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Topic: Lymph Node Positive Survivors

Forum: Not Diagnosed With a Recurrence or Metastases but Concerned —

Meet others concerned about developing a recurrence or metastases.

Posted on: Dec 9, 2015 12:59AM - edited Dec 9, 2015 03:07AM by LM070917

LM070917 wrote:

Hey all,

Just wondering how many lymph node positive survivors there are out there and how many years out? Also have many of you experienced recurrence during that time? Or if you haven't what have you changed in terms of lifestyle, diet, exercise etc..


Dx 9/18/2015, IDC, Right, 6cm+, Stage IIIA, Grade 3, 2/14 nodes, ER+/PR+, HER2- Chemotherapy 11/1/2015 AC + T (Taxol) Surgery Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Radiation Therapy Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole), Zoladex (goserelin)
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Dec 9, 2015 02:13AM Carolynvj wrote:

Hi Lottemarine. I am 2/12 years out from diagnosis which included 6/10 positive nodes. No recurrence. I am more conscious of what I eat and drink. Not that I was terrible before diagnosis. Just trying to eat better for my wellbeing. I do exercise every day to some degree, walking, yoga, running, weights but by no means fanatical about the exercise I do, just try to do something each day. 😊

Dx 5/3/2013, IDC, 4cm, Stage IIIA, Grade 3, 6/10 nodes, ER+/PR+, HER2+ Surgery 5/30/2013 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Chemotherapy 6/27/2013 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Dec 9, 2015 08:07AM lkc wrote:

12 out of 14 pos. nodes. Axillary and sentinel nodes also totally replaced by tumor. 10.5 years well.

Exercise, green tea, turmeric, milk thistle, and lots of prayers.. All's well

Linda K dx'd May 05 Stage IIIC erpr-, her pos, 12 pos nodes
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Dec 9, 2015 08:57AM KayaRose wrote:

Just added this topic to my favorites list. Lottemarine, thanks for starting it. Throughout my treatment and now as a survivor, my biggest fear is recurrence because of my positive lymph node. I try to stay positive but sometimes all I can think about is "OMG, it got into my nodes" and I'm doomed. Here's hoping for lots of positive stories.

I am trying very hard to eat better and keep active. However, I do find it very difficult to sort through all the nutritional and living chemical free information on this board. One of the most prevalent opinions is that sugar seems to fuel cancer. I'm very interested to hear whether or not those not experiencing recurrences are avoiding certain foods/products, etc.

lkc, do you get your tumeric through foods or a supplement? I've just recently been hearing a lot about turmeric but have never used it in cooking and would probably be better off using a supplement, if available. I'll have to look up milk thistle. LOL, I am new to all this.

Dx 9/4/2014, ILC, Left, 5cm, Stage IIIA, 1/14 nodes, ER+/PR+, HER2- Chemotherapy 9/23/2014 AC + T (Taxol) Surgery 3/1/2015 Lymph node removal: Underarm/Axillary; Mastectomy: Left Radiation Therapy 3/30/2015 Whole-breast: Breast, Lymph nodes Hormonal Therapy 4/1/2015 Arimidex (anastrozole) Surgery 7/16/2017 Prophylactic mastectomy: Right
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Dec 9, 2015 12:40PM Lolis wrote:

8 positive out of 24 nodes. I am coming up to my 2 years (since the surgery).

Things that I have changed is removed all the meat but chicken from my diet, apples (soo sad, loved apples) milk (not that I drank it a lot before), minimizing the white flour foods. Eating more broccoli, cauliflower, legumes and fish and trying to eat fruits that not on the dirty dozen list.

What I need to do better is exercise more and relax. My stress level is the same as before Dx and one thing my BS told me what to relax more but it seems I can't.

