May 18, 2020 03:11PM ctmbsikia wrote:
Got a small garden planted this weekend. I called my sister and brother in law to come over. If I need help, I ask. It would have taken me hours to do what the 3 of us did in less than 1.
Hubs has finished whole brain radiation. Last week I did call the MOs office and spoke to a nurse to say I can't tell if it's the radiation, the medication, or the cancer that has him on a decline. Gave her all the stuff, weight loss, extreme fatigue, not eating or drinking much, sleeping a lot. She said he could have IV fluids if he gets too de-hydrated that may give him a boost. Plus see what his labs say. I said I just wanted to report in since it was a definite change. When his sister was here helping me and listening to me talk through stuff, I thought I'm just going to let him be. Let his brain rest. Quit trying to get him up to eat or drink. As I mentioned before I'm probably over bearing with the -you have to eat this now---you have to take this now. Poor guy. He is yelling at me although his voice is much softer now. Sometimes I just the hand up to stop! I was glad to be outside most of the day on Saturday. I did the same yesterday. I let him be as much as possible. Today, he's up, has some pain, he ate a scrambled egg. He is drinking some. I hated to give him meds seeing him awake, but I don't want NOT to. The memantine and steroid as well as the treatment is what I think caused this decline since he seems way more awake today, although not all the way with it, but better than what he was. I'm still looking death in the face everyday, but if I get one more day, it's one more day. Our daughter broke down watching him last week. He told her he wasn't going anywhere yet.
He made his own cup of tea. He's a little wobbly on his feet. I was watching him earlier, and he told me to quit staring!! Anyway, I hope he continues to rebound a bit. If it's enough to start another chemo is to be determined. I don't see it happening next week, but maybe the following? He sees the MO on Thurs. I took him Friday morning for blood work. He took the elevator up, but took the stairs down. I couldn't believe it. His pants were falling off of him as he was walking out the door and I pulled up to get him. Just thought I'd leave you with that visual!