Posted on:
Jul 13, 2021 01:11PM
A
AR
Joined:
Dec 2019
Posts:
163
Latest activity:
May 23, 2022
Posted on:
Jul 13, 2021 01:11PM
armom4
wrote:
Hey yall! I'm 17 months from diagnosis. Stage 1A. Triple positive. Ki-67 55%. ATM mutation. BMX. Attempted chemo- allergic. Herceptin and now Tamox. Also, total hysterectomy. NED.
Lately I find myself sort of obsessing over the possibility of a recurrence. I'm looking up stats, reading posts about recurrence here, and have read numerous studies(Beesie I need you!). I find some that are promising. Like lower stage and BMX mean risk is low. Some are not great like high Ki67 and Her2+ meaning more aggressive and therefore more likely to come back. Then, there's the ATM gene. My DNA has a problem repairing itself.
How do I move on? How do I just let it go? Is that even possible?
Diagnosed age 35. ATM gene mutation.Severe reaction to Taxol and Taxotere. Just Tamoxifen now
Dx
1/3/2020, DCIS/IDC, Right, 2cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2-
Surgery
2/11/2020 Lymph node removal; Mastectomy; Mastectomy (Right); Prophylactic mastectomy; Prophylactic mastectomy (Left)
Targeted Therapy
3/27/2020 Herceptin (trastuzumab)
Chemotherapy
3/27/2020 Taxol (paclitaxel)
Chemotherapy
4/17/2020 Taxotere (docetaxel)
Hormonal Therapy
5/29/2020 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Surgery
7/1/2020
Surgery
3/3/2021 Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander
Surgery
6/8/2021 Reconstruction (Left): Silicone implant; Reconstruction (Right): Silicone implant
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A
armom4
Joined:
Dec 2019
Posts:
163
Latest activity:
May 23, 2022
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Sep 21, 2021 12:48PM
armom4
wrote:
sunshinegal: It's the worst! I think "What if this is something? If I don't get on top of it now, it might be really bad later." But it probably really is nothing. I hear you about pre-worrying. Thanks for that.
ruthbru: I am definitely trying to have a fuller, happier life. I struggled with depression for a long time. I'm trying to be better.
Diagnosed age 35. ATM gene mutation.Severe reaction to Taxol and Taxotere. Just Tamoxifen now
Dx
1/3/2020, DCIS/IDC, Right, 2cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2-
Surgery
2/11/2020 Lymph node removal; Mastectomy; Mastectomy (Right); Prophylactic mastectomy; Prophylactic mastectomy (Left)
Targeted Therapy
3/27/2020 Herceptin (trastuzumab)
Chemotherapy
3/27/2020 Taxol (paclitaxel)
Chemotherapy
4/17/2020 Taxotere (docetaxel)
Hormonal Therapy
5/29/2020 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Surgery
7/1/2020
Surgery
3/3/2021 Reconstruction (Left): Tissue Expander; Reconstruction (Right): Tissue Expander
Surgery
6/8/2021 Reconstruction (Left): Silicone implant; Reconstruction (Right): Silicone implant
R
ruthbru
Joined:
Dec 2009
Posts:
58,078
Latest activity:
Mar 23, 2023
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Sep 21, 2021 01:56PM
ruthbru
wrote:
I found this quote just the other day:

"Invisible threads are the strongest ties." Friedrich Nietzsche
Dx
2/2007, Stage IIA, Grade 3, 0/11 nodes, ER+/PR-, HER2-