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Topic: STEAM ROOM FOR ANGER

Forum: Mental Health: Because Cancer Doesn't Just Affect Your Breasts —

Meet and support others who are affected by these issues around anxiety, depression & other emotional effects.

Posted on: Jul 16, 2015 09:21AM - edited Aug 1, 2017 10:46PM by sas-schatzi

sas-schatzi wrote:

This thread is meant to be for RANTS and RANTING. Then Rant again. We need a place to simply get rid of the anger. Write it here. Unleash it all. Get it out. This isn't meant for the Stupid comments(great thread). This is for the gut wrenching, tell them off anger.

IMPORTANT: When done ranting don't necessarily stick around. Toxic. Drop the rant and find a better thread.

Only rules: Please, follow them as the Mods will shut it down in a heartbeat( waving Mods)

1. Be careful to not mention docs, nurses, hospitals by name. Defamation and all that tedious legal stuff

2. If it's caused by someone on BCO, just don't mention their name. I think the exception will be if someone is stalking you, blow their anonymity wide open. A stalker doesn't deserve politeness.

3. If you think the rant is about you, let it go, they're no names. Don't take it personal. This is the steam room.

4. If they're is a fight, don't expect the Mods to moderate, it was your choice to come here.

5. After writing a rant, do nothing more, re-read at a future time. Decide if it's important enough for you to cut and paste the rant to whomever caused you the anger. It's a choice. Sometimes it needs to be done, but remember they're can be fall out.

6. ######## pound those keys, SCREAM(caps), J*&R$WSDF&(swear)

7. Religion and politics discussion should go to those topical threads. IF their is something that impacts cancer, it belongs here.

I will revise topic box as needed-sassy

For puking and the color works pukeewogh

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Page 304 of 310 (9,294 results)

Posts 9091 - 9120 (9,294 total)

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Sep 24, 2021 01:49PM Spookiesmom wrote:

I drove the last Saturn over 100k, till the a/c died in August. Not good in FloriDuh. Would have cost more to fix than it was worth. Now I’m in a Chev hope it’s the last car I ever buy.

First time IDGgrade 3, stage 3. Second time, found lump myself. That made me stage 4. Dx IDC, Stage IIIA, Grade 3
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Sep 24, 2021 01:53PM Spookiesmom wrote:

First time IDGgrade 3, stage 3. Second time, found lump myself. That made me stage 4. Dx IDC, Stage IIIA, Grade 3
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Sep 24, 2021 01:54PM AliceBastable wrote:

We just bought a new car because our loyal 2005 Corolla was finally getting into the expensive repair phase. Once the repairs cost more than the car's worth, it's time. We got one of the less expensive leftover 2021 models, and it still cost more than our first house did about 35 years ago (granted, that house was a wreck). Hubby wanted a sedan, which is what we've always had. I told him I'm at the point of needing my walking stick now, and within the lifetime of this vehicle, it might need to hold a walker or roll-around thingy. He switched to hatchback/small SUV right away, which I appreciated. I like it, but it has running boards and I'm so uncoordinated that I can't figure out how to get in! So far I just fall into my seat.


Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Boring. Hope it stays that way. Dx 5/2018, ILC, Left, 2cm, Stage IA, Grade 1, 1/1 nodes, ER+/PR+, HER2- Surgery 7/10/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/7/2018 Radiation Therapy 10/28/2018 Whole-breast: Breast, Lymph nodes
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Sep 24, 2021 04:39PM Betrayal wrote:

I bought a '98 Buick Regal in 1997 and loved it through a model discontinuation, a model revival, several recalls and it only had 104,000 miles on it when I sold it in 2015. The body was in great shape but it needed a new brake master cylinder and I did not want to pay for that repair. I sold it to a young mechanic who was overjoyed at the shape it was in and told me "it was the nicest new car he had ever owned". The seats were gray leather and still in great shape as well. I received a notice about 6 weeks later that the car had been recalled yet again for a new part so I sent him the info. I sometimes wonder if it is still on the road and to be honest, when they brought back the newer Regal model it wasn't the same. Mine had the black upper and silver trim on the lower half of the car which the newer ones did not. Just loved that car. My newer car is still a black car but black interior since gray was not an option. Love this one as well and it will most likley be my last car and after 3 years it only has 5,550 miles on it. I only had a 4 mile one way commute to work and a 9 mile each way commute on clinical days so not a lot of mileage per week with maybe 2 weeks/tank of gas. Now that I am retired I can get 3-4 weeks out of a tank of gas.

