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All TopicsForum: Emotional Crises: Anxiety, Depression & Other Emotional Effects → Topic: STEAM ROOM FOR ANGER

Topic: STEAM ROOM FOR ANGER

Forum: Emotional Crises: Anxiety, Depression & Other Emotional Effects —

Meet and support others who are affected by these issues around breast cancer fears, diagnosis and treatment.

Posted on: Jul 16, 2015 09:21AM - edited Aug 1, 2017 10:46PM by sas-schatzi

sas-schatzi wrote:

This thread is meant to be for RANTS and RANTING. Then Rant again. We need a place to simply get rid of the anger. Write it here. Unleash it all. Get it out. This isn't meant for the Stupid comments(great thread). This is for the gut wrenching, tell them off anger.

IMPORTANT: When done ranting don't necessarily stick around. Toxic. Drop the rant and find a better thread.

Only rules: Please, follow them as the Mods will shut it down in a heartbeat( waving Mods)

1. Be careful to not mention docs, nurses, hospitals by name. Defamation and all that tedious legal stuff

2. If it's caused by someone on BCO, just don't mention their name. I think the exception will be if someone is stalking you, blow their anonymity wide open. A stalker doesn't deserve politeness.

3. If you think the rant is about you, let it go, they're no names. Don't take it personal. This is the steam room.

4. If they're is a fight, don't expect the Mods to moderate, it was your choice to come here.

5. After writing a rant, do nothing more, re-read at a future time. Decide if it's important enough for you to cut and paste the rant to whomever caused you the anger. It's a choice. Sometimes it needs to be done, but remember they're can be fall out.

6. ######## pound those keys, SCREAM(caps), J*&R$WSDF&(swear)

7. Religion and politics discussion should go to those topical threads. IF their is something that impacts cancer, it belongs here.

I will revise topic box as needed-sassy

For puking and the color works pukeewogh

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Page 86 of 88 (2,632 results)

Posts 2551 - 2580 (2,632 total)

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Jan 11, 2018 08:16AM bcincolorado wrote:

TaRenee you are right that it does help when you find someone who "gets it" and it definitely helps to have someone who can be your personal sounding board when you need it. It still stinks.

Saturday funerals are the best way to go if you ask me. I know they charge more to do them most places. My BFF who has her own set of health issues including cancer scares and biopies have both said we want Saturday funerals. It is too hard for people to take off an be there sometimes and often employers won't let you off work unless it is a direct family member. That stinks too.

Dx 8/2009, IDC, Left, 2cm, Stage IIB, Grade 1, 0/2 nodes, ER+/PR+, HER2- Hormonal Therapy 1/29/2016 Femara (letrozole)
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Jan 11, 2018 03:50PM Bluebird-DE wrote:

TaRenee - there are some threads on BCO that are not so active now but are wonderful and uplifting to read, no matter how much sarcasm is on each page.

Start from the beginning on any thread when you have time.

You know you're a breast cancer patient when

OMG They found the cure for stupid

Bonfire of the goddesses

Insomniacs place to talk in the wee hours

There is anger and sorrow and camaraderie.

Swess - I am in the production of applying for SS Disability. Daunting.


"Every mistake I have made has proven to be invaluable information for someone. Namely, me." Me. Diane Dx 7/15/2011, IDC, Right, 2cm, Stage IV, metastasized to liver/lungs/other, Grade 3, 3/11 nodes, mets, ER+/PR+, HER2- Chemotherapy 4/4/2017 Xeloda (capecitabine) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Arimidex (anastrozole) Hormonal Therapy Femara (letrozole) Radiation Therapy External: Lymph nodes Surgery Lumpectomy: Right; Lymph node removal: Left
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Jan 11, 2018 03:57PM TaRenee wrote:

I think I’ll start with the cure for stupid. That sounds like a good one! Thanks for the suggestions

Dx 7/16/2017, IDC, Left, 2cm, Stage IB, Grade 1, 0/4 nodes, ER+/PR+, HER2- Surgery 9/15/2017 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 9/25/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 11, 2018 04:59PM Swess wrote:

marriage falling apart. Not that it was ever good. But now I’mfinancially trapped. WTH do I do?? I cannot stand him.