First dx @ 33, mets @ 36.....my lucky number is 3 😊 Dx 3/22/2014, DCIS, Left, 5cm, Stage 0, Grade 2, 8/24 nodes, ER+/PR+, HER2- Dx 3/22/2014, IDC, Left, 5cm, Stage IIIA, Grade 2, 8/24 nodes, ER+/PR+, HER2- Surgery 4/22/2014 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 5/15/2014 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Hormonal Therapy 9/11/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 9/29/2014 Breast, Lymph nodes Dx 12/6/2017, IDC, Left, Stage IV, metastasized to other, Grade 3, ER+/PR-, HER2- (IHC) Targeted Therapy 1/9/2018 Kisqali Hormonal Therapy 1/9/2018 Femara (letrozole), Zoladex (goserelin)
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Dec 10, 2015 08:52AM readytorock wrote:

I had one positive node and my surgery was 9/2/14, so over 15 months cancer free.

I don't avoid any foods (or alcohol), but I am trying to increase veggie consumption and I drink brassica tea every day.


Dx 8/11/2014, ILC, Left, 1cm, Stage IIA, Grade 2, 1/6 nodes, ER+/PR+, HER2- Surgery 9/1/2014 Lumpectomy: Left Chemotherapy 11/10/2014 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 9/20/2015 Surgery Hormonal Therapy Radiation Therapy Whole-breast
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Dec 10, 2015 03:32PM Lily55 wrote:

7 out of 14 nodes, 3.5 years out, no cow dairy, try and eat more veggies and take various immune boosting supplements

Dx 4/2012, ILC, 5cm, Stage IIIA, Grade 2, 7/14 nodes, ER+/PR+, HER2- Surgery 5/2/2012 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Radiation Therapy 8/14/2012 Breast, Lymph nodes Hormonal Therapy 7/18/2013 Aromasin (exemestane)
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Dec 10, 2015 08:07PM - edited Dec 10, 2015 08:08PM by Curlylocks

I am 10 year survivor. I had my first bc in 2005 - 3 out of 23 lymph nodes positive. I was 41 and had a 4cm tumour. I was stage 2b, Er/pr+, her2-.

I had a new primary in same breast after 8 years....this time it was Triple Negative. My 2!nd bc was 8mm, stage 1. I am 2 years out of my 2nd diagnosis. I try to eat healthy and started running 3 months ago 3x a week, I am up to 5km!

I see you are newly diagnosed from your stats. This is definitely a rollercoaster of a journey. Life does get back to "a new normal".

Michele
Dx 10/23/2005, IDC, 4cm, Stage IIB, Grade 3, 3/23 nodes, ER+/PR+, HER2- Surgery 11/9/2005 Lumpectomy: Left; Lymph node removal: Left, Underarm/Axillary Chemotherapy 12/5/2005 AC + T (Taxol) Hormonal Therapy 5/1/2006 Arimidex (anastrozole) Radiation Therapy 6/1/2006 Breast Surgery 5/3/2008 Prophylactic ovary removal Surgery 12/16/2013 Prophylactic mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Dx 1/9/2014, IDC, <1cm, Grade 1, ER-/PR-, HER2- Chemotherapy 2/11/2014 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Dec 10, 2015 08:24PM muska wrote:

Lolis, what's bad about the apples?
Dx at 54 Dx 5/9/2013, DCIS/IDC, Right, <1cm, Stage IIIA, Grade 3, 7/11 nodes, ER+/PR+, HER2- (FISH) Dx 6/13/2013, LCIS, Both breasts Surgery 6/13/2013 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 7/25/2013 AC + T (Taxol) Surgery 2/20/2014 Reconstruction (left); Reconstruction (right) Hormonal Therapy 3/12/2014 Arimidex (anastrozole) Radiation Therapy 3/23/2014 Breast, Lymph nodes, Bone
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Dec 10, 2015 10:13PM KCinMN wrote:

Added to my favorites so I can follow...

I was diagnosed this past Spring and still in the thick of things, even though I'm done with chemo and initial surgery. But so many nodes involved; they ended up finding more positive nodes than expected. So although my cancer has been removed, I still freak out over the nose involvement!

