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All TopicsForum: Not Diagnosed With a Recurrence or Metastases but Concerned → Topic: Positive lymph nodes

Topic: Positive lymph nodes

Forum: Not Diagnosed With a Recurrence or Metastases but Concerned —

Meet others concerned about developing a recurrence or metastases.

Posted on: Jan 15, 2007 01:30AM

LizM wrote:

It has been over a year since I had my surgery and six months since I completed treatment and I still can't get past the fact that I had a positive lymph node. It still haunts me. I find it hard to understand why some breast cancer goes to the lymph nodes and others don't. I have talked to so many women whose pathology was worse than mine and whose tumors were larger than mine and it did not travel to the lymph nodes. My tumor was 2.1 cm and grade 1, strongly ER/PR positive and negative Her2 with no other negative factors in my pathology other than the fact that it went to the sentinel node. I had very aggressive treatment with bi-lateral, dose dense chemo, radiation, oophorectomy and now on Arimidex but I still worry a lot about recurrence. I have read the stats over and over again and I realize that my odds aren't so bad with a 15% to 20% chance of recurrence in five years with the treatment that I had but I still worry a lot. It seems like everyone places such a high importance on whether the lymph nodes are negative or positive, more so than ER/PR status and her2 status. I wish I could just accept it and stop worrying so much but when I start to feel good about the future I remember that I had a positive lymph node and don't feel quite so positive. Anyone else feel the same way???

Dx 9/19/2005, IDC, 2cm, Stage II, Grade 1, 1/8 nodes, ER+/PR+, HER2-
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Jan 15, 2007 02:50AM fd411 wrote:

Hi Liz,

I did neoadjuvent chemo and still had 6 positive nodes after surgery. I'm triple neg, stage IIIa, grade 3.

Often I wonder if the b/c has had a chance to go somewhere else in between each type of treatment since the cancer was aggressive. But I also think that maybe the nodes collected the cancer cells and prevented them from spreading elsewhere.

But I think if it's going to come back, I just have to deal with it when I have to, and try to live life as normally as I can in the meantime

Ferne
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Jan 15, 2007 03:01AM Hattie wrote:

There is some new thinking that one lymph node is not that big a deal (some of my docs were discussing this)--that now we have more sophisticated path techniques and we can find tiny bits of cancer that were not found a few years ago. You might have been considered to have clean nodes in the past. You may do just as well as if you had. It would be nice to know more about spread and recurrrance, but we're not there yet.

I find I have to accept that I had treatment, and I can't live worrying about what I don't have. For now (and maybe forever) I'm ok. I hope you find a similar balancing point yourself (it's precarious).
Take care,
--Hattie
life is good
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Jan 15, 2007 03:33AM caaclark wrote:

I also had positive lymph nodes, 6 out of 9. It freaked me out too (and still does at times) but I know my treatment was aggressive. Also, I figure that by the surgeon removing the 6 pos. nodes that hopefully that prevented any cancer from spreading. I also just try to push the scary thoughts out of my mind as much as possible. By the way, I have an aunt (not related to me but related to my husband) who had bc in tons of nodes. Not sure how many but she told me she has no lymph nodes left (not sure how accurate that is). She was also considered stage IV and has had no sign of cancer for over 6 years.

Carol Clark- Author of WHEN OUR MOM HAD CANCER Diag.1/06 at age 40, 1.6cm, 6+nodes, stage IIIa, er/pr+, her2-, chemo, mast. rads, no recon
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Jan 15, 2007 10:14AM pegasus wrote:

I had 12 positive lymph nodes and had a hard time processing it for the first year - thought about it all the time, worried about what it meant, etc. Then a few months ago, I suddenly (or gradually - I don't recall) let it go and now I rarely think about it. I don't know why but I have come to peace with the fact that mine had spread beyond the breast, I am getting all the treatment known to modern medicine, and I can deal with what happens. (I hope). I think about it now, but don't worry about it like I used to.

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Jan 15, 2007 11:08AM boofey wrote:

I too had positive nodes with 1 out of 14 on one side and 3 out of 11 on the other side. I am still in the midst of agressive treatment with bilateral mastectomies, DD AC and T, radiation and then onto hormone therapy. These positive nodes really worry me too and I don't know how I am going to deal with it in the future. I have been starting to think about what my new life will be like once radiation ends and am hoping that I can live without worrying and dread but I am unsure too how to accomplish this.

