Meet and support others who are affected by these issues around anxiety, depression & other emotional effects.
Posted on: Jul 16, 2015 12:21PM - edited Aug 2, 2017 01:46AM by sas-schatzi
This thread is meant to be for RANTS and RANTING. Then Rant again. We need a place to simply get rid of the anger. Write it here. Unleash it all. Get it out. This isn't meant for the Stupid comments(great thread). This is for the gut wrenching, tell them off anger.
IMPORTANT: When done ranting don't necessarily stick around. Toxic. Drop the rant and find a better thread.
Only rules: Please, follow them as the Mods will shut it down in a heartbeat( waving Mods)
1. Be careful to not mention docs, nurses, hospitals by name. Defamation and all that tedious legal stuff
2. If it's caused by someone on BCO, just don't mention their name. I think the exception will be if someone is stalking you, blow their anonymity wide open. A stalker doesn't deserve politeness.
3. If you think the rant is about you, let it go, they're no names. Don't take it personal. This is the steam room.
4. If they're is a fight, don't expect the Mods to moderate, it was your choice to come here.
5. After writing a rant, do nothing more, re-read at a future time. Decide if it's important enough for you to cut and paste the rant to whomever caused you the anger. It's a choice. Sometimes it needs to be done, but remember they're can be fall out.
6. ######## pound those keys, SCREAM(caps), J*&R$WSDF&(swear)
7. Religion and politics discussion should go to those topical threads. IF their is something that impacts cancer, it belongs here.
I will revise topic box as needed-sassy
For puking and the color works pukeewogh
Posts 9571 - 9600 (9,881 total)
Nov 17, 2021 03:35PM exbrnxgrl wrote:
Thinking of your mom and hoping it isn’t too serious. Thinking of you too as I know it’s a worrisome situation.
Nov 17, 2021 03:39PM moth wrote:
oh no Beesie, sending best wishes to your mom. Glad you were finally able to see her.
Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the OddsDx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/19/2020 Tecentriq (atezolizumab) Chemotherapy 11/26/2020 Abraxane (albumin-bound or nab-paclitaxel) Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, PR-, HER2- (IHC) Radiation Therapy 12/9/2020 External: Chest wall Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/3/2021 External: Bone
Nov 17, 2021 03:44PM bcincolorado wrote:
Oh Bessie! Will keep good thoughts going she is ok. I am sure with her condition it is complicated as well as her age. Keep us posted.
Nov 17, 2021 03:55PM wrenn wrote:
So sorry Beesie, So not fair. Hoping for a good outcome for you and for her. xo
Nov 17, 2021 03:59PM SuQu31 wrote:
I am so sorry you both are going through this. It is hard enough, but not being able to be together- and you not being able to help answer questions- must have been awful for you both. I know you are both exhausted and my thoughts are with you.
And yes, coffee and cookie (s).
Nov 17, 2021 04:13PM Beesie wrote:
Maybe I shouldn’t have complained. Waiting alone was easier than now. I’ve been sitting with her now for 2 1/2 hours, except for when she was off getting imaging. With her lack of comprehension, it’s hard to get her to stay still; she keeps trying to sit up or get up, which she can’t do. She keeps trying to remove the neck brace she has on (I don’t blame her - it looks uncomfortable). She doesn’t understand that she’s at the hospital. Best when she drops off to sleep.
Nov 17, 2021 05:46PM Jelson wrote:
Beesie, was your mom alone for two hours in the holding area waiting for an ER room before you were able to be with her? so she has been waiting for like 5 hours with a dislocated shoulder? I am so sorry for both of you. Hope her injuries get assessed and taken care of really fast now and she gets to go home to familiar surroundings ASAP.
Nov 17, 2021 05:53PM AliceBastable wrote:
Beesie, what a horrible day for both of you. Her Alzheimer's must make it so much harder. Does the hospital have a social worker or Alzheimer's specialist who can assist?
Nov 17, 2021 05:56PM cm2020 wrote:
Beesie....What a bloody rotten day for both you and your mom. I really hope they are at least giving her pain meds for her shoulder. But jeez, that is a long miserable amount of time to spend in the ER. I hope she is treated and released very soon.
Nov 17, 2021 07:26PM sbelizabeth wrote:
Beesie, are you named as your mom’s healthcare agent, and are you making her medical decisions? Ifyes, it would be no different than if they had insisted a 4-year-old wait without a parent. You can’t be responsible for decisions regarding her care if you aren’t allowed to be with her. I would be raising holy hell.
