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Topic: Can we have a forum for "older" people with bc?

Forum: Older Than 60 Years Old With Breast Cancer —

Meet other women who are similar in age and dealing with age-appropriate issues.

Posted on: Feb 7, 2009 03:29PM

Northstar wrote:

I am an "older" woman with breast cancer (I was diagnosed at 65 and am now 66).  I notice that most of the posts seem to be from people younger than I am (often by quite a bit...).   I'd love to "talk" with others my age, exchange info about their diagnoses, effects on their lives, etc.   I see that there is a forum for young women.

Someone suggested that maybe it's that older people aren't so computer-savvy or aren't used to being in online discussion groups.   However, for those who are, it would be great. 

DX 8/15/08, ILC, 5.1 cm, Stage IIb, Grade 1, 0/2 nodes, ER+/PR+, HER2-, Oncotype DX 11.
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Feb 27, 2009 04:49AM kmccraw423 wrote:

Hey Lemonjello!  I am 62 with diabetes.  I didn't know having diabetes increases your risk of breast cancer although it doesn't surprise me since it increases the chances of everything else!

I think you will be fine.  I had a bilateral mastectomy on 12/19/08.  Unfortunately, a rare occurrence happened and before I could leave the recovery wound I had to go back into surgery for a broken blood vessel.  I think it was at that time that my expanders (placed in at same time as mastectomy) got infected because one month later I was back in the hospital to remove the expanders due to infection.

With my diabetes the plastic surgeon doesn't want to touch me until I heal completely - he estimates 9-12 months!  Damn diabetes.

I, too, have joint issues and cervical/spinal compression, neuropathy and a host of other ailments and like you take a bunch of pills.

But I am still here.  Look at some of the posts under support.  You might want to call the American Cancer folks about transportation needs.

Sisters -- some suggestions to help Lemonjello?

Kathleen Dx 10/3/2008, DCIS, 4cm, 0/2 nodes, ER+/PR+, HER2-
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Feb 27, 2009 06:39AM - edited Mar 2, 2009 04:09AM by Peggle

*

Enjoy life one day at a time
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Feb 27, 2009 06:53AM klp wrote:

Jo

In answer to your q about med. onc....I first found a BS surgeon, then saw a radiation doc and then a med. onco. I also have a primary care doctor but I see a family nurse practioner instead. So I now have 4 doctors.

A friend gave me the name of the BS surgeon and I made an appt. even before I got the results of the biopsy, just in case it was cancer, which it obviously was.

As long as I had to get cancer it came along at the right time...I am on Medicare and also have supplemental insurance. I have had no out-of-pocket expense. 

Lumpectomy,SNB, 33 rads Oncotype DX 5...no chemo!!!! Started Tamoxifen and stopped almost 3 years later.. Dx 10/10/2008, IDC, 1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2-
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Feb 27, 2009 07:34AM GramE wrote:

achi, I am the same as you, er/pr negative and Her2 +++.  I had dose dense chemo - total of 16 doses. It was no fun, but YES, I would do it again.  The chemo did zap my tumor and I also had no node involvement.  Maybe I am pushing my luck, but I am not doing radiation.  

And yes, I have a medical oncologist who "walks on water".  She has been wonderful and has an oncology nurse assistant whom you can call and ask questions, or leave a message and she does get back to you the same day (unless the weekend).  

My ob/gyn was the one who wrote the mammogram order since I had found a lump and was due for the annual one.   It was immediately followed by ultrasound and a biopsy was then ordered, for 4 days later.  I heard nothing from the ob/gyn, so phoned the office to ask.  The person who answered the phone said " who is your breast surgeon ".  I knew at that moment I had cancer, but felt like I had been shot in the heart.   But she could not tell me if I had cancer or not.   I told her to have the doctor call me ASAP.  When the doctor phoned me, she was very callous, told me the name of a breast surgeon and said she would fax the report.  End. Period.  I will not go back to that ob/gyn again, but will use my PCP, who is part of a Women's Health group.  

Sorry this is too long a post -  only on my first cup of coffee...   HUGS,  Nancy 

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Feb 27, 2009 08:05AM samedaynurseJan wrote:

*laughing here* it took me since 7am on my day off but I do now have a picture posted......for what ever its worth .....still laughing. At least I dont have time to write my usual long post now cause I *frittered* away my morning.....

