Topic: STEAM ROOM FOR ANGER

Forum: Mental Health: Because Cancer Doesn't Just Affect Your Breasts — Meet and support others who are affected by these issues around anxiety, depression, and other emotional effects.

Posted on: Jul 16, 2015 09:21AM - edited Aug 1, 2017 10:46PM by sas-schatzi

Posted on: Jul 16, 2015 09:21AM - edited Aug 1, 2017 10:46PM by sas-schatzi

sas-schatzi wrote:

This thread is meant to be for RANTS and RANTING. Then Rant again. We need a place to simply get rid of the anger. Write it here. Unleash it all. Get it out. This isn't meant for the Stupid comments(great thread). This is for the gut wrenching, tell them off anger.

IMPORTANT: When done ranting don't necessarily stick around. Toxic. Drop the rant and find a better thread.

Only rules: Please, follow them as the Mods will shut it down in a heartbeat( waving Mods)

1. Be careful to not mention docs, nurses, hospitals by name. Defamation and all that tedious legal stuff

2. If it's caused by someone on BCO, just don't mention their name. I think the exception will be if someone is stalking you, blow their anonymity wide open. A stalker doesn't deserve politeness.

3. If you think the rant is about you, let it go, they're no names. Don't take it personal. This is the steam room.

4. If they're is a fight, don't expect the Mods to moderate, it was your choice to come here.

5. After writing a rant, do nothing more, re-read at a future time. Decide if it's important enough for you to cut and paste the rant to whomever caused you the anger. It's a choice. Sometimes it needs to be done, but remember they're can be fall out.

6. ######## pound those keys, SCREAM(caps), J*&R$WSDF&(swear)

7. Religion and politics discussion should go to those topical threads. IF their is something that impacts cancer, it belongs here.

I will revise topic box as needed-sassy

For puking and the color works pukeewogh

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Apr 14, 2018 02:02PM - edited Apr 14, 2018 03:18PM by chronicpain

Janila03, you need to be sure what the final biopsy report showed and of course also complete the PET. There is a big difference between a negative biopsy and a biopsy with insufficient tissue, still waiting on final review, or whatever “no component information" means in your hospital.

Hoping both bx and PET are negative and best wishes,

CP

After a decade of autoimmune problems, Dx 10/2017 at age 63, IDC, Left, 9mm, Oncotype 13, Stage IA, Grade 1, 0/5 nodes, ER+/PR+, HER2-, 11/22/2017 Lumpectomy, Arimidex. Declined radiation.
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Apr 14, 2018 02:30PM notbrokenjustbent wrote:

This is a HUGE issue for me. I am not stage 4 but these Ibrance commercials piss me off! What happened to Julie and now we have Alice? They encourage you to tell your doctor about Ibrance? IMHO any stage 4 sisters that have a doctor that does not know about Ibrance, RUN!!! OMG.... no wonder it is so expensive. Swear to God, every half our they advertise. Bring down the damn costs for love of god!

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Apr 14, 2018 02:36PM marijen wrote:

NBJB Alice is definitely too cheerful. You think the Ibrance people want you to push for it whether or not it’s the right choice. That’s just wrong.

Janila, too be sure why not get a second opinion from a hepatologist? (After you get your Pet Scan results)

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Apr 14, 2018 09:07PM runor wrote:

Lita, don't tell me your rhubarb is already up enough that you can harvest and bake with it ?!? And I still have a glacier on my lawn (grumble, Canada).

Dx 3/23/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 4/12/2017 Lumpectomy; Lumpectomy (Left); Lymph node removal Radiation Therapy 7/4/2017 Whole breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Apr 14, 2018 10:32PM Lita57 wrote:

In California, peak rhubarb season is April thru July :).

Spring is late coming in many parts of the country, sadly.


Stage IV De Novo, Occult, Amorphic. New Brain Mets Aug 2017. Now on Gemzar and Zometa. Dragged into an arranged marriage with Mr. Cancer that I didn't agree to, and divorce is forbidden. Grateful for however many GOOD days I have left. Dx 4/14/2016, IDC, Left, Stage IV, metastasized to bone/liver/other, ER+/PR+, HER2- Radiation Therapy 4/26/2016 External: Bone Targeted Therapy 5/14/2016 Chemotherapy 5/21/2016 Xeloda (capecitabine) Radiation Therapy 4/19/2017 External: Bone Dx 8/23/2017, IDC, 5cm, Stage IV, metastasized to brain, Grade 3, ER+/PR+, HER2- Radiation Therapy 9/5/2017 External: Brain Chemotherapy 10/10/2017 Taxol (paclitaxel)
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Apr 15, 2018 08:00AM Dianarose wrote:

Lita- you are so lucky with your weather. It is freezing here in Maine! Some years we reall don’t get a spring. Had some snow and freezing rain last night. We are going to Bermuda on the 4th. Looking forward to warm weather and sunshine ☀️.