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Jan 15, 2007 03:32PM ivanna wrote:

Hi,
Sorry you are worried, honestly, the only thing that has eased my worry has been time, although I still worry occasionally, it is not always on my mind like it used to be. It has been 4 years since I ws diagonsed (diagnosed at 36) with triple neg, 3.5 cm tumor and 2 positive nodes. I know it could come back at anytime, but I seem to worry less and less with each passing year. I wouldn't exactly say I feel "safe" , I don't think I ever will, but now I do find myself planning more for the future, something I didn't do within the first couple of years!
Sending you best wishes!
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Jan 17, 2007 01:12AM wayover20 wrote:

I am 8 days post rt.mastectomy for ILC and my nodes were clear.The mass was 4cm large and I asked my surgeon was is unusual to have a mass that size and not spread to the nodes? He replied that it was REASONABLE to assume it should have, but he has seen many cases like (mine and much larger), that did not...so there it goes.

It's all a crap shoot. I also don't want to look a gift horse in the mouth by seeming like I should be worse off, but this stuff baffles the mind the more you research.
Pat Dx 8/3/2008, ILC, 6cm+, Stage IV, 0/17 nodes, ER-/PR-, HER2-
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Jan 17, 2007 01:23AM sjandtj wrote:

My dx was ilc one node involved I just finished all treatments Dec 4th 2006. They put me on Aromasin, I stopped it after 3 weeks, Made me feel terrible!! I see my oncon the 23rd of this month and I am sure he will want me to try the arimidex. How are you doing on it!

I am not trying to think about reoccurance I am just wanting to feel good again, Which I am starting to espically since I stopped the Aromasin. My oncon told me the same thing about the 20%. I am asking myself is the 20% chance of reoccurrance worth the inhibitors and being miserable for 5 years. Anyway that is where I am at right now> I will try the arimidex but if it makes me feel like the Aromasin did I will not take an inhibitor and just be very watchfull of my body, I just had a lumpectomy so I will continue of course with mammo ever 6 mos. and do self breast exam every nite!!!! I just want to feel good again!!!!!!!! That is my priority

let me know how you are doing on the arimidex!!!

Steph
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Jan 17, 2007 09:27PM irisheyzs wrote:

Liz,
I honestly don't think any diagnosis, stage or test for "cancer" eases our minds. I had 5 nodes removed and they were all clear, DCIS with no signs of micro invasion and worry all the time that maybe they just missed something and it's running rampant as we speak Hopefully time heals all wounds?
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Jan 17, 2007 10:34PM cp418 wrote:

Liz - I have a similar diagnosis and was making myself crazy with fear and depression because I blamed myself for not catching it sooner with regular mammogram. My parents were in/out of the hospital and I simply lost track of time and missed mammograms. But there is no point in looking back now but to move on with life. I don't want to waste time feeling down but enjoy life again. Instead I'm focusing on eating healthy, antioxidant supplements and daily exercise. My goal is to make myself healthy so if I should have a recurrence then I will be better able to go through treatments again. Goal is to survive and enjoy life in the present and plan for the future. I don't want to loose and ruin the present in fear of the future.

Next phase in this journey for me is my ooph tomorrow and then start an AI maybe Femara. Now looking forward to what possible side effects I will encounter next. However, I know these medications are critical to prevent recurrence and I will persevere. Joann
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Jan 17, 2007 11:13PM daisybell wrote:

I never missed a mammogram, but still ended up with 2 positive nodes (one with just isolated cells, originally thought to be negative). I was really upset, felt betrayed by my body, also felt like I should have caught it sooner. Sometimes it just doesn't show on the mammo. I'm having aggressive treatment, just about everything you can think of, but I'm scared that the cancer got out of the breast and that I'll be one of those women that the treatments don't work for. There are so many variables on the molecular level with tumors that are just not understood at this time.
Sue
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Jan 18, 2007 07:48AM jan125 wrote:

Carol, tell your aunt I am her new biggest fan. I was dx stage 4 at 29. Now 30 and NED. I hope to stay that way. Thanks for the post

Janna
Dx 5/20/2006, Stage IV, mets, ER+/PR+, HER2+
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Jan 18, 2007 08:01AM ShirleyHughes wrote:

I had 5 nodes out of 9 positive. And had extranodal extension. And I had neoadjuvant chemo. However, after surgery and rads my onc had me do 6 months of Xeloda. Now on Arimidex. So, all I can hope for is that if any of those cells were floating around that the Xeloda smushed them. And, yes I worry at times.
Shirley
God, grant me the serenity to accept the things I cannot change; the courage to change the things I can; and the wisdom to know the difference
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Jan 18, 2007 08:06AM horsegal wrote:

I am new here - just joining. Dx 12/14 with IDC, found by annual mammo. Had lumpectomy 1/10 and one sentinel node taken out. During surgery, node was "negative", so my bs did not take out anymore nodes. But after more path tests done, found micrometastasis in the node.