What I see here....on this forum is an incredible group of women, who are strong, and tough and who are going to weather any and all storms that are thrown at us, because of our life experiences. We are strong and wise enough to help each other and some of the younger women if they need or ask. I read each and every post and find that though all of our concerns and fears are different, they are really all the same. We will support each other....respect decisions and freely give of our own life experiences to help each other....we rock ladies !!!!!

Now I really gotta go and be productive......if going to Target is productive :)

love to all

jan

A life lived in fear....is a life half lived. Dx 12/1/2008, IDC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Feb 27, 2009 08:18AM sydpen2 wrote:

Rebecca,

Yes I was diagnosed at 49 with Stage1 almost 2 breast cancer.  They did the senital node biopsy and took 3 and saw they were clear.  They felt that the cancer had not spread past the senital nodes.  5 years later however it seems it has.  I thought my gall bladder was acting up and was certainly taken off guard when I was told I had severe liver cancer.  Both lobes had large tumors and too many to count throughout.   And then I found out it was also in my bone.  Currently there are no signs of the cancer in my bone at this time praise God and the liver areas have shrunk some.   Still going after that!  Anyhow, this is a journey none of us want to take and it totally stinks.  Thoughts to all of you and have a supervilous day! ??

Debbie

Dx 6/19/2008, Stage IV, 0/3 nodes, mets, ER+/PR+, HER2-
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Feb 27, 2009 08:20AM sydpen2 wrote:

Jan you go girl.  Thanks for the uplifting message!  Wish I were at Target with you!  But I will be tootling to Kansas City for my good ole chemo.   Hey....that's okay... at least we have a chance to fight this silly disease.

Debbie

Dx 6/19/2008, Stage IV, 0/3 nodes, mets, ER+/PR+, HER2-
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Feb 27, 2009 09:43AM - edited Jul 5, 2010 05:35PM by Maire67

This Post was deleted by Maire67.
Dx 6/2005, ILC, Right, 5cm, Stage IIIB, metastasized to bone, 1/9 nodes, ER+/PR+, HER2+ Hormonal Therapy Aromasin (exemestane), Faslodex (fulvestrant), Femara (letrozole) Surgery Lymph node removal; Mastectomy Chemotherapy AC + T (Taxol) Targeted Therapy Herceptin (trastuzumab)
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Feb 27, 2009 10:01AM GramE wrote:

Jan, is today the one where we are supposed to be productive?   eeek, if that is the case, unless making appointment for MUGA, Mammo, and surgical follow up count as productive.   Oh, almost forgot, got insurance referral foul up fixed also.   Whew, can I add cauliflower ear to my "ailments"... lol.   

I will gloat a bit: 62 degrees, bit breezy, sunny and I have the patio door open -- air out this stale apartment.   May all of  you have a fantabulous week end.  Hugs, nancy

PS, I am off to bingo tonight.  Gonna win that jackpot cuz " mamma needs a new pair of shoes " !!! 

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Feb 27, 2009 10:19AM - edited Jul 5, 2010 05:36PM by Maire67

This Post was deleted by Maire67.
Dx 6/2005, ILC, Right, 5cm, Stage IIIB, metastasized to bone, 1/9 nodes, ER+/PR+, HER2+ Hormonal Therapy Aromasin (exemestane), Faslodex (fulvestrant), Femara (letrozole) Surgery Lymph node removal; Mastectomy Chemotherapy AC + T (Taxol) Targeted Therapy Herceptin (trastuzumab)
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Feb 27, 2009 10:23AM Marple wrote:

Oh gosh, I hear ya Maire.  Some days I feel older than my Mom and she has serious health issues.  I don't know how much longer I can stand taking Arimidex........and then I'm scared not to take it.

Dx 2006, IDC, Stage IIB, Grade 2, 1/14 nodes, ER+/PR+, HER2-
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Feb 27, 2009 10:30AM - edited Feb 27, 2009 10:35AM by Sierra

Hi Northstar:

I hope they open the forum

as we all want to participate

Best....

Sierra :))

another question for the gals here

Did any take HRT

or the birth control pill??

you can PM.. if desired

re:  doing chemo again

can not answer until/if recur

tks

Sierra :)

The Time is Now! Dx 1/2000, 3cm, Stage IIB, Grade 3, 1/14 nodes, ER-/PR-
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Feb 27, 2009 10:40AM Marple wrote:

I did take the b.c. pill but did not take hrt.  Chemo again?  I don't know.  I pray I don't have to know.

