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All TopicsForum: Older Than 60 Years Old With Breast Cancer → Topic: Seniors receiving treatment for breast cancer

Topic: Seniors receiving treatment for breast cancer

Forum: Older Than 60 Years Old With Breast Cancer —

Meet other women who are similar in age and dealing with age-appropriate issues.

Posted on: Jun 4, 2017 03:42PM

HapB wrote:

I am wondering whether there are any seniors out there who want to share our particular concerns with treatment.

Dx 4/2017, IDC, Right, 1cm, Stage IA, Grade 2, ER+/PR+, HER2+ (FISH) Surgery 5/10/2017 Lumpectomy: Right Targeted Therapy 6/9/2017 Herceptin (trastuzumab) Hormonal Therapy Radiation Therapy
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Nov 28, 2017 08:16PM - edited Nov 28, 2017 09:48PM by Blair2

Paulette- me too! I have a whole kitchen cab with nothing but golden medicine bottles in it. Welcome to the golden years!

Oncotype DX score 27 Dx 9/6/2017, IDC, Left, 2cm, Stage IA, Grade 3, 0/5 nodes, ER+/PR+, HER2- (IHC) Surgery 10/12/2017 Lumpectomy: Left Chemotherapy 11/30/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy Hormonal Therapy
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Nov 28, 2017 09:37PM MinusTwo wrote:

Blair - of course all docs say most people don't get neuropathy, or if they do it resolves. That is just not true. You need to ice from the start. Starting later won't work. I iced only my fingers the first infusion & didn't do my feet until the 2nd time. Bad decision. I have permanent CIPN in my feet. The neurologist said after my chemo that it may get some better - but that didn't mean I would go back to where I was originally. That said - some people don't get neuropathy - but Taxotere & Carboplatin are both drugs that can cause this condition.

The theory is that if your fingers/toes are kept at freezing temperatures the drug will not go there. Some docs agree & some don't

I took a cooler with my lunch, but the facility had a fridge with a freezer to hold the frozen peas. That's your easiest option for now. And I took a quilt, because yes, it's cold.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Nov 28, 2017 10:16PM Blair2 wrote:

Well, - the nurse didn't word it like "most people don't get neuropathy". She said I wouldn't get it because I'm on taxotere and Cytoxan. I don't know, but I understood it as though those drugs didn’t cause that symptom. Could you have mixed it with the drug toxel? It’s not taxotere, because I thought it was the same drug at first, but they are two different chemo drugs. However, I will definitely question it again at my visit about the taxotere causing it. That's a concern if she’s wrong. I don't know how to keep my feet iced though at this point. The peas sound easy. Maybe I'll bring four bags of peas and sleeping socks that I could stuff them into with my feet on top? They did say to dress warm as it is cold in the rooms. I’ll freeze if that’s the case, however they apparently provide warm blankets.

Oncotype DX score 27 Dx 9/6/2017, IDC, Left, 2cm, Stage IA, Grade 3, 0/5 nodes, ER+/PR+, HER2- (IHC) Surgery 10/12/2017 Lumpectomy: Left Chemotherapy 11/30/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy Hormonal Therapy
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Nov 28, 2017 10:56PM - edited Nov 28, 2017 11:00PM by MinusTwo

Blair - yes I know the difference. Taxotere is stronger & that's what I had. It is true some people never have this side effect. Maybe you'll be luck.

Docs do not talk about neuropathy. They do not talk about lymphadema.

BTW - you won't likely see the symptoms until after the 3rd or 4th infusion, but if you do experience this, tell your MO immediately and they will usually reduce the dose.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Nov 28, 2017 11:05PM MinusTwo wrote:

Blair: This WIKI entry for CIPN has a good description.

https://en.wikipedia.org/wiki/Chemotherapy-induced...