Now, up to ME - do I go back into surgery and get the rest of the nodes out? My onc says I have to do chemo anyway (tumor 1.0cm ; got clean margins) due to the tumor path report.

My bs says that although axillary dissection at this point is not mandatory, he would have done it had he had this same report during surgery.

I did not schedule the surgery yet - after reading TONS of info on here and the net, there just doesn't seem to be enough evidence for me to do this surgery. I live a very active, heavy duty lifestyle and really need my arm to WORK properly!! Between the healing time, lymphodema, and all issues related later, I can't see why having operation will make a difference in overall survivor rate. All the studies seem to really say that the reason they take the nodes out is to TEST them, see IF the cancer has spread. Then, it's chemo if it has.

I meet with my onc next week, and will discuss more in depth - but being that I am having chemo anyway, I figure the surgery is NOT necessary! This is sooooo confusing!! I thought chemo got ALL the cancer cells - but people here are always afraid of spread because of the nodes - now I am not sure what to do, but will talk to my onc and get their opinion before doing anything.

Thanks - I think I actually just "vented" about it! I feel better already!
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Jan 18, 2007 09:20AM Kellyd0613 wrote:

Your situation sounds very similar to mine. I was originally diagnosed with DCIS. Had a sentinel node biopsy and they took out 3 nodes. At the time of surgery they told me all the nodes were clear. One week later, the found microinvasion in the breast tissue and rechecked the nodes. The found 1mm of cancer in 1 sentinel node. This ensured chemo, but after discussing my case at a tumor board they decided they would not do additional surgery to take more nodes. I had a mastectomy, reconstruction, chemo, tamoxifen and herceptin and am confident I made the right choice.

Kelly
Kelly
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Jan 18, 2007 11:17AM horsegal wrote:

Kellyd -
Did you have to have the mastectomy becuz of the microinvasion of the breast tissue? I only had to have a lumpectomy (1.o cm tumer - got clear margins)

I am hoping that my oncologist agrees with me - no node surgery!! Glad to hear that someone else did NOT have to undergo this surgery! thanks so much for the reply!
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Jan 19, 2007 12:17PM Trish03 wrote:

My BS told me that 3 or fewer pos. nodes is really the same as having no pos nodes as far as prognosis. Of course, I had 4+, which puts me into the next category, but I don't worry about it. My dx was over 3 years ago, and I feel that if it had gone past my nodes, something would have shown up by now. Yes, I know bc can return after years, but it helps me to think this way. I hit it with all the big guns during my tx, including a PM on the other side 2 years after original one....at time of DIEP recon.

Women with small tumors and no nodes sometimes have recurrences; women with large tumors and many nodes often do well. There's just no way to tell. I choose to look on the optimistic side until I'm given reason not to do that.

All the best to everyone,
Trish
Dx 09/03, ILC, Stage IIIa, 7 cm, 4/18+ nodes, ER+/PR+, Her2-, 11/05 BL DIEP, 5/13 Stage IV, dx mets to liver Dx 9/15/2003, ILC, 6cm+, Stage IIIA, 4/18 nodes, ER+/PR+, HER2- Surgery 9/30/2003 Mastectomy: Right Chemotherapy 10/14/2003 AC + T (Taxol) Hormonal Therapy 4/14/2004 Arimidex (anastrozole) Radiation Therapy 4/14/2004 Breast Surgery 11/16/2005 Prophylactic mastectomy: Left; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Dx 5/27/2013, ILC, 6cm+, Stage IV, ER+/PR+, HER2+ Targeted Therapy 6/23/2013 Herceptin (trastuzumab) Targeted Therapy 6/23/2013 Perjeta (pertuzumab) Chemotherapy 6/23/2013 Taxotere (docetaxel)
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Jan 19, 2007 09:31PM daisybell wrote:

horsegal
I don't think I would have more surgery on my nodes. the info is mostly used to decide treatment and even though I would like to think that taking out positive nodes prevents the spread of cancer that is not what I've read. I had 24 nodes out and now I have mild lymphedema in that arm and it's all numb around there. Even though the lymphedema is mild it is still a pain!
Sue
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Jan 20, 2007 11:08AM Fitztwins wrote:

Sista, I had 17 postitive nodes. Freakin' freaked me out. But then someone said..that her PS said...well? They did there job didn't they? Catching that crap!

