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All TopicsForum: Not Diagnosed With a Recurrence or Metastases but Concerned → Topic: help help help with port removal question

Topic: help help help with port removal question

Forum: Not Diagnosed With a Recurrence or Metastases but Concerned —

Meet others concerned about developing a recurrence or metastases.

Posted on: Jun 27, 2009 02:42AM

mmm5 wrote:

Hi ladies

 Had my port removed just over a month ago it was swollen and bruised all over my chest. Now a month later I still notice a ball type bump right above port scar. This is on the opposite side of BC breast. It took a long time for swelling to go down and bruising to go away, but now I am afraid it is a swollen lymph node. It doesnt make sense logically that it would be as I just finishe Herceptin and had clean bill of health, it is on opposite side of BC breast, but I can't help panicking. Did anyone else have a bump after port removal, please would love to hear from many of you.

Dx 4/4/2008, IDC, 1cm, Stage I, Grade 3, 0/4 nodes, ER+/PR+, HER2+
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Jun 27, 2009 01:49PM mmm5 wrote:

bump for anyone that may have experienced port removal lumps, just very nervous.

Dx 4/4/2008, IDC, 1cm, Stage I, Grade 3, 0/4 nodes, ER+/PR+, HER2+
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Jun 27, 2009 01:58PM Sandygirl wrote:

Fancy meeting you here.  I just had my port out 2 weeks ago.  It still feels like the port is in, it is a lump the exact same size and it itches like crazy.  Actually the day after the procedure it was swollen the size of a baseball.  I called the surgeon and he said, they rarely grow to that size, well I guess I was rare because it was that big.  He told me if it got any larger to meet him on Monday, this was a Friday.  I kept a bag of peas on it for 3 days and it went down.  You are right I cannot believe that it still feels like this. 

Sandygirl Dx 8/25/2008, IDC, 1cm, Stage II, Grade 2, 2/15 nodes, ER+/PR+, HER2-
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Jun 28, 2009 11:15AM mmm5 wrote:

Sandygirl
Mine was very swollen and very bruised all over, looked like trauma surgery!

The lump is still there and am just really worried about the lymph node in chest as  I mentioned it is on opposite side of BC and right at incision by port but definitely prominent. The only comfort I have is that I know I just had something done here.

Keep me updated and let me know how your Liver US goes, I am sure it will be fine!

Dx 4/4/2008, IDC, 1cm, Stage I, Grade 3, 0/4 nodes, ER+/PR+, HER2+
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Jun 28, 2009 11:24AM PatMom wrote:

I posted this on the other thread too.

I got my port out just over a month ago too.  As soon as the incision was closed (healed), I started massaging it to keep from forming a keloid scar (large raised) which I am prone to.  About a week later, I noticed an area of thickening where the port had been and included that in my massage.  Within a few days, it had become a much smaller and well defined area, and at this point has virtually disappeared. 

A lot of scar tissue had formed around the port, so when that thickening appeared in that same area, I just treated it like scar tissue that can be massaged to soften it.  I know that cancer doesn't just disappear following massage, so I am quite confident that what I had was scar tissue.

Even if it is a swollen lymph node, that could easily be caused by the surgery disturbing that area and causing a disruption in the flow of the lymph system.  Swollen lymph nodes are usually nodes that are doing their job of removing toxins and germs from an area, so that isn't automatically a cause for alarm unless the swelling continues and becomes more pronounced over a period of time.  Most people here seem to follow the two week rule...if an issue doesn't resolve or significantly improve within two weeks, it is time to bring it to the doctor's attention. 

I hope that your issues resolve themselves long before that two week window is up.

Until the time when someone comes up with a definitive "cure", we each have to cobble together what we believe will be the most effective treatment that we can live with, not merely survive.
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Jul 7, 2009 05:14PM AnnaM wrote:

My port scar is worse than any of my bilateral DIEP scars (breast, tummy) or even my hip replacement scar! Maybe it's because the port was in for a year and a half (chemo plus Herceptin)? I had my port removed during the summer of 2007 and did all sorts of massaging and scar treatment plasters, still, it's the worst of all my scars.

Bilat. MX + DIEP 9/2005, 0/9 nodes and 2/2 nodes; IDC, <1cm, Stage IIa, Grade 3, ER-/PR-, HER2+; 4x A/C, 4x Taxol and 1 yr. weekly Herceptin
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Jul 7, 2009 10:30PM mmm5 wrote:

Anna did you have a lump under it for a bit?

