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Aug 17, 2014 12:43AM
Evening My Friends,
Sue - glad you are feeling a little better and I am so glad you have someone to go with you on Wed. You will bounce back so stay strong as that is what we will pray for. What are the se that are associated with that drug? I had neuropathy in my fingers when I was on Abraxane. I added 30 grams of L-glutamine every day and added P5P B6. So glad you got your shot today. I was told that I should never not have it after my Abraxane. I had to have my neupogen shots for two days after the Abraxane as one shot was not enough. There was only one time that my counts were low that I couldn't have my drug but I had to have my shots for two days every time. They need to do a blood draw to check it it would think. Probably something you should ask about.
Char - you will be great and do a wonderful job. Seems like the summer went fast for me.
Angie - how awesome that you are an oncology nurse. It sounds familiar I think but I am not sure. I know that I have been so blessed with some awesome nurses who take care of me every 2 weeks. I do have a question regarding your comment about volcanoes bms, not what you mean by that. Is that a SE from the Abraxane? My SE from Abraxane were minimal spotty bloody nose and neuropathy in my finger tips. I was on it as part of my study trial for 5.5 months along with Avastin and now I am on a daily pill Erlotinib along with the Avastin.
The camping trip has been a really good time. Had my BFF Terri and her DH spend the day with us. My brother showed up after work yesterday so he has his own motorhome. The weather has been great here at the ocean. My BFF and I spent the day going to second hand stores and garage sales. It was a good time. Ended the day with a fabulous dinner at an Irish pub/restaurant that has amazing food. We pack it up tomorrow and have to check out by 12:00 for a 2 hour drive back to the homestead. We did a lot of walking which is good being as I wasn't able to do my third day at curves this week. I have been wearing my pedometer to try and get 10k steps a day. Don't do it most days but it is always nice to shoot for it...lol. My average day is more like 5k. I want to try my best to exercise as it is so important to help fight this terrible disease.
Also, I asked my onc last week about increasing my vit D3 to a higher amount than the 2k I am taking now and she said I could raise it to 4k but no higher. She will also order my blood draw to show what my level is so I know. She said with my diet I am probably getting more than I think. So it will be good to know what it is.
I can't believe it wi be a year on the 28th that I was dx. It's been an amazing journey and I have been blessed and kissed by The Lord plenty. I give Him all the glory for where I am today...thank you Father God for being with me every step of the way. I had a reminder notice that it was time for my annual with my gyno and I have to say I had a bit of anxiety flood through me. So I asked my MO if I could see someone at the center and she is having the gyno call me to see me. We also will be talking about options regarding a hysterectomy. Had an aunt with ovarian cancer and with my cancer it is recommended. Heard other opinions on this so we need to discuss. Part of me just wants it all out so I don't have to worry about those cancers. I think this type of procedure is pretty easy these days. Maybe I already posted this so if I did sorry for the repeat. But it's all on my mind now.
Well have a great night and restful sleep. Keeping you all in prayers. Love and blessings...Lucy
Do not be afraid - I am with you! I am your God - let nothing terrify you! I will make you strong and help you; I will protect you and save you. Isaiah 41.10
8/28/2013, IDC, 3cm, Stage IIA, Grade 3, 0/0 nodes, ER-/PR-, HER2-
9/18/2013 Lumpectomy: Left
11/5/2013, IDC, 3cm, Stage IV, Grade 3, 0/0 nodes, mets, ER-/PR-, HER2-
11/25/2013 Abraxane (albumin-bound or nab-paclitaxel)