Topic: Can we have a forum for "older" people with bc?

Forum: Older Than 60 Years Old With Breast Cancer — Meet other women who are similar in age and dealing with age-appropriate issues.

Posted on: Feb 7, 2009 06:29PM

Posted on: Feb 7, 2009 06:29PM

Northstar wrote:

I am an "older" woman with breast cancer (I was diagnosed at 65 and am now 66).  I notice that most of the posts seem to be from people younger than I am (often by quite a bit...).   I'd love to "talk" with others my age, exchange info about their diagnoses, effects on their lives, etc.   I see that there is a forum for young women.

Someone suggested that maybe it's that older people aren't so computer-savvy or aren't used to being in online discussion groups.   However, for those who are, it would be great. 

DX 8/15/08, ILC, 5.1 cm, Stage IIb, Grade 1, 0/2 nodes, ER+/PR+, HER2-, Oncotype DX 11.
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May 13, 2022 10:55AM keywestfan wrote:

Sandy, Age, sometimes, does have its advantages. I did not have a SLNB, nor an Oncotype. I went to Dr. Kevin Bethke at Northwestern for a second opinion which I went to too early. Should have waited until pathology report was in. He stated there would be no SLNB nor radiation, that I would take the AI for 5 years, but that if it caused too uncomfortable side effects I should stop it. Said, in general, with breast cancer, the thought and practice is, less is more. Said he would did not expect pathology would yield any surprises. Thought Dr. W, BS and Dr. M, MO at NorthShore were top notch. Pathology, though, did have a surprise, LVI and, though the margins were clear, I had a second lumpectomy to widen them, which, unfortunately, revealed 3mm of residual cancer. Because of this, MO recommended radiation, even though he had earlier stated that women>70 did not need it. So I bit the bullet, though terrified of it, and had 16 partial. PCP could not believe I had neither SLNB nor oncotype.

On a happier note, ate again at Pomeroy in Winnetka. Quite a few servers are from Mon Ami Gabi where we are going tonite. We ate last night on the patio; fun seeing all the slim blond young women in their light, filmy summer dresses



Anastrozole June 2019 Dx 2/14/2019, IDC, Right, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Surgery 3/24/2019 Lumpectomy; Lumpectomy (Right) Radiation Therapy 4/30/2019 Hormonal Therapy
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May 13, 2022 11:17AM illinoislady wrote:

The best way I have found to follow my true desires is to pay attention to my intuitive sense. We all have great wisdom within us, a part of us that knows exactly what we need at every moment. We are born with this intuitive sense, but most of us are quickly taught to distrust and ignore it. We have to relearn something that should come naturally. Fortunately, it's not too difficult; it just takes some practice. -Shakti Gawain

Each day I am thankful for nights that turned into mornings, friends that turned into family, dreams that turned into reality and likes that turned into love. ~~~Elizabeth Kuebler-Ross Dx 9/27/2007, IDC, 5cm, Stage II, Grade 3, 0/3 nodes, ER+/PR-, HER2-
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May 13, 2022 11:37AM illinoislady wrote:

Taco, you are so right. Medication change was what I needed, but not all CHF is the same. Mine was repaired by getting a pig valve to replace the mitral valve. Or at least that should have been the end of it. No one knows for sure how much blood loss I had during surgery, but my red blood count was enormously slow to respond -- until after some needed medication changes. Then within a couple of weeks I could tell the difference. I hope I never implied in any of my entries here that everyone would benefit from med changes because they won't. It is a question for your Cardiac Dr. perhaps, but only he would know if there is any value to be had.

Pretty here today, but hot again. I think rain/thunderstorm possible tonight. SIL said he heard the owls in the trees ( not sure why they are using our yard ) but didn't see any on the ground anywhere.

Seeing the baby owl close up -- he/she is quite large actually. I wish I knew how to get pics off my camera and share them here. They are amazing birds. I think our cats have enough feral ability to be outdoors and not get 'snatched' by the big owls. We did accompany our puppies when little outdoors and kept them on leashes so they never got out of sight ever. I find it quite a picture to watch all the bigger birds -- like hawks and the lake birds who stand in the water near the shore, waiting for a fish to come along. If you startle them -- they sound like a dog barking. Just a treat to watch them.

I hope you all have a really good day.