No worries. 0-35 all the same.
Enjoy Every Sandwich. Dx 12/12/2004, IDC, Left, 3cm, Stage IV, metastasized to bone/lungs, Grade 2, mets, ER+/PR+, HER2+ (FISH) Surgery 1/18/2005 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Free TRAM flap Chemotherapy 1/31/2005 AC + T (Taxol) Radiation Therapy 4/30/2005 Breast, Lymph nodes Targeted Therapy 5/31/2005 Herceptin (trastuzumab) Hormonal Therapy 12/31/2005 Femara (letrozole) Hormonal Therapy 6/1/2008 Aromasin (exemestane) Targeted Therapy 6/30/2008 Herceptin (trastuzumab) Hormonal Therapy 6/14/2013 Arimidex (anastrozole) Targeted Therapy 9/4/2015 Perjeta (pertuzumab)
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Jan 21, 2007 12:17AM rubytuesday wrote:

Horsegal, I was in EXACTLY the same situation you are in. My sentinel node was positive for micromets and they wanted me to have more nodes removed. I researched and researched and made myself crazy. I actually scheduled the surgery and canceled it twice. My oncologist said that in his opinion (and he had NOTHING to gain from this)surgery was FAR superior to chemo or radiation for getting any cancerous lymph nodes. FINALLY I had the surgery. They removed 10 more lymph nodes ALL negative AND the surgeon (a VERY good surgeon) 'nicked' a nerve and now my forearm has a numb spot that goes from my elbow to my wrist on the bottom of my arm. I do feel relieved that there were no more positive nodes. It is such a crap shoot. Also nodes can become positive from the sentinel node procedure and also from the biopsy prior to surgery. Good luck with a VERY difficult decision!

Proud member of the TaTa Sisterhood! :)
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Jan 21, 2007 12:18AM rubytuesday wrote:

Fitztwins, From all of the research that I've done, that is my take also....THEY DID THEIR JOB!!

Proud member of the TaTa Sisterhood! :)
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Jan 21, 2007 12:26AM rubytuesday wrote:

Liz, Realize that the job of your lymph nodes is to catch toxins/cancer before they spread to other areas. Also a positive lymph node can come from a biopsy or from the sentinel node procedure or from manipulation of the tumor during surgery. It doesn't dictate the aggressiveness of your tumor. That said, I know how you feel. My first diagnosis in 98, my nodes were negative. This time (06), I had one positive (.6mm) for micromets.....even though I knew my pathology report was basically good, it freaked me out too. I think too much emphasis is put on lymph node status.

Proud member of the TaTa Sisterhood! :)
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Jan 21, 2007 05:43AM LizM wrote:

You ladies are awesome. I have been posting for over a year and I have to say that no matter what concern I post about I always feel better after I read the replies. It just seems that everyone places so much emphasis on whether the nodes are positive or negative. Someone always seems to be posting that there nodes were negative (YAY or Woohoo) and it sometimes make you feel like sh*t. Don't get me wrong I am extremely happy for those that have negative nodes it just gets me down sometimes. I know the nodes are not the only factor to consider in risk of recurrence; however, it seems like that is what most people seem to concentrate on. You guys are great and thanks so much for putting my fears at ease.

Dx 9/19/2005, IDC, 2cm, Stage II, Grade 1, 1/8 nodes, ER+/PR+, HER2-
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Jan 21, 2007 09:12AM LindaLou53 wrote:

LizM

It is true that nodal status does play a large part in tumor staging and recurrence statistics. But again statistics and staging are just generalized methods of categorizing cancer. I have been told that 0-3 positive nodes is the first general category, 4-9 nodes the second, and 10 or more nodes the third category as far as impact of positive nodes on staging. In addition nodes that are matted together or ruptured (extracapsular extension)are more cause for concern also.

Obviously no nodal involvement is what we all wish for but that is still no guarantee that cancer has not spread since there are other mechanism thru the vascular system for spread to occur. At the same time having positive nodes is not a guarantee of spread outside the local breast area either.

