Chicago Bears "Real Bears Fans Wear Pink" tees each year...because the proceeds go to Advocate's breast cancer centers, they're (usually) navy blue, my DH is an attending doc at an Advocate hospital, and we are Bears fans (otherwise known as masochists). Besides, this year's shirt finally has long sleeves.

Diagnosed at 64 on routine annual mammo, no lump. OncotypeDX 16. I cried because I had no shoes...but then again, I won’t get blisters.... Dx 9/9/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- (IHC) Surgery 9/22/2015 Lumpectomy: Right Radiation Therapy 11/1/2015 3DCRT: Breast Hormonal Therapy 12/30/2015 Femara (letrozole)
Log in to post a reply

Nov 2, 2019 02:38AM ShetlandPony wrote:

Time to get out my tote bag that says, “I survived breast cancer awareness month”.

2011 Stage I ILC ER+PR+ Her2- 1.5 cm grade 1, ITCs sn . Lumpectomy, radiation, tamoxifen. 2014 Stage IV ILC ER+PR+Her2- grade 2, mets to breast , liver. Taxol NEAD. 2015,2016 Ibrance+letrozole. 2017 Faslodex+Afnitor; Xeloda. 2018,2019 Xeloda NEAD
Log in to post a reply

Nov 2, 2019 08:40AM DogMomRunner wrote:

Shetland - I would love a bag or shirt withthat.

You ain't run far enough to say My legs have failed You ain't gone far enough You ain't worked hard enough You ain't run far enough to say It ain't gonna get any better. Nathaniel Rateliff Dx 4/24/2019, DCIS/IDC, Left, 1cm, Stage IA, Grade 3, 0/8 nodes, ER-/PR-, HER2+ (FISH) Surgery 5/17/2019 Lumpectomy: Left; Lymph node removal: Left, Sentinel Targeted Therapy 6/6/2019 Herceptin (trastuzumab) Chemotherapy 6/6/2019 Taxol (paclitaxel) Radiation Therapy 9/22/2019 Whole-breast: Breast
Log in to post a reply

Nov 2, 2019 02:35PM Artista928 wrote:

now that's a shirt I'd wear! Lol

Dx'd at 50. Doing it all, all by myself. Stopped Letrozole after 5 weeks. Debilitating se's. Back on Tamox now. Dx 6/2/2015, IDC, Left, 6cm+, Stage IIIA, Grade 3, 1/4 nodes, ER+/PR+, HER2- (DUAL) Surgery 8/6/2015 Lymph node removal: Left, Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/3/2015 AC + T (Taxotere) Radiation Therapy 5/2/2016 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 6/28/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 12/9/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 2/14/2017 Femara (letrozole) Hormonal Therapy 3/26/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 9/1/2017 Reconstruction (right): Fat grafting, Silicone implant
Log in to post a reply

Nov 2, 2019 03:24PM Traveltext wrote:

This Pinktober saw an upsurge in media reporting about male breast cancer. I get Google alerts on the topic and, compared to previous years, my inbox overflowed with links to stories about men with this disease. Perhaps people here caught it, but Beyoncé’s dad, Mathew Knowles, came out to talk about his recent diagnosis and treatment. When a famous person Is prepared to spread the word, awareness levels about the genderless nature of this disease jump many points.

I spent the month over at Twitter reporting every article and piece of research news I could. The biggest story was the Vanderbilt meta data study that compared male and female outcomes of many thousands of people treated for bc. The results backed up much of what bc men knew for years about our poorer outcomes. There’s a succinct summary of the results here:

https://drattai.com/update-on-male-breast-cancer/

It was again fantastic to read the BCO posts here this year. What more can we say about Pink! Nothing, but ya gotta have a laugh or two.


NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

Log in to post a reply

Nov 2, 2019 03:51PM Spookiesmom wrote:

Me too Shetland. Where did you get it? Have it made?