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Nov 29, 2017 07:12AM Blair2 wrote:

Minustwo - yes, I see what you mean. I will bring frozen peas and protect myself as I don’t trust drugs or medical people too much when there are controversial issues like this

Oncotype DX score 27 Dx 9/6/2017, IDC, Left, 2cm, Stage IA, Grade 3, 0/5 nodes, ER+/PR+, HER2- (IHC) Surgery 10/12/2017 Lumpectomy: Left Chemotherapy 11/30/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy Hormonal Therapy
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Nov 29, 2017 10:41AM MinusTwo wrote:

Blair - I ended up with CIPN but my MO gave me the choice whether to cut back the strength of the doses or stop the taxotere and I continued. Considering I'm NED (no evidence of disease), I feel like I made the right choice. Wishing you easy treatments.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Nov 29, 2017 10:46AM Denise-G wrote:

My sister and I iced our hands and feet during Taxol. It certainly helped - we both have a little bit of neuropathy in one foot - but I've gotten used to it through the years! We also did not lose any finger nails or toe nails. We wore socks and gloves - had the nurses bring us ice trays, and kept them in with periodic breaks during Taxol infusion only.

Best of luck!

www.denise4health.info my BC Blog with over 175 informative posts - stop by and say hello! Myself, my mom, and sister were all diagnosed with BC within 3 years. What a ride! Dx 10/10/2011, IDC, Left, 6cm+, Stage IIIA, Grade 2, 9/14 nodes, ER+/PR+, HER2+ (FISH) Surgery 11/22/2011 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 12/26/2011 AC + T (Taxol) Targeted Therapy 2/27/2012 Herceptin (trastuzumab) Hormonal Therapy 10/10/2012 Arimidex (anastrozole)
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Nov 29, 2017 10:56AM - edited Nov 29, 2017 10:57AM by HapB

This Post was deleted by HapB.
Dx 4/2017, IDC, Right, 1cm, Stage IA, Grade 2, ER+/PR+, HER2+ (FISH) Surgery 5/10/2017 Lumpectomy: Right Targeted Therapy 6/9/2017 Herceptin (trastuzumab) Hormonal Therapy Radiation Therapy
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Nov 29, 2017 11:07AM Blair2 wrote:

Thanks - got my small ice chest ready and I had 4 long ice packs that I can use to somewhat ice my feet that will fit inside hospital type socks. I will figure something for my hands. I don’t know if I can tolerate 3 hours of iced hands or feet, but it’s worth the try.

Oncotype DX score 27 Dx 9/6/2017, IDC, Left, 2cm, Stage IA, Grade 3, 0/5 nodes, ER+/PR+, HER2- (IHC) Surgery 10/12/2017 Lumpectomy: Left Chemotherapy 11/30/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy Hormonal Therapy
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Nov 29, 2017 11:35AM Beatmon wrote:

Doesn’t cause neuropathy? That is pure cow manure!

Dx 7/27/2012, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2+ Surgery 8/9/2012 Lymph node removal: Left, Sentinel; Mastectomy: Left, Right Surgery 12/1/2013 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 7/1/2014 Reconstruction (left); Reconstruction (right) Dx 8/9/2014, IDC, Both breasts, Stage IV, metastasized to lungs, Grade 3, ER-/PR-, HER2+ Targeted Therapy 8/27/2014 Herceptin (trastuzumab) Targeted Therapy 8/27/2014 Perjeta (pertuzumab) Chemotherapy 8/27/2014 Taxotere (docetaxel)
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Nov 29, 2017 11:40AM Blair2 wrote:

Minustwo - Beatmon

How many rounds did you have? Mine are 4, but still don’t trust these drugs. I’m definitely going to protect myself even if they poo poo it.

Oncotype DX score 27 Dx 9/6/2017, IDC, Left, 2cm, Stage IA, Grade 3, 0/5 nodes, ER+/PR+, HER2- (IHC) Surgery 10/12/2017 Lumpectomy: Left Chemotherapy 11/30/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy Hormonal Therapy
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Nov 29, 2017 11:54AM DodgersGirl wrote:

Blair2-- you only need to ice just prior to the taxene chemo until just after the taxene chemo, not thru the entire process. For me, with Taxol, I iced 15 mins prior, thru the 1 the one hour of Taxol, and then for a few minutes after Taxol.

Memorial Sloan Kettering has a PDF on "Nail Cooling During Treatments with Taxene-based Chemotherapy" which talks about icing to minimize nail changes.