Each day I am thankful for nights that turned into mornings, friends that turned into family, dreams that turned into reality and likes that turned into love. ~~~Elizabeth Kuebler-Ross Dx 9/27/2007, IDC, 5cm, Stage II, Grade 3, 0/3 nodes, ER+/PR-, HER2-
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May 13, 2022 03:25PM cardplayer wrote:

Not sure where the day has gone. It’s been humid here, raining off and on. I saw my BS yesterday. Since I’m hitting my 2 year anniversary soon, I’ll be only seeing her yearly rather than every 6 months. I’ll still see my MO every 6 months, so I guess that’s ok. Still trying to navigate Medicare rules around GYN visits. Will probably download the Medicare handbook and do some searches this weekend. 😑

I spent this morning at Kohls trying on bras. I have an appointment next week at Nordstrom, but my PS and BS bit suggested looking at Kohls for mastectomy bras. I think I tried on 6 differed sizes and found nothing comfortable. Bra sizes are random by manufacture.

We use to see burrowing ground owls when we visited my in-laws (years ago) in Cape Coral FL. They would delay the housing development since they were endangered. Once they left their burrows, building would resume.

Enjoy your Friday.

Targeted Therapy 6/30/2020 Perjeta (pertuzumab) Chemotherapy 6/30/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 6/30/2020 Herceptin (trastuzumab) Surgery 11/19/2020 Mastectomy (Right) Hormonal Therapy 12/3/2020 Arimidex (anastrozole) Surgery 12/9/2021 Prophylactic mastectomy (Left) Dx IDC, Right, 6cm+, Stage IIB, ER+/PR+, HER2+
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May 13, 2022 06:50PM chisandy wrote:

Bob's 'scope went well--one large-ish (1cm) polyp but it was pedunculated (on a stalk) and non-pigmented rather than sessile (flatter and non-mobile, which are likelier to be malignant). We'll get the path report Monday, but the gastro isn't worried.

I awoke at 7 am with an incipient tibial spasm--no matter when I go to bed, it always happens between 7-7:30. This time, before the muscle began rippling or the foot dorsiflexing, I felt the leg "stiffening," so I grabbed the bottle of TheraWorx, poured some into my hand and massaged like crazy (the spray nozzle clogs after a spritz or two), then rolled on the Balans Labs CBD-menthol lotion and stretched the muscle by grabbing my foot and forcing it to bend downward (hurt like hell, but not as bad as had I let the spasm take its course). After about 10 min. I was fine. Normally, when it happens I go back to bed but I had to drive Bob down to Evergreen Park for his 'scope. Maybe I'll take a brief nap before the kitties' next feeding.

The Ford dealership called Bob last night to let him know they still haven't even looked at his car and have no idea when they will--they are really backed up because people are trying to squeeze every last mile out of their cars by repairing them rather than trade them in for new ones. So heaven knows how long he'll be driving that rented Nissan Versa (econo-box) and how much the rental will cost. Meanwhile, he was extremely uncomfortable riding in my Outback's passenger seat--it just occurred to me that with his long thighs, any car's passenger seat is torture for him. When he drives, he moves his leg enough not to get the hamstring & sciatic nerve impingement (or pays attention to road & traffic conditions sufficiently to distract him from any discomfort). We will likely remain a two-car family, but with him doing most of the driving on trips longer than an hour. (In taxis or rideshares, he can sort of keep his legs sideways across the back seat, and the seat bottoms on public transit are short enough not to hit his nerve in the "un-sweet spot." On planes, the discomfort of inadequate knee room provides the distraction).

My Medicare supplement pays for a1c and even paid for my antibody-titer. (Bob forgot to ask the blood bank for his titer after he donated on Sunday--maybe because he donated packed red cells and got his plasma re-infused they didn't run a titer, which they do if they want to make "convalescent plasma"). Maybe the reason my a1c is covered is that it used to be over 6 when I was heavier, so they considered me pre-diabetic. (My last one was 5.4).

Diagnosed at 64 on routine annual mammo, no lump. OncotypeDX 16. I cried because I had no shoes...but then again, I won’t get blisters.... Dx 9/9/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 9/23/2015 Lumpectomy; Lumpectomy (Right) Radiation Therapy 11/2/2015 3DCRT: Breast Hormonal Therapy 12/31/2015 Femara (letrozole)
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May 13, 2022 06:56PM - edited May 13, 2022 07:03PM by chisandy

Judy, is Pomeroy open Sundays? This is Bob's biweekly Hospital Hell Weekend, but he says he can make dinner out on Sunday. Regalia is now open every night, but seeing as how we're going there tonight...

Evanston is now in the COVID "high-transmission" category. (The rest of Chicagoland, south of the WI line and west of IN, remains "medium;" Kenosha County is "high" and NW IN is "low"). So we won't be going back to the Barn any time soon, nor will I be grocery-shopping in Evanston. Glad I have lots of KN95s and even more N95s.