Thankful for all you Survivors posting here and keeping us encouraged

Dx 4/2015, IDC, Left, 5cm, Stage IIIA, 16/19 nodes, ER+/PR+, HER2- Chemotherapy 5/8/2015 AC + T (Taxol) Surgery 10/22/2015 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Radiation Therapy 12/14/2015
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Dec 11, 2015 02:52AM - edited Dec 11, 2015 02:54AM by LM070917

Thanks everyone for sharing, it's so comforting to hear all your stories and know that you can be just fine in years to come, after this little blip in our lives.

Yeah michele I was diagnosed in sept this year, aged 34 and it certainly has been a roller coaster ever since. Obviously there must have been an imbalance in my body for quite sometime, but I'm now looking forward and positively changing those things in my life 😀 The node thing is a scary one, but atleast we can regain an aspect of control in terms of our lifestyles. Thanks all 😀

Dx 9/18/2015, IDC, Right, 6cm+, Stage IIIA, Grade 3, 2/14 nodes, ER+/PR+, HER2- Chemotherapy 11/1/2015 AC + T (Taxol) Surgery Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Radiation Therapy Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole), Zoladex (goserelin)
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Dec 11, 2015 04:46AM - edited Dec 12, 2015 05:48AM by Jclc83

This Post was deleted by Jclc83.
Jan Dx 8/20/2015, DCIS/IDC, Right, 1cm, Stage IIIB, Grade 2, 7/7 nodes, ER+/PR+, HER2- Surgery 9/20/2015 Lumpectomy: Right; Lymph node removal: Right Chemotherapy 10/7/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy Whole-breast: Breast, Lymph nodes Hormonal Therapy Arimidex (anastrozole)
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Dec 11, 2015 03:38PM Lolis wrote:

@ Muska - I found out that apples are number 1 on the dirty list (high use of pesticides). Not sure if organic is better but I am avoiding them. I used to have at least 1 a day for the past 15+ years. :(

First dx @ 33, mets @ 36.....my lucky number is 3 😊 Dx 3/22/2014, DCIS, Left, 5cm, Stage 0, Grade 2, 8/24 nodes, ER+/PR+, HER2- Dx 3/22/2014, IDC, Left, 5cm, Stage IIIA, Grade 2, 8/24 nodes, ER+/PR+, HER2- Surgery 4/22/2014 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 5/15/2014 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Hormonal Therapy 9/11/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 9/29/2014 Breast, Lymph nodes Dx 12/6/2017, IDC, Left, Stage IV, metastasized to other, Grade 3, ER+/PR-, HER2- (IHC) Targeted Therapy 1/9/2018 Kisqali Hormonal Therapy 1/9/2018 Femara (letrozole), Zoladex (goserelin)
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Dec 11, 2015 03:49PM - edited Dec 11, 2015 03:50PM by Artista928

This Post was deleted by Artista928.
Dx'd at 50. Doing it all, all by myself. Stopped Letrozole after 5 weeks. Debilitating se's. Back on Tamox now. Dx 6/2/2015, IDC, Left, 6cm+, Stage IIIA, Grade 3, 1/4 nodes, ER+/PR+, HER2- (DUAL) Surgery 8/6/2015 Lymph node removal: Left, Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/3/2015 AC + T (Taxotere) Radiation Therapy 5/2/2016 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 6/28/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 12/9/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 2/14/2017 Femara (letrozole) Hormonal Therapy 3/26/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 9/1/2017 Reconstruction (right): Fat grafting, Silicone implant
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Dec 11, 2015 03:51PM Artista928 wrote:

Apples are very healthy and the best 1 fruit to eat a day. You could say pesticides about all thin skinned/ no skinned fruit and veggies. Merely wash very well or go organic. Apples are good for you!