Nov 17, 2021 09:23PM bcincolorado wrote:
Bessie I imagine her nurses are aware as well of the situation and may be able to help as well. I know a lot of hospitals have "rules" especially about people being there but there are exceptions as we all know. We were actually called by a nurse once for my husband to go sit with his did at his bedside since it would help calm him when he was on a vent after surgery and kept trying to yank it out and hurting himself and became combative with them because of the meds. It was a VA hospital and VERY strict with visitation. He sat there for 2 days straight until they get wean him off the vent. They were happy to have him there. Nurses know what patients need and sometimes t is family right there. I'm sure as a cancer patient you already learned to not be intimidated by doctors anymore either. I sure did. I also learned how to research stuff as well on my own
Nov 17, 2021 10:09PM Beesie wrote:
Well, I'm back home. After the x-ray and CT scan, it was confirmed no brain bleed and nothing fractured. Her shoulder will be very sore for a while and my mother has lots of bruises including one very big gash on her arm. The doctor thought she might need stitches but determined that the cut isn't deep enough, although a large strip of skin got scraped off. Really gross - I'm not usually bad with these things but after a couple of glances, I had to look away. The doc gave her a tetanus shot.
selizabeth, yes, I have medical power of attorney for my mother. I also have 'essential caregiver' status; this is a designation that the Ontario government created as a way to allow a limited number of family members and caregivers into LTC facilities during COVID. So it is absurd and completely unacceptable that I could not get in and my mother was alone in the ER for 2 hours. She can't advocate for herself; $#i+, she didn't even understand that she was at a hospital. And of course it wasn't just me; over the 2 hours I was waiting, there were several other people put in the same position - having to wait outside of the hospital while an elderly family member was in the ER, waiting to be assigned a room. The way it was explained to me, it is crowded with lots of coming & going traffic in the stretcher holding area and it's a safety hazard to allow anyone in. But once the patient is in their little private ER room, then one family member can join them. bcincolorado, what nurse? Until the patient gets into an ER room, there are nurses around monitoring blood pressure and stuff but no one is really taking care of them.
I will escalate this and write a complaint but in the moment there was nothing I could do, although I sure didn't make any friends. I tried to speak to someone in charge, as did other people, and we got nowhere on that. I'm sure that they have many irate family members every day and they are set up to handle that. At the ER entrance they had two security guards and one nurse who would probably be very effective dealing with high risk convicts at a prison. Lacking in empathy is an understatement. It was impossible to even cross the threshold of the building - they would not budge, but simply repeated their asinine rule over and over any time anyone complained.
All that said, once my mother was in an ER room and I was allowed in, the nurse, doctor and the tech who took her for imaging were all great. My mother is very sensitive to pain - I've heard it's an Alzheimer's thing - and at various points when they were working on her (changing her bandages, for example) she would screech at a level and pitch that could pierce eardrums. Everyone there took it in stride.
A long day. In the end, my mother is fine, relatively speaking. And while I will do what I can to try to get them to change this stupid policy, at least I know that if my mother is ever taken to this hospital again, I certainly don't need to drop everything I'm doing and rush over there.
Nov 17, 2021 10:20PM bcincolorado wrote:
Glad to hear it. I am sure you will keep a good eye on her too. Get some rest since you both need it.
Nov 18, 2021 12:11AM Sunshine99 wrote:
Beesie, I'm glad you're back home. I was just imagining your poor mom being in a strange place, hurting and not having your comforting presence with her. My mom had Alzheimer's and it was heartbreaking to see her suffer. She died 4 years ago on her 85th birthday. I miss her so much, but I'm thankful she is not here to see the state of the world and that she doesn't know about my stupid Stage IV cancer.
Your mom is blessed to have you advocating for her care. I'm glad you still have her with you.
Nov 18, 2021 06:02AM Rah2464 wrote:
Oh Beesie what an awful experience for both you and your mother. I went through similar types of experiences with my MIL who had some form of dementia. The "gatekeepers" were very efficient at enforcing the rules but once you were in a bed, the actual assigned staff were very caring and capable. The only blessing is that this day is behind you, your dear mother received the care she needed (eventually), and she will not remember any of the trauma of it. God bless her and you.
Nov 18, 2021 08:23AM ctmbsikia wrote:
Hi Beesie, glad your mother is OK and recovers as quickly as possible. I know how hard it was for both you and your mother given the Alzheimer's. It is the absolute worst! I went through it with my mother. She didn't know where or why she was in the ER or a hospital bed, and she would ask the nurses if her family knew she was there. I spent many many hours by her side to keep her calm with a familiar face and answer the same question she asked me 10 thousand times. The nurses were always so glad to see me. Blessings to you for being her advocate.
Nov 19, 2021 11:00AM - edited Nov 19, 2021 11:19AM by ctmbsikia
Hope Mom is doing OK Beesie.
I have a friend (husband of good 'ol school friend-also was one of my bridesmaids) who was put on a ventilator the other day. I'm both angry and sad. I was due to see them for another friends 60th surprise birthday dinner this weekend. I don't think I will be attending. Mainly since they won't be there, I don't know who else in the room isn't vaccinated, and I can reach out to my birthday friend and treat her at a later time. My daughter is coming home and I'd rather spend the weekend with her. If that sounds selfish I really don't care. I am so incredibly sad that I may have to endure another death. Maybe he'll be one of the lucky ones?