Dx 7/7/2008, IDC, Left, 2cm, Stage IIB, ER+/PR-, HER2- Dx 5/24/2017, IDC, Left, Stage IV, metastasized to bone/other, ER+/PR-, HER2-
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Jan 11, 2018 05:13PM HoneyBadger47 wrote:

Swess,

I am so sorry. I have no advice that will help but I will be thinking of you.

You are in the middle of applying for social security, correct? Would you be able to affor living expenses on that if you had 1 or more roommates?



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Jan 11, 2018 05:42PM Swess wrote:

unfortunately, no. We separated 12 years ago and I couldn’t make it. And my income was more than what SS will be...if I even get it. And roommates are a no go. Been there, done that. It was awful. Never mind I still have a child at home.

Dx 7/7/2008, IDC, Left, 2cm, Stage IIB, ER+/PR-, HER2- Dx 5/24/2017, IDC, Left, Stage IV, metastasized to bone/other, ER+/PR-, HER2-
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Jan 11, 2018 06:31PM bcincolorado wrote:

Swess you might want an attorney who specializes in disability claims to help if they deny your claim. I know they do not charge unless you get it but don't know how much the fee is if they do it. Try it first on your own though. Make sure docs are on board too.

Dx 8/2009, IDC, Left, 2cm, Stage IIB, Grade 1, 0/2 nodes, ER+/PR+, HER2- Hormonal Therapy 1/29/2016 Femara (letrozole)
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Jan 11, 2018 06:47PM - edited Jan 12, 2018 04:48PM by Rosabella

go to ssdfacts.com forums. Folks there know a lot about disability and tons of info. Best site for disability.

This is for social security disability.. mods there are very experienced.

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Jan 12, 2018 01:42AM Chicagoan wrote:

My mom died two days ago. It was a very rough 5 weeks-she had a massive stroke but was working hard to recover. After a roller coaster of miraculous improvements followed by setbacks, she died in peace. I was in peace, grateful that I will be the one to bury her, rather than vice-versa.

Yesterday I was finally back at my own home, working on her funeral service and clearing up another mistaken $10,000 hospital bill. The phone rang and it was Liberty Mutual-they are consultants who manage my medical disability program. I have been on long-term.medical disability for 11 months. My former employer pays me $400/month and pays for my health insurance until Medicare kicks in. The bulk of my disability income is now from Medicare.

The woman calls all cheerful on the phone: "We have decided you can go back to work!" I was like "What!" They had done a review of my medical records and based on a conversation with my oncologist's office decided there was no reason I could not go back to work. I asked if she had actually seen my medical records. I have had only one clean scan in the past year. My January 2017 scans were great-since I was grossly metastatic, Ibrance worked miracles. In April 2017 there was concern that I had a separate kidney cancer. In July 2017 something new and suspicious was spotted in my right lung. In October 2017 there was concern that something new is growing in my spine. My oncologist has stayed the course with Ibrance since overall I was feeling good. I'll have new scans this week to see if there is cancer growing in my spine. I have never been declared in remission/NEAD so I was completely stunned to learn the disability consultants think I am somehow cured. They want me to see another oncologist to review me and get me back to work. Has anyone heard of a person with Stage 4 cancer being declared fit to go back to work against their will?

The woman from Liberty Mutual put it all on my oncologist. I contacted their office via MyChart explaining in detail why I cannot do my former job given my energy level and weakened immune system. For the first time ever, my oncologist called me at home and said her Physician Assistant handled this based on office visit notes. Apparently when they ask me how I am doing now, I better say "Fine, for someone with Stage 4 cancer!" I don't have pain and have regained much physical strength but I have the fatigue that comes along with Ibrance. I feel so angry and frustrated. Even if I was feeling great, the likelihood of me being hired again to my area of employment is nil-it is well known that I have Stage 4 cancer. If my scans suck this week, this will all be moot. It just makes me so angry that even though I'm in Stage 4 I have to prove that I am not full of energy and vigor. I'll see the oncologist in a few weeks and try not to scream at the physician assistant.

I'm pretty sure this will get straightened out but it is so frustrating to deal with so many bureaucratic hoops, again and again. I have had so many screwed up medical bills. My last scan report claimed I had had surgery-which I never had. Even though I pointed out the error immediately to my oncologist (she and her PA apparently missed it), I was the one who finally got it corrected after numerous attempts. It's bad enough dealing with the cancer-but it feels like its the bureaucracy and bullshit that will finally kill me.

