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Topic: Feeling I was scared into chemotherapy

Forum: Mental Health: Because Cancer Doesn't Just Affect Your Breasts —

Meet and support others who are affected by these issues around anxiety, depression & other emotional effects.

Posted on: May 11, 2021 07:13PM

ahare73 wrote:

Ihave been diagnosed with invasive lobular cancer stage 1A grade 2 estrogen and progesterone positive HER2- and BRCA2 positive mutation. The oncotype of my tumor was 31 and I was told that I would not have to have chemotherapy and that radiation and hormone therapy would be the protocol of care for my diagnosis. Then the surgery took place in March and the oncotype number was accessed. Then they changed things and said I would have to have four rounds of the lowest dose of chemotherapy radioactive and hormone therapy. They took three lymph nodes sentinel all were benign. I am so angry that I went along with the chemo and have had three of the four rounds I have decided to not have the fourth round because I feel it is not helping me but hurting me. I am only 48 and this has been the worst experience of my life I have never had any health issues and feel I made the wrong choice and that I would ge in such a better place if I would of chose what I wanted to do in the first place which was radiation and hormone therapy dose anyone have my same similar situation or have any advice on the horrible situation I find myself in?

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May 11, 2021 07:41PM Cowgirl13 wrote:

ahare73, please don't stop chemo, you only have 1 more session. Lobular cancer is very sneaky. Others will post here with more information/thoughts.

Be the kind of woman that when your feet hit the floor each morning the Devil says: 'Oh crap! She's up! Dx 5/28/2009, IDC, Left, 2cm, Stage IIA, Grade 3, 0/4 nodes, ER+/PR+, HER2+ Surgery 6/17/2009 Chemotherapy 8/3/2009 Carboplatin (Paraplatin), Taxotere (docetaxel) Radiation Therapy 12/21/2009 Hormonal Therapy 2/23/2010 Arimidex (anastrozole)
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May 11, 2021 07:50PM moth wrote:

I'm sorry you're upset about your health. It's very scary to be sick. What was your second oncotype score?

I think regrets are hard to deal with. If you didn't do chemo and had a metastatic terminal recurrence, would you feel regrets too? I think ultimately we need to be at peace with things we can't change, and just move on. You did the best you could with the information and recommendations you were given. Doctors don't prescribe chemo unless they really believe the benefits outweigh the risks. The help you get from chemo is a reduction in the risk of dying from your cancer. It does suck to go through it.

I hope you come to accept where you are today & move forward.

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/13/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/18/2020 Tecentriq (atezolizumab) Chemotherapy 11/25/2020 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 12/8/2020 External Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Hormonal Therapy 12/15/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/2/2021 External: Bone
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May 11, 2021 08:24PM 2019whatayear wrote:

I’m sorry you are feeling bad. So you are saying before surgery your doc said you wouldn’t need chemo and then the tumor pathology oncotype was 31?

an oncotype at 31 plus having a BRCA 2 mutation and being under 50, any oncologist would recommend chemo for your best chance of avoiding a recurrence.


5/6/2019 IDC 2cm, micromet 1/9 nodes, BRCA2+, ER+, PR+, HER- BMX 6/2019, A/C & Taxol 2019, Radiation, BSO - preventative 2/2020, Letrozole 3/1/2020, Started Lynparza for 1 year preventative on 7/18/2021
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May 12, 2021 04:34AM Spookiesmom wrote:

Howdo you know chemo isn’t helping, only hurting you? Has a dr said that? Because you feel lousy from it? Agree with Moth. Can you live with the possible regret? One more infusion is doable. Do it and be done.

First time IDGgrade 3, stage 3. Second time, found lump myself. That made me stage 4. Dx IDC, Stage IIIA, Grade 3
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May 12, 2021 09:41AM buttonsmachine wrote:

ahare, I had an Oncotype of 32 and I did chemo, and I still had a metastatic recurrence. I am not trying to scare you, but it's just the reality. The reason you are doing chemo is to try to reduce the risk of a metastatic recurrence as much as possible.