Surgery 1/31/2016 Lumpectomy: Left Surgery 1/31/2016 Lymph node removal: Sentinel Surgery 3/3/2016 Lumpectomy: Left Radiation Therapy 3/30/2016 Whole-breast: Breast Hormonal Therapy 6/24/2016 Arimidex (anastrozole) Hormonal Therapy 5/18/2017 Femara (letrozole) Hormonal Therapy 6/15/2020 Aromasin (exemestane)
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Sep 24, 2021 05:50PM ctmbsikia wrote:

Great car stories. I am partial to pick ups as well. My son has a diesel beast- Chevy. You almost need a pilots license to drive it.

My friend bought dinner over tonight. She’s unvaccinated and I just don’t care. She has been doing everything she can to not catch COVID. It’s not worth me losing a life long friendship. She says they are working on a different type vaccine that’s not mRNA so she’s waiting for that one. OK. She’s not a crazy person, or misinformed, so I respect that even though I don’t agree.

She noticed I grabbed or touched my left boob a few times. I didn’t even realize I was! So I thought yeah - it hurts a little. I did exercise class yesterday. So I’m icing it now for a few. Was it the weights? A whooping 7.5 lbs? push ups? Who knows. I’ve injured my breast doing what they tell me to do!! Exercise! I’m convinced your body just doesn’t like getting pieces and parts cut off! Damn you cancer!!

Dx 12/14/2017, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 1/16/2018, LCIS, Right Surgery 1/30/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/10/2018 Whole-breast: Breast Hormonal Therapy 6/25/2018 Arimidex (anastrozole)
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Sep 24, 2021 08:14PM molliefish wrote:

CTMB my affected breast still hurts 6 years later, more so after any kind of activity. I try not to think about it. We can’t help but be protective me thinks.

Dx 5/24/2015, IDC, Left, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 6/8/2015 Lumpectomy: Left Chemotherapy 8/14/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 1/10/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy Whole-breast: Breast
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Sep 25, 2021 03:05AM Jelson wrote:

ctmbsikia - I totally understand your decision to continue visiting with your unvaccinated friend. I was curious about her decision to wait til there is a non- mRNA available. She may have other objections to the J&J vaccine, but it is NOT mRNA based. www.vcuhealth.org/news/covid-1... Sorry about your breast pain.

Dx 4/17/2009, DCIS, <1cm, Stage 0, Grade 3, 0/0 nodes, ER+/PR+
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Sep 25, 2021 09:49AM Snow-drop wrote:

ladies I need your advice, my MO orders scans some time between 2-6 months depending my conditions, a recent bone scan showed a new uptake, plus I feel stiffness and sometimes swelling in my stomach and abdomen, so my MO ordered scans as stat it would be 2 months from the last scan. Guess what? stupid clueless insurance denied it and downgraded the order to plain scan (without oral) in a general clinic! A stupid md in insurance wrote a rude letter to me indicating that “you have breast cancer, your doctor ordered scan of your belly and breast” how disgusting this tone is. and then “you are not considered at this level of high care” !!!! I am beyond speechless.... I filed appeal, when I was explaining my reasoning to another clueless ‘appeal specialist’ I burst to cry and it was hard to breath, at the end she said “is that all?” again another clueless md reviewed the appeal and downgraded it to standard which takes 30 days for them to make decision.

I guess my emotions led the conversation so I couldn’t land better reasoning, open their eyes to the fact, hey stupids what is higher than stage 4 in your land of ignorance. I am devastated and under a lot of stress. Any word of wisdom would be appreciated.

