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Dec 23, 2015 04:06PM
Thanks for starting this thread! I needed this!
I was diagnosed in July, so I'm still in the thick of things. Finished chemo, TCHP, and had a dramatic reaction, although not a complete response, which the doctors didn't expect with ILC. However, the response, I believe was due to the Hereptin and Perjeta combo. The Carbo and Taxotere were to clean up any stray cancer cells out there in my body... Would I do chemo again, probably not, I have along list now, as to why not... Lily55. If I'd been braver, I'd have opted for surgery and no chemo...So proud of you for your decision. However, I feel like it was the right choice for the moment. What freaked me out was the 5/23 nodes positive. The MO gave me the standard, "we can try another, stronger chemo for a little bit, just to be safe." I said no way. She and the BS declared me cancer free. I'm not going to put more chemo in my body due to the positive nodes. The BS said there was more scar tissue in the nodes and tumor, than cancer, so the TCHP did what it was supposed to do. I'm looking at starting rads in the next few weeks and then an hormonal drug... The said they'll repeat my pet scan when I'm done treatment with rads. Other than the breast cancer, nothing else lit up on my initial pet, so I don't think anything should show up now that I've done all this and they say they got it all.
ikc I'm exercising daily, eating turmeric in all of my nutribullet smoothies, taking curcumin supplements, getting rid of dairy, sugar and processed foods... I've always felt better when I did that anyway, so.... here's praying it all keeps it far far away... I'll be looking into Milk Thistle. I keep hearing wonderful things about it.
I've been in touch with an amazing woman in the UK who did chemo, surgery, rads, and declined tamoxifen, went vegetarian, no dairy, no processed sugar and exercises everyday... she'll be 8 years clean in February. I'm just trying to put this all into perspective in my brain and work through it, I think Carolynvj and myself are the only Her2+ out here, that's a bit of a curve ball in this whole thing, but dealing with it, too.
Thank you all for being out here.
Be strong and courageous and do not be afraid, the Lord your God is with you wherever you go. Joshua 1:9
1/18/2015 Breast, Lymph nodes
6/24/2015, ILC, Right, 6cm+, Stage IIIA, Grade 2, ER+/PR+, HER2+
7/23/2015 Carboplatin (Paraplatin), Taxotere (docetaxel)
7/23/2015 Perjeta (pertuzumab)
11/30/2015 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left