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Jul 17, 2017 12:10PM
WTF is wrong with your husbands?! UGH, men! Hoping you guys can get thru to them. Runor, glad you checked in, and that you're able to stay at a lodge nearby your radiation treatments. I cannot believe your husband said that! So sorry you're having such a hard time with the rads, sounds awful.That's one thing I haven't had yet, radiation. I remember when I was first diagnosed, I always feared chemo the most, thinking radiation was much easier. Then I heard from so many, of the reality of it, and horrors it can cause. Another issue that is white washed in the public.
My rant tonight: I ordered a newer version iPad from the online Apple Store. Mine is old, and past its ability to be updated. It crashes all the time, won't load so many pages and articles, and now there is a loooong lag even when typing. I have to type in notes and copy and paste it everywhere else. I live on this thing, since I can't do much else. So I finally splurged to get a newer one. I bought a refurbished one, which I have done before. If you get it from Apple, it is like brand new, new glass, cover, everything, and has the same warranty as a new one. I never had a problem. Well the new one came, and I tried to set it up. Only it wouldn't load all the wifi networks to join, it would only show half the list, and of course my network was in the half not showing. And it wouldn't let me scroll to find mine. After fighting with it for 1/2 an hour, I finally decided to call them. The first guy was very nice, but after spending 30 min with him, off and on hold, trying everything he could think of, it still wouldn't work. So he gets someone else to help me, his super or something, and this guy was horrendous. They didn't know if it was a hardware or software problem, and the only way to tell was if I had a computer, with iTunes installed, so they could have me run more things to try. I told him I had an old computer, but it wasn't set up. He argued with me for 30 min, and wouldn't help me. He kept telling me to get my computer set up, and then call back. I told him repeatedly that wasn't going to happen. Then he told me to find someone who has a computer that I could borrow to try this. Um no. Then he wanted me to go find the nearest Apple Store. I told him I couldn't, because I was home bound doing chemo, for cancer. He didn't care. He just kept telling me the only way he could help, was for me to do one of those three things. He just repeated himself over and over, or sat there in silence. A few times I had to ask if he was still there. No matter what I asked, he shot me down. I told him I bought a product from them, it doesn't work, it is up to you to fix or replace it, it's not up to me! He just kept saying we can't until we know of its a software or hardware problem. I said I don't care what kind of problem it is, it doesn't work! He just kept arguing and saying the same things over and over again. No matter what I asked, he would never answer my questions. Finally I said that's it, tell me how to return it and I will go buy one elsewhere. He said he can't do that. WTF?! I'm like, yeah you can. I bought an iPad, it doesn't work, I want to return it. It has a warranty. He still wouldn't do anything. My head was spinning, I was so upset, frustrated and pissed. I finally asked again to speak to a manager or supervisor. He said there weren't any. I kept asking and he kept saying no, he was the only one. He kept telling me if I want to talk to anyone different, then I need to hang up and call back. Again, WTF?! I flipped out and started yelling, you can't tell me there are no managers or supervisors in the hole f*cking Apple Corporation! I want to speak to one now! He hemmed and hawed and wouldn't answer me, more silence, then I was put on hold again. I just started bawling, I was so upset and mad, all I wanted was my iPad. Why does everything have to be so damn hard for me? Then a woman comes on the line, along with him, and says she's is going to take over. It's been an hour now, and I said so I'm going to have to start this all over again?! She could tell I was upset, and said don't worry, I'm going to take care of you. When I told her everything this guy said, she was horrified, she just couldn't believe everything, She said in all her time, she has never heard such bad stuff. She notated the time, and all that, and said the call was recorded, so hopefully he gets his ass straightened out. I spent another 30 min with her. She sent me a return label, is sending a new iPad, and threw in a $40 cover. She felt so bad, she was in disbelief of what this guy did and said, as I was. She apologized a million times, and said that is not how Apple operates, I said I know! 1-1/2 hours, one heart attack and one ulcer later, I'm getting what I should have gotten the first try. UGH
Then, thinking the night couldn't get any worse... There are two elevators in my apartment bldg, it's a senior building, so very necessary. Well, 2 1/2 weeks ago, someone knocked off the fire sprinkle, flooding the area and taking one of the elevators out of commission. This has caused me to walk A LOT, which I trying not to do because of the hand and foot syndrome from the damn chemo. To go Anywhere. I have to walk around the whole building to the other side, to take the other elevator, then walk back around the building to the side where my car and apt is. Then do it all over again when I come home. And have to do all that anytime I go anywhere in the complex, for laundry, trash, mail, etc. My feet are getting so bad, and they haven't even been working on the elevator since the first few days! Someone told me they're waiting on Ins. GRRR Then tonight, after I calmed down from the Apple fiasco, I decided to take a walk. I needed to get mail, including meds from my mailbox, and take out trash, and drop a letter off at the office. So I loaded up my walker, to do one trip for all these things, trying to walk as little as possible. I walk around to the other side of the building, and take the elevator down, I got to the first floor, and the doors don't open. I start to freak, then hit the door open button a few times, and thankfully it opened. I was so afraid of getting stuck in there, it's like over 100 degrees in that elevator. So I do all my tasks, and walk back to the elevator, and there's two women standing there. The doors are still open from when I got out. We pressed all the buttons, and now this elevator won't work. So there we are, on the first floor. Where none of us live, two of us with walkers. Are you friggin kidding me?! How the hell are we supposed to carry our walkers up a flight of stairs? I also had a ton of mail, and a huge package of mail order meds to carry. So I walk back around the building, down the parking lot to my car, and put my walker it. Then walk back around to find the nearest stairwell, climb the stairwell, then back down the long hallway to my apart. By this time I am beat, it's in the 90's with monsoonal humidity, which we are not used to, I'm drenched in sweat, my back hurts so much I'm hunched over, walking SO slowly, and my feet are burning and stinging horribly. Again, so upset and frustrated! And I really needed my walker upstairs, as I'm going to stay at my sons for a few days tomorrow. So I have nothing to carry all my belonging, to take with me, and no elevators! I don't know how I'm supposed to get everything, including myself, to my car in the morning! I have such a headache, I wonder why?!
NOT MY DAY!
10/2011, IDC, Right, 6cm+, Stage IIIA, Grade 1, 1/1 nodes, ER+/PR+, HER2-
11/11/2011 Lymph node removal: Sentinel; Mastectomy: Left, Right
12/9/2011 Mastectomy: Right
12/29/2011 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
4/1/2012 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
6/6/2012 Mastectomy: Left, Right
7/21/2013 Arimidex (anastrozole)
5/2017, IDC, Stage IV, metastasized to bone/lungs/other, ER+, HER2-
5/18/2017 Xeloda (capecitabine)
9/20/2017 Faslodex (fulvestrant)
9/20/2017 Ibrance (palbociclib)