De Novo stage IV Dx 9/2019, IDC, Left, 4cm, Stage IV, metastasized to bone/other, Grade 2, ER+/PR+, HER2- (IHC) Hormonal Therapy Zoladex (goserelin) Hormonal Therapy Femara (letrozole) Radiation Therapy External: Bone Targeted Therapy Ibrance (palbociclib)
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Sep 25, 2021 10:16AM candy-678 wrote:

Snow-drop-- For clarification--- You said a recent bone scan showed new uptake. Did you change treatment based on the new findings or are you and your MO taking a watch and wait approach? When does your MO want to rescan the bone to monitor those new findings? Also, you said you are having stomach symptoms. Are your labs off? Liver enzymes, etc? What does your MO say about your symptoms? Can your MO document that you are having ____ (fill in the blank) symptoms now and he/she wants a CT, MRI, etc to look at the belly? I would think your MO could appeal the insurance's decision. But, without further evidence of an issue-- out of whack labs for instance-- the insurance might not agree to the scanning the doctor ordered. I wanted a PET 1 year into my diagnosis. To see what the PET would look like after a year of treatment. The insurance denied due to my 3 month CT's were stable (at that time).

As far as their (insurance personnel) attitude. Yeah it sucks. They do not care. It is just a job to them. They do not understand what it is like living with MBC.

Found mets on CT for unrelated issue. I only had 2 treatments with IV chemo for the Stage II, then found Stage 4 and switched to hormone therapy/targeted therapy. I consider myself de novo. Xgeva use for bone mets. Liver bx Apr 2021 shows ER- now. Dx 6/2017, ILC/IDC, Left, 3cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 7/11/2017 Lymph node removal: Sentinel; Mastectomy: Left Chemotherapy 7/31/2017 AC Dx 9/2017, ILC/IDC, Stage IV, metastasized to bone/liver, 0/1 nodes, ER+/PR+, HER2- Hormonal Therapy 11/1/2017 Femara (letrozole), Zoladex (goserelin) Targeted Therapy 11/1/2017 Ibrance (palbociclib) Dx 4/2021, ILC/IDC, Stage IV, metastasized to bone/liver, ER-/PR+, HER2- (FISH) Targeted Therapy 9/3/2021 Lynparza Hormonal Therapy 9/4/2021 Zoladex (goserelin)
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Sep 25, 2021 10:18AM - edited Sep 25, 2021 10:23AM by Sunshine99

Snow-drop - UNBLELIEVABLE!!! Do you have an Insurance Commissioner in your state? I've heard they can sometimes get things moving when your insurance company is balking at a necessary procedure or test. Sheesh!!!

Edited to add: I'm so mad I can hardly type! I'd love to call this so-called MD up and ask "Do you know what MET-A-STAT-IC means???" I'd pronounce the word REALLY slowly, just in case.

Cancer has progressed to my bones. I pray that it never enters my soul. Dx 11/2/2007, IDC, 3cm, Stage IIA, 0/3 nodes, ER+/PR+, HER2- Dx 3/26/2020, ILC/IDC, Stage IV, metastasized to bone, ER+/PR-, HER2- (FISH) Hormonal Therapy 4/22/2020 Arimidex (anastrozole) Radiation Therapy 5/5/2020 External: Bone Radiation Therapy 5/12/2020 External: Bone Targeted Therapy 6/10/2020 Ibrance (palbociclib)
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Sep 25, 2021 10:48AM bcincolorado wrote:

spookiesom that is too funny!! We got our car in February and think we have filled up one time if that much and it was because DH had to drive to to Denver for an appointment which is about 72 miles from our our house to the VA hospital and back. Most miles we've had on it.

snowdrop how is your doctor's office in in their appeals for you? I know with DH one of his docs says he has to do things a certain way and that it is and he has not had an issue. Not sure if he just says he'll lower his fee or what to make them agree but he advocates for him. It is his doctor who does it though and not his staff I know. A lost of docs will not and have staff handle things who may or may not be foreceful or do it right or "code it right" which is often the problem too it seems when they go in to the insurance companies.


