We are 226,801 members in 82 forums discussing 158,972 topics.

Help with Abbreviations

Topic: Pinktober Revolution

Forum: Emotional Crises: Anxiety, Depression & Other Emotional Effects —

Meet and support others who are affected by these issues around breast cancer fears, diagnosis and treatment.

Posted on: Aug 2, 2012 01:03AM - edited Dec 23, 2015 09:34PM by sas-schatzi

sas-schatzi wrote:

We support the efforts to bring awareness to breast cancer during the month of October, but we are frustrated by Pinking and Pinkwashing. Please, join us as we seek to improve knowledge re: breast cancer.

Vision Statement:To bring full awareness of the reality of breast cancer to the general public; the surgeries, the treatments and the horror that there is NO cure. To ensure that proceeds donated to the cause are publically noted and distributed in an appropriate manner for the community in which the funds were raised. To keep corporations accountable for the use of pink products and the medical field driven to move the cure closer to the finish line.

A Look at Charitable & Non-Charitable Organizations

Archive storage for Pintober Revolution-non discussion area

This is just a sampling of the bonehead comments we hear all the time. Thanks Scuttlers for finding this :)

scuttlers wrote: I may make a copy, put on the fridge, and play bingo for one week. If I get a "Bingo", hubby takes me to dinner. If I get a "full card", I get a full spa treatment. Then all those idiots would be wondering why I jump up and down and scream happily at their stupid and asinine remarks. :-). !!!!!

Breast Cancer Action webinar on Sexualization of breast cancer.

http://www.bcaction.org/resources/webinars/free-webinar-please-stop-staring-at-my-breasts-the-sexualization-of-breast-cancer/ Traveltext, 2015

Please ask Look Good Feel Better To Stop Giving Carcingoneic Products to Breast Cancer Patients through the Look Good Feel Better program JackBirdie, 2015.

American Cancer Society, Stop Giving Carcinogenic Cosmetics to Women With Cancer

Thurs. 29 October 2015 By Katy Skahill, Truthout | Op-Ed (BCO member Jackbirdie)

https://community.breastcancer.org/forum/102/topics/791442?page=89#post_4539402

Google hits sexualization Oct 2015 43,100

http://pinktobersucks.com/


Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
Log in to post a reply

Page 2 of 109 (3,262 results)

Posts 31 - 60 (3,262 total)

Log in to post a reply

Aug 3, 2012 09:14AM Bluebird-DE wrote:

Sooooooooo many good ones they are ringing in my brain!  I just cannot think of one.  Will be back when I have something.  But these are good guys.  Barbe - yours absolutely HITS IT.  Veggy yours lists it, but I would add 'assinine doctors' for one of the As.  Kate - stop pinkwashing is brilliant.  And really, the marketing thing, I don't know but I think that they don't market like this for prostate cancer, bcz they know the men would not be out there running marathons or wearing blue.  Cure needed.  Prevention and cure.

"Every mistake I have made has proven to be invaluable information for someone. Namely, me." Me. Diane Dx 7/15/2011, IDC, Right, 2cm, Stage IV, metastasized to liver/lungs/other, Grade 3, 3/11 nodes, mets, ER+/PR+, HER2- Chemotherapy 4/4/2017 Xeloda (capecitabine) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Arimidex (anastrozole) Hormonal Therapy Femara (letrozole) Radiation Therapy External: Lymph nodes Surgery Lumpectomy: Right; Lymph node removal: Left
Log in to post a reply

Aug 3, 2012 09:18AM cookiegal wrote:

cure=life

(I like SN's tired of walking find a cure!!) 

You deserve a cookie!
Log in to post a reply

Aug 3, 2012 12:21PM - edited Nov 10, 2015 06:11PM by leggo

This Post was deleted by leggo.
"Once more into the fray... Into the last good fight I'll ever know... Live and die on this day... Live and die on this day." - The Grey
Log in to post a reply

Aug 3, 2012 12:22PM MarysDen101 wrote:

Gracie-- I really like that one!!!

Barbe- I love your too !!