Rant over-I do feel better.

Dx 9/21/2016, IDC, Left, Stage IV, metastasized to bone/liver, Grade 1, ER+/PR+, HER2- Radiation Therapy 9/27/2016 Hormonal Therapy 10/5/2016 Femara (letrozole) Targeted Therapy 10/27/2016 Ibrance (palbociclib)
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Jan 12, 2018 02:21AM Meow13 wrote:

Chicagoan, I am so sorry. My Mom went through an illness for a couple weeks and I felt helpless her doctors said she had the flu. She call me in the middle of the night to come over to her tell me how terrible she felt. I would call doctors make appointments to hear they didn't find anything. Everyday she seemed worse the day she felt better She had a stroke and we rushed to the hospital. Never have I felt so helpless but finally 4 days in intensive care they got her medicines worked out. I hate that stress of not being able to know what to do. It killed me to hear her suffering. My situation seems so small compared to yours and the stress was killing me. I can imagine yours was and is many times greater. I believe it will get sorted out and you should get ssdi with stage 4.

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Jan 12, 2018 05:13AM Micmel wrote:

Chicago~ I think that physicians assistant should find another job! They can't get away with that. That's crap!! If you're applying to federal disability, you should streamline through it all. The private companies are the real dicks here. Immediately file an appeal with them, I would have someone else fill out the paperwork, not anyone with the word assistant should never be used in the same sentence with cancer! I have the terrible ibrance fatigue, it could stop a train! So annoying! Don't give up. Immediately file a written letter to your disability company, so they have it in writing, they will have to go back and reevaluate your case obviously, you cannot be working! That's just ridiculous! Miss you around. And I am so very sorry for the loss of your mother. I remember she wasn't feeling too well and you were worried about her! I am truly sorry. You're a strong woman. Much love ~M

Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/20/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Targeted Therapy 11/6/2016 Ibrance (palbociclib) Hormonal Therapy Arimidex (anastrozole) Surgery Chemotherapy Chemotherapy
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Jan 12, 2018 06:56AM DancingElizabeth wrote:

Chicagoan - I think I would have reached thru the phone and b*tch slapped the Liberty Mutual lady. I can't believe "they've" decided you can go back to work. What. The. F@ck.

Despicable

Dx 4/13/2016, DCIS/IDC, Right, 6cm+, Stage IIIA, Grade 3, 3/23 nodes, ER+/PR+, HER2- Surgery 5/17/2016 Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Surgery 5/31/2016 Lymph node removal: Sentinel, Underarm/Axillary Chemotherapy 7/6/2016 AC + T (Taxol) Radiation Therapy 11/7/2016 Hormonal Therapy 11/8/2016
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Jan 12, 2018 08:27AM Chicagoan wrote:

Thanks Meow, Micmel and Scared-I just needed a place to rant last night. I am on SSDI fortunately but this disability pays me a whopping $400 above SSDI. It's not a lot but of course it helps. It also pays for my health insurance until I am eligible to switch to Medicare. My gut tells me they are unhappy that my health insurance costs are so high thanks to Ibrance and are trying to push me out. I appreciate your sympathetic comments.

Dx 9/21/2016, IDC, Left, Stage IV, metastasized to bone/liver, Grade 1, ER+/PR+, HER2- Radiation Therapy 9/27/2016 Hormonal Therapy 10/5/2016 Femara (letrozole) Targeted Therapy 10/27/2016 Ibrance (palbociclib)
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Jan 12, 2018 11:40AM HollyDollyD wrote:

D*mn Chicagoan....I feel your pain.

If it were me, I'd be telling that PA if it EVER happens again, you'll be holding her liable and reporting her to the medical board for malpractice. I'm a kinda you get one mistake if that gal. And I would be making them sort it out. And come to think of it, I would probably be reporting it in writing to the medical review board anyway, so that if disability comes back to haunt you there's a written record of their SNAFU.