Dx'd at 50. Doing it all, all by myself. Stopped Letrozole after 5 weeks. Debilitating se's. Back on Tamox now. Dx 6/2/2015, IDC, Left, 6cm+, Stage IIIA, Grade 3, 1/4 nodes, ER+/PR+, HER2- (DUAL) Surgery 8/6/2015 Lymph node removal: Left, Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/3/2015 AC + T (Taxotere) Radiation Therapy 5/2/2016 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 6/28/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 12/9/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 2/14/2017 Femara (letrozole) Hormonal Therapy 3/26/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 9/1/2017 Reconstruction (right): Fat grafting, Silicone implant
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Dec 11, 2015 06:35PM Lolis wrote:

I am not saying there are not good for you. I know the benefits of the apples (that's why I was eating them and they were the only thing that would soothe my stomachaches). I am just saying that they are # 1 on the dirty dozen and perhaps organic are better. :-)

First dx @ 33, mets @ 36.....my lucky number is 3 😊 Dx 3/22/2014, DCIS, Left, 5cm, Stage 0, Grade 2, 8/24 nodes, ER+/PR+, HER2- Dx 3/22/2014, IDC, Left, 5cm, Stage IIIA, Grade 2, 8/24 nodes, ER+/PR+, HER2- Surgery 4/22/2014 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 5/15/2014 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Hormonal Therapy 9/11/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 9/29/2014 Breast, Lymph nodes Dx 12/6/2017, IDC, Left, Stage IV, metastasized to other, Grade 3, ER+/PR-, HER2- (IHC) Targeted Therapy 1/9/2018 Kisqali Hormonal Therapy 1/9/2018 Femara (letrozole), Zoladex (goserelin)
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Dec 11, 2015 07:40PM labelle wrote:

I still eat apples, but organic only. That is sort of the idea of the "dirty dozen" so you know which fruits and veggies to buy organic only every time and which ones ( the "clean fifteen") buying organic is less important. Hate to see you miss out on apples. I love them too!

Lots and lots of women with positive nodes are long term survivors and there are several of them posting regularly on the Stage II and Stage III boards. The whole positive node thing freaked me out at first too, but knowing so many on these boards with positive nodes are doing well is reassuring.

Dx 9/29/2014, IDC: Tubular, Left, <1cm, Stage IIA, Grade 1, 1/11 nodes, ER+/PR+, HER2- (FISH) Surgery 11/13/2014 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy Whole-breast: Breast
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Dec 14, 2015 09:59PM - edited Dec 14, 2015 10:01PM by Martini

lilly55, I noticed no chemo, reason?


Marilyn. Oncotype 13. DX at 59.Micrometastis/LVI Dx 11/3/2015, IDC, Right, 1cm, Stage IB, Grade 2, 1/1 nodes, ER+/PR+, HER2- Surgery 12/1/2015 Lumpectomy: Right; Lymph node removal: Sentinel Radiation Therapy 2/16/2016 Whole-breast: Breast, Lymph nodes Hormonal Therapy 3/21/2016 Femara (letrozole) Hormonal Therapy 4/23/2016 Arimidex (anastrozole)
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Dec 14, 2015 10:11PM Holeinone wrote:

I am 2 1/2 years post dx & lumpie.

Having 6 positive nodes has made me nervous. They all were matted & fused, Cancer on the outside of those pesky nodes. Extranodal extension...they did a PET scan after my surgery because of the extranodal extension. It came out clear. One day at a time, one foot in front of the other.

Spinal mets Surgery 7/21/2013 Lumpectomy: Left Chemotherapy 8/21/2013 AC + T (Taxol) Radiation Therapy 12/22/2013 Breast, Lymph nodes Dx 3/3/2016, ILC, Left, 1cm, Stage IV, metastasized to liver, Grade 2, 6/7 nodes, ER+/PR+, HER2-
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Dec 14, 2015 10:15PM MEG2 wrote:

~ 2/21 nodes, part of my pathology was that they remained encapsulated...which my Onc explained meant that cancer had not broken away from or out of the lymph node. I cling to that when I need to put fear at bay. I am 2 and 1/2 years out from initial diagnosis, 2 years from mastectomy (I did chemo first). There is always some anxiety whispering in my ear but the farther out I get the quieter the sound. Just found out I have a "fatty" liver...I've always eaten a pretty healthy diet but always put exercise on a back burner, weight loss has been elusive with the tamoxifen and AI. Now I need to step up the daily exercise and find a good balance of healthy, low fat, low carb, low sugar meal plans.