Dx 2006, IDC, Stage IIB, Grade 2, 1/14 nodes, ER+/PR+, HER2-
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Feb 27, 2009 11:22AM Northstar wrote:

I did take hrt, Estratest HS and natural progesterone.   Neither of these was implicated in the Women's Health Initiative study, which my gynecologist felt was a very flawed study.  She feels that hrt doesn't CAUSE breast cancer, but if the cancer is ER/PR +, then it can certainly FUEL it for years before it's noticed. 

DX 8/15/08, ILC, 5.1 cm, Stage IIb, Grade 1, 0/2 nodes, ER+/PR+, HER2-, Oncotype DX 11.
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Feb 27, 2009 11:54AM klp wrote:

I took HRTs from 1992 to 2002..I stopped when the HRT cancer scare came out in 2002...I think it was cancer or maybe it was heart..heck I don't remember. I just know I stopped. Should never have started in the first place. Took HRTs because I was sexually active with someone I later divorced.

Lumpectomy,SNB, 33 rads Oncotype DX 5...no chemo!!!! Started Tamoxifen and stopped almost 3 years later.. Dx 10/10/2008, IDC, 1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2-
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Feb 27, 2009 12:02PM ritajean wrote:

Hi Gals.....Jan (Samedaynurse) sent me over to this thread and I knew I'd found a place to "park" when I saw your comments on belly fat!   LOL   Do you have room for another grandma here?  I'm 61, soon to be 62.

I was diagnosed in Nov. 2006 with IDC.  I had an excisional biopsy which came back with unclear margins and then had a lumpectomy to obtain the clear margins.  Those two surgeries sure messed up the holidays that year.  I began 6 CMF chemo treatments in Jan. 2007 and had 6 weeks of rads to the surgical area.  I have been taking Arimidex for a year and a half now.  Hopefully it is working for me as I am not ER + but am PR+.  My onc thinks it's worth the chance so I plug along.  At first I had the aching feet and joints, especially the knee.  Now I have occasional knee problems but I'm doing better with the rest.  The joints in my hands have swollen so that I can not wear my usual rings.  My primary care physician says it's Arimidex Induced Arthritis.  They don't hurt so I guess I'm not going to worry about it yet.

I will reread all the posts to see what I've missed when I get a little more time.  This thread is wonderful! 

Rita

Dx 11/21/2006, IDC, 1cm, Stage I, Grade 3, 0/4 nodes, ER-/PR+, HER2-
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Feb 27, 2009 12:05PM klp wrote:

Welcome Rita and to all that I forgot to say hello to....hard to keep up, the board seems to be moving pretty fast.

Lumpectomy,SNB, 33 rads Oncotype DX 5...no chemo!!!! Started Tamoxifen and stopped almost 3 years later.. Dx 10/10/2008, IDC, 1cm, Stage I, Grade 2, 0/2 nodes, ER+/PR+, HER2-
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Feb 27, 2009 01:53PM samedaynurseJan wrote:

*bigsmile* welcome Rita !!!! I knew you would like it here......what's not to like ? We all have ~issues~

I took Prempro.....cause EVERYONE took it.....from about.....1999 to 2001 really not all that long and then all the heart issues came to the forefront and all the docs who said we needed it said nooooooooooooope dont need it anymore.....I would hate to think that a couple of years is what fed my tumor but we all know the world of modern science is a complete mystery.

This is a VERY fast moving board, keeps us all on our toes ! The best bargain I found at Target today was Wolverine sheets for my just turned 3 years old little Superhero freak.....

*giving Nancy THE look* ....as we speak the snowflakes are flying here and its about 21 degrees.....

jan

A life lived in fear....is a life half lived. Dx 12/1/2008, IDC, 1cm, Stage I, Grade 2, 0/3 nodes, ER+/PR+, HER2-
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Feb 27, 2009 02:04PM Northstar wrote:

Hi, everyone--I finally think I got this picture thing to work (my husband says the other pic was too big--good thing I have in-house IT help).   I'm testing to see if my Maine Coon cat's kitten picture comes up.  We got him a week before my bilateral mastectomy surgery in Sept. and he was such a wonderful help--lying on my bed and being the sweetest little thing.  I will never forget how much he helped me recover, just like all my people did.  

DX 8/15/08, ILC, 5.1 cm, Stage IIb, Grade 1, 0/2 nodes, ER+/PR+, HER2-, Oncotype DX 11.
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Feb 27, 2009 02:40PM - edited Feb 27, 2009 02:43PM by JO-5

 Welcome to all newbies since I was here last night!  Wow! This is really turning into a busy thread and I'm loving it. I, too, read every single one.