That being said, I'm in a bad mood, because they moved my surgery up by one week. So maybe I should look at this response when I'm calmer....

hugs,

Holly

“Courage is the most important of all the virtues because without courage, you can't practice any other virtue consistently.” ― Maya Angelou
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Jan 12, 2018 02:25PM Bluebird-DE wrote:

It is like being caught in a pinch - they ask how are you feeling. Fine or Improved or Better are wrong answers??? Can't say you're depressed, that might get you locked up. Can't say you feel like hell because you have to prove it or something. They ask what is your pain level NOW. Right now? I ask them. Or a half hour ago when I was at level 9 and almost went to the ER? No, now. Well 3 now. But get it in there that I was level 9 because that counts, it really does. And what is your fatigue level. Now? Or most days when I am at a level 7 fatigue and can barely breathe? Now. Now a 4 since I just woke up two hours ago. Ugh. Chicagoan, I do hope your case is not interrupted and this just dissolves w/o much more effort from you.

"Every mistake I have made has proven to be invaluable information for someone. Namely, me." Me. Diane Dx 7/15/2011, IDC, Right, 2cm, Stage IV, metastasized to liver/lungs/other, Grade 3, 3/11 nodes, mets, ER+/PR+, HER2- Chemotherapy 4/4/2017 Xeloda (capecitabine) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Arimidex (anastrozole) Hormonal Therapy Femara (letrozole) Radiation Therapy External: Lymph nodes Surgery Lumpectomy: Right; Lymph node removal: Left
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Jan 12, 2018 03:40PM Chicagoan wrote:

Thank you Holly and Bluebird. I so appreciate the empathy and good advice.

Dx 9/21/2016, IDC, Left, Stage IV, metastasized to bone/liver, Grade 1, ER+/PR+, HER2- Radiation Therapy 9/27/2016 Hormonal Therapy 10/5/2016 Femara (letrozole) Targeted Therapy 10/27/2016 Ibrance (palbociclib)
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Jan 12, 2018 04:12PM jaycee49 wrote:

Bluebird, I think I remember you saying you were applying for ssdi. I did that about 10-15 years ago. Got approved on the second try. Long story. But, let me tell you, they LIKE depression. An online friend told me that after she got approved. I went to a therapist and got dx with depression. One of the many things that helped. Tell them how you feel on your WORST day. I can try to answer questions you have although this is very state dependent. The feds were pissed at NM when I got mine, complaining they did it too slow and turned too many people down. My file "was selected for federal review." Best thing that ever happened to my file. I did it all myself online and saw it as a job. I can dig out some advice I wrote to people later who also applied. Let me know.

Chicagoan, long term disability from work is different. I guilted them severely. I told them not only did they put obstacles in your way to get you to give up, they counted on it. This is their plan. Get people to give up trying. Tell them you have no intention of giving up, no matter how hard they try to get you to. I got approved right after I wrote a letter saying that. They need to know the jig is up.

Janet Dx 4/25/2014, IDC, 3cm, Stage IIB, Grade 2, 1/18 nodes, ER+/PR+, HER2+ Surgery 6/4/2014 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left Targeted Therapy 8/4/2014 Herceptin (trastuzumab) Chemotherapy 8/4/2014 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 10/1/2014 Chest wall Hormonal Therapy 2/14/2015 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 3/25/2016, IDC, Left, Stage IV, metastasized to bone/lungs, Grade 2, 1/18 nodes, ER+/PR+, HER2- (FISH) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Femara (letrozole)
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Jan 12, 2018 05:20PM MexicoHeather wrote:

KB870: I didn't want anything to do with that bell. After treatment ended, I found another oncologist for my follow-up and for ordering my future digital mammogram. I told my surgeon, and she said, "I thought you might do that." Ever been in a situation where you know someone is smart and trying to help, but is such an asshole? That was my Oncologist. I would get angry and then I would cry.



Dios es Amor. Dx 10/1/2016, IDC, Right, 3cm, Stage IIB, Grade 3, 3/17 nodes, ER+/PR+, HER2- Surgery 12/5/2016 Lymph node removal: Right; Mastectomy: Right Chemotherapy 1/19/2017 AC + T (Taxol) Radiation Therapy 5/10/2017 Whole-breast: Lymph nodes, Chest wall Surgery 10/10/2017 Prophylactic ovary removal Hormonal Therapy Femara (letrozole) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 12, 2018 05:27PM Chicagoan wrote:

Jaycee,

Thanks for your response. I did already start with the guilt trip and made it clear I do not agree at all with their assessment. Someone from the actual company called me on the qt and said to have my doctor call Liberty Mutual and try to kill this. I think it will go away but believe me, I am not giving up without a fight. It's not only for me-I am just flabberghasted that they want to get Stage 4 people off of disability even though they know there is no cure and the cancer can flare up at any time. Grrrr.