Reoccurrence 3-19. Dx IDC, Stage IIIA, Grade 3
Log in to post a reply

Nov 2, 2019 10:29PM SuQu31 wrote:

ChiSandy, I feel the same way. I like wearing all shades of pink, and I felt especially uncomfortable wearing pink in October this year. Most of the “regular" Pinktober things don't really bother me, but I don't like that it has made me feel like I'm drawing attention to my cancer by wearing a color I happen to love.

Re-excision for close anterior margin 10 days after BMX. Dx 10/31/2018, DCIS, Left, Stage 0, Grade 3, ER-/PR- Dx 12/10/2018, DCIS, Left, 2cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR- Surgery 12/10/2018 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Latissimus dorsi flap; Reconstruction (right): Latissimus dorsi flap Surgery 12/20/2018
Log in to post a reply

Nov 3, 2019 09:12PM rubyredslippers wrote:

Re the pink parking lines - I think it's wrong for the same reason all of the rest of it is wrong. It's prettying up cancer, making it girly (when men can get it) and sending the idea that breast cancer is somehow feminine and ladylike.

Surgery 7/4/2008 Lumpectomy; Lymph node removal: Sentinel Chemotherapy 8/31/2008 AC Radiation Therapy 12/14/2008 Breast Surgery 7/27/2017 Lymph node removal: Right Surgery 9/4/2017 Lymph node removal: Underarm/Axillary
Log in to post a reply

Nov 3, 2019 11:03PM Sara536 wrote:

Are the men supposed to park across the street?

Log in to post a reply

Nov 5, 2019 05:52PM rubyredslippers wrote:

Yes, they can park across the street, along with all of us. Women that havent had breast cancer, that believe it's all fun and pretty can park there. That's how it goes.

Surgery 7/4/2008 Lumpectomy; Lymph node removal: Sentinel Chemotherapy 8/31/2008 AC Radiation Therapy 12/14/2008 Breast Surgery 7/27/2017 Lymph node removal: Right Surgery 9/4/2017 Lymph node removal: Underarm/Axillary
Log in to post a reply

Nov 16, 2019 02:40AM VLH wrote:

Traveltext, when I saw the Knowles segment, I immediately thought of you and your tireless quest to increase knowledge about male breast cancer. I think his unfortunate experience will make men not only more aware of the disease, but less embarrassed to broach the topic with their doctors.

The article you linked shows how important it is to include men in clinical studies. Women were excluded from cardiac studies for decades, even if not of childbearing age, so we should be especially supportive of the men facing breast cancer. Abusive pinkwashing aside, I think that the Susan G. Komen races and similar events helped us to be able to talk openly about breast cancer. I'm old enough to remember when it was only discussed in whispers.

The imaging center I go to is decorated in an ornate style I dislike and I think the capes (which I hate) are pink. Their radiologist is exceptional, but I can't imagine a man being comfortable seeking testing there. Statistically, it's logical that breast cancer facilities cater to the 99% rather than the 1%, but I hope that the hard work that you and others do will ensure that future designs will be more gender neutral.

Lyn

P.S. I don't understand the pink parking lines at all. I had such a difficult time with chemo that I had to rest three times shuffling into the infusion center from a distant parking spot. That's a dilemma that could be related to any type of cancer. We needed more handicapped spots, not designated pink spots.

Dx 5/20/2016, IDC, 2cm, Stage IIB, Grade 3, 0/3 nodes, ER-/PR-, HER2- (FISH) Surgery 7/14/2016 Lumpectomy: Left Dx 7/18/2016, DCIS, Left, Stage 0, Grade 3, 0/3 nodes Surgery 7/25/2016 Lumpectomy: Left Chemotherapy 10/9/2016 AC + T (Taxol) Radiation Therapy 9/4/2017 Whole-breast: Breast
Log in to post a reply

Nov 16, 2019 03:10AM Traveltext wrote:

Yes, VLH, the publicity around Knowles’ diagnosis and treatment is huge and great for the cause of awareness of the genderless nature of this disease. Good on him for speaking out, most men don’t. And, yes, I’m aware of the discrimination against women in cardiac studies and heart disease research. Hopefully that will change. The FDA has just recommended men be included in bc clinical trials. Can the cardiac women be far behind?