Best wishes to you along this journey. This is a great place for information and advice

Smile

Dx 7/3/2013, IDC, Left, 2cm, Stage IIB, Grade 2, 2/21 nodes, ER+/PR-, HER2- (FISH) Chemotherapy 7/16/2013 AC + T (Taxol) Surgery 11/15/2013 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Radiation Therapy 1/6/2014 Whole-breast: Breast, Lymph nodes Hormonal Therapy 3/1/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 11/10/2014 Reconstruction (left): DIEP flap Hormonal Therapy 6/16/2015 Arimidex (anastrozole) Surgery 7/22/2015 Reconstruction (left): Nipple reconstruction Surgery 12/2/2015 Reconstruction (left): Nipple tattoo
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Dec 14, 2015 10:16PM Artista928 wrote:

I think the Her2 status is a key with recurrence or mets later on. Trip negative and Her2+ folks have a higher risk than us Her2- folks in general, at least that's what my MO told me and what I've been seeing in people sigs who have mets/recurrence.

Dx'd at 50. Doing it all, all by myself. Stopped Letrozole after 5 weeks. Debilitating se's. Back on Tamox now. Dx 6/2/2015, IDC, Left, 6cm+, Stage IIIA, Grade 3, 1/4 nodes, ER+/PR+, HER2- (DUAL) Surgery 8/6/2015 Lymph node removal: Left, Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/3/2015 AC + T (Taxotere) Radiation Therapy 5/2/2016 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 6/28/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 12/9/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 2/14/2017 Femara (letrozole) Hormonal Therapy 3/26/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 9/1/2017 Reconstruction (right): Fat grafting, Silicone implant
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Dec 15, 2015 05:11AM aussieched wrote:

Artista928

Actually from what I have read and advised by my oncologist is that recurrence is greater for Her2+ and Trip negative in the first five years, but then lessens after 5 years. In other words if you are going to have a recurrence there is a much higher risk in first 5 years.

As for ER/PR+ their risk of recurrence actually continues and is probably at least as high as in the first 5 years, and can continue for 10, 15 even up to 20 for some people, but very slowly lessens over time, but the risk is there for much longer. They tend to see quite a few recurrences around the 6-8 years out, possibly due to stopping tam or AI treatment at the 5 years mark.

Ched

Dx 5/11/2007, IDC, 2cm, Stage IIA, Grade 1, 1/30 nodes, ER+/PR+, HER2- Surgery 5/30/2007 Lumpectomy: Left; Lymph node removal: Left, Underarm/Axillary; Prophylactic ovary removal Radiation Therapy 8/16/2007 Hormonal Therapy 9/28/2007 Femara (letrozole)
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Dec 15, 2015 05:36PM Lily55 wrote:

A long list of reasons why I refused chemo, which I do not regret for a minute. I was pressured a lot to take it by two Oncologists (I took second opinion) but I decided the risk of permanent side effects over rode any possible benefit for me.........

Dx 4/2012, ILC, 5cm, Stage IIIA, Grade 2, 7/14 nodes, ER+/PR+, HER2- Surgery 5/2/2012 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Radiation Therapy 8/14/2012 Breast, Lymph nodes Hormonal Therapy 7/18/2013 Aromasin (exemestane)
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Dec 15, 2015 09:17PM - edited Dec 16, 2015 12:15AM by Artista928

Lily55- that's pretty brave to refuse chemo. I'm similar to you with tumor size, hormone status and stage, except with 1 lymph node involvement- and was told if I don't do chemo, at some point it will come back. I'm doing everything I can to help prevent that chance.Chemo sucks but it's doable for majority. I hope you continue to do well. :)

Dx'd at 50. Doing it all, all by myself. Stopped Letrozole after 5 weeks. Debilitating se's. Back on Tamox now. Dx 6/2/2015, IDC, Left, 6cm+, Stage IIIA, Grade 3, 1/4 nodes, ER+/PR+, HER2- (DUAL) Surgery 8/6/2015 Lymph node removal: Left, Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 11/3/2015 AC + T (Taxotere) Radiation Therapy 5/2/2016 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 6/28/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 12/9/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 2/14/2017 Femara (letrozole) Hormonal Therapy 3/26/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 9/1/2017 Reconstruction (right): Fat grafting, Silicone implant
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Dec 17, 2015 07:24PM Abbasi wrote:

Why hAve u removed apple .just curious to know.