I was only 64 at my lumpectomy, but the RO considered me a candidate for the 16-zap protocol. Luckily, I had clean margins, so no re-excision. Bethke is very, very good--he treated two of my friends/Bar Show castmates (one of whom is my now-retired orthopedic surgeon's wife). Dr. Yao, of course, is Dr. W's surgical partner. I suspect that in the not-too-distant future, the standard-of-care for ADH or Grade 1 or 2 monofocal DCIS in older women will be "active surveillance" (and AI therapy if ER+) rather than surgery. Dr. Elisa Port of Mt. Sinai (NY) advocated that as long ago as 2015.

Diagnosed at 64 on routine annual mammo, no lump. OncotypeDX 16. I cried because I had no shoes...but then again, I won’t get blisters.... Dx 9/9/2015, IDC, Right, 1cm, Stage IA, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 9/23/2015 Lumpectomy; Lumpectomy (Right) Radiation Therapy 11/2/2015 3DCRT: Breast Hormonal Therapy 12/31/2015 Femara (letrozole)
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May 13, 2022 08:13PM cardplayer wrote:

I lived in Oak Park during summer break from college. I was a nanny for my cousins who were 4 & 6. My uncle was traveling to Thailand for several weeks on business and my aunt worked as a psychiatrist. I had weekends off and use of a car. I had a good friend who lived in Evanston, so I saw her frequently. Didn't enjoy the nanny part of the job. Learned to enjoy Jack In The Box, saw Elton John that summer, and enjoyed going into Chicago on the weekends

Targeted Therapy 6/30/2020 Perjeta (pertuzumab) Chemotherapy 6/30/2020 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 6/30/2020 Herceptin (trastuzumab) Surgery 11/19/2020 Mastectomy (Right) Hormonal Therapy 12/3/2020 Arimidex (anastrozole) Surgery 12/9/2021 Prophylactic mastectomy (Left) Dx IDC, Right, 6cm+, Stage IIB, ER+/PR+, HER2+
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May 14, 2022 08:09AM keywestfan wrote:

Sandy, As far as I know, Pomeroy is open on Sunday. We’ve been there a few months ago on a Sunday and I just checked the website. There is a front and a back patio, both, I believe, first come, first serve, though, perhaps, one can request one of them by phone if weather is suitable. I prefer the front patio. Restaurant itself is very noisy. Unlike Mon Ami Gabi, where we were last night, Pomeroy has small baguettes. I know you probably stay away from the carbs, but I could eat 10 of them, though usually only two. The menu seems similar to MAG - I,vegetarian, miss the,I’m told, superior onion soup, fish. And I don’t like risotto which Gil scarfed. Great tomato tart though.

As for Evanston being in high transmission, hate it so. Going to physical therapy by Evanston Athletic Club for tired, now strained calf, muscles, tendons, sore, though basically non- arthritic left leg and knee, 2x week. Went for first mani in about a year to place on Davis street yesterday It seemed clean and everyone was masked, but was very crowded. Eat frequently at Blind Faith. Going to Northwestern Olli classes. Like everyone, wish this would all just go away.

Anastrozole June 2019 Dx 2/14/2019, IDC, Right, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Surgery 3/24/2019 Lumpectomy; Lumpectomy (Right) Radiation Therapy 4/30/2019 Hormonal Therapy
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May 14, 2022 08:39AM illinoislady wrote:

It is a difficult lesson to learn today--to leave one's friends and family and deliberately practice the art of solitude for an hour or a day or a week. And yet, once it is done, I find there is a quality to being alone that is incredibly precious. Life rushes back into the void, richer, more vivid, fuller than before.

Anne Morrow Lindbergh

Each day I am thankful for nights that turned into mornings, friends that turned into family, dreams that turned into reality and likes that turned into love. ~~~Elizabeth Kuebler-Ross Dx 9/27/2007, IDC, 5cm, Stage II, Grade 3, 0/3 nodes, ER+/PR-, HER2-
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May 14, 2022 09:36AM carolehalston wrote:

We finally got some much-needed rain yesterday early evening but only a brief hard downpour. Somehow the rain has been skirting us the last few weeks. I have become skeptical when the weather forecasters warn of thunder storms.

I plan to pack some cold weather clothes in a storage bin today. I'll have to wait a few days to start hanging clothes on the clothes rod in dh's truck. Every year I seem to take too many clothes for fear I won't have article of clothing I will wish I had brought.

Being a Pisces and indecisive is not always fun!

Things I miss during the four months in MN are my dishwasher, my washer and dryer, my walk-in closet, my own toilet in the master bath. Also my senior exercise classes at the YMCA. I don't miss the heat and humidity and hurricanes. The three H's.

Nipple-Sparing BMX w/Alloderm & Silicone Implants 7/24/09, Oncotype Dx 9, No Chemo, No Rads, Arimidex Dx 6/25/2009, IDC, 1cm, Stage I, Grade 3, 0/4 nodes, ER+/PR+, HER2-

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