Best of luck to tou

Dx 3/10/2017, IDC, Right, Stage IIIB, Grade 2, ER+/PR+, HER2- Chemotherapy 4/4/2017 AC + T (Taxol) Surgery 9/10/2017 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Radiation Therapy 10/23/2017 Whole-breast: Breast, Lymph nodes
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Nov 29, 2017 11:55AM Beatmon wrote:

I had seven rounds of Taxotere, Herceptin and Perjeta. Forever drugs of Herceptin and Perjeta.

Hopefully with 4 treatments you will have fewer problems...because it appears to be cumulative. I knew about chewing ice during the Taxotere infusion, but was not aware of icing feet and fingers. I wish I had. My feet are better at year 3.5 but my toes and finger tips are still numb and painful

Dx 7/27/2012, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2+ Surgery 8/9/2012 Lymph node removal: Left, Sentinel; Mastectomy: Left, Right Surgery 12/1/2013 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 7/1/2014 Reconstruction (left); Reconstruction (right) Dx 8/9/2014, IDC, Both breasts, Stage IV, metastasized to lungs, Grade 3, ER-/PR-, HER2+ Targeted Therapy 8/27/2014 Herceptin (trastuzumab) Targeted Therapy 8/27/2014 Perjeta (pertuzumab) Chemotherapy 8/27/2014 Taxotere (docetaxel)
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Nov 29, 2017 12:26PM Blair2 wrote:

Thanks all, then again, I wonder if 4 treatments mean heavier dosage! Ugh! I feel like this is going to kill me once and for all

Oncotype DX score 27 Dx 9/6/2017, IDC, Left, 2cm, Stage IA, Grade 3, 0/5 nodes, ER+/PR+, HER2- (IHC) Surgery 10/12/2017 Lumpectomy: Left Chemotherapy 11/30/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy Hormonal Therapy
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Nov 29, 2017 08:44PM MinusTwo wrote:

Dodgers girl is correct - icing only for the Taxotere. 15 min before, the hour of the infusion and 15 min after.

I had 6 rounds of four chemo drugs + drugs for nausea. Somewhere in the mounds of paperwork I collected, I have records of the ML in each dose. I thought I'd want to know again, but why? I did note that my 'loading doses' for the first infusion were 90 minutes for the Taxotere & the Herceptin and then 60 minutes for the next 5 infusion. Carboplatin & Perjeta started at 60 minutes & continued the same.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Nov 29, 2017 11:25PM - edited Nov 29, 2017 11:26PM by Polly413

Blair I don't know but it sounds like you may be having taxotere dose dense which means 3 1/2 hours of taxotere infusion every other week for 2 months. Could this be? I was supposed to have taxol that way and did the one dose dense infusion. But it was very difficult and uncomfortable to ice that long. So I changed to weekly. Iced hands and feet for five weekly treatments. Today when I went in for the sixth weekly treatment (equivalent to #9 as I had 3 times the dosage the first time as dose dense) my oncologist called off the dogs because I have mild neuropathy in my fingers and while I have so far escaped it in my feet, it is beginning in my legs. (no way I know to ice your legs) So I am through with chemo. He says continuing would give me minimal benefit re the cancer as I have completed AC dose dense as well as those 8 Taxol infusions. So too much risk with too little benefit to continue. I am 72. IDC 7 mm tumor stage IIA, grade 2 with 1/3 nodes positive.

Sometimes neuropathy begins or get worse after the treatments stop. So I have an appt in 2 weeks for the doctor to check my neuropathy status. Hoping for the best as I am an active person and do not want to be disabled. Good luck.

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Nov 30, 2017 12:06AM MinusTwo wrote:

Polly - Sounds like you've done Taxol and not Taxotere. I don't think they give Taxotere weekly - or evey even every other week, but of course I could be wrong

Blair - good luck tomorrow. If you feel up to it, do check in.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Nov 30, 2017 12:41AM PauletteK wrote:

Blair2- I wore cheap plastic gloves so my hand won’t get wet, also I put a thin towel between my hands and the frozen peas so it won’t burn my skin. I hope this info helps you. I didn’t lose any nails, I have neuropathy and praying it goes away slowly.


