Topic: Can we have a forum for "older" people with bc?

Forum: Older Than 60 Years Old With Breast Cancer — Meet other women who are similar in age and dealing with age-appropriate issues.

Posted on: Feb 7, 2009 05:29PM

Posted on: Feb 7, 2009 05:29PM

Northstar wrote:

I am an "older" woman with breast cancer (I was diagnosed at 65 and am now 66).  I notice that most of the posts seem to be from people younger than I am (often by quite a bit...).   I'd love to "talk" with others my age, exchange info about their diagnoses, effects on their lives, etc.   I see that there is a forum for young women.

Someone suggested that maybe it's that older people aren't so computer-savvy or aren't used to being in online discussion groups.   However, for those who are, it would be great. 

DX 8/15/08, ILC, 5.1 cm, Stage IIb, Grade 1, 0/2 nodes, ER+/PR+, HER2-, Oncotype DX 11.
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Feb 22, 2009 01:02PM samedaynurseJan wrote:

Hi Nancy,

Im so sorry for the loss of your husband.....I too have just one son, my story is a little different from yours but similar, my husband fell off a roof at work in 2001 and had multiple serious injuries, I went back to work full time out of necessity and we sold our house of 32 years , moved to a Townhouse to be closer to my son who had been married a little over a year and was expecting his first child. I am still and always will be the breadwinner and benefit it scares me to death to even think of being *sick* for any length of time. I would be interested in knowing what kind of policy you got and how

I think there is a woman on our Illinois chat board who is our age and ER/PR negative and Her2 positive , I will check on the board to see if Im right and then I will ask her to put in a post over here , unless of course Im wrong :)

Smiling at the word *resources* and nothing being free.....and completely understanding. I am very much a *do something about it* person and if I knew what to do about correcting the health care situation I would.....I orchestrated all my surgery and radiation treatments in record time but when you are up against a brick wall it really doesnt budge.

We now have 3 little grandsons.....who I very much intend to see grow up....the baby is 2 today so we are off for birthday cake and party....


A life lived in a life half lived. Dx 12/1/2008, IDC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Feb 22, 2009 01:09PM Pattyb0639 wrote:

I am also a "young older" (age 55) and I think it would be great to have a forum for those of us 50 and older.  Kathleen, I noticed you are from Ashburn, Va and so am I.  We moved here in July 2008.  Would love to get together if you are interested.  I love the testicle remark!!Tongue outPatty
Patty Dx 12/2006, 2cm, Stage IV, mets, ER+/PR+, HER2-
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Feb 22, 2009 02:16PM GramE wrote:

jan:  I used an insurance broker who has the ability to hook you up depending on various factors, including where you live.   I am at a major disadvantage being "single" and cannot hook onto a spouses policy, which I am told would be significantly cheaper.   And I think this plan is no longer available to new people since the first of the year.   

I am in Alexandria, VA.   Anyone like a trip to Old Town for the farmers market and stroll around the town?   I think they start the first Saturday of April, but they close up shop around 10 am -- start at 6 am -- an EARLY event or way to start the day.    

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Feb 22, 2009 04:28PM mikita5 wrote:

Hello. I, too, am in the 'older' category. I would love chatting with other bc ladies.  I think it's sad, but I think my family is tired of hearing about bc. When I was diagnosed, everyone was so wonderful. They called, showed concern, dropped by....the whole works. Now, the only person who calls in my daughter in another state. My sister who was supposed to be my rock, may call once ever 2 weeks. Hubby, when he heard me telling a friend on the phone that I was thinking about the rest of a hysterectomy (had ovaries out in Dec '08 but not cervix or uterus), yelled "why don't you just take off your arms and legs too.....they could get cancer too".  He has no idea how that hurt. I've decided not to talk to him about it anymore. If he wants to know anything, he will have to ask.  THEY JUST DO NOT UNDERSTAND. 

BTW, I am 56, I'm in West Va. Wondering if I have any close neighbors??

If God leads you TO it, he'll lead you THRU it! Dx 1/2/2008, DCIS, 1cm, Stage 0, Grade 3, 0/1 nodes, ER+
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Feb 22, 2009 05:17PM - edited Feb 22, 2009 05:17PM by klp

Hello Mikita

What a horrible thing for your hubby to say to you...gee now I know why I'm not married anymore. When were you dx? And how is your tx going? Sorry you're not getting the support you need. This BC board is here for your support...great people.

