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Jun 6, 2018 05:41PM
Jun 6, 2018 11:25PM
LOL, yeah, a lot of people think its mustlovepoo. Of course, I was a nurse for 40 years, so I've seen a lot of poo in my time.
Okay, here's the long tale. My DH has been in poor health for over 10 years. Until the last year things had been rocking along more or less smoothly. We got through my breast cancer and his prostate cancer (simultaneously), the deaths of both mothers, the sale of our house and my mothers house, and the move into the full-time RV life. Beginning late last fall I began to notice my DH "slipping." He's 61 and takes a LOT of meds, so I thought it was just that. In Feb he began to have problems with balance and memory. CT scan shows he had a stroke sometime between June 2017 and Feb 2018. Their is also scarring near the brainstem possibly due to his other condition. All of this can cause his symptoms.
Here's his problem: Despite him using multiple forms of reminders, DH constantly forgets things. Constantly. Today we have had 5 conversations about the potluck we're going to tonight. Just a few min ago he asked me about the spaghetti I'm cooking--there is no spaghetti cooking and there has been no mention of spaghetti so far. He forgot a doctor appt this a.m., despite several reminders yesterday. Thankfully, I was there to remind him AGAIN to get up and get ready.
And that doesn't even begin to address "the spelling bee." DH has never been a good speller, but now its 10 times worse because he cannot easily recognize words even with spell-check. Some days are worse than others. When he gets started though, its gonna be a long day. "Spell rabbit" "spell amen" "spell bolt" "spell strange", etc. Its endless. When he is telling me something, he substitutes words to the point that sometimes I can't figure out what he's trying to tell me. Interestingly, DH is still managing to do the bills and the RV & car maintenance. He can do minor house repairs. He walks the dog. These are all things that he has done since he was 14, so they are deeply embedded memories.
Here's my problem: His behaviors are driving me crazy. I'm irritable as hell from dealing with this all day every day. I try to be kind and loving. He's not doing these things to aggravate me. He is as distressed about it as I am. It probably doesn't help that we're both retired, so we have a lot of contact with each other. I have encouraged him to take a music class. I plan to take a knitting class. I don't care about knitting in the least, but it is one place where I KNOW he won't tag along.
I feel terrible about this and it is hard to disguise my frustration sometimes. I can't talk about this with anyone IRL. I'm already on several psych meds (I have bipolar disorder.) I feel like I'm in a Crazy House.
Oncotype 23. Positive for PALB2 & Chek2 gene mutations. My breasts are trying to kill me!
7/20/2015, DCIS/IDC, Right, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR-, HER2-
9/3/2015 Lumpectomy: Right
10/19/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
2/4/2016 Prophylactic mastectomy: Left, Right