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Topic: Scares That Turned Out To Be Nothing

Forum: Not Diagnosed With a Recurrence or Metastases but Concerned —

Meet others concerned about developing a recurrence or metastases.

Posted on: Apr 24, 2015 10:09AM - edited Apr 24, 2015 10:37AM by Colt45

Colt45 wrote:

Husband here. My wife was diagnosed about 2 1/2 years ago. She is doing well. But that's not to say there haven't been more than a few moments of high anxiety thinking something's wrong or just waiting for test results to rule out a recurrence or mets. I hope it's ok with the great members here that I start a thread that's only about "scares that turned out to be nothing." It might help someone waiting for test results or waiting for a follow up appointment to remain calm when they're fearing a recurrence or mets.

Husband Dx 10/9/2012, IDC, 2cm, Stage IIB, Grade 1, 1/21 nodes, ER+/PR+, HER2- Surgery 11/6/2012 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 12/12/2012 AC Chemotherapy 2/6/2013 Taxol (paclitaxel)
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Posts 121 - 138 (138 total)

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Dec 22, 2020 03:23AM Francesca30 wrote:

@brittandherboobs I had the same scare when my T12 lit up last month during a petct scan. Did an MRI and it’s due to degenerative causes... most likely the Femara is causing it.

Surgery 3/13/2019 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Dx 3/14/2019, IDC, Left, 2cm, Stage IIIA, Grade 2, 13/20 nodes, ER+/PR+, HER2- Chemotherapy 4/3/2019 TAC Radiation Therapy 8/13/2019 Whole-breast: Breast, Lymph nodes Hormonal Therapy 8/13/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 11/17/2019 Prophylactic ovary removal Hormonal Therapy 11/29/2019 Femara (letrozole) Surgery 7/30/2020 Reconstruction (left): Silicone implant
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Mar 2, 2021 09:27PM scar1888 wrote:

How are you? I hate those 'scares.' We're already to March and can't believe it! I'm now mentoring five women now

and enjoying it.


I'd love to hear from you!

Linda

Dx 10/23/1997, IDC, Left, 1cm, Stage IIIA, Grade 3, 4/22 nodes, ER+ Surgery 11/24/1997 Lymph node removal: Left; Mastectomy: Left Chemotherapy 12/6/1997 CAF Hormonal Therapy Radiation Therapy
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Mar 16, 2021 03:47PM wallycat wrote:

I've been on pins and needles for over a week. A routine CBC found serum protein elevated and red flagged a bunch of other labs...MGUS. Tomorrow, I go in for a bone marrow MRI and am terrified. Onco said, "I don't expect to find anything...." famous last words by my doctors. Everything I was told about my breast cancer was incorrect, so I am convinced they'll find some blood cancer, or mets or who knows. I've gone to the ugly place for over a week.

MGUS is a pre-cancer or benign paraprotein elevation...it can hang out like this for years, disappear or turn into myeloma or who knows....like worrying about breast cancer isn't enough.

I'll be 14 years out, starting year 15 in April. Never had cancer markers or scans so I shudder to think what they'll unearth tomorrow. I'll post back with updates.


Dx 4/07 1 month before turning 50; ILC 1.8cm, ER+/PR+, HER2 neg., Stage 1, Grade 2, 0/5 nodes. Onco score 20, Bilateral Mast., tamoxifen 3-1/2 years, arimidex-completed 4/20/2012
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Mar 16, 2021 04:21PM Beesie wrote:

wallycat, I've been going through my own scares - and scans - lately so I know exactly how you feel.

Good luck with the MRI tomorrow, and fingers crossed that the results show nothing of concern!


Dx 9/15/2005 Right, 7cm+, DCIS-Mi, Stage IA, Gr 3, 0/3 nodes, ER+/PR- ** Dx 01/16/2019 Left, 8mm, IDC, Stage IA, Gr 2, 0/3 nodes, ER+/PR-, HER2- (FISH) ** Surgery 11/30/2005 MX Right, 03/06/2019 MX Left ** Hormonal Therapy 05/2019 Letrozole
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Mar 16, 2021 06:54PM wallycat wrote:

Thanks Beesie. I appreciate your post. I hope all your stuff turns out OK.