Lumpectomy,SNB, 33 rads Oncotype DX chemo!!!! Started Tamoxifen and stopped almost 3 years later.. Dx 10/10/2008, IDC, 1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2-
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Feb 22, 2009 06:05PM mzmiller99 wrote:

Add me to the ranks of moldy oldie!!    I'm still teaching kindergarten, but getting so ready to retire.  Darned economy.

Lefty - If you hadn't posted here, I'd never have known that we were boomers, although, you're na nanana!  I'll be 63 in Nov.

Mikita - I know what you mean about not wanting to talk cancer with the family...or friends, for that matter.  And, as rude and thoughtless as your husband's remark was, it made me laugh - just a typical male response. 

It doesn't seem possible that we youngsters could be this old!  How did it happen? 

My daughter tells me that I'm lucky that I got cancer at this age, because now it's "old lady" cancer.  Meaning, of course, that it is generally easier to treat and less aggressive.  As a women;s health practioner, I hope she's a bit more sympathetic with her own patients!!

Susan IMRT 09/08, Oncotype DX 15, Aromasin 03/09 Dx 6/16/2008, IDC, <1cm, Stage I, Grade 3, 0/1 nodes, ER+/PR+, HER2-
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Feb 22, 2009 06:50PM karol61 wrote:


I'd love to talk to other BC survivors in my age group. I turned 61 today. Hope that all of us "elders" are well. Talk to you all later.


Dx 3/22/2007, DCIS, 1cm, Stage 0, Grade 2, 0/0 nodes, ER+/PR+, HER2+
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Feb 22, 2009 06:52PM karol61 wrote:

Sameday nurse: Keep up that stance on your soapbox all you want Cool
Dx 3/22/2007, DCIS, 1cm, Stage 0, Grade 2, 0/0 nodes, ER+/PR+, HER2+
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Feb 22, 2009 07:20PM kmccraw423 wrote:

Karol60 - Happy Birthday!  Contact me anytime you want to talk.

Mikita- I know exactly what you mean.  Boy do people run out of patience fast!  They may have heard everything before but they don't live with it every second of every day.

Patty:  I sent you a PM.

Lefty:  I am up for a trip to Old Town in April.  We can finalize plans when it gets closer to Spring.

Insurance:  Errrrrrr!  I was laid off and on COBRA.  My old employer did not get some contracts they were counting on and were going to cancer all employee insurance.  Thank God they got enough revenue in to avoid cancelling the insurance.  But you are right, there is nothing out there if you are not 65 and not already insured.

Good night ladies.  Stay strong!

Kathleen Dx 10/3/2008, DCIS, 4cm, 0/2 nodes, ER+/PR+, HER2-
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Feb 22, 2009 08:17PM mrscrj wrote:

I too am a seasoned  woman. The package is 61 years old, but the contents are ageless! As the saying goes.. that's my story and I'm sticking to it!

The subject of insurance is a very frustrating point for hubby & me. He was retired in 2001 after over 30 years with the assurance there was an "annuity" that would cover all of his BCBS insurance until he reached 65 and I would have the same coverage for a very modest monthly payment less than $300 mo. It was one of the reasons he stayed with the company and put up with a lot of stress and frustration. Well, after a couple of years, the company realized this was costing them too much (several had been "retired") and they phased down the amount they paid. When hubby asked about the "annuity" that had been in the neighborhood of $45K, he was told the company originally used the wrong word and it was no longer there. We are permitted to continued to get the coverage at a rate of $1555 for both of us monthly.

Even though the payments take his monthly SS chk plus some, it was a blessing when the BC was found last year. So far, the total amount billed to the insurance company is over $220K, by the time they did their magic with write offs and all, we were only expected to pay a total out of pocket of $4K. We did end up paying about a thousand over that because of confusion about co pays, but should be getting most of that back. 

So, it's been a good news, bad news kind of thing. Writing the monthly check reminds us how the company basically misrepresented the situation but I'm so thankful we had it when we needed it. And can only hope and pray the "let us" continue to keep it until each of us reach 65. 

If anyone is wondering, the retired employees couldn't bring any lawsuits because they were required to sign a release to not take any legal action when they were retired (laid off). 

One good thing is that the Lord has provided the income we need to make the insurance payments every month!

Dx 4/29/2008, IDC, 5cm, Stage IIIA, 11/25 nodes, ER+/PR+, HER2-

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