Dx 4/4/2008, IDC, 1cm, Stage I, Grade 3, 0/4 nodes, ER+/PR+, HER2+
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Jul 7, 2009 10:41PM lexislove wrote:

mmm5, I had my port out 8 months ago and I have like a dent where it use to be. I would suspect your "bump" to be scar tissue. We all heal differently and having that thingy inside of us for more than a year our bodies adapt to it. What i'm saying tissues souround it and attch to it, so when the surgeon removes it, there will be some kind of trauma Ex, lumps,bumps,indentations

Dx:2007, 2B, Triple+, June 2008:Lupron,Zometa,Tamox.Jan 2010:Poor metabolizer of Tamox switch to Femara.Feb 2010: cyp2d6 test reliable? Back to Tamox. Ooph soon.
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Jul 7, 2009 10:43PM lexislove wrote:

I really hate my port scar. It is worse than my mastectomy scar and bothers me more actually. I have put Bio Oil on it but it has helped only a little. I have been doing some tanning, and now that I'm golden, the scar is not as noticeable.

Dx:2007, 2B, Triple+, June 2008:Lupron,Zometa,Tamox.Jan 2010:Poor metabolizer of Tamox switch to Femara.Feb 2010: cyp2d6 test reliable? Back to Tamox. Ooph soon.
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Jul 8, 2009 01:02AM shelloz1 wrote:

I had my port out almost a year ago, it hurt me horribly after, I had a very large lump there, and it took a long time before it went away, I was told this is quite normal (I was convinced there was something wrong).  My doctor put my port in a really bad spot, and left me with an awful scar.

hugs and prayers to all.

Shelley

Dx 9/2006, IDC, 1cm, Stage I, Grade 3, 0/8 nodes, ER-/PR-, HER2+
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Jul 8, 2009 10:35AM mmm5 wrote:

Thanks to you all, you are great!

I went into to the breast center a few days ago for regular check up and just casually mentioned the lump and they popped me up on the US table and took a look right then. They are 98% sure it is trauma from port removal. Of course 100% would mean I would have to biopsy and I chose not to as it just makes sense to have a bump there after port removal. Shelley , Anna, and LexisL thanks for your feedback, it is so logical when you think about it, but the emotions of BC just don't behave logically do they?

Dx 4/4/2008, IDC, 1cm, Stage I, Grade 3, 0/4 nodes, ER+/PR+, HER2+
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Jul 8, 2009 11:27AM hrf wrote:

I had my port removed yesterday. The doctor who took it out said I would be left with a permanent lumpy area as a result of the port. Is there anything that can be done to minimize the lump?

BRCA2+ first dx in Oct. 2004 2nd dx Feb. 2009 a new primary
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Jun 28, 2014 08:09PM , edited Jun 28, 2014 08:23PM by sheropesem

I have a bump by my bone...above where my port scar is and it has me scared to death. Help! I just got my port out and my implants April 24. 

Dx 11/2012, 3cm, Stage II, Grade 3, ER-/PR-, HER2+ Chemotherapy 11/20/2012 Taxol (chemical name: paclitaxel) Chemotherapy 12/01/2012 CEF: Cytoxan, Ellence, and fluorouracil Surgery 07/24/2013 Mastectomy of one or both breasts: Mastectomy of my left breast, Mastectomy of my right breast; Reconstruction of my left breast: Tissue expander placement; Reconstruction of my right breast: Tissue expander placement Hormonal Therapy 07/26/2013 Radiation Therapy 08/01/2013
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Jun 29, 2014 08:58AM ruthbru wrote:

When I had my port out the area remained red, tender & sore; when I finally went in, they discovered that one of the dissolvable stitches had NOT dissolved, which was causing a constant irritation. I think they thought I was just being annoying, but when the surgeon was poking around the area (at my insistence that something was wrong) & pulled out about an inch long thread, he said in surprise "What the hell?!") When I later told this to my GP, his comment was that it is not terribly unusual for dissolvable stitches not to dissolve, so that might be something to check out if things still don't feel 'right' after awhile.

