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Topic: Age 72 - off Arimidex a year, still experiencing night sweats

Forum: Older Than 60 Years Old With Breast Cancer —

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Posted on: Jun 11, 2021 07:20AM

JaneQPoppy wrote:

TL;DR I feel like my five years on Arimidex permanently altered my internal thermostat even though I've been off it a year, especially when it comes to sleeping. Wondering if anyone else has experienced a long-term side effect like this?

Long version: I took Arimidex for five years and stopped it a year ago. I feel like my body's internal thermostat is permanently messed up. When I first started taking it in July 2015 (IDC, lumpectomy, 3 wks rads, no chemo, details in footnote), I went into a state of constant hot flashes. I didn't even have hot flashes when I went through menopause for real in 1999. And these were constant 24/7. The worst was at night. I could not find the combination of bed clothes -- for me OR for the bed -- that prevented me waking up drenched several times during the night. The fact that it was summer in South Texas didn't help, central a/c always on.

Eventually I started sleeping under a loosely woven cotton coverlet (even a top sheet was too hot) and resigning myself to changing my cotton nightgown at least three times during the night. Sleeping nude made me too cold, but any more covers or clothes made me too hot.

I finally stopped taking Arimidex coming up on a year ago, and all the other side effects that I blamed on it (nerve pain/burning in lower legs, and some other stuff) have gone away. But I am still waking up sweaty during the night. Not multiple times and not thoroughly drenched like I was on the drug, but I still do have to change my gown at least once. Now I'm mostly sweaty around my head and neck (so my pillow gets sweaty-ugh). I wear and use only cotton "breathable" fabrics, both on the bed and on me.

I keep the temp around 75 at night. I know that sounds really warm, and the sleep articles say crank your temp down to the high 60s, but I can't tolerate it that cold. I wake up achy from the cold. I have a ceiling fan in the bedroom and sometimes I wake up cold and have to turn it off because of the draft. At this time of year, the a/c is always on, although not always running (my central a/c is brand-new and pretty efficient).

The body temp roller coaster is most aggravating at night, but not limited to night. Even just being here at home (I'm retired and live alone) all day every day during the pandemic, I'm constantly turning fans on and off and I get too hot then too cold. I can cope when I'm awake, but I'd so looooove to get a really good night's sleep!

[Cross-posted in Arimidex side effects forum]

Dx 3/2015, IDC, Left, 1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 3/12/2015 Lumpectomy: Left Radiation Therapy 6/10/2015 Whole-breast: Breast Hormonal Therapy 7/15/2015 Arimidex (anastrozole)
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Jul 25, 2021 04:06AM Lynn1234 wrote:

sorry about the night sweats…i have them too. But not on my head and neck anymore . I bought a “cool pillow”. I cant think of the brand name, but it works pretty well

Dx 3/26/2013, IDC, Right, 5cm, Stage IV, metastasized to bone, 1/27 nodes, ER+/PR-, HER2+
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Jul 25, 2021 05:33AM JaneQPoppy wrote:

Hi Lynn- thanks for the reply. I think I solved the problem. I read that night sweats might be a sign of sleep apnea, and that one of the things that might help is a wedgie pillow to elevate my upper body. I got one at Bed Bath & Beyond, and that seems to have fixed it. I position the bottom edge of the pillow at my hip and put the big fluffy pillow for my heat at the top of the wedge. I easily fall asleep and stay asleep. No more sweats. Interesting, eh?

The problem with a cooling pillow for me is that I also get cold during the night. It's a temperature roller coaster. So if when (hehe) I get up to pee around 3 or 4 am, I turn off the ceiling fan and bump the thermostat up one degree. Also put my cat out of the bedroom, as for some reason, she feels this is the perfect time for her to bathe (lick-lick-lick). It's like a carefully choreographed dance.

Honestly, I've gotten so quirky in my sleeping habits I can't imagine ever sharing a bedroom with another human being... thanks again for your note. I was hearing *crickets* in this space.

Heart

Dx 3/2015, IDC, Left, 1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 3/12/2015 Lumpectomy: Left Radiation Therapy 6/10/2015 Whole-breast: Breast Hormonal Therapy 7/15/2015 Arimidex (anastrozole)

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