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Topic: Tinnitus, blurred vision..other weird symptoms

Forum: Not Diagnosed With a Recurrence or Metastases but Concerned —

Meet others concerned about developing a recurrence or metastases.

Posted on: Nov 5, 2017 05:57AM

swg wrote:

Right around the time I was diagnosed, I got a UTI. My dr. gave me Bactrim. I switched to Macrobid because it seemed to cause all kinds of problems, including Tinnitus.

Well, the tinnitus has gotten worse. And now my vision is very blurry, and my eyes are very irritated. And I have a weird twitching in my lip, as well as the feeling I'm being poked, from time to time, on various areas of my skin.

Of course now that I have BC I'm paranoid the cancer has spread to my brain or something. UGH.

I don't even know if any of this stuff is related to each other..or related to the cancer.

I haven't seen an oncologist yet and I'm supposed to get my pre-surgery tests-blood, EKG etc. soon so maybe I should just tell the dr who does those tests.

Anyone had any weird symptoms like this that turned out to be related to cancer?

thx

Dx 9/11/17. IDC grade 2, stage 1. 1.2cm. in right breast. ER+/PR+, HER2- 2nd tumor in right breast found 10/22/17. Dx 9/11/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Dx 10/23/2017, DCIS/IDC, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 11/28/2017 Mastectomy; Reconstruction (right): Tissue expander placement
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Nov 5, 2017 06:32AM KBeee wrote:

It is likely not related to the meds, bug it is worth a call to the doc whoprescribed them or to your surgeon.

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/26/2013 Mastectomy: Left, Right Chemotherapy 9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/23/2014 Reconstruction (left); Reconstruction (right) Surgery 1/29/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Surgery 2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Chemotherapy 3/31/2015 AC + T (Taxol) Radiation Therapy 8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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Nov 5, 2017 07:36AM swg wrote:

HI KBeee,

I'm not on any meds for my cancer yet.

I had orig thought the tinnitus was related to an antibiotic I took for a UTI same time I was diagnosed.

My breast surgeon told me to go see my primary care dr and if they recommend a CT scan, she's ok with that.

Dx 9/11/17. IDC grade 2, stage 1. 1.2cm. in right breast. ER+/PR+, HER2- 2nd tumor in right breast found 10/22/17. Dx 9/11/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Dx 10/23/2017, DCIS/IDC, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 11/28/2017 Mastectomy; Reconstruction (right): Tissue expander placement
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Nov 5, 2017 08:24AM Shellsatthebeach wrote:

My vision has gotten noticeably worst in the last year, but I chalk it up to age. I'm doing a lot more squinting these days.

Dx 3/2017, IDC, Left, 3cm, Stage IIIB, Grade 2, ER+, HER2- Surgery 8/28/2017 Lymph node removal; Mastectomy: Left Dx 9/15/2017, DCIS/IDC, Left, Stage IIIB, Grade 3, 6/10 nodes, ER+/PR+, HER2+ Targeted Therapy 9/24/2017 Herceptin (trastuzumab) Radiation Therapy 10/17/2017 Breast, Lymph nodes, Chest wall Targeted Therapy Perjeta (pertuzumab) Chemotherapy AC + T (Taxotere)
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Nov 5, 2017 08:36AM proudtospin wrote:

i am on a chemo drug called taxol, day after infusion my vision is funky but i do get tons of utis, make sure you get a med that works for not just any antibiotic, course the steroids i am getting for cancer treatment now kill my utis

iris Dx 6/2008, DCIS, Stage 0, ER+ Dx 2/2017, Left, Stage IV, metastasized to bone/liver, Grade 3, 1/1 nodes, ER+, HER2+
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Nov 5, 2017 08:37AM swg wrote:

My UTI is gone. But I get them frequently.

I'm just trying not to panic about brain mets :p

thx for the feedback :)

Dx 9/11/17. IDC grade 2, stage 1. 1.2cm. in right breast. ER+/PR+, HER2- 2nd tumor in right breast found 10/22/17. Dx 9/11/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Dx 10/23/2017, DCIS/IDC, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 11/28/2017 Mastectomy; Reconstruction (right): Tissue expander placement
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Nov 5, 2017 08:38AM swg wrote:

What's weird is the blurry vision comes and goes.