Dx 8/2009, IDC, Left, 5cm, Stage IIA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 1/6/2010 Lumpectomy: Left; Lymph node removal: Left Hormonal Therapy 1/14/2010 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/29/2016 Femara (letrozole)
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Sep 25, 2021 06:05PM KBL wrote:

Snow-drop, I’m sorry you’re having so much trouble with insurance. I have a question for you. With your stomach, are you having issues with eating or losing weight? I know we’re different because scans don’t see my cancer, but if you’re having stomach issues, you might want to have an endoscopy. That’s how my cancer was found in my stomach

De Novo ILC - No primary found. Mets to full spine, femurs, skull, and stomach. Dx 5/1/2019, ILC, Stage IV, metastasized to bone/other, ER+/PR+, HER2- (FISH) Hormonal Therapy 6/24/2019 Femara (letrozole) Targeted Therapy 6/24/2019 Ibrance (palbociclib) Hormonal Therapy 9/20/2021 Faslodex (fulvestrant) Chemotherapy 9/27/2021 Xeloda (capecitabine)
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Sep 25, 2021 08:22PM Jumpship wrote:

Molliefish I’m angry with you. Sometimes the pain is so much it makes me cry. It’s been 7 years and 3 pts later. Found a crazy hard massage therapist that found some scar tissue to work out so I gain range of motion. Still daily pain. No one understands.

Lupron shot made my legs swell for the first time, along with hot flashes and fatigue. I hate laying in bed but needed to do that often today. I’m too young for this. Doc says ‘be happy you are alive.’ Friends think I’m cured. Ugg

Negative for 16 of 17 gene markers. Positive for NBN-marker of unknown significance. Dx 7/2/2014, IDC, Left, 2cm, Stage IIA, Grade 2, 0/4 nodes, ER+/PR+, HER2+ (FISH) Surgery 9/29/2014 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 11/20/2014 Herceptin (trastuzumab) Chemotherapy 11/20/2014 Carboplatin (Paraplatin), Taxotere (docetaxel)
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Sep 26, 2021 06:34AM bcincolorado wrote:

They think you are "cured" because they see those stupid commercials on TV of people who are Stage IV and on heavy meds living these full happy lives and they buy into it. We know it is not reality and a lot do not make it. Even with "nice cancer" it can come back somewhere and bit you and you are never free once you have it. You are labeled by all the doctors as a cancer patient and they know it. I am dreading pinktober coming too. We are already seeing commercials on TV about it here.

Dx 8/2009, IDC, Left, 5cm, Stage IIA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 1/6/2010 Lumpectomy: Left; Lymph node removal: Left Hormonal Therapy 1/14/2010 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 1/29/2016 Femara (letrozole)
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Sep 26, 2021 07:21AM exbrnxgrl wrote:

I guess they don’t actually listen to what those commercials are saying because cure is never mentioned! They simply say the meds may help you live longer.

Bilateral mx 9/7/11 with one step ns reconstruction. As of 11/21/11, 2cm met to upper left femur Dx 7/8/2011, IDC, Left, 4cm, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Surgery 9/7/2011 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Dx 11/2011, IDC, Left, 4cm, Stage IV, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 11/21/2011 Arimidex (anastrozole) Radiation Therapy 11/21/2011 Bone Hormonal Therapy 6/19/2014 Femara (letrozole) Hormonal Therapy Aromasin (exemestane)
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Sep 26, 2021 07:50AM Rosiecat wrote:

I dread the annual breast cancer pinkwashing fest. Give it a week and the UK will be flooded with cheap pink rubbish, marketed to make the gullible believe they're making a difference. If you really want to make a difference then give a your money or your time to cancer research or your local hospice.

I particularly hate the notion that a breast cancer diagnosis means we can join the pink 'sisterhood', have the surgery, have the chemo, have the rads and that's it, we're good to go. Breast cancer isn't pretty and pink, it's ugly and black. This miserable cancer has no cure and it's with us until we die.

Dx 8/24/2018, Left, 2cm, Stage IIA, Grade 2, 0/7 nodes, ER-/PR-, HER2- Surgery 9/17/2018 Mastectomy: Left Chemotherapy 10/21/2018 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel)
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Sep 26, 2021 08:57AM Pi-Xi wrote:

“Breast cancer isn't pretty and pink, it's ugly and black. This miserable cancer has no cure and it's with us until we die.” Well said, Rosiecat!

Oncotype 12 Dx 4/7/2016, DCIS, Left, 2cm, Stage 0, Grade 1, ER+/PR+ Surgery 7/11/2016 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Dx 8/3/2016, DCIS/IDC/IDC: Papillary, Left, 1cm, Grade 2, ER+/PR+, HER2- Hormonal Therapy 8/31/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Sep 26, 2021 09:21AM sbelizabeth wrote:

Oh, gosh, it's almost October. Here we go. Pink fluffy tutus, pink "save the ta-tas" tee shirts, wild pink wigs, bedazzled pink bras, pink, pink, pink. Breast cancer has been trivialized and sexualized.