"Invisible threads are the strongest ties." Friedrich Nietzsche Dx 2/2007, Stage IIA, Grade 3, 0/11 nodes, ER+/PR-, HER2-
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Jun 29, 2014 09:04AM Rosiesride wrote:

ruthbru...how long was your port out before you went back to surgeon?  I had mine out June 17 and there is a large bump...thanks Rosie

Dx 12/17/2013, ILC, <1cm, Stage IIB, Grade 2, 3/11 nodes, ER+/PR+, HER2- Surgery 01/03/2014 Lumpectomy in one or both breasts: Lumpectomy in my right breast; Lymph node removal (also called dissection): Underarm (axillary) lymph node removal (also called dissection) , Sentinel lymph node removal (also called dissection) , Lymph node removal (also called dissection) on my right side Chemotherapy 02/10/2014 Adriamycin (chemical name: doxorubicin), Cytoxan (chemical name: cyclophosphamide), Taxotere (chemical name: docetaxel) Radiation Therapy 06/19/2014 Hormonal Therapy 08/29/2014
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Jun 29, 2014 09:12AM , edited Jun 29, 2014 02:41PM by ruthbru

It was about 3 months. I would say to give it a month to six weeks and see what happens; because plain old healing does take time, but if it still feels tender & sore after that, I'd check it out sooner than I did.

"Invisible threads are the strongest ties." Friedrich Nietzsche Dx 2/2007, Stage IIA, Grade 3, 0/11 nodes, ER+/PR-, HER2-
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Jun 29, 2014 07:09PM sheropesem wrote:

Thanks ladies. I appreciate your input.  Everything always scares me so badly....especially anything with a LUMP!!

Dx 11/2012, 3cm, Stage II, Grade 3, ER-/PR-, HER2+ Chemotherapy 11/20/2012 Taxol (chemical name: paclitaxel) Chemotherapy 12/01/2012 CEF: Cytoxan, Ellence, and fluorouracil Surgery 07/24/2013 Mastectomy of one or both breasts: Mastectomy of my left breast, Mastectomy of my right breast; Reconstruction of my left breast: Tissue expander placement; Reconstruction of my right breast: Tissue expander placement Hormonal Therapy 07/26/2013 Radiation Therapy 08/01/2013
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Jun 29, 2014 07:20PM ruthbru wrote:

I know. I felt a lump under my chin the other day & was freaking out until I put a mirror under my chin and discovered a bug bite!

"Invisible threads are the strongest ties." Friedrich Nietzsche Dx 2/2007, Stage IIA, Grade 3, 0/11 nodes, ER+/PR-, HER2-
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Jun 29, 2014 08:06PM sheropesem wrote:

haha ruthbru! I totally understand!

Dx 11/2012, 3cm, Stage II, Grade 3, ER-/PR-, HER2+ Chemotherapy 11/20/2012 Taxol (chemical name: paclitaxel) Chemotherapy 12/01/2012 CEF: Cytoxan, Ellence, and fluorouracil Surgery 07/24/2013 Mastectomy of one or both breasts: Mastectomy of my left breast, Mastectomy of my right breast; Reconstruction of my left breast: Tissue expander placement; Reconstruction of my right breast: Tissue expander placement Hormonal Therapy 07/26/2013 Radiation Therapy 08/01/2013
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Jun 29, 2014 08:13PM Wilsie2 wrote:

well, I have a hole where mine was   It was an ugly lump that looked like a button under my skin when it was there. I still have a red thread that looks like where the vein was hooked into port that goes up to my neck. Had port out six months ago.  Wileis

Dx 6/1/1997, DCIS, 4cm, Stage IIB, Grade 2, 11/19 nodes, ER+, HER2+ Surgery 06/18/1997 Mastectomy of one or both breasts: Mastectomy of my left breast, Mastectomy of my right breast; Lymph node removal (also called dissection): Underarm (axillary) lymph node removal (also called dissection) , Lymph node removal (also called dissection) on my left side , Lymph node removal (also called dissection) on my right side ; Reconstruction of my left breast: Free TRAM flap; Reconstruction of my right breast: Free TRAM flap Radiation Therapy 11/15/1997 Chemotherapy 11/20/1997 Adriamycin (chemical name: doxorubicin), Cytoxan (chemical name: cyclophosphamide), Fluorouracil (also called 5-fluorouracil or 5-FU; brand name: Adrucil) , Mitomycin (chemical name: mutamycin) Dx 1/4/2012, DCIS, 4cm, Stage IV, Grade 2, 11/19 nodes, mets, ER+ Chemotherapy 03/14/2012 Abraxane (chemical name: albumin-bound or nab-paclitaxel) Hormonal Therapy 07/01/2012 Aromasin (chemical name: exemestane, class: aromatase inhibitor) Hormonal Therapy 01/21/2014 Faslodex (chemical name: fulvestrant, class: estrogen receptor downregulator (ERD)) Chemotherapy 10/08/2014 Taxol (chemical name: paclitaxel) Chemotherapy 12/15/2014 Gemzar (chemical name: gemcitabine)
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Jun 29, 2014 08:17PM Nettie1964 wrote:

My port scar just itches terribly.  I have never felt mine, I just can't make myself feel bumps, lumps or knots under my skin.