Dx 9/11/17. IDC grade 2, stage 1. 1.2cm. in right breast. ER+/PR+, HER2- 2nd tumor in right breast found 10/22/17. Dx 9/11/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Dx 10/23/2017, DCIS/IDC, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 11/28/2017 Mastectomy; Reconstruction (right): Tissue expander placement
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Nov 5, 2017 08:42AM Shellsatthebeach wrote:

Are you getting chemo now?

Dx 3/2017, IDC, Left, 3cm, Stage IIIB, Grade 2, ER+, HER2- Surgery 8/28/2017 Lymph node removal; Mastectomy: Left Dx 9/15/2017, DCIS/IDC, Left, Stage IIIB, Grade 3, 6/10 nodes, ER+/PR+, HER2+ Targeted Therapy 9/24/2017 Herceptin (trastuzumab) Radiation Therapy 10/17/2017 Breast, Lymph nodes, Chest wall Targeted Therapy Perjeta (pertuzumab) Chemotherapy AC + T (Taxotere)
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Nov 5, 2017 08:49AM swg wrote:

No. I have surgery planned for Nov. 28th, and then after getting a SNB, would see what the next steps will be.

My tumors are luminal A. My BS says she doesn't think I will need chemo; just Tamoxifen.

I'm not on anything right now.

Dx 9/11/17. IDC grade 2, stage 1. 1.2cm. in right breast. ER+/PR+, HER2- 2nd tumor in right breast found 10/22/17. Dx 9/11/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Dx 10/23/2017, DCIS/IDC, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 11/28/2017 Mastectomy; Reconstruction (right): Tissue expander placement
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Nov 5, 2017 08:54AM Shellsatthebeach wrote:

The good news is if your doctor thinks you don't need chemo, the likelihood of mets is probably very slim. The CT could give peace of mind though if you decide to go that route.

Dx 3/2017, IDC, Left, 3cm, Stage IIIB, Grade 2, ER+, HER2- Surgery 8/28/2017 Lymph node removal; Mastectomy: Left Dx 9/15/2017, DCIS/IDC, Left, Stage IIIB, Grade 3, 6/10 nodes, ER+/PR+, HER2+ Targeted Therapy 9/24/2017 Herceptin (trastuzumab) Radiation Therapy 10/17/2017 Breast, Lymph nodes, Chest wall Targeted Therapy Perjeta (pertuzumab) Chemotherapy AC + T (Taxotere)
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Nov 5, 2017 10:13AM swg wrote:

Looking up my symptoms, I seem to have the same symptoms of Meniere's Disease or intracranial hypertension.

I'm kind of scared to do the CT scan, but maybe I should.

Fun!

Dx 9/11/17. IDC grade 2, stage 1. 1.2cm. in right breast. ER+/PR+, HER2- 2nd tumor in right breast found 10/22/17. Dx 9/11/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Dx 10/23/2017, DCIS/IDC, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 11/28/2017 Mastectomy; Reconstruction (right): Tissue expander placement
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Nov 5, 2017 12:31PM stephincanada wrote:

Do the ct scan or an MRI. My dad had tinnitus for a year that was dismissed a Ménière's disease. It was a symptom of an acoustic neuroma (benign tumour in ear canal). He had it treated with gamma knife radiation. Good luck.