Never change for anyone, be who you are... those who love you will honor you, those that judge you don't belong. ♥♥ DX is Uterine Cancer , stage 1 , removal , 2 rounds rad . NED for 5 yrs Dx 5/15/2007 Dx 1/3/2013, 1cm Surgery 1/3/2013 Lumpectomy: Right
Log in to post a reply

Aug 3, 2012 12:24PM - edited Nov 10, 2015 06:12PM by leggo

This Post was deleted by leggo.
"Once more into the fray... Into the last good fight I'll ever know... Live and die on this day... Live and die on this day." - The Grey
Log in to post a reply

Aug 3, 2012 12:28PM MarysDen101 wrote:

If I was closer to you I would wear it with you *outside* 

Never change for anyone, be who you are... those who love you will honor you, those that judge you don't belong. ♥♥ DX is Uterine Cancer , stage 1 , removal , 2 rounds rad . NED for 5 yrs Dx 5/15/2007 Dx 1/3/2013, 1cm Surgery 1/3/2013 Lumpectomy: Right
Log in to post a reply

Aug 3, 2012 12:50PM veggy wrote:

DianeEssa - I added it just for you.

Biography: "Having cancer gave me membership in an elite club I'd rather not belong to." - Gilda Radner, Saturday Night Live *********** (Me -stage 4)
Log in to post a reply

Aug 3, 2012 12:50PM Kate33 wrote:

Gracie- Love the t-shirt!  Might have to add that to my wardrobe soon!  Laughing
Kate33 "Yes, they're fake. (@)(@) The real ones tried to kill me." Dx 12/27/2009, DCIS, 4cm, Stage 0, Grade 3, 0/4 nodes
Log in to post a reply

Aug 3, 2012 01:40PM Mini1 wrote:

Screw the new normal. I want my old normal back.

Why yes, isn't it great that you can get a tummy tuck and a boob job now and insurance has to pay for it. Idiot.

And oh yes, do tell me another story about a friend that was fine one minute and dead the next week. It really cheers me up. Bigger idiot.

"For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future." - Jeremiah 29:11 Surgery 4/16/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Dx IDC, 1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2-
Log in to post a reply

Aug 3, 2012 01:49PM JoanQuilts wrote:

43,000 U.S. breast cancer deaths in 1992.

40,000 U.S. breast cancer deaths in 2011.

This is not progress.

Diagnosed 10/92, lumpectomy, CMF. Diagnosed with second primary 12/11 (19 years later!). . BMX with TEs to implants; 6 rounds of TC. Dx 12/6/2011, IDC, <1cm, Stage I, Grade 3, 0/0 nodes, ER-/PR-, HER2- Surgery 1/6/2012 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 2/6/2012 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Log in to post a reply

Aug 3, 2012 01:54PM Mini1 wrote:

And most of that difference is probaly due to diet awareness and women taking more control of their own treatment, not any medication or surgery.

"For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future." - Jeremiah 29:11 Surgery 4/16/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Dx IDC, 1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2-
Log in to post a reply

Aug 3, 2012 02:00PM chabba wrote:

Breast Cancer

FIND A VACCINE

Dx 5/25/2010, IDC, 1cm, Stage I, Grade 3, 0/3 nodes, ER+/PR+, HER2-
Log in to post a reply

Aug 3, 2012 02:05PM Mini1 wrote:

You think you want new boobs? Be careful what you wish for. You have a a 1 in 8 chance of getting your wish.

"For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future." - Jeremiah 29:11 Surgery 4/16/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Dx IDC, 1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2-
Log in to post a reply

Aug 3, 2012 02:07PM - edited Aug 3, 2012 02:08PM by 1Athena1

A lot of that so-called progress in numbers may be due to earlier detection, meaning that people who likely weren't going to die anyway got dx'd and sometimes overtreated. It may also be due to the Women's Health Initiative study. But there is no evidence that it is due to improved treatments or --hormonal causes a big aside-- a better knowledge of what, if any, preventive measures to take. In fact, improved numbers that look like gains may be offset to some degree by increased environmental hazards. But that last bit is only speculation.

There's really no compelling evidence that the fate of women diagnosed with BC is any better than it was decades ago ago. Lives can better be prolonged, but so can suffering.

I would like a huge placard to annoy Nancy Brinker that said: TAKE THAT SMILE OFF YOUR FACE AND STOP USING SO MUCH HAIRSPRAY AND MAKE-UP  - YOU ARE POLLUTING YOUR WHOLE NEIGHBORHOOD WITH THAT MUCH BLING!

Anyone diagnosed with cancer should learn to have a healthy disrespect for statistics. Statistics are maths. It's the science which still eludes us. Dx 3/2009, IDC, 3cm, Stage IIB, Grade 3, 3/8 nodes, mets, ER+/PR+, HER2-
Log in to post a reply

Aug 3, 2012 02:08PM FireKracker wrote:

OMG wonderful thread.Last nite I wanted to bump it but I forgot....No need.All the right ones are here..And I am sure more are coming.