Dx 4/07 1 month before turning 50; ILC 1.8cm, ER+/PR+, HER2 neg., Stage 1, Grade 2, 0/5 nodes. Onco score 20, Bilateral Mast., tamoxifen 3-1/2 years, arimidex-completed 4/20/2012
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Mar 16, 2021 10:16PM LillyIsHere wrote:

Wallycat, last year my blood test showed hypercalcemia, and 6 months later was back to normal. I bet I am not the only one whose blood test has been abnormal one time and back to normal another time. Yours too. Also, Mayo Clinic says that elevated protein serum has many benign reasons. Please let us know what MRI shows. I bet it is nothing serious. I had an MRI last week that checked my hip and also bone marrow that come back normal.

“Within five years, cancer will have been removed from the list of fatal maladies.” That was the optimistic promise to U.S. President William Howard Taft in 1910 when he visited Buffalo’s Gratwick Laboratory, “What’s taking so long?” Dx 7/31/2019, ILC, Left, <1cm, Stage IIA, 2/5 nodes, ER+/PR-, HER2- Surgery 9/19/2019 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 11/30/2019 Femara (letrozole)
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Mar 17, 2021 03:26PM wallycat wrote:

I do not have a PCP, so my onco orders my annual preventive crap. What's the saying...if all you have is a hammer, every problem becomes a nail...well, she ordered a bunch of tests right away and wants the mri as a baseline. I'm not sure which I prefer...knowing or not knowing and just dying from it. Sigh.

I hope not a bad omen....MRIs and I do not agree for some reason. Everything was going splendidly till he got to the last 10-12" of my femur. His machine could NOT scan me...he kept saying software glitch....yeah, right. Just like when I had the breast MRI in WI and WHILE they are doing the biopsy, the machine breaks and I'm laying there till the service guy gets there, with my boobs hanging out. Too scary. Bad omen. After 20-25 minutes of working on the legs, he gave up. Said if we have to redo it, we will. I figure if I'm riddled with cancer above the femur, 10" won't make much difference.

Dx 4/07 1 month before turning 50; ILC 1.8cm, ER+/PR+, HER2 neg., Stage 1, Grade 2, 0/5 nodes. Onco score 20, Bilateral Mast., tamoxifen 3-1/2 years, arimidex-completed 4/20/2012
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Mar 17, 2021 03:53PM Beesie wrote:

Well that sounds like it was fun... NOT!! I'm glad for you that it's done.

Nothing like getting these "baseline" scans that aren't supposed to find anything... but then do. The simple fact is that once we hit a certain age, there's always going to be something to find. Imaging technology just isn't that good yet, so while some things can confidently be declared "likely benign" or "benign appearing", imaging also finds things that may be perfectly harmless but aren't seen clearly enough so they are considered "indeterminate". Those are the good findings; then there are the "suspicious" findings.

Wishing you results that are all clear or at worst, "benign appearing"!

Dx 9/15/2005 Right, 7cm+, DCIS-Mi, Stage IA, Gr 3, 0/3 nodes, ER+/PR- ** Dx 01/16/2019 Left, 8mm, IDC, Stage IA, Gr 2, 0/3 nodes, ER+/PR-, HER2- (FISH) ** Surgery 11/30/2005 MX Right, 03/06/2019 MX Left ** Hormonal Therapy 05/2019 Letrozole
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Mar 17, 2021 03:55PM wallycat wrote:

Heart

Dx 4/07 1 month before turning 50; ILC 1.8cm, ER+/PR+, HER2 neg., Stage 1, Grade 2, 0/5 nodes. Onco score 20, Bilateral Mast., tamoxifen 3-1/2 years, arimidex-completed 4/20/2012
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Mar 17, 2021 09:32PM LillyIsHere wrote:

Wishing you all benign findings wallycat.

“Within five years, cancer will have been removed from the list of fatal maladies.” That was the optimistic promise to U.S. President William Howard Taft in 1910 when he visited Buffalo’s Gratwick Laboratory, “What’s taking so long?” Dx 7/31/2019, ILC, Left, <1cm, Stage IIA, 2/5 nodes, ER+/PR-, HER2- Surgery 9/19/2019 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 11/30/2019 Femara (letrozole)
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Mar 18, 2021 08:37AM grainne wrote:

This just makes me look a complete dope but who cares??? We are lambing at the moment and I am helping out. I was desperately worried yesterday by a repeated stabbing pain in my left (cancer) breast. I had never had it before and it lasted all day.