Dx 9/21/2016, IDC, Left, Stage IV, metastasized to bone/liver, Grade 1, ER+/PR+, HER2- Radiation Therapy 9/27/2016 Hormonal Therapy 10/5/2016 Femara (letrozole) Targeted Therapy 10/27/2016 Ibrance (palbociclib)
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Jan 13, 2018 08:38AM - edited Jan 14, 2018 07:38AM by NotBrokenJustBent

This Post was deleted by NotBrokenJustBent.
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Jan 13, 2018 09:34AM TaRenee wrote:

To follow up on my earlier posts this week. I went to the wake last night. It was PACKED. Lines out the door. Took an hour and a half just to get to see Amy. What a tremendous outpouring of support. I broke down a little when I got to Amy. When we left the line was still out the door and it was only supposed to last another 30 minutes. I’m sure they were there a lot longer. I was glad to see and hear so many people there to support her.

I decided not to go to the funeral today. The burial is going to be private for family only. I think they are going to need a break after the crowds from last night. I plan on going to see her later next week. I know it is going to be harder as the people fade away after the funeral.

Thank you for hearing me out and responding both private messages and on this forum. This cancer journey has many fascets. I am sure this won’t be my last cancer related funeral. I hope they are few and far between. But I feel better prepared myself for the emotional turmoil they bring.

Dx 7/16/2017, IDC, Left, 2cm, Stage IB, Grade 1, 0/4 nodes, ER+/PR+, HER2- Surgery 9/15/2017 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 9/25/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 13, 2018 09:52AM Micmel wrote:

Tarenee~I am so sorry that this has happened. You're a good person and friend,you will be there when all the calls stop and the concern fades into living. You will be there when it's too quiet for her she might scream! I hope that she can find some strength in knowing there is no more cancer for him.....anymore. I hate you cancer. ~M~

Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/20/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Targeted Therapy 11/6/2016 Ibrance (palbociclib) Hormonal Therapy Arimidex (anastrozole) Surgery Chemotherapy Chemotherapy
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Jan 13, 2018 05:16PM Bluebird-DE wrote:

Janet - yes please! Anything you want to send me. I needed to do this years ago but was making too much monthly from my business. Now the income is way way down since they closed the organic fertilizer division. I could sign it over to Hubby. Not sure what to do yet.

Biggest problem is that in all the years my taxes were done for me, we filed jointly. I always figured the fed taxes were taken out for me to later get the credits for SS and disability. Found out a few years ago they were not always taken and I was credits whort. IRONY! The less profit I made were the years I spent the most to grease the wheel of our economy, doing my part. Advertising, printing, websites, on and on and on and on. But those were the years I also worked the most hours - 40 to 80 hrs a week easy. And now I don't have all the credits I need. It makes me so upset. I need to research the SS forumk and get all the facts. I want to do this w/o an attorney helping. If I do it all correct then the approval will come w or w/o an attorney.

You mentioned depression. It is in my file. The one drug I take at night is actually for depression but I started it for cough reflex. And the oncologists have me listed as depressed. Hope that will be enough.

"Every mistake I have made has proven to be invaluable information for someone. Namely, me." Me. Diane Dx 7/15/2011, IDC, Right, 2cm, Stage IV, metastasized to liver/lungs/other, Grade 3, 3/11 nodes, mets, ER+/PR+, HER2- Chemotherapy 4/4/2017 Xeloda (capecitabine) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Arimidex (anastrozole) Hormonal Therapy Femara (letrozole) Radiation Therapy External: Lymph nodes Surgery Lumpectomy: Right; Lymph node removal: Left
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Jan 13, 2018 05:31PM Rosabella wrote:

definitely ask questions and research ssdfacts.com forums. Dont waste money on attorney just to apply. If denied then. Good luck. That forum helped me tons.