I still want a tee shirt that says FUCKTOBER.

Focktober!!!!Pink stinks!!!!
Log in to post a reply

Aug 3, 2012 02:24PM Mini1 wrote:

If I have learned one thing from this disease it's that numbrs can be skewed to mean anything you want them to. They could be lower because more women are unable to get tested (i.e. lack of insurance or access to a facility) or simply refuse tesing. Fewer people mammoed, fewer diagnisis' of BC. It's such a racket.

I've said it before, but it bears repeating. Get a book called The Harm We Do by Dr. Otis Webb Brawley. It's an eye opener. And he's the Chief medical officer for the ACS, not some quack out to make a buck. I wish I lived in Atlanta so he could be my oncologist.

"For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future." - Jeremiah 29:11 Surgery 4/16/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Dx IDC, 1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2-
Log in to post a reply

Aug 3, 2012 02:37PM - edited Nov 10, 2015 06:12PM by leggo

This Post was deleted by leggo.
"Once more into the fray... Into the last good fight I'll ever know... Live and die on this day... Live and die on this day." - The Grey
Log in to post a reply

Aug 3, 2012 02:43PM Mini1 wrote:

Gracie 1 - I told my husband last night that if I had any money I would invest it in companies that make cancer drugs and MRI and CAT Scan machines. And they say cancer rates are expected to go up 80% as India and China becime more "westernized." And don't get me started about osteopenia and acid reflux disease. Grrr. I don't how those people sleep at night.

"For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future." - Jeremiah 29:11 Surgery 4/16/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Dx IDC, 1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2-
Log in to post a reply

Aug 3, 2012 02:46PM - edited Aug 3, 2012 03:49PM by Infobabe

This Post was deleted by Infobabe.
Dx 3/15/2012, DCIS, <1cm, Stage 0, Grade 1, ER+/PR+ Surgery 4/30/2012 Lumpectomy: Left
Log in to post a reply

Aug 3, 2012 02:46PM FireKracker wrote:

Someone should create a tee shirt!!!!!!!

Mini-I read the CNN report on that book.Everything he says is true.They are trying to kill us!!!!

Oh yes they are!!!!!

Focktober!!!!Pink stinks!!!!
Log in to post a reply

Aug 3, 2012 02:57PM Mini1 wrote:

What I found the most scary about it was that a women actually came into the ER at the hospital with her breast in a bag (yes, it fell off) and she still waited 4 hours to be seen. She wasn't shot, bleeding profusly or having a heart attack when they triaged her, so she sat there with it in a bag and waited 4 HOURS. He said they could have saved her for roughly $35k 12 years before but she had no insurance and now, instead, they spent $150k to keep her alive for an add'l 18 months. Where is the logic in that?

In another chapter, they over-treated a man right into the grave (prostate CA). There has to be a happy medium somewhere.

We are a just little guinie pigs for big pharma. There are good drugs to be sure, but it's scary what they are doing and the power they wield.

"For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future." - Jeremiah 29:11 Surgery 4/16/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Dx IDC, 1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2-
Log in to post a reply

Aug 3, 2012 03:11PM Infobabe wrote:

From what I have read, even on this web site, cancer deaths have fallen about 2% a year for the last 20 years.  Try this:

www.medicalnewstoday.com/artic... 

Dx 3/15/2012, DCIS, <1cm, Stage 0, Grade 1, ER+/PR+ Surgery 4/30/2012 Lumpectomy: Left
Log in to post a reply

Aug 3, 2012 03:30PM Mini1 wrote:

Infobabe - I'm sure they have gone down, but it's because of prevention and/or earlier intervention and more people having access to medical care, not cures. I just read one that admitted that they don't believe they will ever find a "cure," just better treatments. Not trying to be a pessimist, just a realist.

"For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future." - Jeremiah 29:11 Surgery 4/16/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Dx IDC, 1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2-
Log in to post a reply

Aug 3, 2012 03:42PM FireKracker wrote:

I do not believe for one second it went down.

I read it was an epedemic.

1 out of 3 will get bc????/what was it before 1 out of 1?

I think im a realist too!!!!!!

Find the reason,vacine or the cure but Find something!!!!!