Dx 5/26/2016, IDC, Right, 2cm, Stage IIA, Grade 3, 0/3 nodes, ER-/PR-, HER2+ (IHC) Surgery 6/7/2016 Lumpectomy: Right; Lymph node removal: Sentinel Chemotherapy 7/7/2016 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil), Taxotere (docetaxel) Targeted Therapy 9/6/2016 Herceptin (trastuzumab) Targeted Therapy 9/7/2016 Perjeta (pertuzumab) Radiation Therapy 11/29/2016 Whole-breast: Breast, Lymph nodes
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Nov 5, 2017 12:44PM Maureen1 wrote:

I had tinnitus and blurred vision. For 6 months they worked me up for migraines, MS, and ocular Mets but never did a CT. When they finally did the CT they found the problem right away, it wasn't any of those things, it was an aneurysm behind my eye which required emergency neurosurgery ...I wish I had gotten the CT sooner, they are a very good diagnostic test when sorting out weird symptoms. I hope you are able to get answers soon, the unknown can be stressful...Maureen

Dx 7/31/2012, IDC, 1cm, Stage IIA, Grade 2, 3/11 nodes, ER+/PR+, HER2- Surgery 8/6/2012 Lumpectomy: Left; Lymph node removal: Left, Underarm/Axillary Chemotherapy 9/19/2012 AC + T (Taxol) Surgery 3/4/2013 Prophylactic mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Hormonal Therapy 3/19/2013 Aromasin (exemestane) Hormonal Therapy 7/22/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 11/23/2013 Reconstruction (left): Silicone implant
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Nov 5, 2017 12:50PM Beatmon wrote:

if they offered you the CT, do it. Peace of mind is worth a million$$$

Dx 7/27/2012, IDC, <1cm, Stage IA, Grade 3, 0/1 nodes, ER-/PR-, HER2+ Surgery 8/9/2012 Lymph node removal: Left, Sentinel; Mastectomy: Left, Right Surgery 12/1/2013 Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 7/1/2014 Reconstruction (left); Reconstruction (right) Dx 8/9/2014, IDC, Both breasts, Stage IV, metastasized to lungs, Grade 3, ER-/PR-, HER2+ Targeted Therapy 8/27/2014 Herceptin (trastuzumab) Targeted Therapy 8/27/2014 Perjeta (pertuzumab) Chemotherapy 8/27/2014 Taxotere (docetaxel)
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Nov 5, 2017 12:54PM Kath1228 wrote:

SWG,

if your doctor advises to have the scan or MRI - you should definitely do it - especially to get some peace of mind. But also remember this is an extremely stressful time and stress can do A LOT to our bodies. I say this because I am a very high stress and anxious person and I know what it has done to me. I imagine every little ache or pain is something worse than it really is. At various times I’ve had all the symptoms you describe and they’ve turned out to be nothing and seem to resolve on their own.

I hope for peace and calm for all of us on this difficult journey



Dx 11/7/2013, IDC, Left, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 12/4/2013 Lumpectomy: Left Radiation Therapy 1/22/2014 Whole-breast: Breast Hormonal Therapy 11/3/2014 Femara (letrozole)
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Nov 5, 2017 01:10PM swg wrote:

Thank you all SO MUCH. Yeah..you convinced me. I'm gonna get an appt with my primary care dr asap..Monday, and get a referral for a CT scan.

Dx 9/11/17. IDC grade 2, stage 1. 1.2cm. in right breast. ER+/PR+, HER2- 2nd tumor in right breast found 10/22/17. Dx 9/11/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Dx 10/23/2017, DCIS/IDC, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 11/28/2017 Mastectomy; Reconstruction (right): Tissue expander placement
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Nov 5, 2017 01:17PM Maureen1 wrote:

Good luck, you're in my thoughts and prayers hoping things settle down as you get answers and prepare for surgery.

Dx 7/31/2012, IDC, 1cm, Stage IIA, Grade 2, 3/11 nodes, ER+/PR+, HER2- Surgery 8/6/2012 Lumpectomy: Left; Lymph node removal: Left, Underarm/Axillary Chemotherapy 9/19/2012 AC + T (Taxol) Surgery 3/4/2013 Prophylactic mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Hormonal Therapy 3/19/2013 Aromasin (exemestane) Hormonal Therapy 7/22/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 11/23/2013 Reconstruction (left): Silicone implant
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Nov 5, 2017 03:27PM Racy wrote:

You could also get an eye examination.