Dx 4/1/2017, IDC, Left, 2cm, Stage IIB, Grade 2, 2/8 nodes, ER+/PR+, HER2- Surgery 6/15/2017 Lumpectomy: Left; Lymph node removal: Left, Underarm/Axillary Chemotherapy 7/19/2017 AC + T (Taxol) Radiation Therapy Whole-breast: Breast Hormonal Therapy Arimidex (anastrozole)
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Nov 30, 2017 06:34AM Blair2 wrote:

Thanks for all your input guys - sitting here drinking my morning coffee. My treatments are 3 weeks apart, so should end by mid February. I hope I can figure 15 minutes before treatment as these nurses probably start immediately without any warning. will report later

Oncotype DX score 27 Dx 9/6/2017, IDC, Left, 2cm, Stage IA, Grade 3, 0/5 nodes, ER+/PR+, HER2- (IHC) Surgery 10/12/2017 Lumpectomy: Left Chemotherapy 11/30/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy Hormonal Therapy
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Nov 30, 2017 12:52PM lrwells50 wrote:

You will have some warning before the Taxotere, because they’ll give you premeds first. Don’t assume you’ll have problems, some don’t. I didn’t have any nausea, and no diarrhea, but did have some constipation. Hard to pretreat when you don’t know which might be a problem! Because I have Reynaud’s, my MO didn’t recommend me icing hands or feet. i did chew on ice during the Taxotere. No foot problems so far, but I do have some lifting on some of my fingernails that didn’t show up until they grew out for about 3 months. My MO recommended tea tree oil, which I was already using.

I had a dry cough for a while after chemo, which took a while to go away. My PCP sent me for an X-ray as a precaution, but it didn’t show any problems.

I think I could have driven myself the two hours to and from chemo, but luckily I didn’t have to put it to the test. I never slept on the way back. In fact, my husband and I usually stopped to eat a late lunch in Dallas before driving back to our small town.

Good luck

Diagnosed at 66, OncotypeDx 24, I think because although I was 100% ER+, I was very weakly PR+ . BARD1 mutation, mother had breast cancer twice. Dx 12/5/2016, ILC, Left, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery 3/8/2017 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 5/19/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy Arimidex (anastrozole)
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Nov 30, 2017 01:06PM Tappermom383 wrote:

I also have Raynaud’s, Irwells50. Just a walk through the frozen food aisle triggers it. Folks are astonished at the changes in the colors of my fingers! Chemical hand warmers are my friends in the winter.

MJ

Diagnosed at 70 after four excisional biopsies over the course of 47 years. MammaPrint came back Low Risk. DexaScan: osteopenia. Cancer removed was 1.8 cm. Dx 3/23/2017, DCIS/IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 3/31/2017 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 5/22/2017 Whole-breast: Breast Hormonal Therapy 7/17/2017 Arimidex (anastrozole)
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Nov 30, 2017 01:38PM lrwells50 wrote:

Tappermom383,

The best investment I made was adding remote start and a heated steering wheel to my car. It can be 58 outside and grabbing the steering wheel can trigger it. I usually don’t have trouble in the frozen food section, though. So far my feet don’t seem to be affected, but I have a niece that has problems with both.

The first time t happened to me I was afraid I had a blood clot

Diagnosed at 66, OncotypeDx 24, I think because although I was 100% ER+, I was very weakly PR+ . BARD1 mutation, mother had breast cancer twice. Dx 12/5/2016, ILC, Left, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery 3/8/2017 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 5/19/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy Arimidex (anastrozole)
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Dec 6, 2017 12:31AM HapB wrote:

I have been looking at Medicare Drug Plans and I am totally confused. Is anyone on Exemestane and Meidcare Part D. My copay is over 200 dollars, but the monthly plan cost is low and it looks like there is no way around high prices when I add things up. Anyone on a Part D plan that they like?

