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Topic: Stiff Neck

Forum: Not Diagnosed With a Recurrence or Metastases but Concerned —

Meet others concerned about developing a recurrence or metastases.

Posted on: Mar 30, 2009 12:49PM

prayrv wrote:

I'm not even sure if this is a concern for bc recurrence or not but here goes.  Around December or January I awoke with a stiff neck on the right side.  Ordinarily it should have gone away within a couple of days.  I still have it.  This past saturday I awoke with a headache on that side that seemed to be agrivated every time I would move towards a certain way.  I have changed pillows and such and still it bothers/hurts.  I'm just wondering if anyone has had something like this occur to them and what it ending up being (doesn't even have to be bc related!) As with us all, I don't want to go the doc with every little ache or pain but this is starting to worry me.  Thanks to all!

Gentle Hugs,

Trish

Dx 4/27/2007, IDC, <1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2-
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Mar 30, 2009 03:42PM barbe1958 wrote:

Trish, now, you know the "rules". If it lasts longer than 2 weeks get it checked out. Peace of mind alone is worth the trip!

Gentle hugs, (Hey! you took that from ME!) hehehehehehe

Dx 12/10/2008, IDC: Papillary, Left, 1cm, Stage IB, 2/5 nodes, ER+/PR+, HER2- Surgery 12/16/2008 Lymph node removal: Left, Sentinel; Mastectomy: Left, Right Dx 2/4/2016, IDC: Papillary, Left, Stage IV, ER+/PR+, HER2- Hormonal Therapy 2/11/2016 Arimidex (anastrozole) Radiation Therapy 2/17/2016 Whole-breast: Lymph nodes, Chest wall
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Mar 30, 2009 04:52PM prayrv wrote:

Barbe,

I know the rule!  LOL  When I had my frozen shoulder after my mast (actually started 7 months after my mast - but that's another story!), it worked itself out after a few (read 2 to 3) months.  I was just hoping that this would do the same.  I meet with my onc in May and bring it up with her if it's not gone by then.  I hope it resolves itself as the other thread says, it sucks.

Thx,

Trish

Dx 4/27/2007, IDC, <1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2-
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Apr 2, 2009 09:50AM pip57 wrote:

Trish,

I know exactly what you are talking about.  I waited 6 weeks (just to be sure!) and just got the report from an US of the nodes back.  It is clear.  I am soooo relieved but now I am wondering what the heck is causing this increasing pain.  I am going to suggest a bone scan.   

All I can tell you is to go and get it checked.  Living in limbo is not very fulfilling.  Better to have answers.  

By the way, I just bought my 3rd pillow in 2 months.  Didn't help. 

PIP - multi focal, FEC100/Tax, rads, dble mast with no recon, ooph/hyst, arimidex Dx 2/1/2007, DCIS/IDC, Left, 3cm, Stage IIIB, Grade 2, 9/16 nodes, ER+/PR+, HER2-
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Apr 2, 2009 09:57AM prayrv wrote:

Hey PIP!

I just got off the phone w/ my PCP to make an appt for monday.  I'm glad the nodes were good!.  I'm just not sure if my pain is bone related or not.  But I'm starting to get headaches now - a sort of mild, radiating pain from my neck.  I'll let you know what my pcp suggests that we do on monday.  Take care!

Trish

Dx 4/27/2007, IDC, <1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2-
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Apr 2, 2009 10:00AM pip57 wrote:

Too bad you are in Texas...I am in Canada.  It sounds like we could do all these tests together!  I just started a topic on this myself.  I hope we can figure it out before it drives us insane!!

PIP - multi focal, FEC100/Tax, rads, dble mast with no recon, ooph/hyst, arimidex Dx 2/1/2007, DCIS/IDC, Left, 3cm, Stage IIIB, Grade 2, 9/16 nodes, ER+/PR+, HER2-
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Apr 2, 2009 02:23PM candie1971 wrote:

Prayrv, best wishes for a good appointment on Monday. sometimes I think I am crazy,,,always going to the Drs. But I guess this will be out life! Barbe, you are right...peace of mind no matter how many times we go to Dr.