6/10/13 mets to ovary now. Now mets. To peritoneal stage IV Dx 3/22/2012, ILC, Both breasts, 1cm, Stage IV, metastasized to bone/other, Grade 2, 17/17 nodes, ER+/PR+, HER2- Chemotherapy 5/30/2012 CMF Radiation Therapy 12/2/2012 3DCRT: Breast, Lymph nodes Hormonal Therapy 8/9/2013 Aromasin (exemestane) Targeted Therapy
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Apr 19, 2018 04:20PM - edited Apr 24, 2018 04:00PM by marijen

This Post was deleted by marijen.
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Apr 19, 2018 05:28PM Lita57 wrote:

Marijen,

That just might be. Hey, we have robotic cars now. The robot drs could just punch all the symptoms into a computer and probably come up w/better answers than a dr might. I don't need a "touchy feely" doc....I just want somebody (or some THING) who can treat me properly and not give me the run around.

But I wouldn't mind having that halogram doc from one the Star Trek shows. He seems pretty sharp. Wouldn't want Gregory House, tho. Loved the show, but his bedside manner left MUCH to be desired.

L

Stage IV De Novo, Occult, Amorphic. New Brain Mets Aug 2017. Now on Gemzar and Zometa. Dragged into an arranged marriage with Mr. Cancer that I didn't agree to, and divorce is forbidden. Grateful for however many GOOD days I have left. Dx 4/14/2016, IDC, Left, Stage IV, metastasized to bone/liver/other, ER+/PR+, HER2- Radiation Therapy 4/26/2016 External: Bone Targeted Therapy 5/14/2016 Chemotherapy 5/21/2016 Xeloda (capecitabine) Radiation Therapy 4/19/2017 External: Bone Dx 8/23/2017, IDC, 5cm, Stage IV, metastasized to brain, Grade 3, ER+/PR+, HER2- Radiation Therapy 9/5/2017 External: Brain Chemotherapy 10/10/2017 Taxol (paclitaxel)
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Apr 19, 2018 05:35PM lorica wrote:

Notbroken you made me laugh out loud for real because every time I see Julie (and now Alice) she gets a big F.U. from me hahaha! I'm HER2+ so Ibrance isn't for me, I just get so mad because I think it's misleading, that if you take Ibrance you'll feel great and be all happy and cheerful. B.S. Maybe Julie and Alice are supposed to be Stage IV NEAD and maybe if you're NEAD you do feel that good? All I know is that if I'm having a rough day and that commercial comes on, better watch out! You're absolutely right, they should stop spending money on advertising and work on reducing these insane costs we'll be incurring for the rest of our lives. I wonder if Ibrance knows (or cares) how much we all hate those commercials?

marijen the best thing about having a PPO instead of an HMO is getting to bypass the need to get a referral from a PCP. I can just go directly to any specialist I want. I do coordinate everything through my M.O. but I haven't seen my PCP since my diagnosis because my M.O. has handled anything that hasn't required another specialist (like my cardiologist). I get it that going through a PCP makes sense for most people, but not when you have something complicated like cancer that is beyond their scope. I think it would make more sense if they would let you designate your M.O. as your PCP as long as you're in treatment.

IBC Stage IV de novo - mets throughout skeleton (bones & now bone marrow), liver, dozens of distant nodes, chest wall/pec muscle, skin, tumor in brachial nerves, thyroid, polycythemia from bone marrow involvement Dx 9/8/2017, IBC, Right, Stage IV, metastasized to bone/liver/other, Grade 3, ER+/PR-, HER2- Chemotherapy 9/25/2017 Taxol (paclitaxel) Targeted Therapy 2/5/2018 Perjeta (pertuzumab) Targeted Therapy 2/5/2018 Herceptin (trastuzumab) Chemotherapy 11/25/2018 Taxol (paclitaxel) Radiation Therapy 1/29/2019 Whole breast: Breast, Lymph nodes, Chest wall Targeted Therapy Kadcyla (T-DM1, ado-trastuzumab) Targeted Therapy Enhertu (fam-trastuzumab deruxtecan-nxki)
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Apr 19, 2018 06:05PM micmel wrote:

LoriCa~ I am stage four NEAD. I do NOT feel or act like Julie or Alice. And I am 47. There is no way, I could be up all day long, no less run up and down stairs and teach a few dozen students. Without breaking into the worst sweat heat flash, then I would need fifteen minutes just to look like a normal human being. Because I’ve sweat through my skin through every cell in my body and I am soaking wet. My hair is stuck to my head and then I feel like I need a hair dryer to dry off. Those commercials are crap!!! Some women do feel good. But I would suppose they are not jogging regularly, or they would use real People to do the ads. But the reason they don’t is, no one wants to find hope in seeing a hunched over, muscled bound, pain ridden, sometimes dizzy, sometimes red in the face, sometimes exhausted, fatigue ridden beyond measure. They want people to think that this will bring them closer to who they used to be. It is just not true for everyone. At least no one I know. Crock of shit! ~M~ They want the people that look like they are doing just fine. I’m doing ok. But there are NO guarantees As we know !

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/21/2016 Lymph node removal; Lymph node removal (Left): Underarm/Axillary; Mastectomy; Mastectomy (Left) Chemotherapy 7/19/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/6/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)

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