Went for the liver function blood panel this morning. I don't want to know, but have no choice now, and whatever comes is going to come. Now that it's over I'm headed to the wine store at lunch. My dreams and sleep were totally off this week. Have a booster, GI doc, dexa and lung scan all coming up in December. We have to schedule lab appts. now with Penn, but the process is fairly easy. Always something. Thanks for listening.
Nov 19, 2021 11:22AM Sunshine99 wrote:
ctm, I'm so sorry about your friend. Enough is enough, right? There is nothing selfish about choosing to spend time with your daughter. There is only so much of you to go around, so choose where you want to be and with whom.
(((hugs))) and (Hershey's Candy Cane) kisses
Nov 19, 2021 02:11PM ctmbsikia wrote:
Thank you Sunshine!
My liver panel just came back and the only number out of range is the alk phos. It's my bones carrying this serum in my blood, I feel. At least now I know that even though I shouldn't drink at all, what I have and do continue to drink isn't necessarily killing my liver at this time. Will see if the GI doc will want to repeat it again, or why she thinks my liver is enlarged. I'm not too worried about it now, but will stay on top of it. Happy hour here I come!
Nov 19, 2021 03:27PM bcincolorado wrote:
ctmbiska enjoy your time with your daughter. That time is special and you deserve to spend the time with her.
Nov 19, 2021 04:43PM Elderberry wrote:
ctmbiskia: How high were your Alk. Phos?. A few points higher than the "normal range" is not necessarily a problem. Just something to monitor.
Nov 19, 2021 05:34PM ctmbsikia wrote:
it’s only slightly elevated at 138 today. By some charts under 140 is in range. In Sept it was 158 and the isoenzymes were broken down where liver was in range but bone was over. Oddly enough I went back. Before my bc diagnosis my vit D was low. I took the D2 for awhile til they told me to stop. Alp was slightly over at the time. After I had 1 Prolia shot I had a normal reading. Since I haven’t been able to get another shot since it has been slightly over. It could be the Ai and my osteoporosis. That’s my feeling, and thank you. I’m not overly worried. Monitoring is good.
Nov 20, 2021 06:51AM WC3 wrote:
It's almost 4am and I would like to sleep but my neighbor has his TV on. His livingroom and my bedroom share a very thin wall and the noise has become an issue ever since he retired. He's not necessarily blasting it. The wall is just thin and he's a little hard at hearing and he doesn't have any incentive to turn it down as his family owns the building.
The people above him moved out recently and I suspect the late night noise had something to do with it. I've got ear plugs. In fact I went out of my way to get the ones the hospital uses for MRIs as they're the ones that have worked best for me but they still don't always work well enough.
I had what they call "delayed sleep phase syndrome" but chemotherapy had gotten me back on a normal sleep schedule and it was great being a morning person. That has been ruined now by the noise issue and people who decide bedtime is a good time to drag me in to their completely uneccesary, often self generated crisis.
Nov 20, 2021 10:43AM - edited Nov 20, 2021 10:58AM by cm2020
Vented. Now just need to let it go.
Nov 20, 2021 11:35AM Sunshine99 wrote:
Oh, WC3, that's so frustrating. Even if the guy is nice, it's still hard to be kept awake by someone else's noise. Do you have any options for sort of insulating that wall between your bedroom and his living room? Would your landlords be able to do anything to that wall? I know you've probably thought of all of these things - especially at 4:00 AM when sleep is nowhere to be found.
Nov 20, 2021 12:18PM bcincolorado wrote:
Oh WC3 I know how hard sleep can be sometimes too. Some melatonin too which might help you get to deep sleep and stay there with the ear plugs. I bet your neighbor is hard of hearing and does not realize how loud the tv is either. We started watching ours with captioning on all the time now since DH is hard of hearing. Now if I can't sleep I can just mute the TV easily and still have it on and it wont bother him at all that way.
Nov 20, 2021 12:56PM AliceBastable wrote:
WC3, my great-aunt Annie got evicted from her apartment when she was close to 100 for playing her stereo too loud. 😃 It wouldn't be funny except she promptly bought a house and got to do what she wanted. And that's usually what happens to college kids! But I've lived in many apartments and I know how horrible that can be. With our late-night noisy upstairs neighbor, an oven mitt on a broomstick did the trick (when I did it the first time without the mitt, it dinged the ceiling paint 😳). Would some bland white noise work to mask it out? I think there's some online ones to try. But if you have to buy something, your landlord should pay for it.
Nov 20, 2021 06:37PM WC3 wrote:
Sunshine99, BCincolorado, AliceBastable:
I fantasize about hiring a place to spray insulation in the wall.
My landlord might do it if I ask. He's been my landlord for over a decade and has been great but I'm not sure it would help much due to the layout of the place unless he were to insulate two walls, replace the front door and bedroom window.
A white noise machine might work. I'll look in to it. I've also been looking at Bose sound canceling ear buds.
I might have to move at some point in the near future regardless of the noise though.