I had a bath at the end of the day.......removed a large piece of straw from my bra.

Pain gone.

grainne Dx 2/1/2016, DCIS/IDC: Tubular, Left, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Hormonal Therapy 4/15/2016 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Mar 18, 2021 11:22AM wallycat wrote:

BENIGN!!! All normal.

Even the "incidental findings" noted are....grossly unremarkable (lungs, abdominal cavity and muscles)

I hope that means the femur is of no consequence...I emailed her to make sure.

So in May, I redo all the labs again and we'll just see what happens. If it is MGUS, this will be 6-12 month checking. But labs are easy except for waiting on the results, LOL.

Dx 4/07 1 month before turning 50; ILC 1.8cm, ER+/PR+, HER2 neg., Stage 1, Grade 2, 0/5 nodes. Onco score 20, Bilateral Mast., tamoxifen 3-1/2 years, arimidex-completed 4/20/2012
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Mar 18, 2021 11:52AM LillyIsHere wrote:

So happy to hear your news wallycat.

ᐈ Cheers pic stock pictures, Royalty Free clinking glasses photos | download on Depositphotos®

“Within five years, cancer will have been removed from the list of fatal maladies.” That was the optimistic promise to U.S. President William Howard Taft in 1910 when he visited Buffalo’s Gratwick Laboratory, “What’s taking so long?” Dx 7/31/2019, ILC, Left, <1cm, Stage IIA, 2/5 nodes, ER+/PR-, HER2- Surgery 9/19/2019 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 11/30/2019 Femara (letrozole)
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Mar 18, 2021 12:40PM Humblepeace wrote:

wallycat

That’s the best report!! I’m so happy for you!!

Dx 3/2017, IDC, Right, Stage IIA, Grade 3, ER+ Hormonal Therapy 6/11/2018 Arimidex (anastrozole), Femara (letrozole) Surgery Lymph node removal: Right; Mastectomy: Right Radiation Therapy Whole-breast: Breast Chemotherapy
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Mar 18, 2021 01:33PM Beesie wrote:

wallycat, doing the happy dance for you! Congrats!!


Dx 9/15/2005 Right, 7cm+, DCIS-Mi, Stage IA, Gr 3, 0/3 nodes, ER+/PR- ** Dx 01/16/2019 Left, 8mm, IDC, Stage IA, Gr 2, 0/3 nodes, ER+/PR-, HER2- (FISH) ** Surgery 11/30/2005 MX Right, 03/06/2019 MX Left ** Hormonal Therapy 05/2019 Letrozole
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Mar 18, 2021 02:51PM wallycat wrote:

Thanks ladies. I know this can turn any time it feels like it, but not today. Happy dance, INDEED!!!

Dx 4/07 1 month before turning 50; ILC 1.8cm, ER+/PR+, HER2 neg., Stage 1, Grade 2, 0/5 nodes. Onco score 20, Bilateral Mast., tamoxifen 3-1/2 years, arimidex-completed 4/20/2012
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Mar 18, 2021 07:34PM 2019whatayear wrote:

Great news WallyCat!!

5/6/2019 IDC 2cm, micromet 1/9 nodes, BRCA2+, ER+, PR+, HER- BMX 6/2019, A/C & Taxol 2019, Radiation, BSO - preventative 2/2020, Letrozole 3/1/2020
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Apr 7, 2021 07:52PM DutchieGirl wrote:

I have had so many tests during and after treatment, it’s hard to count! I lost vision in my eyes and a brain scan was ordered. Negative. I had pain in my hip and a bone scan was ordered. Negative. Had issues with my lungs so I had multiple lung scans. I was scheduled for a biopsy of a suspicious mass in my lungs. I was lying on the bed, fully prepped for a biopsy. I had another CT lung scan and guess what? Yep, it was negative. So no biopsy. I just had a one year follow up lung scan and it was negative. I have developed “scanxiety” from all this but it seems to be part of the territory. I’m doing really well and enjoying post-treatment life!

Dx 11/7/2018, IDC, Left, 1cm, Stage IIIA, ER-/PR-, HER2+ Surgery 1/14/2019 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy: Right Chemotherapy 3/4/2019 AC + T (Taxol) Radiation Therapy 7/29/2019 Targeted Therapy Herceptin (trastuzumab)

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