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Dec 18, 2015 03:17AM Lily55 wrote:

thanks Arista, I was told all that too, and at every follow up appt but I simply do not believe chemo is the only way for the kind of cancer I had, But its an individual choic

Dx 4/2012, ILC, 5cm, Stage IIIA, Grade 2, 7/14 nodes, ER+/PR+, HER2- Surgery 5/2/2012 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Radiation Therapy 8/14/2012 Breast, Lymph nodes Hormonal Therapy 7/18/2013 Aromasin (exemestane)
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Dec 22, 2015 02:57AM AusUSA wrote:

Thanks for posting this Lottemarine. I too am curious to know how many women live long lives despite having nodes involved. I had 4/13 nodes involved, one being 6mm in size and another showing extra nodal extension, and was diagnosed just this past May, but I know it's been growing in me for some time. Hindsight is always 20/20 and I had several alarm bells that I didn't listen to for over 2 years because they weren't the typical alarms. Oh, well. Just finished rads last Friday. Regarding chemo, Lily55 is right about ILC tumors. My oncologist wasn't going to offer chemo to me because ILC tumors don't react as well to chemo as IDC does. I chose to do it just because I couldn't imagine NOT doing it.

Anywho, looking forward to more good news stories posted here. I have seen a lot of people in the Stage III forum post years out, so I often check them as well.

Dx 5/12/2015, ILC, Right, 6cm+, Stage IIIA, Grade 2, 4/13 nodes, ER+/PR+, HER2- Surgery 6/23/2015 Lumpectomy: Right; Lymph node removal: Right, Underarm/Axillary Chemotherapy 8/12/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy
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Dec 22, 2015 08:03AM KayaRose wrote:

AusUSA, I have a similar dx as you and just wanted to tell you that I had chemo prior to my mastectomy. The ILC cancer definitely did respond to the chemo. I had an MRI before chemo and then again after chemo. Although I didn't have a complete response, both the breast and lymph node tumors decreased in size. In fact, the doctor reading the MRI made the comment that the change was dramatic (his word). So I'm glad you have decided to do the chemo. ILC may not respond as well as IDC, but that doesn't mean there won't be any response at all. My main concern was getting rid of any stray cancer cells floating around in my body. I feel if the tumors responded, then the stray cells did, too. Hope you have a good response, too.

Dx 9/4/2014, ILC, Left, 5cm, Stage IIIA, 1/14 nodes, ER+/PR+, HER2- Chemotherapy 9/23/2014 AC + T (Taxol) Surgery 3/1/2015 Lymph node removal: Underarm/Axillary; Mastectomy: Left Radiation Therapy 3/30/2015 Whole-breast: Breast, Lymph nodes Hormonal Therapy 4/1/2015 Arimidex (anastrozole) Surgery 7/16/2017 Prophylactic mastectomy: Right
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Dec 23, 2015 05:06PM JerseyGirl22 wrote:

Thanks for starting this thread! I needed this!

I was diagnosed in July, so I'm still in the thick of things. Finished chemo, TCHP, and had a dramatic reaction, although not a complete response, which the doctors didn't expect with ILC. However, the response, I believe was due to the Hereptin and Perjeta combo. The Carbo and Taxotere were to clean up any stray cancer cells out there in my body... Would I do chemo again, probably not, I have along list now, as to why not... Lily55. If I'd been braver, I'd have opted for surgery and no chemo...So proud of you for your decision. However, I feel like it was the right choice for the moment. What freaked me out was the 5/23 nodes positive. The MO gave me the standard, "we can try another, stronger chemo for a little bit, just to be safe." I said no way. She and the BS declared me cancer free. I'm not going to put more chemo in my body due to the positive nodes. The BS said there was more scar tissue in the nodes and tumor, than cancer, so the TCHP did what it was supposed to do. I'm looking at starting rads in the next few weeks and then an hormonal drug... The said they'll repeat my pet scan when I'm done treatment with rads. Other than the breast cancer, nothing else lit up on my initial pet, so I don't think anything should show up now that I've done all this and they say they got it all.