Just want to clarify here that I did NOT have two dx! Just once I was done with chemo, the MO said I was 2% ER+! No longer taking Aromasin Surgery 12/12/2012 Lumpectomy in one or both breasts: Lumpectomy in my right breast; Lymph node removal (also called dissection): Sentinel lymph node removal (also called dissection) , Lymph node removal (also called dissection) on my right side Dx 12/12/2012, IDC, Stage IIB, Grade 3, 0/1 nodes, ER-/PR-, HER2- Chemotherapy 03/14/2013 AC + T (Taxol): Adriamycin and Cytoxan, plus Taxol Dx 8/12/2013, IDC, 4cm, Stage IIB, Grade 3, 0/1 nodes, ER+/PR-, HER2- Radiation Therapy 08/25/2013
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Jun 29, 2014 09:51PM 208sandy wrote:

I had my port out two years ago (it was in for 3-1/2 years) - there is almost no scarring but there is a slight indentation - it took a while to heal and was a little swollen but no large lump - we all do heal differently.....

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Jun 29, 2014 10:36PM ruthbru wrote:

Wilsie, did you have a doctor look at it?

"Invisible threads are the strongest ties." Friedrich Nietzsche Dx 2/2007, Stage IIA, Grade 3, 0/11 nodes, ER+/PR-, HER2-
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Jun 30, 2014 08:01AM Wilsie2 wrote:

yes, she said not a problem. I still have to put makeup on the vein. 

Dx 6/1/1997, DCIS, 4cm, Stage IIB, Grade 2, 11/19 nodes, ER+, HER2+ Surgery 06/18/1997 Mastectomy of one or both breasts: Mastectomy of my left breast, Mastectomy of my right breast; Lymph node removal (also called dissection): Underarm (axillary) lymph node removal (also called dissection) , Lymph node removal (also called dissection) on my left side , Lymph node removal (also called dissection) on my right side ; Reconstruction of my left breast: Free TRAM flap; Reconstruction of my right breast: Free TRAM flap Radiation Therapy 11/15/1997 Chemotherapy 11/20/1997 Adriamycin (chemical name: doxorubicin), Cytoxan (chemical name: cyclophosphamide), Fluorouracil (also called 5-fluorouracil or 5-FU; brand name: Adrucil) , Mitomycin (chemical name: mutamycin) Dx 1/4/2012, DCIS, 4cm, Stage IV, Grade 2, 11/19 nodes, mets, ER+ Chemotherapy 03/14/2012 Abraxane (chemical name: albumin-bound or nab-paclitaxel) Hormonal Therapy 07/01/2012 Aromasin (chemical name: exemestane, class: aromatase inhibitor) Hormonal Therapy 01/21/2014 Faslodex (chemical name: fulvestrant, class: estrogen receptor downregulator (ERD)) Chemotherapy 10/08/2014 Taxol (chemical name: paclitaxel) Chemotherapy 12/15/2014 Gemzar (chemical name: gemcitabine)
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Jun 30, 2014 09:01AM , edited Jun 30, 2014 10:52AM by ruthbru

Yikes, hopefully it will settle down in time.....but if it is still tender & sore, then I'd asked about a stitch that hasn't dissolved, since that turned out to be my problem with not healing right.

"Invisible threads are the strongest ties." Friedrich Nietzsche Dx 2/2007, Stage IIA, Grade 3, 0/11 nodes, ER+/PR-, HER2-
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Jun 30, 2014 10:26AM sheropesem wrote:

mmm5, did you ever find out about your bump? I went to see my breast surgeon, she felt it, said not to worry. My PS said it happens sometimes. I still need confirmation from my onc tho.....sigh.

Dx 11/2012, 3cm, Stage II, Grade 3, ER-/PR-, HER2+ Chemotherapy 11/20/2012 Taxol (chemical name: paclitaxel) Chemotherapy 12/01/2012 CEF: Cytoxan, Ellence, and fluorouracil Surgery 07/24/2013 Mastectomy of one or both breasts: Mastectomy of my left breast, Mastectomy of my right breast; Reconstruction of my left breast: Tissue expander placement; Reconstruction of my right breast: Tissue expander placement Hormonal Therapy 07/26/2013 Radiation Therapy 08/01/2013