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Topic: Tinnitus, blurred vision..other weird symptoms

Forum: Not Diagnosed With a Recurrence or Metastases but Concerned —

Meet others concerned about developing a recurrence or metastases.

Posted on: Nov 4, 2017 03:57PM

swg wrote:

Right around the time I was diagnosed, I got a UTI. My dr. gave me Bactrim. I switched to Macrobid because it seemed to cause all kinds of problems, including Tinnitus.

Well, the tinnitus has gotten worse. And now my vision is very blurry, and my eyes are very irritated. And I have a weird twitching in my lip, as well as the feeling I'm being poked, from time to time, on various areas of my skin.

Of course now that I have BC I'm paranoid the cancer has spread to my brain or something. UGH.

I don't even know if any of this stuff is related to each other..or related to the cancer.

I haven't seen an oncologist yet and I'm supposed to get my pre-surgery tests-blood, EKG etc. soon so maybe I should just tell the dr who does those tests.

Anyone had any weird symptoms like this that turned out to be related to cancer?

thx

Dx 9/11/17. IDC grade 2, stage 1. 1.2cm. in right breast. ER+/PR+, HER2- 2nd tumor in right breast found 10/22/17. Dx 9/11/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Dx 10/23/2017, DCIS/IDC, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 11/27/2017 Mastectomy; Reconstruction (right): Tissue expander placement
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Nov 9, 2017 02:33PM - edited Nov 9, 2017 02:35PM by swg

So, I went to the opthamologist.

The weird visual stuff is cuz I have cataracts and glaucoma!!! Yay, me :(

She doesn't want to treat them yet--it's still early stage. She said we'll keep an eye on it and I should go back in 6 months.

I guess I gotta put up with the halos/starbursts/ghost images etc. Very relieved she didn't say "looks like a brain tumor."

Next step is I'm seeing a neurologist on Tuesday. I want to see if he thinks I should get an MRI with contrast and if my tinnitus, weird twitches, etc. could be related to cervical radiculopathy I got from a car accident a few yrs ago.

I'm also seeing an oncologist next wk. AND my plastic surgeon for my reconstruction.

So many doctors..so little time..

Dx 9/11/17. IDC grade 2, stage 1. 1.2cm. in right breast. ER+/PR+, HER2- 2nd tumor in right breast found 10/22/17. Dx 9/11/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Dx 10/23/2017, DCIS/IDC, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 11/27/2017 Mastectomy; Reconstruction (right): Tissue expander placement
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Nov 10, 2017 10:34AM sas-schatzi wrote:

swg, glad you have the eye doc under your belt. The glaucoma---all docs giving you any drugs need to know this. Many drugs can affect the specific drainage of the anterior chamber of the eye. Good job!

Get a dental appointment in the mix. Teeth cleaning and anything that needs fixing. Once you start chemo you can't have dental work done.

YAY Neurology appointment. The accident from several years ago can be influencing things now. BUT and this but is key to your situation you have had a "change of condition" All those symptoms hit you at once the other night. The symptoms were strong enough to send you to the ER by squad. That's significant in communicating 'somethings changed". That's what you should concentrate with the doc on. Tell him of the accident, but focus on the present set of symptoms and your reaction to them.

Tell me more about your tinnitus? Start time? One side, both sides? Anything make it worse? anything make it better?

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Nov 10, 2017 10:37AM sas-schatzi wrote:

Remind about the UTI , but on a mission that has to be done right now

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Nov 10, 2017 11:16AM swg wrote:

sas-schatzi:

Oh, absolutely. I'm seeing a dentist before my mastectomy as well. All next week is filllllled with drs appts lol

New medical oncologist. New plastic surgeon. Neurologist. Dentist. Possible 2nd opinion on eyes.

I hope I can manage to squeeze some fun time in there :p My niece is coming to help me with my surgery (from California) which is awesome. Gotta get busy on surgery prep..cleaning house; making meals to freeze etc.

As for the maddening tinnitus, I think it started when I took Bactrim for the UTI. I also took Benadryl to counter allergy to the Bactrim. I KNEW I shouldn't take Bactrim. I'm good with Macrobid, which my dr usu gives me, but he didn't give me enough Macrobid the 1st round to kill the UTI. Wouldn't let me take it again a week later. HAD to take the Bactrim. There are only so many antibiotics I can take as I'm allergic to penicillin.