Good friends are like stars....you don't always see them but you know they are always there. Dx 5/26/2006, IDC, 2cm, Stage II, Grade 2, 0/1 nodes, ER+/PR+, HER2-
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Apr 2, 2009 02:56PM pip57 wrote:

Prayrv,

I have just done some research and may have found an answer to our symptoms.  It is called Post Breast Therapy Pain Syndrome. (PBTPS)  There is some good info on the subject at cancersupportivecare.com.  Have a look and see if it fits your symptoms.  My doctor has prescribed anti inflammatory meds and hopefully, if PBTPS is the problem, this should help. 

PIP - multi focal, FEC100/Tax, rads, dble mast with no recon, ooph/hyst, arimidex Dx 2/1/2007, DCIS/IDC, Left, 3cm, Stage IIIB, Grade 2, 9/16 nodes, ER+/PR+, HER2-
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Apr 2, 2009 03:45PM prayrv wrote:

PIP,

Not sure if it applies.  I had a frozen shoulder that flared up 8 months after my mast.  It resolved itself after 2 to 3 months.  It was on the same side as my mast and it should have been.  This neck issue is on the opposite side.  I've been taking ibuprofen for other issues (read: cramps) and it doesn't seem to phase the neck.  I'll see what the pcp wants to do on monday.  Take care and thanks for the info!

Trish

Dx 4/27/2007, IDC, <1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2-
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Apr 6, 2009 01:36PM prayrv wrote:

Update from dr. appt.

Took x-rays which were interpreted as normal.  Dr. gave me a script for an anti-imflammatory to take during the day and a muscle relaxer to take at bedtime. 

I'll let you know if it does the trick.

Thanks all!

Trish

Dx 4/27/2007, IDC, <1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2-
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Apr 6, 2009 01:38PM barbe1958 wrote:

Keep us posted....thanks for the update! (((((((((((( hugs ))))))))))))))

Dx 12/10/2008, IDC: Papillary, Left, 1cm, Stage IB, 2/5 nodes, ER+/PR+, HER2- Surgery 12/16/2008 Lymph node removal: Left, Sentinel; Mastectomy: Left, Right Dx 2/4/2016, IDC: Papillary, Left, Stage IV, ER+/PR+, HER2- Hormonal Therapy 2/11/2016 Arimidex (anastrozole) Radiation Therapy 2/17/2016 Whole-breast: Lymph nodes, Chest wall
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Mar 23, 2020 08:41PM ststella wrote:

I would recommend consulting a doctor. Secondly, herbal compresses or acupuncture worked well for me. I usually use flaxseed-filled neck heating pad to relieve my stiff neck. They are really convenient and suitable for home use. Some use microwave heating and some use electric heating.

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Mar 24, 2020 09:35AM MinusTwo wrote:

Stella - welcome to BCO. You may not have have noticed that this thread has been inactive since 2009. For new members, it really helps if you go to My Profile and post your diagnosis & treatment to date. That way people can understand where your recommendations are coming from and what you are going through.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Mar 25, 2020 07:22AM wallan wrote:

Hi there:

Hugs to you. This is interesting to me. I too have woke with stiff, sore neck that would not go away and gave me headaches. I changed pillows, sleep position, did stretches etc. I told my oncologist who ordered x-rays for my neck and shoulders. They came back with mild arthritis in my shoulders.

After a few months, the stiff neck did resolve itself, but my shoulders hurt now. I have had a mastectomy and reconstruction with implants both sides. It hurts my upper arms and shoulders to reach behind or overhead and sometimes my shoulder joints ache on one side or the other. I personally think the shoulder and neck pain are related.

I hope your neck stiffness resolves too....

wallan


Dx 3/29/2004, IDC, Right, 6cm+, Stage IIIA, Grade 3, 2/18 nodes, ER+/PR+, HER2- Surgery 3/31/2004 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Chemotherapy 5/31/2004 AC + T (Taxol) Radiation Therapy 11/30/2004 Whole-breast: Breast, Lymph nodes, Chest wall Dx 1/25/2017, LCIS/DCIS/ILC/IDC/IDC: Mucinous/IDC: Cribriform, Left, <1cm, Stage IB, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 3/7/2017 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Fat grafting Hormonal Therapy Aromasin (exemestane), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

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