Re the pinkness thing. I do know how much of a minority we are and I do get what the fundraising is for, although I’ve researchedpink charity fundraising costs and they are over 50%. Give a dollar and half gets to somewhere useful. No, my gripe is that all the pinkness makes people think it’s a women only disease. Men present later and we have a poorer prognosis. Okay, we’re only one percenters, but the disease is just as problematic for us.


NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

Log in to post a reply

Nov 16, 2019 09:06AM Scrafgal wrote:

We also need more Black women to be included in BC clinical trials, given the disproportionate access to equitable healthcare and negative outcomes for the large number who are diagnosed.

Dx 12/2016, IDC, Right, 4cm, Stage IIA, Grade 3, 0/7 nodes, ER+/PR+, HER2- Surgery 2/5/2017 Mastectomy: Right; Reconstruction (right): Silicone implant, Tissue expander placement Chemotherapy 3/21/2017 Taxol (paclitaxel) Chemotherapy 6/14/2017 FAC Hormonal Therapy 9/24/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 10/12/2017 Reconstruction (right): Fat grafting, Silicone implant Surgery 5/9/2018 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting Surgery 10/15/2018 Reconstruction (right): Nipple tattoo Surgery 5/9/2019 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Hormonal Therapy 7/22/2019 Arimidex (anastrozole) Surgery 9/6/2019 Reconstruction (right): Nipple tattoo
Log in to post a reply

Nov 16, 2019 12:33PM VLH wrote:

Fortunately, strides have been made in including women in cardiac studies. I only mentioned it as a striking example of how gender bias can result in clinical studies inappropriately excluding people who could benefit from research. Great news about the FDA recommendation!

I totally agree that too many breast cancer charities are inefficient fundraisers. I also think that their marketing has historically focused on attractive women in perfect makeup triumphantly celebrating their victory over the disease while failing to properly acknowledge the devastation of metastatic cancer. I do think it's important to recognize the good done by breast cancer charities while remaining vocal about areas requiring improvement.

I understand your frustration with all the "pinkness" ignoring the men facing breast cancer. It's encouraging that nearly every segment I saw on breast cancer this October specifically mentioned that men can get breast cancer. Besides Mr. Knowles' public comments, having a man with breast cancer on the popular U.S. TV series "A Million Little Things" should also help spread the word.

I hope you didn't see my remark about the 99% / 1% incidence as somehow being dismissive of the toll breast cancer has exacted from men. Rather, I was pointing out that businesses, and imaging centers are very much a business in the U.S., have skewed their appeal to the majority of their demographic; however, I was hopeful that they would be more sensitive to men with BC in the future. The work you and others have done is definitely bearing fruit. Well done!

Lyn

Dx 5/20/2016, IDC, 2cm, Stage IIB, Grade 3, 0/3 nodes, ER-/PR-, HER2- (FISH) Surgery 7/14/2016 Lumpectomy: Left Dx 7/18/2016, DCIS, Left, Stage 0, Grade 3, 0/3 nodes Surgery 7/25/2016 Lumpectomy: Left Chemotherapy 10/9/2016 AC + T (Taxol) Radiation Therapy 9/4/2017 Whole-breast: Breast
Log in to post a reply

Nov 16, 2019 01:54PM Traveltext wrote:

Yes, attractive younger women, often with little kids, are used a lot in ad campaigns when the average age women get bc is 57. Never a man, of course. A bc marketing person told me that this evokes the greatest fundraising response.

I know you’re not dismissing us, definitely you’re not, it’s just that our tiny cohort gets tiny attention. That said, this year has seen this turn around, and there have been lots of media stories on men, around three times that of previous years. Now we just have to get men to take their health seriously!


NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

Page 109 of 109 (3,258 results)