You are doing the right thing to throw as much at this as possible, so you can hopefully never have to deal with this disease again! You have this window of opportunity to get rid of this disease for good, don't throw it away. You're so close!

Diagnosed at 32. Local recurrences one year later, probably due to needle seeding at inital biopsy. Now dealing with MBC. Dx 8/2016, IDC, Right, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 10/1/2016 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 11/1/2016 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 2/1/2017 Whole-breast Hormonal Therapy 4/1/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 10/2017, IDC, Right, Grade 3, 2/12 nodes, ER+/PR+, HER2- Surgery 11/1/2017 Lymph node removal; Mastectomy: Right Chemotherapy 12/1/2017 AC Surgery 4/1/2018 Lymph node removal; Mastectomy: Right Radiation Therapy 5/1/2018 External: Lymph nodes, Chest wall Chemotherapy 7/1/2018 Xeloda (capecitabine) Hormonal Therapy 7/30/2018 Zoladex (goserelin) Hormonal Therapy 2/1/2019 Aromasin (exemestane) Hormonal Therapy 9/30/2019 Faslodex (fulvestrant) Dx 8/2020, IDC, Stage IV, metastasized to bone/other, Grade 3, ER+/PR+, HER2- Targeted Therapy 8/30/2020 Ibrance (palbociclib) Dx 1/2021, IDC, Stage IV, metastasized to liver/lungs Chemotherapy 1/15/2021 Carboplatin (Paraplatin), Gemzar (gemcitabine)
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May 15, 2021 05:58PM ahare73 wrote:

thank you I am getting so much better in dealing with this awful disease now that I have found this forum to talk about the issues I may be having. I really appreciate you taking the time to respond!

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May 15, 2021 06:01PM ahare73 wrote:

I am getting past all of the mental issues this disease can cause. Thank you so much for responding. I have decided to finish the chemo and move on! It is what is best for me and my chances to decrease the a reoccurrence from happening. Do you have any advice to help your hair grow faster? Trying biotin vitamins but it is slow going in coming babk

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May 15, 2021 06:03PM ahare73 wrote:

yes! Agree doin it and moving forward thank you! Appreciate all that everyone has responded with it means a lot! Just wish there was a way to make your hair grow back faster!

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May 16, 2021 01:21PM moth wrote:

I honestly don't think you can hurry hair.

Not sure you should do anything beyond eating well balanced diet and getting enough sleep and exercise - all these things help our body heal and the cells to grow back healthy. And try to keep the stress low and enjoy life :)

I take weekends off

Initial dx at 50. Seriously?? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." blog: Never Tell Me the Odds

Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/13/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/18/2020 Tecentriq (atezolizumab) Chemotherapy 11/25/2020 Abraxane (albumin-bound or nab-paclitaxel) Radiation Therapy 12/8/2020 External Dx 12/9/2020, IDC, Right, Stage IV, metastasized to lungs, Grade 3, ER+/PR-, HER2- (IHC) Hormonal Therapy 12/15/2020 Femara (letrozole) Dx 1/28/2021, IDC, Left, Stage IV, metastasized to bone Radiation Therapy 3/2/2021 External: Bone
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May 16, 2021 03:26PM ahare73 wrote:

thank you for the advice

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Aug 26, 2021 12:49PM Cinderella57 wrote:

Chemo is my choice but doctor HIGHLY recommends. Just had cancer for the 4th time in my chest wall. Grade 3. Although I'm afraid, I know that if I do NOT do chemo and it comes back again, I will regret that I did not try to give myself my best chance. But I do know that it can come back despite chemo. It is our sad reality.

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Aug 26, 2021 12:52PM Cinderella57 wrote:

No advice on hair because I haven't been through chemo yet...starting soon but I just want to say we have your back. We understand your fear and it sounded like you needed to vent. Right now I could throw something through the wall I'm that scared and angry. We all need to vent when we just get so overwhelmed. Hugs.

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