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Sep 1, 2009 02:59AM
I was very interested to learn about Sandilee's successful parathyroidectomy. I am glad that everything went well for you. Unfortunately my consultant surgeon does only the full surgery. I have every confidence in her, as she was also my consultant breast surgeon. I would be apprehensive about having the minimal invasive surgery done in some other part of the UK by someone I do not know. My own consultant has told me that although, after the scans, it has been confirmed that I have one large adenoma on the lower right gland, she prefers to do the full operation to make sure there are no problems with the other three and that there is nothing growing behind the one she is going to remove. Would you go ahead if you were me?
Did you come straight out of the hospital straight after the surgery? I ask this because I have no wish to stay in hospital.
Had you developed osteoporosis due to your hyperparathyroidism and has your consultant now told you it will not progress any further as a result of the surgery?
I was glad to know that your calcium and PTH levels normalised immediately, because no one wants to go from hyper to hypo.
I was interested to read about the levels of calcium and units of vitamin D3 recommended by your surgeon as a daily dose. While waiting to make up my own mind what to do I have been taking 1200 units of vitamin D3 plus some calcium, which I have been trying to obtain mainly through food. I had a vitamin D test and was congratulated on the excellent level of both D3 (a little sunshine and supplements) as well as D2 (obtainable through food). You need to take magnesium supplements with your calcium, as the body cannot absorb calcium without magnesium, You have to take half the dose of magnesium to the dose of calcium.
I have read that calcium carbonate needs to be taken with food, whilst calcium citrate can be taken on its own and is more easily absorbed. I have also read that you should be taking some vitamin K to strengthen your bones.
Has your consultant also prescribed bisphosphonates, such as Fosamax? Osteoporosis here is treated with Fosamax, about which I have read a lot of negative comments. I also know people who take it and they say it makes them feel very unwell.
With reference to hyperparathyroidism and the development of breast cancer, it seems to be a chicken and egg situation. What surprises me is that the medical establishment does not seem that interested. I agree with you that cancer is usually in the body a long time before it presents itself as a tumour, so that you cannot assume that a parathyroidectomy has caused breast cancer which later presents itself.
I do feel, after all my research, and especially after joining this forum, that there appears to be too many cases of breast cancer with hyperparathyroidism for it to be a coincidence. The problem is to know which disease causes which, or is there a third cause, for example mass x-rays in childhood, as one research paper suggests. I have recently read that malignant or benign tumours can upset the entire endocrine system, causing too little or too much of a hormone.
I feel that hyperparathyroidism may cause breast cancer and that it is somehow connected to calcium. However, it could also be that it is the breast cancer that has caused the hyperparathyroidism, and that again the connection is calcium. I was diagnosed with breast cancer and hyperparathyroidism at the same time.
I noticed that Sandilee had a hormonal tumour (ER+) that, unusually, was PR-. I have not noticed many such cases. I was diagnosed with triple negative breast cancer in June 2005 (ER-/PR-, HER2-). This is supposed to be the worst possible diagnosis. If you read the triple negative forum you will see that many of the women say that their tumour appeared as if from nowhere and grew very quickly. This was certainly my case, so I cannot say how long it was there. There is no treatment for triple negatives after the standard chemo, surgery and radiotherapy. Triple negatives do not get as much attention as hormonal tumours, hereditary ones or HER2 ones.
I found your posting most interesting and encouraging. It makes me wonder what decision to make on October 8, when I shall see my consultant surgeon and endocrinologist. October looks like an anxiety-prone month as on October 23 I shall see the same consultant for my 6 monthly breast cancer check-up.
All the best to Sandilee. I am a retired High School teacher so we have that in common.
Let your food be your medicine and your medicine be your food - Hippocrates B.C. 390 Preadjuvant chemo 3 months epirubicin, cyclophosphamide, 3 months docetaxel. Mastectomy RB Sentinel node pos Radiotherapy 3 weeks + boosters
6/20/2005, IDC, 6cm+, Grade 3, 1/7 nodes, ER-/PR-, HER2-
10/31/2005 Cytoxan (cyclophosphamide), Ellence (epirubicin), Taxotere (docetaxel)
5/16/2006 Lymph node removal: Right; Mastectomy: Right