The whole pinkwashing approach seems to be loosing a little steam in the last few years, but it's still galling. You're right, Rosiecat, it's ugly and black. But ugly and black--a lumpy red scar where my breast used to be, oozing radiation burns, financial insecurity, wondering how my family will get along without me, relentless fear--these things don't sell products. Breast cancer is for parties! Breast cancer sells! Breast cancer is SEXY!

When we have prostate cancer "awareness" with men wearing bedazzled jockey shorts on the outside of their jeans, wearing tee shirts declaring "Save the Cojones!" then we'll talk.

pinkribbonandwheels.wordpress.... Dx 10/20/2011, IDC/IBC, Left, 1cm, Stage IIIB, Grade 2, 6/28 nodes, ER+/PR+, HER2- Chemotherapy 12/15/2011 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 4/18/2012 Mastectomy: Left Radiation Therapy 5/21/2012 Breast, Lymph nodes Hormonal Therapy 7/19/2012 Femara (letrozole) Surgery 4/15/2013 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Sep 26, 2021 09:43AM Rosiecat wrote:

The 'save the tatas' T-shirts did it for me. My breast was killing me so I had it chopped off, how sexy is that? Stuff the breasts, save the human being behind them! Sexualising something as horrendous as breast cancer is sick. I'd be happier wearing a T-shirt with 'breasts can kill' emblazoned across it.

Dx 8/24/2018, Left, 2cm, Stage IIA, Grade 2, 0/7 nodes, ER-/PR-, HER2- Surgery 9/17/2018 Mastectomy: Left Chemotherapy 10/21/2018 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel)
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Sep 26, 2021 09:53AM GG27 wrote:

Pinktober has already started here. I was accosted by 2 people, one on each side of the doorway, trying to get me to donate to some pink charity as I came out of the grocery store. Way too close to me even tho we are all wearing masks. I've been dealing with BC for 14 years, I think I've given enough. And honestly, when I needed some financial help to pay for a medication that was not covered, not one of these charities came through.

Dx 10/2008, IDC, Both breasts, 3cm, Stage IIB, Grade 2, 3/9 nodes, mets, ER+/PR+, HER2- Surgery 1/8/2009 Lymph node removal; Mastectomy: Left, Right Chemotherapy 2/1/2009 Other Radiation Therapy 7/5/2009 Whole-breast: Breast, Lymph nodes Dx 5/14/2014, IDC, Both breasts, Stage IV, metastasized to bone/liver/other, 9/20 nodes, mets, ER+/PR+, HER2- Chemotherapy Abraxane (albumin-bound or nab-paclitaxel)
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Sep 26, 2021 09:53AM exbrnxgrl wrote:

Since breasts have always been seen as sexual objects it comes as no surprise that bc should have become trivialized by fluffy, pink, innuendo filled, sexualized campaigns. I want none of it!

Bilateral mx 9/7/11 with one step ns reconstruction. As of 11/21/11, 2cm met to upper left femur Dx 7/8/2011, IDC, Left, 4cm, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Surgery 9/7/2011 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Dx 11/2011, IDC, Left, 4cm, Stage IV, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 11/21/2011 Arimidex (anastrozole) Radiation Therapy 11/21/2011 Bone Hormonal Therapy 6/19/2014 Femara (letrozole) Hormonal Therapy Aromasin (exemestane)
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Sep 26, 2021 10:01AM SuQu31 wrote:

I’m sure I’ve told this story before, but it deserves a re-run. All of my appointments (two mammograms, biopsy, MRI, ultrasound and surgeon visits) were during October. When my husband and I arrived for my biopsy appointment at the imaging center, they were having a “breast cancer party”in the waiting area, complete with pink punch, cookies, goodie bags and music. I passed on the punch and cookies, but took the goodie bag (which had a very useful ribbon-shaped gel ice pack that fit nicely into my bra) because I like free things.

Anyway, it was disgusting and completely tone deaf! I’m all in favor of encouraging women to have annual mammograms, but at the imaging center? I mean, we were already there for imaging! And celebrating?!? What exactly were we celebrating, especially those of us confirming our breast cancer with biopsies?