I stopped the Bactrim after 3 days and he put me back on Macrobid, thankfully. I wish I'd never taken that stuff :(


Dx 9/11/17. IDC grade 2, stage 1. 1.2cm. in right breast. ER+/PR+, HER2- 2nd tumor in right breast found 10/22/17. Dx 9/11/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Dx 10/23/2017, DCIS/IDC, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 11/27/2017 Mastectomy; Reconstruction (right): Tissue expander placement
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Nov 10, 2017 11:16AM swg wrote:

Thanks everyone, for so much good recommendations and kind sympathies!!! It's rough but I'll get through it..

Dx 9/11/17. IDC grade 2, stage 1. 1.2cm. in right breast. ER+/PR+, HER2- 2nd tumor in right breast found 10/22/17. Dx 9/11/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Dx 10/23/2017, DCIS/IDC, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 11/27/2017 Mastectomy; Reconstruction (right): Tissue expander placement
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Nov 10, 2017 12:34PM sas-schatzi wrote:

swg, the hardest thing to do is tell a doc no. Stick to your guns next time.

But I am glad to hear that you feel there is some association with a drug. There can be tumors on the 7th cranial nerve in the brain. It's presentation is tinnitus on one side.

Last word for now on the brain tumor thingy. If there is something there, it's there. You just work with it. If it's there no amount of worry is going to change that.

I just wrote this on another thread not an hour ago. You may find it useful. Clear it with your doc.

UTI's: I had frequent asymptomatic UTI's. The thinking now is unless they are symptomatic don't treat them. That controversy started in the late 1990's, but has only recently become the approach of choice.

I found D-Mannose. Controversial as to whether it helps. You will see the range of research that says no, to research that says yes. I gave it a chance. For me I saw a change. It was recommended to take twice a day. Initially, I took the twice a day as recommended. Later after the first retest, I decided I couldn't afford that so I take it at bedtime. When I've run out and am off it for awhile I notice symptoms.

The very first sequence of using it. I had a positive random urine for bacteria. Next urine test after being on it for awhile the test was negative for bacteria. I was impressed. No other drug change in that time period. AND no drug side effects.

The other odd thing was in that second testing was my yearly Cholesterol/HDL/LDL screening. My HDL which is the good cholesterol went the highest it ever was. I took a look specifically for HDL and Mannose. I found the same thing as with UTI's research both ways --yes & no.. I'll believe the research that said it helped, as my HDL was always in the middle range. Again D-Mannose was the only thing that changed in that time period.

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Nov 11, 2017 08:46AM swg wrote:

M tinnitus is on both sides, so maybe less likely to be a brain tumor?

Interesting about the D-Mannose. I don't get UTIs all that frequently, but I've read that with menopause, you can start getting them more often. I've taken cranberry extract pills in the past to try to prevent them.

As for the glaucoma...after talking with my brother, he says we really don't have glaucoma in our family-I was wrong about my dad. He never had it--just cataracts. My brother thinks I might have what HE has been struggling with for years..Fuchs Corneal Dystrophy, which is genetic. Sometimes it gets misdiagnosed as glaucoma.


Dx 9/11/17. IDC grade 2, stage 1. 1.2cm. in right breast. ER+/PR+, HER2- 2nd tumor in right breast found 10/22/17. Dx 9/11/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Dx 10/23/2017, DCIS/IDC, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 11/27/2017 Mastectomy; Reconstruction (right): Tissue expander placement
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Nov 12, 2017 08:08PM - edited Nov 12, 2017 08:11PM by sas-schatzi

swg, some here on the boards has the Fuchs thing, of course I don't remember where. She had similar problem with diagnosis.

Both sided tinnitus is very much better than one sided? Plus, you associated it with medication use. That is a very common origin. Most common is from hearing loss associated with noise trauma. Mine came with a virus. Both sided is not associated with brain tumor. that's stepping out on a limb. Trauma noise or baropressure like diving, drugs, and viruses. Viruses are even considered uncommon. Easy google 'causes of tinnitus' either webmd or healthline are good sites for info

I have a broken keyboard, the autocorrect waits till after I submit to correct.

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Nov 12, 2017 08:16PM - edited Nov 21, 2017 12:41AM by sas-schatzi

swg, pleas, take a look at this thread and consider talking with your breast surgeon and your anesthesiologist

https://community.breastcancer.org/forum/26/topics...


Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Nov 20, 2017 11:46PM swg wrote:

Hmm...that post got removed?!!

