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Jul 9, 2021 08:33AM
My cancer was also HER2+, and I have had three PET scans. My first PET scan was after diagnosis, to see if my cancer had spread beyond the breast and one compromised lymph node. I'm pretty sure my oncologist ordered the scan because my lump was big (5 cm.+ a lovely satellite) and one node had tested positive through a fine needle biopsy.
I had my second PET scan after I finished chemo and before surgery. This PET scan showed that all my active cancer was gone in my breast and compromised lymph node. That, plus a similar finding on an MRI, gave me the confidence to get a lumpectomy rather than a mastectomy. My surgical pathology report later confirmed that there was no active cancer left.
So, why did I get a third PET scan? Well, "something" had lit up in my first two PET scans, near my left femoral neck (hip area). The third PET scan also showed this "something." This led to another MRI, and the discovery that the "something" was really a "nothing."
The moral of this story is that, yes, PET scans can be comforting, but they can also produce false positives that lead to further worry and further screening. Lots of things light up on PETs that are NOT cancer.
I'm with Special K. See if you can get a scan a few years down the line. But, make sure your insurance will pay for it. ((Hugs))
DX IDC June 28, 2014, 5 cm., 1 node tested positive (fine needle biopsy); 0/20 after neoadjuvant chemo + ALND; Grade 3; ER+ PR+ HER2+ Neoadjuvant chemotherapy starting 7/23/14 ACX 4, Taxol X 12, Perjeta X 4; Herceptin: one year
9/16/2014 Perjeta (pertuzumab)
9/16/2014 Herceptin (trastuzumab)
9/16/2014 Taxol (paclitaxel)
1/11/2015 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary
2/24/2015 Aromasin (exemestane), Zoladex (goserelin)
3/8/2015 Breast, Lymph nodes