There are so many different stories and I marvel at the courage and wisdom of all of you!

The question about HRT? I had a hysterectomy at age 32 w/ one ovary removed. Way back then LOL  they didn't know much about Indometriosis --- but in hindsight that's probably what it was.

I did very well until I hit 40 and began to fall apart. It took 6 doctors and two stays in the hospital to find out the remaining ovary stopped working. I went on HRT and it took about three months to get it just right. I did well, I thought, until I was about 59 --- had a lump. (One of those come back in 6 months deals) Dr. took me off HRT - cold turkey! In 6 months the lump was gone.

No more HRT for me..... but was miserable - and I started taking Flax and Soy - and it did help all the menopause symptoms! I had not told the Dr. and did not know anything about it acting like estrogen in the body.

In 04 I was dx. w/ BC in the other breast. Did all those years of HRT cause it? Did the Flax and Soy contribute? Don't know --- and the Dr. says we can't prove it --- but don't take any flax or soy!

I can't answer a lot of your questions - but you have my support and prayers!

Jan,

What a pretty lady you are and a great smile!

So here is my question ---- does it bother any of you to have your picture on the Internet? I have heard some scary stories and am hesitant..............

God bless you all!

JO

IDC 04 Stage 1 Grd 3 no nodes Lumpectomy rads plus boosts ER+PR+HER- AI 5 yr 2014 secondary angiosarcoma from rads lumpectomy recurrence 1 yr Mastectomy with lat flap 1/2 flap went necrotic skin graft to center of chest.
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Feb 27, 2009 02:58PM mikita5 wrote:

Sierra: yes, I took birth control pills for 5 yrs because they told me it would help not to get ovarian cancer. duh!!

If God leads you TO it, he'll lead you THRU it! Dx 1/2/2008, DCIS, 1cm, Stage 0, Grade 3, 0/1 nodes, ER+
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Feb 27, 2009 03:02PM mikita5 wrote:

Ok, if I started menopause 6 yrs ago, my ovaries arent' producing estrogen, right? So, if my cancer was er+,where'd the estrogen come from to fuel the breast cancer?

If God leads you TO it, he'll lead you THRU it! Dx 1/2/2008, DCIS, 1cm, Stage 0, Grade 3, 0/1 nodes, ER+
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Feb 27, 2009 03:03PM - edited Feb 27, 2009 03:03PM by Marple

Sigh, from fat for starters.

Whoopsi, not to say you are fat!!!  Just that it's stored in fat.

Dx 2006, IDC, Stage IIB, Grade 2, 1/14 nodes, ER+/PR+, HER2-
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Feb 27, 2009 03:12PM FACECRAFTER wrote:

Wow it took me forever to get a post in - I had to read all these first!!
My story:  I am 62, dx in August, during a hospital stay where I had a total hysterectomy (a mass was there but not cancerous) and gallbladder removed (stones full) and a bowel obstruction straightened out (NO cutting) and had pancreatitis....Then the Doctor (who found a lump in my breast we thought was scar tissue from the breast lift 2 years ago)  said-  You have breast cancer. Anything else I asked, No that's all - was the answer.  The doctor is one who has treated me for years, and I knew him well.
Needless to say, I recovered from all that surgery, was put on Arimedex thru my sons wedding which was a month away.  Then started chemo.

I had 4 A/C  then 12 Taxol ( I just completed number 10.  Then I will have a Bilat Mast.  I don't want to have to worry about the other breast, and  I want my breasts to be even.  I named the girls "Rise and Shine" after the lift, and these will be named the "Pointer Sisters!"   LOL

Would I have chemo again?  YES.  I had no SE's other then losing the hair on my head (I never lost my lashes or brows or other hair)  And, I have gone to the med onc for many years,(I had something else that only he could monitor) and I trust them.  If he says I need it, I would listen to him.

Does it bother me to have my picture on the internet?  NO. It is not a porno site.  My picture is on my website, and it's never been a problem.  Cancer bothers me, not my picture on a website.  Besides how can we see who we're talking to if we have no picture?  On this site, I had my picture for a while, but I chaged it to SuperSquirrel because I think he represents me better.  If you like I'll put it back for a while.

What I've learned. 

1)  Listen to the doctor who is in htat specialty.  The PS for wound care and issues of surgical import. Do not listen to heim on issues of gen onc, or on radiation, they do not count as a second opinion..