Dx 9/11/17. IDC grade 2, stage 1. 1.2cm. in right breast. ER+/PR+, HER2- 2nd tumor in right breast found 10/22/17. Dx 9/11/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Dx 10/23/2017, DCIS/IDC, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 11/27/2017 Mastectomy; Reconstruction (right): Tissue expander placement
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Nov 20, 2017 11:54PM swg wrote:

Update on my problems--

I went to another eye dr for a 2nd opinion. She said my eyes were fine. The protective anti glare coat of my glasses was getting scratched up and causing some of the weird effects I was experiencing.

She said my eye pressure is fine..way under what would make me a "glaucoma suspect."

She is going to get the records from the previous eye dr to try to figure out what's going on.

As for tinnitus, I saw my neurologist who ordered an MRI, but I bet the insurance isn't gonna approve it. His office was supposed to get the approval, and I haven't heard anything. Crickets. I have to call to bug them.

Dx 9/11/17. IDC grade 2, stage 1. 1.2cm. in right breast. ER+/PR+, HER2- 2nd tumor in right breast found 10/22/17. Dx 9/11/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Dx 10/23/2017, DCIS/IDC, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 11/27/2017 Mastectomy; Reconstruction (right): Tissue expander placement
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Nov 21, 2017 12:32AM sas-schatzi wrote:

Yay, the second opinion doc on the eyes sounds great. Picking up on the fact that it might be eye glass related, may seem matter of fact, but it's a little special.

It's like the old joke about the guy that has a shirt neck size that is too tight and causing his eyes to bulge. I forget the joke, but that was the punch line.

On the MRI, docs know the words to use to get the approvals. You did relate the night you called for EMS and all that. You didn't just report the tinnitus? You have so much more going on.

Going to blunt honest, But has to be in next post

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Nov 21, 2017 12:47AM - edited Nov 21, 2017 04:15AM by sas-schatzi

I fixed the link in the previous post. That link can be VERY important to you with all surgeries here on out and forever. It's a must read and listen to Dr. V's video.

I recently had it changed from the science forum to the Share Your Resources Forum. That probably broke the linkage.

Okay getting to the serious stuff

You have head stuff going on. You are worried about a brain tumor. I get that. I was diagnosed with both the same day.

My Mammo(negative) & MRI results showed a very aggressive tumor. The streotatic bx pathology report said the breast tumor was Grade 2 (6) at Bmx pathology it was Grade 3 (8)

Problem the breast surgeon said "I'll see you and 3 months" Me "What?" Him "You will need neuro clearance b/c of the brain tumor" I worked it and it wasn't easy b/c I didn't know anyone to be able to push friend buttons. From biopsy on Jan 23rd till Bmx Feb 18th that's less than a month. I went from Grade 2(6) to Grade 3(8) in less than a month. Had pathology do a relook. As far as pushing buttons, I knew how to work the system. Push and push, got it done. But that was years of working the system that taught me how to make things happen.

Your problem that you have to make a choice about.

IF you get the MRI before you have the breast surgery, AND if it shows a brain tumor, THEN your planned breast surgery will be delayed for a neurosurgical consult for approval of anesthesia clearance that you aren't an increased surgical risk. IF you make the choice to not have the MRI before the breast surgery, if you have a brain tumor you may be at risk for complications of anesthesia b/c of the brain tumor.

That's blunt honest. None of your doc's are going to say it that way. My real recommendation is state the above to the neurologist and ask him if that is true. If he agrees it is true. Then deciding to have the MRI before the breast surgery becomes a serious choice on your part.

Your choice how you proceed.

Tough giving you the blunt honest thingy, but this is how the system works...........old nurse, sassy

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Nov 22, 2017 04:49PM swg wrote:

ok, thanks for fixing that. I think I am SoL, because here's the thing..the receptionist at my neurologist's office said she would get the MRI approved by my insurance. I got so caught up trying to get everything done that I need to get done, pre-surgery, that I forgot to check with them, and they didn't call me.

I just called, just now, and yeah, I got the approval, but now I have no time to get the MRI and get results back before my mastectomy. UGH.

Dx 9/11/17. IDC grade 2, stage 1. 1.2cm. in right breast. ER+/PR+, HER2- 2nd tumor in right breast found 10/22/17. Dx 9/11/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Dx 10/23/2017, DCIS/IDC, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 11/27/2017 Mastectomy; Reconstruction (right): Tissue expander placement
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Nov 22, 2017 04:50PM swg wrote:

Wait..if anesthesia is a problem for people with brain tumors..then how do they put people with brain tumors under, to get surgery?