Dx 4/2017, IDC, Right, 1cm, Stage IA, Grade 2, ER+/PR+, HER2+ (FISH) Surgery 5/10/2017 Lumpectomy: Right Targeted Therapy 6/9/2017 Herceptin (trastuzumab) Hormonal Therapy Radiation Therapy
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Dec 6, 2017 02:03AM marijen wrote:

HapB, did you try Silverscript Choice Plan

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Dec 6, 2017 10:35AM MinusTwo wrote:

I think the only way to do this is find the lowest price for the drugs you need and balance that against the monthly cost. And every state is different. And darned if we don't have to do it all over again every year - when of course the covered drugs & their prices go up again - every year. Personally I picked the lowest monthly cost, since it seems whenever I need a drug it's in Tier 4 anyway. It sure does require advanced math skills.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Dec 6, 2017 10:57AM HapB wrote:

MinusTwo,mit looks like that is what I will do. The plans are all structured to profit and it looks like the only drug that I may need in Tier 4 is the exemestrane. Who knows. The drug companies are outrageous' but we have no alternative

Dx 4/2017, IDC, Right, 1cm, Stage IA, Grade 2, ER+/PR+, HER2+ (FISH) Surgery 5/10/2017 Lumpectomy: Right Targeted Therapy 6/9/2017 Herceptin (trastuzumab) Hormonal Therapy Radiation Therapy
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Dec 6, 2017 12:20PM Blair2 wrote:

In FL the plans vary by county. If you receive a Medicare booklet each year, in the back they should list all the plans available for your state, then county or parrish. It’s a challenge all right, but with the list you can compare the different plans. They should show co-pays, cap levels, deductibles, what you pay to your primary or specialist. It should show monthly fees or those with no premiums. Most Part D’s are with advantage plans, or if you pick a Medicap supplement plan, you will have to buy a separate drug plan. The thing that got my goat was I didn’t qualify for a Medicare Supplemental plan because the underwriters disqualify you if you have any type of cancer. If you have most of your doctors under a clinic, you have to make sure your clinic accepts that insurance- just call or check their website to see a list of insurances they accept. If you have a private doctors office, you should call them and ask if they accept the plan you’re interested in.

It’s a beurocracy we can’t control. All these insurance companies rip us off. Basic Medicare is somewhat worse, here at least, but you definitely have to do your research for your state. A Medicare health market could help you if you’re still confused


Oncotype DX score 27 Dx 9/6/2017, IDC, Left, 2cm, Stage IA, Grade 3, 0/5 nodes, ER+/PR+, HER2- (IHC) Surgery 10/12/2017 Lumpectomy: Left Chemotherapy 11/30/2017 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy Hormonal Therapy
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Dec 6, 2017 10:55PM MinusTwo wrote:

Blair - I don't believe that someone just starting medicare can be refused because of prior health issues. I do know that if you choose an Advantage plan (HMO - Part C) instead of original medicare (Part B) & supplemental, there are health questions & limitations if you want to change to the more thorough coverage later. In that case the supplemental plans (Part B) can refuse coverage. I also know if you choose an Advantage plan (HMO) you are limited in your choice of docs to their lists - which may also change every year. And finally - although Advantage plans (Part C) usually cover drugs, they are never called Part D. You only have to enroll in the stand alone drug plans (Part D) if you choose standard medicare.

You're right. We are all stuck with what there is. I'm very grateful that I chose standard medicare, since I have access to any doctors I want to see for any reason at any time with no prior approval - or any clinic or hospital. They have never questioned a bill or a claim. Several of my friends changed to the Advantage plans and are not happy with the constraints. It may appear to cost more, but I don't really think it's a better deal if you can't get care (for example) at MD Anderson or Mayo Clinic or the top cancer places.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Dec 6, 2017 11:06PM HapB wrote:

minus2, are your referring to part F? I have part A, B, D, and F. F is the best! Well, after today, we have to wait until next year to change.

Dx 4/2017, IDC, Right, 1cm, Stage IA, Grade 2, ER+/PR+, HER2+ (FISH) Surgery 5/10/2017 Lumpectomy: Right Targeted Therapy 6/9/2017 Herceptin (trastuzumab) Hormonal Therapy Radiation Therapy

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