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Jan 14, 2018 05:08AM KB870 wrote:

I don't think I had any real understanding of how people could be handled so badly by the ER room because I've always been very fit and assertive. I know the cancer treatments aged me and I look older (63 now but used to look 50) but it wasn't until last Saturday it finally hit home. Poor runor already got most of this rant!

if I hadn't felt so rough I'd have been more assertive. DH didn't get to come in although I requested he come with and next time (if) I'll insist he does, these people need listening skills.

I had a bit of a sniffy cold Friday am and worked outside with the birds (chickens and turkeys) because DH was feeling a bit poorly and I like him and still have uses for him LOL. Overnight Friday I developed a chest infection and woke up wheezing and having trouble breathing in between coughing up green and yellow S**t. Called Telehealth and they told me NOT to go to walk in in pm but go to emerg NOW! No argument here. Treated very speedily (so I guess I was sick) and they gave me several meds in a mask to ease the breathing.

It helped a lot but not entirely, still coughing up stuff. Nurse took a look and said "yup, you ain't lying about the infection, get a sample in this pot". She went off shift soon after. 2 more nurses and Dr. questioning me "oddly" about my smoking and asthma – nope & nope! They didn't appear to believe me that I'd never smoked and at the 4th person asking me about it and 2nd hand smoke I was getting annoyed. Started on about COPD,HBP and heart issues. Told them I had an echo every 3 months last in November and it was better than normal!!!! This created confusion about why the echos, so I said check the history I gave you Chemo and Herceptin, known to cause heart problems so regular monitoring. Off for chest X-ray. Dr said X-ray not bad and unconvinced of infection WTF! I Sample pot tossed in garbage. I had already told the Dr that I swam 2km drills on Wed finishing with Butterfly and did he really think someone with those problems would be doing that. Still looked skeptical. Decided that the one treatment with the mask hadn't improved things as much as he expected so I got another treatment before leaving which helped a bit more (likely the moist air). He did give me antibiotics because he was concerned the lung issue might cause me to develop an infection? Also some steroids and an inhaler. I am supposed to contact my GP for a follow up and to get lung function tests. New nurse on letting me go says "feel like a million bucks now?" "no I still feel like crap!" God I hate being put into the little old lady box. Think I was a tiny step away from being admitted (which I wouldn't have allowed).

I was asked if I'd had my flu shot. I got as far as "No because….." ( I had a reaction once so can't have it . MO also wants me to get totally over my treatments) before I was shut down with a wagging finger in my face and "Naughty!" wow did I ever feel demeaned. Heaven help seniors who don't speak up.

I go home DH goes to pharmacy. I check the drugs being of a suspicious nature and Pharm background. Well the instructions were incorrect on the bottles regarding what could be taken with food and what not, also dairy etc. DH had been given the wrong instructions verbally too. OH boy. Checked the real instructions from the manufacturer and also checked I have the correct pills (I did). DH said the Pharmacy was very overworked which we had noticed in the past. I used to audit some of this stuff for clinical trials and they have also cut back staff so prescriptions aren't necessarily checked. I have been given the wrong meds at one pharmacy and on taking them back they said they'd get the correct patient and pass them on. I had to tell them they MUST be destroyed and redone because they had left the premises. I mean???

SO I am feeling much better now although still not right. Scary how fast this happened. Similar thing did happen once before so I'm not concerned about BC spread.

It also gave me a tiny taste of some of your experiences in ER that I've read about here and I think I understand better. I also realise I'm not handling getting older at all well.

Surgery 9/18/2016 Lumpectomy: Left Dx 10/6/2016, IDC, Left, <1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2+ (IHC) Surgery 10/30/2016 Lymph node removal: Sentinel Chemotherapy 11/28/2016 Taxol (paclitaxel) Targeted Therapy 11/28/2016 Herceptin (trastuzumab) Radiation Therapy 4/3/2017 Multi-catheter: Breast
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Jan 14, 2018 05:46AM Meow13 wrote:

KB, I once was asked many different times if my child was exposed to cigarette smoke. I mean can't they smell it I certainly can. They assume you are lying so they keep asking they don't know you from the lowest human beings on earth. I have also aged alot since my cancer dx, I went with my mother for her "last" routine colonoscopy and the nurse talked to her as if she was a dim wit. I was appauled and reminded the nurse there was nothing wrong with my mom's hearing or her mental capacity. I hate the ER, they don't know you and assume the worse on every front.