Dx 9/11/17. IDC grade 2, stage 1. 1.2cm. in right breast. ER+/PR+, HER2- 2nd tumor in right breast found 10/22/17. Dx 9/11/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Dx 10/23/2017, DCIS/IDC, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 11/27/2017 Mastectomy; Reconstruction (right): Tissue expander placement
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Nov 23, 2017 10:44AM sas-schatzi wrote:

swg Well, that's the thing. You don't have the dx, but if you did they would want neuro clearance. Tell the anesthesia person your symptoms and the ER visit. Anesthesia plans for everything.

When's surgery?

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Nov 23, 2017 02:36PM swg wrote:

Surgery is this Tuesday! ack.

Dx 9/11/17. IDC grade 2, stage 1. 1.2cm. in right breast. ER+/PR+, HER2- 2nd tumor in right breast found 10/22/17. Dx 9/11/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Dx 10/23/2017, DCIS/IDC, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 11/27/2017 Mastectomy; Reconstruction (right): Tissue expander placement
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Nov 23, 2017 06:41PM - edited Nov 23, 2017 06:50PM by sas-schatzi

SWg, Shoot me, Sometimes you just have to have faith. The flow has happened. Go with whatever your instincts are. You have waited for this for a long time. You have had medical clearance. Medical clearance by your PCP has to be within 30 days of the surgery, their job is to determine anything that would barr you from safely having the surgery. You've meet with the pre-op admissions nurse. Their job is to pick up on the any irregularities that might be an anesthesia problem and immediately present them to the anesthesia doc that is assigned for that duty that day. Usually an anesthesia person reviews charts for up coming surgeries for problems. If you haven't meet with the anesthesiologist, you will Tues. So far, no one has thrown a red flag.

Have the questions about Toradol usage, vertebral blocks, and no use of opioids. As identified in the links provided. So, many docs are using the protocol even though all are under study b/c they are standard modalities i.e. use in the OR for eons. Eons, decades. Much has been written in the literature re: retro studies and prospective studies. These docs read that stuff looking for trends. Rainyc found when going to Sloan Kettering they had incorporated most all. I only say most all, b/c an "all" statement would be an absolute statement and that was 2 years ago, and I would have to review her statement.

Anesthesia docs are at the top of the physician hierarchy. All docs have responsibility. Anesthesia docs though are special. Their understanding of the body and drugs is in a different elevated plane. We "see" them for such a short time and may never see them again. But they are special. So are CRNA's

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Nov 23, 2017 08:12PM swg wrote:

I watched the video about Toradol..he also says aspirin can have this effect, too, but the pre op instructions say NO ASPIRIN.

What if the anesthesia doc says no? Refuses to give it?

Dx 9/11/17. IDC grade 2, stage 1. 1.2cm. in right breast. ER+/PR+, HER2- 2nd tumor in right breast found 10/22/17. Dx 9/11/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Dx 10/23/2017, DCIS/IDC, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 11/27/2017 Mastectomy; Reconstruction (right): Tissue expander placement
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Nov 23, 2017 08:23PM swg wrote:

It also looks like according to one of the studies you included in your "letter to the doctor" that Ketorolac increases the risk of hematoma.

I got a hematoma from my biopsy.

Hematoma seems like a small price to pay to significantly reduce your recurrence.

Dx 9/11/17. IDC grade 2, stage 1. 1.2cm. in right breast. ER+/PR+, HER2- 2nd tumor in right breast found 10/22/17. Dx 9/11/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Dx 10/23/2017, DCIS/IDC, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 11/27/2017 Mastectomy; Reconstruction (right): Tissue expander placement
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Nov 24, 2017 09:20PM sas-schatzi wrote:

swg the video is about toradol administered by the anesthesia doc in the OR. You must have misunderstood about aspirin. In three threads we never talked nor was is it used in any fashion at surgery. I would suggest reading the first two boxes then re-listen to the video.

link the page. I won't comment. I think you are taking it out of context

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Nov 24, 2017 09:25PM - edited Nov 24, 2017 09:27PM by sas-schatzi

swg. try talking with the anesthesia doc on mon.

On the hematoma thing. Link that too. I think you are misinterpreting something , but I can't see what it is:)

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
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Nov 24, 2017 10:32PM swg wrote:

no..I'm not missing anything. Toradol is a painkiller and an NSIAD like aspirin, right? Pre op instructions say, no drugs of that type because they increase bleeding. That's why I'm saying the anesthesiologist may not want to give it.

I don't even know who my anesthesiologist is or how to contact them on Monday.

I have other questions for my breast surgeon. I left her a message today. I also want to ask her about chlorhexadine...they want me to use it before surgery but I think it gave me a rash on my chest after my biopsy.