Focktober!!!!Pink stinks!!!!
Log in to post a reply

Aug 3, 2012 03:48PM - edited Aug 3, 2012 03:52PM by Infobabe

 Mini1

I made a mistake there in my reading of the post.

I heard on NPR a couple of days ago that they have discovered cancer stem cells that are impervious to radiation and chemo.  They hide out and that is what causes mets later.  Now they know the enemy, they can develop treatments to address it.

I think cancer will be cured on the cellular level.  50 years from now they will consider what we do now is barbaric.  That is my unprovable opinion.

My dad died 60 years ago at a young age.  If he had the same health problems today, not only would he had lived but he would have been cured.  My grandmother died of breast cancer in 1939, again, at a young age.  It would not have happened that way today.  Progress has been made and we don't know what will be discovered in the future.  DNA, genome projects, etc, hold so much promise, I am optimistic.  I would love to know what the future holds for breast cancer.

www.npr.org/templates/story/st... 

Dx 3/15/2012, DCIS, <1cm, Stage 0, Grade 1, ER+/PR+ Surgery 4/30/2012 Lumpectomy: Left
Log in to post a reply

Aug 3, 2012 03:59PM 1Athena1 wrote:

It's the present day and I already consider some of what we do barbaric. :)

Death and prevalence rates as a percentage of the whole population, or in raw numbers, cannot be used to judge treatment efficacy for reasons that have been gone into in earlier posts in other forums. If you get BC today, however, you are not that much less likely to die of it than you were 50 years ago - slightly less, but not much less.

Anyone diagnosed with cancer should learn to have a healthy disrespect for statistics. Statistics are maths. It's the science which still eludes us. Dx 3/2009, IDC, 3cm, Stage IIB, Grade 3, 3/8 nodes, mets, ER+/PR+, HER2-
Log in to post a reply

Aug 3, 2012 04:04PM - edited Nov 10, 2015 06:12PM by leggo

This Post was deleted by leggo.
"Once more into the fray... Into the last good fight I'll ever know... Live and die on this day... Live and die on this day." - The Grey
Log in to post a reply

Aug 3, 2012 04:11PM - edited Aug 3, 2012 04:40PM by voraciousreader

I mentioned Dr. Otis Brawley's book..How We Do Harm on the Book Lovers thread as well! It would be a privilege to have his permission to be one of his patients! One of the most important books that I've read in recent memory!




Doctor told me regarding my prognosis that I WASN'T on the Titanic! Hmmm...Really?....Okay! 02/2010 Pure Mucinous Breast Cancer, Oncotype DX 15, Stage 1, Grade 1, 1.8 cm, 0/2 nodes, ER+ 90% /PR+ 70% HER2- (+1)
Log in to post a reply

Aug 3, 2012 04:15PM purple32 wrote:

Patmom

I have come to HATE pink!  I LOVE that slogan !!!!

NEW DX Jan2020 Looking at Mast w/ recon.Lymphedema on LEFT. NO rads. 2 clean nodes. purple32. UPDATE: 2017 blood draw in RIGHT arm CAUSED new LE due to fact arm had just healed from a break and already had an ' insult' plus poor lymph system. Dx 3/2012, IDC, <1cm, Stage I, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 5/1/2012 Lumpectomy: Left
Log in to post a reply

Aug 3, 2012 04:23PM Mini1 wrote:

You have to be careful with statistics. I was watching something the other day where a man said his mother is listed as a survivor because she lived to the 60 month landmark. Nevermind that she died at 66 months. She was a survivor. I believe we will make inroads for sure. My husband is alive because the cancer he was born with and should have showed up before he was five didn't show up until he was in his 20's. When he was five he would have died because there was no treatment. Now he's almost 30 years past chemo and doing just fine.

But we also are dying because we are over-treated because insurance wil pay for it. I'm telling you, read The Harm We Do. All I am saying is that there is no on size fits all treatment. Yet that's how we are treated. I'm treated with the same dosage of a pill that someone twice my size will take. I may not need the same treatment, yet I will get it because that's what the statistics say works. I want necessary treatment, just not unnecessary treatment. I don't want to be treated like I'm courting death because I don't goose step into the cancer center for the same treatment as everyone else. I want choices. I want to be seen as a person not a statistic.

That's more in line with this thread. I'm a person not a statistic.

"For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future." - Jeremiah 29:11 Surgery 4/16/2012 Lumpectomy: Right; Lymph node removal: Right, Sentinel Dx IDC, 1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2-

Page 2 of 109 (3,262 results)