ikc I'm exercising daily, eating turmeric in all of my nutribullet smoothies, taking curcumin supplements, getting rid of dairy, sugar and processed foods... I've always felt better when I did that anyway, so.... here's praying it all keeps it far far away... I'll be looking into Milk Thistle. I keep hearing wonderful things about it.

I've been in touch with an amazing woman in the UK who did chemo, surgery, rads, and declined tamoxifen, went vegetarian, no dairy, no processed sugar and exercises everyday... she'll be 8 years clean in February. I'm just trying to put this all into perspective in my brain and work through it, I think Carolynvj and myself are the only Her2+ out here, that's a bit of a curve ball in this whole thing, but dealing with it, too.

Thank you all for being out here.


Be strong and courageous and do not be afraid, the Lord your God is with you wherever you go. Joshua 1:9 Radiation Therapy 1/17/2015 Breast, Lymph nodes Dx 6/24/2015, ILC, Right, 6cm+, Stage IIIA, Grade 2, ER+/PR+, HER2+ Chemotherapy 7/22/2015 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 7/22/2015 Perjeta (pertuzumab) Surgery 11/30/2015 Lymph node removal: Sentinel, Underarm/Axillary; Mastectomy: Right; Prophylactic mastectomy: Left Targeted Therapy Herceptin (trastuzumab)
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Dec 28, 2015 05:53PM fightergirl711 wrote:

Recently diagnosed with lymph node involvement (JerseyGirl22 I'm also HER2+), treatments still to come. Just added this thread as a favorite, stories are certainly reassuring.

Diagnosed at 44. NED after re-excision and ALND. Herceptin thru Feb. 2017. Surgery 12/11/2015 Lumpectomy: Left; Lymph node removal: Sentinel, Underarm/Axillary Dx 12/14/2015, IDC/IDC: Mucinous, Left, 2cm, Stage IIIA, Grade 3, 4/4 nodes, ER+/PR+, HER2+ Dx 12/14/2015, DCIS, Left, 6cm+, Stage 0, Grade 3, 4/4 nodes, ER+/PR+, HER2+ Targeted Therapy 1/7/2016 Herceptin (trastuzumab) Chemotherapy 1/7/2016 Taxol (paclitaxel) Targeted Therapy 1/7/2016 Perjeta (pertuzumab) Chemotherapy 3/30/2016 AC Surgery 6/7/2016 Lymph node removal: Left Radiation Therapy 7/14/2016 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 8/29/2016 Femara (letrozole) Surgery 12/30/2016 Prophylactic ovary removal
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Dec 28, 2015 10:16PM Opt4Life wrote:

fightergirl, like you, I'm also mucinous with lymph node involvement and just found out I may be HER2+ as well. Certainly wasn't expecting that diagnosis after being told that mucinous rarely spreads to lymph nodes but I have a mixed mucinous which behaves more like regular IDC. I agree that the lymph node positive stories are reassuring. My oncologist told me not to focus on the node involvement it as it wouldn't solely be the determining factor in survival.

Dx 10/2015, DCIS/IDC: Mucinous, Left, 4cm, Stage IIB, Grade 2, 3/5 nodes, ER+/PR+, HER2- Chemotherapy 12/2/2015 AC + T (Taxol) Surgery 6/13/2016 Lumpectomy: Left; Lymph node removal: Left; Reconstruction (left) Hormonal Therapy 7/15/2016 Aromasin (exemestane), Femara (letrozole) Radiation Therapy 7/20/2016 Whole-breast: Breast, Lymph nodes Dx 1/19/2018, IDC, Left, <1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Surgery 3/7/2018 Mastectomy: Left, Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Chemotherapy 5/11/2018 Xeloda (capecitabine)

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