All 23 of my nodes removed were positive, largest size greater than 5mm and had extracapsular extension in the axilla. I could be really upset by that on one hand but on the other I am glad that these 23 little cancer sites were totally removed from my body and that the nodes were doing their job. I know my risk is still very high that other nodes not removed are positive but at some point we all just have to have faith in the decisions we make and move forward with life.

Liz you treated your cancer very aggressively and your cancer characteristics were very favorable! Try not to let cancer take away your peace of mind. I know thats a tall order for all of us and I accept that we can never completely wipe out the "what ifs", but I refuse to let doubt take over my life. Thats one of the reasons this site is so great because we all can indentify with and understand totally the emotions and fears that cancer tries to smother us with. It is so encouraging to me to hear the strength and determined wills of so many women who continue to beat the odds. Makes it easier for the rest of us to face each day.
Life is not measured by how many breaths we take...but by the moments that take our breath away! ...I am a 14/9 yr survivor of 2 Primary BCs, 23/23 Positive Nodes (Zometa x 5 years) Started Paloma-3 Clinical Trial 4-14-14 Dx 7/14/2000, IDC, 1cm, Stage IIA, Grade 1, 2/7 nodes, ER+/PR+, HER2- Surgery 8/10/2000 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 8/29/2000 AC + T (Taxol) Radiation Therapy 2/25/2001 Breast, Lymph nodes Hormonal Therapy 5/9/2001 Dx 11/21/2005, ILC, 5cm, Stage IIIC, Grade 1, 23/23 nodes, ER+/PR-, HER2- Surgery 12/4/2005 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left, Right Chemotherapy 12/22/2005 Taxotere (docetaxel), Xeloda (capecitabine) Hormonal Therapy 4/6/2006 Aromasin (exemestane) Radiation Therapy 4/6/2006 Breast, Lymph nodes Dx 3/21/2014, ILC, Stage IV, mets, ER+/PR-, HER2- Hormonal Therapy 4/13/2014 Faslodex (fulvestrant)
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Jan 21, 2007 09:18AM LindaLou53 wrote:

Hi Horsegal!

I can tell you that when I had my first BC 6 years ago I had micromets to 2 sentinel nodes that was not discovered until final pathology days later. I did not agree to more axillary disection at that time and am glad I did not. After chemo and rads that original IDC in my right breast was totally removed. After my recent bilateral masts for a totally new primary ILC in the other breast it was determined by pathology that my original IDC had in fact been totally eliminated and no further signs found in the right breast.

So I think odds are greatly in your favor when micromets is all that is found that your chemo and rads will take care of it. There is always risk involved with more surgery and I'm not sure in my mind that it is worth that extra risk. Now especially after developing lymphedema in my left arm from the recent total axillary disection of 23 nodes I am so GLAD I refused further axillary disection of the right arm those many years ago. Thank GOD I have my dominant hand free of lymphedema!

I wish you the best in your decision making process. We all ultimately have to do what is right for us but sometimes it does help to get different perspectives from others who have gone thru similar circumstances.
Life is not measured by how many breaths we take...but by the moments that take our breath away! ...I am a 14/9 yr survivor of 2 Primary BCs, 23/23 Positive Nodes (Zometa x 5 years) Started Paloma-3 Clinical Trial 4-14-14 Dx 7/14/2000, IDC, 1cm, Stage IIA, Grade 1, 2/7 nodes, ER+/PR+, HER2- Surgery 8/10/2000 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 8/29/2000 AC + T (Taxol) Radiation Therapy 2/25/2001 Breast, Lymph nodes Hormonal Therapy 5/9/2001 Dx 11/21/2005, ILC, 5cm, Stage IIIC, Grade 1, 23/23 nodes, ER+/PR-, HER2- Surgery 12/4/2005 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left, Right Chemotherapy 12/22/2005 Taxotere (docetaxel), Xeloda (capecitabine) Hormonal Therapy 4/6/2006 Aromasin (exemestane) Radiation Therapy 4/6/2006 Breast, Lymph nodes Dx 3/21/2014, ILC, Stage IV, mets, ER+/PR-, HER2- Hormonal Therapy 4/13/2014 Faslodex (fulvestrant)
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Jan 21, 2007 11:32AM LynnW wrote:

Hi
Fitztwins it was my plastic surgeon that commented that my lymph nodes had done a good job. I recognized your post. It was the only thing anyone has said that made me feel comfort. This is after they took 19 out of my right side and 10 were positive. 14 out of my left and 3 were positive. I think about it daily. Every ache and pain is a reoccurance in my mind. Until it ends up just being an ache or a pain. What everyone has to remember is even cancer with no node involvement, can spread. Its sad it doesn't make sense but its a reality.
Lynn Dx 2/9/2005, ILC, 6cm+, Stage IV, Grade 3, 13/29 nodes, mets, ER+/PR+, HER2-
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Jan 21, 2007 05:55PM Molly57 wrote:

Quote:

Hi,
"the only thing that has eased my worry has been time."