Dx 2010, ILC, 2cm, Stage IIA, Grade 3, 0/22 nodes, ER+/PR+, HER2-
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Nov 5, 2017 03:28PM Racy wrote:

You could also get an eye examination.

Dx 2010, ILC, 2cm, Stage IIA, Grade 3, 0/22 nodes, ER+/PR+, HER2-
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Nov 5, 2017 04:30PM sas-schatzi wrote:

Swg I agree getting scanned. New onset symptoms, add that to new onset cancer, you want to know if there is something going on. But I disagree with the Cat Scan. It has do due with the radiation. You will be scanned for years now.

One CT scan has the radiation affect/effect of 200 chest xray's That number of radiation exposure can be variable on the source. The key is that MRI doesn't cause radiation exposure. Ask for an MRI.

I essentially cheated on my symptoms initially when dx'd with BC. As a nurse I new what words would get me a test. I wanted a brain MRI. I got it. They found an incidental brain tumor on the opposite side of my complaint.

Incidental means "oh by the way" there's something we found when looking for something else.

Worked out really good for me.

But I joke, how the hell am I ever going to know if any thing's wrong in my head. Tinnitus, vertigo, hearing loss, vision disturbances, white flashes, wet macular degeneration, memory loss, word finding, MS symptoms(ruled out, but symptoms still there)........................SSssssssssssssso much. Frankly a joke.

Look you work each problem, Yes you need a scan. The tinnitus if it's one side is reason a concern if present.

BUT MRI's are great! LOVE MRI's

SWG your in the system now. Be proactive on all your care do all the follow up's I had an extremely aggressive tumor and a pathology report that said "unfavorable outcome" Oncodx score 30. That was 2009. This is 2017. WHY no clue am I here, well Happenstance, melatonin 10 mg a night, also on a beta-blocker--------both have been shown to have a positive affect on limiting recurrence . That info wasn't available then. happenstance was I couldn't sleep I took Melatonin at a higher dose that the 3-6mg because I was on AI's and total insomnia. The beta-blocker was for hypertension. It's now being trialed with an NSAID.

I do have recommendations regarding surgery. I will link it. This is very important. The topic box will explain how to use the information. It will also, have links to other topics that are very important to surgery and the use of drugs at the time of your surgery.

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Nov 5, 2017 04:32PM - edited Nov 5, 2017 04:39PM by sas-schatzi

This is on Beta-blockers

https://community.breastcancer.org/forum/73/topics/845083?page=4#idx_92

This is on the use of Torodal in surgery

https://community.breastcancer.org/forum/73/topics/843381?page=1#idx_23

It also, links to the opioid thread and paravetbral info.

Sorry about the bolding once it's on it's hard to turn it off


Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Nov 6, 2017 01:52AM swg wrote:

Funny, I was thinking the same thing (about an eye exam). Actually, a little over a month ago I had a flash in my peripheral vision. I'm very near-sighted, so I'm always conscientious about the possibility of retinal detachment.

I went to an ophthomologist. They did everything BUT an eye dilation--just because I was by myself and concerned about being able to drive home (last time I had a dilation, my pupils were dilated all day).

Apparently I did fine on the vision tests. But now I'm thinking I'll call them in the morning. See if I can get a friend to drive me to get my eye dilated, and see if they catch anything abnormal.

It's so frustrating and anxiety producing. I've had some weird symptoms for a while, that I thought could be Parkinson's (my dad and grandmother had Alzheimers, which I think has a similar mechanism to Parkinson's.) Tremors..lip twitching..chin twitching. I still have those.

I actually saw a neurologist earlier in the year. Reflexes and everything were good. He thought the tremors could be related to a cervical radiculopathy I got from a car accident and ordered an MRI that I didn't get around to doing, simply because I was buying a house and moving at the time.

I still probably have the MRI order somewhere. I should dig it up and see if it's for my head.

It sucks to have all these symptoms that could be metastases, OR something else..OR anxiety from having cancer. Could drive you nuts.


