Topic: Triple Negative BC & Older Women

Forum: Older Than 60 Years Old With Breast Cancer — Meet other women who are similar in age and dealing with age-appropriate issues.

Posted on: Mar 4, 2009 08:40AM

Posted on: Mar 4, 2009 08:40AM

tos wrote:

I have been diagnosed twice with triple negative breast cancer.  Ages 56 and 60.

The nature of this subtype is that approximately 2/3 of those diagnosed with tri neg are under 40 so it is hard finding women over 40 and above with this type of breast cancer.

 Anyone here with tri neg?

Love this forum,

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Mar 9, 2009 02:02PM welovebrains wrote:

Hello,

 I'm new to the group, my name is Pam.  My mother-in-law was diagnosed last Jun 08 with IBC TN Stage 3B.  She's 62 years old, underwent 2 types of chemo treatments and 12 weeks radiation between July and December 08.  And the darn cancer still wouldn't shrink.  In January she had surgery to remove the tumors and breasts w/ plastic surgery to cover the area.  She remained in the hospital for 38 days only to discover last week that she has 1 confirmed new tumor (the size of a grape)  and 2 areas unconfirmed (1 under her armpit and in lung). 

In two weeks she will start a round of Carboplatin-Gemzar chemo treatment.  We wonder if anyone had information they could share about the success, side-affects, alternative treatments you've experienced.  FYI -we are in the WDC area.  Thank you

Dx IBC, 1cm, Stage IIIB, Grade 3, 2/2 nodes, ER-/PR-, HER2-
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Mar 28, 2009 03:35PM - edited Apr 5, 2009 05:21PM by LRM216

I'm Linda, just turned 62 at my diagnose in February, 2009 with IDC, triple n.  No family history at all of cancer - I am the first and where this triple n came from, God only knows, but I feel doubly attacked!  Just had lumpectomy 3 days ago and doing well - will see BS this coming Weds for 1 week check and then off to the onc I would suppose.  Wishing you all well-

Linda

Life isn't about waiting for the storm to end, it's about learning to dance in the rain ... Age 62 at diagnose Dx 2/23/2009, IDC, Right, 1cm, Stage IB, Grade 3, 0/1 nodes, ER-/PR-, HER2-, Surgery 3/6/2009 Lumpectomy: Right Chemotherapy 4/24/2009 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxol (paclitaxel), Taxotere (docetaxel) Radiation Therapy 10/20/2009 Breast
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Mar 28, 2009 09:52PM texasrose wrote:

I was just diagnosed at 47.  I am two years postmenopausal though.

Mary~~ Left mastectomy/ no recon, SNB, port placement- 4/3/09; DD AC x 4 and Taxol x 12 plus Clinical Trial E5103 (Avastin); Clinical trial S0307 Zometa arm; BRCA Negative; Right PMX & Bilateral flap reconstruction 2/14/2012. Dx 3/4/2009, IDC, 2cm, Stage IIA, Grade 3, 0/5 nodes, ER-/PR-, HER2-
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Mar 29, 2009 12:05PM tos wrote:

The studies/research for this disease are always based on the age 40 and under.  Does this concern any of you?  Do you feel this would apply to you also or are you curious what the picture looks like for you?  Are our concerns the same as those of the younger women?

Anyone find anything on older women and TNBC and if so could you provide a link.  I have been looking for a long time.

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Mar 29, 2009 04:16PM - edited Mar 29, 2009 04:24PM by Sher

I agree galnok about most of the TNBC information being for younger women.  I've also looked long and hard for information on local recurrences that are TN when the original tumor was ER/PR positive and what if anything that might have to do with risk calculations/prognosis.

Dx 8/28/2000, IDC, <1cm, Stage 1b, Grade 2, 0/14 nodes, ER/PR+, HER2 Dx 6/16/2008 Local Recurrence, IDC, <1cm, Stage 1b, Grade 3, ER/PR-, HER2-
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Apr 1, 2009 02:09AM neela wrote:

hi i am new and recently my mom has been dx with bc triple negative with 10 nodes. she will be starting her chemo from apri 16th onwards. anyone going through the same and if u could share ur experience would be helpful for her.

neela

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Apr 1, 2009 03:01AM ravdeb wrote:

I can't find the exact article, but Constantine (known as Edge) wrote once that those who were diagnosed with triple neg before the age of 50 often and most likely have the more aggressive type that is basal. Those who were diagnosed after age 50 usually do not have this type and thus it is likely that the disease will not spread. Usually with TNBC if it has not spread within the first 3 -4 years from diagnosis (and you've done chemo and rads with lumpectomy or chemo and mastectomy) it will not recur. He even said that after 4 years the chance of recurrence drops well below those who have other types of bc. And..after 8 years it's highly likely that you will never get it back.

However...this is from memory and I can't find where he said it.

I'm over 3 years out since diagnosis and am feeling confident I'll be okay..

IDC, 2cm, triple negative, grade 3, node neg Dx 9/5/2005, IDC, Left, 2cm, Stage IIA, Grade 3, 0/1 nodes, ER-/PR-, HER2-
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Apr 2, 2009 10:20AM rumoret wrote:

Deb,

You are correct.....I read it just the other day on http://www.nosurrenderbreastcancerhelp.org

 Somewhere on that website he went into great detail trying to explain it. I remember thinking of my mother who was dx at 69 with triple negative breast cancer and is now 79 years old this May 7th.

Should all women who are dx with triple negative breast cancer find out if they have the Basal Type? I believe my friend would have liked to of known that......maybe she would have decided to learn more about her type of breast cancer and maybe would not have ignored that nagging cough she had for sometime. Also...I think my friend might have made some Life Changing Goals if she would have known her risk better. She was TOTALLY shocked when she was dx again with this disease.

Interesting thing Deb.......I was thinking about posting something close to what you did above after reading EDGE'S comments.....now I can't even find his words....but it was from the link I posted in this message.

So should any of you want to search the site.....I'm sure you could find it. Get some coffee or tea and explore. I find EDGE to be so informative and all of the women on that site are great! 

Hugs,

Terry 

Hugs to my Sisters, Dx 4/13/2006, IDC, 2cm, Stage IIA, Grade 3, 0/15 nodes, ER+/PR+, HER2-
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Apr 2, 2009 05:57PM tos wrote:

It appears the basal test is not done on a routine basis.  It appears to be a seperate test.

All I have read regarding basal has not mentioned women over 50 need not worry.

My tri neg did come back in 4 1/2 yrs. Both times I was over 50.

With alll due respect to Mr. Edge, I did read his opinion and when I asked more of a explanation or reasoning on why women over 50 had no worries he frankly wouldn't answer me!

I'll go with the studies from reputable websites and people who have credentials.

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Apr 2, 2009 09:07PM Rainenz wrote:

Galnok

I'll join you also being a double triple neg dx and 42 and 51 with multiple nodes involved both times.

Dx 1/1997 3.5cm Medullary, Grade 3, 6/14 nodes er-/pr-, her2 - Dx 6/2006, IDC, 3cm, Stage IIIC, Grade 3, 29/34 nodes, ER-/PR-, HER2-

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