That about sums it up. I'm 2.5 years out and it took the better part of two years for me to get what people mean about living each day fully and realizing that your life can be short or long. I had only one lymph node, too, but it had eaten through the node into the surrounding tissue. That's a bad thing. I dwelt on this and other factors for about two years. I hope time will help all of us accept these things we cannot change. But you do have to deal with it a lot at first. Molly
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Jan 22, 2007 06:48AM Lovin_Life wrote:

well Liz, if I had grade 1, I would never worry about cancer coming back for a second. I was hoping and praying for grade 1 but had to settle for grade 2.

Try concentrating on the positives - like slow as a snail growing grade 1!!

Grade 1 is so slow growing that the tumor was probably in your breast for many long years before discovery. Long enough to get into one lymph. But, the lymph did its job - capatured the cancer!

My tumor was 10 mm - grade 2 - both surgeon and onc said at grade 2 it was probably there for about 3 years at that size. (4 years max) No lymphs positive.

Thankfully my brain has allowed me to feel that my cancer will not return. On very rare occasions - extremely rare - I get a little, tad bit scared of it coming back. And sometimes but not often I wish I had done a bi mast.

But, I know a gal who is a now a 5 year survivor and she has worried almost daily about her cancer coming back. She doesn't go shopping anymore, out to lunches or dinners, shows, parties etc. She has ruined her life with worry.

Cancer didn't do that -- she did it. She has made herself miserable with worry and has been ALIVE for 5 years now. What an emotional waste of 5 years!!

I don't know if I have 5 years left or 50 years. But I do know I am not going to waste any of it worrying about cancer coming back. I now live each day to its fullest -- and I am living a wonderful life!

Cancer isn't going to rob me of happiness & joy! I do what makes me happy -- and I am! Deliriously happy!
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Jan 25, 2007 08:48AM Fitztwins wrote:

Lynn2005, I quote you, or your surgeon all of the time! I LOVE HIS comment!!!

Enjoy Every Sandwich. Dx 12/12/2004, IDC, Left, 3cm, Stage IV, metastasized to bone/lungs, Grade 2, mets, ER+/PR+, HER2+ (FISH) Surgery 1/18/2005 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Reconstruction (left): Free TRAM flap Chemotherapy 1/31/2005 AC + T (Taxol) Radiation Therapy 4/30/2005 Breast, Lymph nodes Targeted Therapy 5/31/2005 Herceptin (trastuzumab) Hormonal Therapy 12/31/2005 Femara (letrozole) Hormonal Therapy 6/1/2008 Aromasin (exemestane) Targeted Therapy 6/30/2008 Herceptin (trastuzumab) Hormonal Therapy 6/14/2013 Arimidex (anastrozole) Targeted Therapy 9/4/2015 Perjeta (pertuzumab)
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Jan 25, 2007 11:11AM karen1956 wrote:

I try not to dwell on re-occurance. Liz - my course of treatment was quite similar to yours. Saw my onc today for my 3 month follow up and asked how much benefit the Arimidex was for me and he said huge - 21% increase in my survival rate over 10 years!!!! I guess I will continue to take it. Onc said that with all my treatments, I went from 24% survival rate to 75% - so I guess, I need to look at the positive side. I try not to loose sleep over this (which is good since I already have insomnia since chemo!!!) When I worry about re-occurance is when I hear that it has happened to some one else. It is still just one day at a time. My one year anniversary is coming up on the 3rd. It will be nice to say I am a one year survivor (instead of months). I think when I am done with everything - reconstruction, it will be easier to move on. I have since developed carpel tunnel and I am having surgery on my right hand on the 2nd (picked the date as it was as close as I could get to the anniversary, so I could have a distraction that day - was worried how i would handle it). Well, I am rambling, so I better go. Wishing us all feel good days - and lots of them for lots of year.

Karen in Denver, Dx 02/03/2006, ILC, stage IIIa, ER/PR+, HER2-,

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