Dx 9/11/17. IDC grade 2, stage 1. 1.2cm. in right breast. ER+/PR+, HER2- 2nd tumor in right breast found 10/22/17. Dx 9/11/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Dx 10/23/2017, DCIS/IDC, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 11/28/2017 Mastectomy; Reconstruction (right): Tissue expander placement
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Nov 6, 2017 01:53AM swg wrote:

Thank you so much, sas-schatzi!

Since I have time before my surgery, I am trying to prepare as best as possible.

Dx 9/11/17. IDC grade 2, stage 1. 1.2cm. in right breast. ER+/PR+, HER2- 2nd tumor in right breast found 10/22/17. Dx 9/11/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Dx 10/23/2017, DCIS/IDC, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 11/28/2017 Mastectomy; Reconstruction (right): Tissue expander placement
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Nov 7, 2017 02:42AM sas-schatzi wrote:

SWG this is a preparation list. Key in now on the immunizations and teeth. Good job on getting the eyes checked

https://community.breastcancer.org/forum/5/topics/748296?page=1


Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Nov 7, 2017 08:21PM sas-schatzi wrote:

Okay swg back here from the titanium allergy thread

Tell me the story.

But I've been up all night, maybe no opinion till the day after tomorrow

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Nov 8, 2017 03:34AM swg wrote:

oh just that it made me itchy but I'm ok now.

Ended up in the ER last night. The tinnitus is maddening.

My cat woke me up at 3a for food, and when I got up, I was dizzy...felt like I was going to vomit, then pass out. Called 9-1-1.

Hospital did an EKG, blood test, blood glucose test...everything looked fine.

They asked if I wanted a CT scan but then I remembered what was said on this thread about the radiation. I think I will wait and see if my primary care dr can refer me for an MRI today.

A doctor friend thinks I might have an inner ear infection.

The hospital gave me anti vertigo and anti nausea meds.

I swear I do not want to have this tinnitus when I'm trying to rest after my mastectomy :(

Dx 9/11/17. IDC grade 2, stage 1. 1.2cm. in right breast. ER+/PR+, HER2- 2nd tumor in right breast found 10/22/17. Dx 9/11/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Dx 10/23/2017, DCIS/IDC, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 11/28/2017 Mastectomy; Reconstruction (right): Tissue expander placement
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Nov 8, 2017 09:29AM sas-schatzi wrote:

Swg based on your story your doc can get this approved easily. MRI with and without contrast.. Questions?

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Nov 8, 2017 09:41AM - edited Nov 8, 2017 09:42AM by swg

I guess not, but damn, it scares me to be getting another MRI. I'm petrified about this possibly being a brain tumor. :(

Dx 9/11/17. IDC grade 2, stage 1. 1.2cm. in right breast. ER+/PR+, HER2- 2nd tumor in right breast found 10/22/17. Dx 9/11/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Dx 10/23/2017, DCIS/IDC, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 11/28/2017 Mastectomy; Reconstruction (right): Tissue expander placement
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Nov 8, 2017 09:52AM - edited Nov 8, 2017 10:06AM by sas-schatzi

swg, if it is, you will deal with it, one action at a time. I'm with you. I found out I had a brain tumor and BC on the same day. That was 2009. This is 2017. One step at a time. Worrying will do nothing for you. Work the problem. If you must, ask your doc for some Ativan. I did use the Ativan primarily for sleep along with Melatonin. My dose on the Melatonin had to be 10 mg vs. the usual 3-6.

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Nov 8, 2017 10:03AM sas-schatzi wrote:

swg here's some important info to review for surgery. Everything is explained in the topic box

https://community.breastcancer.org/forum/73/topics/843381?page=1#idx_23


Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Nov 8, 2017 10:50AM swg wrote:

Wow. That's amazing, sas-schatzi. I need to get some Melatonin!

Dx 9/11/17. IDC grade 2, stage 1. 1.2cm. in right breast. ER+/PR+, HER2- 2nd tumor in right breast found 10/22/17. Dx 9/11/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Dx 10/23/2017, DCIS/IDC, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 11/28/2017 Mastectomy; Reconstruction (right): Tissue expander placement

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