2) The rad onc for issues dealing with radiation. She's studied it, knows it. And I'vd found that a woman cares about the cosmetic outcome as well,  and will take that into account..

3).The med onc for issues dealing with the cancer itself.  

4) Speak up. It's your body and your SE's and it deserves to be treated with respect and kindness.

I think of myself as a Conqueror not a Survivor.
The Jabberwocky poem is on my desk and I, like the beamish boy will have its head..on a platter!.  
Sorry for the long post.  This is a great forum, we sisters here for each other.  I don't often post, but I love reading the posts.  Great info here, and a great group of women that I am so glad I found!   JUDY

Ring the bells that still can ring. Forget your perfect offering. There's a crack in everything. That's how the light gets in. JUDY Dx 8/18/2008, IDC, 2cm, Stage IIB, Grade 3, 5/21 nodes, ER+/PR-, HER2-
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Feb 27, 2009 03:15PM FACECRAFTER wrote:

ER+ cancer means it is Receptive to estrogen, not that estrogen is feeding it now.

Ring the bells that still can ring. Forget your perfect offering. There's a crack in everything. That's how the light gets in. JUDY Dx 8/18/2008, IDC, 2cm, Stage IIB, Grade 3, 5/21 nodes, ER+/PR-, HER2-
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Feb 27, 2009 03:39PM 5graces wrote:

So glad I found this....just added it to my favorite topics!  I didn't even know you could do that~LOL~that's how computer savvy I am at 61 years old!

5graces Dx 2/14/2006, IDC, Right, 1cm, Stage IIA, Grade 1, 1/14 nodes, ER+/PR+, HER2- Dx 12/21/2015, DCIS/IDC, Left, 1cm, Stage IIIA, Grade 2, 8/13 nodes, ER+/PR+, HER2-
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Feb 27, 2009 03:51PM - edited Feb 27, 2009 03:52PM by JO-5

Mikita5

Your adrenals and other glands continue after menopause to produce estrogen and even that small amount can "feed" an ER+PR+ tumor.

I didn't know this and when my Dr. said that I was going to take Arimidex to eliminate the Estrogen in my body ....... I looked at him (probably with a You're Nuts! look) and said, "But I don't have any estrogen."  lol  That's when the nurse took me aside and explained the facts to me!  I try not to think about the Estrogen that comes from fat!  Rats! You had to go and remind me, Sharon!  lol  (Just kidding)   GOT TO LOSE THIS WEIGHT! Laughing

JO

IDC 04 Stage 1 Grd 3 no nodes Lumpectomy rads plus boosts ER+PR+HER- AI 5 yr 2014 secondary angiosarcoma from rads lumpectomy recurrence 1 yr Mastectomy with lat flap 1/2 flap went necrotic skin graft to center of chest.
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Feb 27, 2009 04:01PM FACECRAFTER wrote:

I thought the adrenals were continuing to provide estrogen, but I didn't say because I wasn't sure...so does anyone know how much they produce compared to the ovaries?   But ER+ does mean that it WAS fed by estrogen, or does it mean that it IS fed by estrogen or both?  Does starving it of estrogen make it go away, or does starving it of estrogen make it less "happy'?

Ring the bells that still can ring. Forget your perfect offering. There's a crack in everything. That's how the light gets in. JUDY Dx 8/18/2008, IDC, 2cm, Stage IIB, Grade 3, 5/21 nodes, ER+/PR-, HER2-
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Feb 27, 2009 04:06PM - edited Feb 27, 2009 04:07PM by JO-5

PICTURE HERE YET?

JO

NOPE --- DIDN'T WORK!  GOT TO TRY LATER ----

IDC 04 Stage 1 Grd 3 no nodes Lumpectomy rads plus boosts ER+PR+HER- AI 5 yr 2014 secondary angiosarcoma from rads lumpectomy recurrence 1 yr Mastectomy with lat flap 1/2 flap went necrotic skin graft to center of chest.
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Feb 27, 2009 04:11PM FACECRAFTER wrote:

I changed my picture.  On the other hand, I would not put my birth date on here, it is used for verification in too many places.   JUDY

Ring the bells that still can ring. Forget your perfect offering. There's a crack in everything. That's how the light gets in. JUDY Dx 8/18/2008, IDC, 2cm, Stage IIB, Grade 3, 5/21 nodes, ER+/PR-, HER2-

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