After that, the other things don’t bother me as much, but the people who profit from the breast cancer enterprise while doing little to help advance survival rates…well, they don’t even merit a comment.

Also, I like pink as a color and it happens to look good on me. Magenta, hot pink, geranium, rose- all shades except Pepto Bismol. I will continue to wear it, but because people know I had breast cancer, now I worry they think it’s for “that” reason. Nope, but you will not take my breasts and my pretty color too!

Re-excision for close anterior margin 10 days after BMX. Dx 10/31/2018, DCIS, Left, Stage 0, Grade 3, ER-/PR- Dx 12/10/2018, DCIS, Left, 2cm, Stage 0, Grade 3, 0/3 nodes, ER-/PR- Surgery 12/10/2018 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Latissimus dorsi flap; Reconstruction (right): Latissimus dorsi flap Surgery 12/20/2018 Surgery 9/13/2019 Reconstruction (left): Fat grafting, Silicone implant; Reconstruction (right): Fat grafting, Silicone implant
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Sep 26, 2021 10:08AM - edited Sep 26, 2021 10:30AM by Snow-drop

candy and kBL, the order is for chest abdomen and pelvis with injection and oral contrasts. I m concerned about fluid in my abdomen. That stupid md downgraded everything he referred chest to breast and abdomen to abdomen, which disgusted me reading those words. I don't feel hungry- happened after radiation- I didn't lose weight, but gain which raises a concern.

Sunshine, I surely called him much worse and made sure they transferred to him! The problem is that the order was approved first by a coordinator then that stupid clueless so-called md reviewed and downgraded it.

Bcincolorado, I had MO's nurse to call them so they would change the authorization but I guess she did not put a good effort to convince them, she sent me the address of new location and advised to bring cd of images in your follow up appointment!!!!! again I called her to let her I filled an appeal and if she can provide support, still waiting for her call back! My good guess is that staff in cancer center don't want extra responsibility, in simple words they don't care at all....

and surely those nonsense commercials brainwashed easily whoever does not have any clue what MET-A-STAT-IC means, or what is like living with mbc.

Rosiecat, I am going to quote this here and there specifically during October! In fact the mentality that created pink for BC leads many shallow minded towards downgrading mbc or BC that stupid md included, tone of his letter proved it.

Thanks all for input.


De Novo stage IV Dx 9/2019, IDC, Left, 4cm, Stage IV, metastasized to bone/other, Grade 2, ER+/PR+, HER2- (IHC) Hormonal Therapy Zoladex (goserelin) Hormonal Therapy Femara (letrozole) Radiation Therapy External: Bone Targeted Therapy Ibrance (palbociclib)
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Sep 26, 2021 10:17AM Spookiesmom wrote:

If ANYONE wants a donation from me, I run my hand across my chest and say I’ve donated enough.

First time IDGgrade 3, stage 3. Second time, found lump myself. That made me stage 4. Dx IDC, Stage IIIA, Grade 3
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Sep 26, 2021 10:24AM AliceBastable wrote:

I found these on a trip to New York in the Rochester area in 2019. They almost ruined my vacation.



Endometrial cancer 2010, basal cell multiples, breast cancer 2018, kidney cancer 2018. Boring. Hope it stays that way. Dx 5/2018, ILC, Left, 2cm, Stage IA, Grade 1, 1/1 nodes, ER+/PR+, HER2- Surgery 7/10/2018 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 8/7/2018 Radiation Therapy 10/28/2018 Whole-breast: Breast, Lymph nodes
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Sep 26, 2021 11:05AM exbrnxgrl wrote:

Let me state that I dislike all prescription drug commercials. I wish they had never been allowed. Commercials are there to sell something and although I am no marketing expert, I would imagine that they are carefully crafted to generate the most sales. You know all those happy, well looking folks on the Ibrance/Qisqali/Verzenio commercials? I look just like them though I know I am the exception. Re none of these commercials claim to cure bc. With that in mind, no pharmaceutical advert shows the ugly side of the disease it’s supposed to help and they are never going to. I think the real solution is to stop allowing these commercials altogether but I don’t hold out hope for that.