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Jan 14, 2018 06:20AM Micmel wrote:

Kb~I am sorry you were treated that way. I have decided I am making a huge big foam finger to take with me to any ER visit in the future, it will look like this

🖕🖕🖕🖕🖕🖕

~~~~read the file first, ask questions second.....don't insult me.... we know our medical histories, like we know our own breasts. Oh wait I don't have one anymore oh yeah. Ok bad example. Like we know our own faces....welp.. since I look nothing like I used to and my hair had spots of gray....ok so another bad example....I'll have to hold the foam finger in My right arm because I have lymphedema That started in my left arm... . another parting gift. Okay just read the file!!! And ask questions, relative questions! Do not insult our intelligence! Big hugs ~M~

Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/10/2016 AC Surgery 6/20/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Targeted Therapy 11/6/2016 Ibrance (palbociclib) Hormonal Therapy Arimidex (anastrozole) Surgery Chemotherapy Chemotherapy
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Jan 14, 2018 11:31AM Bluebird-DE wrote:

Question - when you go to a hospital or clinic you have been to before and recently too - how many of you fill out the allergies and prescriptions if they are unchanged? And how many write - see my file?

I get so tired of trying to remember all these and spellings and explaining to the nurse who is only half-listening if that. Usually ends up w wrong answers when I at one time had the most precise information I could manage.

KB - I cannot imagine why they would not allow your significant person or spouse to be in the ER with you. Except if you crashed and the other was kicked out then. Or there were kids to keep in the waiting room and no one to watch them. Or the other person there for you was sick or drunk. Just cannot understand why they said no. I could not go along with it, But when in a situation where I am too sick to argue, then they might get away with it.

KB - they are lucky you have such restraint.

"Every mistake I have made has proven to be invaluable information for someone. Namely, me." Me. Diane Dx 7/15/2011, IDC, Right, 2cm, Stage IV, metastasized to liver/lungs/other, Grade 3, 3/11 nodes, mets, ER+/PR+, HER2- Chemotherapy 4/4/2017 Xeloda (capecitabine) Targeted Therapy Ibrance (palbociclib) Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Arimidex (anastrozole) Hormonal Therapy Femara (letrozole) Radiation Therapy External: Lymph nodes Surgery Lumpectomy: Right; Lymph node removal: Left
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Jan 14, 2018 11:55AM runor wrote:

KB, you can vent to me anytime, you know that!

My lumpectomy went wrong and I hemorrhaged into the surgical site and my boob was the size of a beach ball. Surgeon saw that and rolled me back into surgery, opened me up again, cauterized the bleeders and re-stitched all the internal stitches that had torn out when the blood wrenched my boob apart.

Never have I been in so much pain.

Two days later the pain was so bad I could not move, could not get out of bed, could hardly stand up. The pain was down my side, stomach, abdomen to the pubic bone, it was all angry purple. Hub got me in the truck and took me to the emergency room because it looked like I was bleeding to death internally, all of it pooling under the skin on the left side of my body.

SO there I am, sitting in the rotten hard chair at admitting, in obvious agony, trying not to vomit from the pain, every breath a torture, and some nonchalant, utterly unconcerned idiot woman is asking me questions. I tell her I had a lumpectomy two days ago. She looks up at me and says, "What's a lumpectomy?"

Honest to god, I could not answer her. I stared, open mouthed, at the absolute ZERO IQ requirements they obviously had for their front line people. What is a lumpectomy? Are you kidding me with this shit?! And as I formulated a response that would have seen me ushered out with security on either side, Hub stepped in and said, "she has breast cancer, they cut it out of her."

I still spent another almost 4 hours waiting to see a doctor who said, bruising hurts. Bruising? I had an incision on my boob and have blood filtering down to my pubic bone and this is not a concern to anyone? Apparently not. Apparently this happens all the time. No one told me! Go home and take your Tylenol. Now I'm mad all over again just thinking about it. Hospitals are about procedures, not people! AAGGGHHHH!

Dx 3/23/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 4/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 7/5/2017 Whole-breast: Breast Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 14, 2018 03:04PM marijen wrote:

Bluebird, I write "see your computer". I've decided that question is for first time patients, not for me.


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