Bilateral mx 9/7/11 with one step ns reconstruction. As of 11/21/11, 2cm met to upper left femur Dx 7/8/2011, IDC, Left, 4cm, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Surgery 9/7/2011 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Dx 11/2011, IDC, Left, 4cm, Stage IV, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 11/21/2011 Arimidex (anastrozole) Radiation Therapy 11/21/2011 Bone Hormonal Therapy 6/19/2014 Femara (letrozole) Hormonal Therapy Aromasin (exemestane)
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Sep 26, 2021 11:18AM Rosiecat wrote:

Snow-drop -- Your treatment has been appalling. Your MD has no idea, probably never will have. Wrong person, wrong job. Maybe you could educate him, tell him exactly how it feels to have been diagnosed with metastatic breast cancer - someone should! Your stress levels must be through the roof, I'm angry on your behalf. And no, the fluffy pink shallow minded image doesn't help.



Dx 8/24/2018, Left, 2cm, Stage IIA, Grade 2, 0/7 nodes, ER-/PR-, HER2- Surgery 9/17/2018 Mastectomy: Left Chemotherapy 10/21/2018 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel)
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Sep 26, 2021 11:18AM Harley07 wrote:

Snow-drop: the insurance reply is totally unacceptable and cold hearted. The insurance company MD needs to go back to med school for more training if they don't understand Stage IV. I am so sorry you are going thru the insurance approval hassle while dealing with a serious illness. You don’t need more stress in your life. Is there a patient advocate at your cancer center that you can contact for assistance?

Surgery 11/5/2020 Lumpectomy: Right Dx 11/10/2020, IDC, Right, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 11/19/2020 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 1/7/2021 Hormonal Therapy 2/8/2021 Arimidex (anastrozole)
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Sep 26, 2021 11:53AM Harley07 wrote:

Random Rant - I have lost all confidence in U.S. healthcare over the past year. The system is broken. There have been too many mistakes in my BC treatment. Errors made during biopsies, surgeon didn't think about incision placement prior to getting in the OR and now admits it was less than ideal leading to permanent breast lymphedema; nuclear med tech telling me that radiologist injecting radioactive material for SNB 'didn't know what he was doing'; bizarre RO team; another patient's info being ported into my records etc.. All in the past year.

The last straw was this past week. My SIL started having seizures 7 weeks ago. Her rural hospital ER doctor was very concerned and had her med-flighted to a larger hospital with instructions for brain scans. The larger hospital blew off the ER doc's recommendations, diagnosed a UTI and released her. She ended up back in the rural hospital ER a few weeks later and they transferred her to an even larger hospital. Those docs were concerned. SIL was diagnosed with glioblastoma this week. Prognosis is 2-3 months. While the delay in diagnosis didn't change the prognosis, I do wonder how the heck the first hospital diagnosed a UTI instead of the correct diagnosis of brain cancer.

A regional hospital in my area (not the hospital system I am using) didn't renew the contract with the anesthesiologists group. They hired another 3rd party that does not have any doctors certified to work in my state. It is expected to take months to resolve. Meanwhile the ~2000 surgeries/month that were being performed at this hospital are being cancelled or shifted to other facilities. Public health department just revoked the hospital's trauma certification. How do they manage to screw up so badly?

I'd like to say I'm done with doctors, but at my age, I don't think it is possible. OTOH continuing to see doctors scares the heck out of me.

Surgery 11/5/2020 Lumpectomy: Right Dx 11/10/2020, IDC, Right, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 11/19/2020 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 1/7/2021 Hormonal Therapy 2/8/2021 Arimidex (anastrozole)
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Sep 26, 2021 12:08PM - edited Sep 26, 2021 12:08PM by 2019whatayear

Is your sister in law older? If so they probably dismissed any cognitive symptoms as part of a UTI since in older people a UTI can present like that. Terrible that happened and I'm sorry all around.


RE: the cute-tifcation of breast cancer. If it's cute and pink and fun then it doesn't need to be taken seriously. Devil

5/6/2019 IDC 2cm, micromet 1/9 nodes, BRCA2+, ER+, PR+, HER- BMX 6/2019, A/C & Taxol 2019, Radiation, BSO - preventative 2/2020, Letrozole 3/1/2020, Started Lynparza for 1 year preventative on 7/18/2021

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