Btw I was able to set up an MRI tomorrow morning and my neurologist should be able to check it out by Monday.


Dx 9/11/17. IDC grade 2, stage 1. 1.2cm. in right breast. ER+/PR+, HER2- 2nd tumor in right breast found 10/22/17. Dx 9/11/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Dx 10/23/2017, DCIS/IDC, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 11/27/2017 Mastectomy; Reconstruction (right): Tissue expander placement
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Nov 25, 2017 08:32AM beach2beach wrote:


I've had tinnitus for years but since starting Tamoxifen it is much worse. Even the eyes have been affected so I'm pretty sure its from the hormonal therapy.

Toradol or Ketorolac, is what I received via drip during surgery, and after for pain. My dr. did not prescribe any pain killers. Nurse told me Toradol is like heavy duty Tylenol. Worked well for me. Since it is not aspirin or ibuprofen I do not believe it thins the blood. Once I left the hospital, they gave me some of them in pill form, but never had to take anything for pain.

good luck

Dx 7/28/2017, LCIS/DCIS/ILC, Right, <1cm, Stage IA, Grade 1, 0/2 nodes, ER+/PR+, HER2- Surgery 8/8/2017 Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Hormonal Therapy 9/12/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Nov 25, 2017 11:13PM swg wrote:

Thanks, Beach2Beach. Did you specifically ask for ketorolac?

Dx 9/11/17. IDC grade 2, stage 1. 1.2cm. in right breast. ER+/PR+, HER2- 2nd tumor in right breast found 10/22/17. Dx 9/11/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Dx 10/23/2017, DCIS/IDC, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 11/27/2017 Mastectomy; Reconstruction (right): Tissue expander placement
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Nov 26, 2017 07:45AM - edited Nov 26, 2017 07:46AM by windingshores

Well, too late but I got permanent tinnitus from an MRI. They are very noisy.

Benadryl can cause twitchiness. I thought I had ALS! When I read your post I was going to ask if you had taken Benadryl and then sure enough, you mentioned it.

I don't see any reason to think you have a brain tumor, no offense. We all feel pretty vulnerable at this time and feel that anything that can happen, will, but from what you have written (and I am not a doctor) it seems unlikely that you have a brain tumor.

Anyone can benefit from a paravertebral block for mastectomy. Make sure to emphasize to them NO Pain meds and you will be almost back to normal right after surgery.

Look up paraneoplastic syndrome. I had this. It is an autoimmune reaction to cancer and can cause some neurological and eye problems. This is extremely rare. I had an extreme version of nystagmus in which my eyeballs "jiggled" every few seconds. BMX cured it though it took some months. It is easy to test for this.

Dx 2/2015, DCIS/ILC/IDC, Right, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery Lymph node removal; Mastectomy: Right Surgery Mastectomy: Left; Prophylactic mastectomy: Left Hormonal Therapy
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Nov 26, 2017 06:30PM swg wrote:

Ha! No offense taken.

Weird you had acquired nastygmus. I've had mine since birth..it's genetic. My mom had it.

Yeah..I felt like either the Bactrim or the benadryl maybe gave me the tinnitus. All I know is, I still have it. It screams in my ears 24-7. :(

Dx 9/11/17. IDC grade 2, stage 1. 1.2cm. in right breast. ER+/PR+, HER2- 2nd tumor in right breast found 10/22/17. Dx 9/11/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Dx 10/23/2017, DCIS/IDC, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 11/27/2017 Mastectomy; Reconstruction (right): Tissue expander placement
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Nov 26, 2017 06:37PM windingshores wrote:

At one point, with this autoimmune reaction, my nystagmus was continuous. My vision was as if I was watching from a train window but the train was going 1,000 miles and hour. It was a nightmare. I couldn't see.

Tinnitus is horrible. I have wondered if it was the  MRI or the Femara but the timing is suspicious for the MRI. Try changing the angle of your neck, or holding your nose while blowing into it. Any change? Mine comes and goes and of course bedtime is the worst.  The brain does get used to it to some degree, just as it gets used to floaters in our vision. If it pulses at all, see a neurologist immediately: that requires surgery asap!

Dx 2/2015, DCIS/ILC/IDC, Right, 1cm, Stage IA, Grade 3, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery Lymph node removal; Mastectomy: Right Surgery Mastectomy: Left; Prophylactic mastectomy: Left Hormonal Therapy
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Nov 27, 2017 10:28AM swg wrote:

Oh honey. I'm so sorry. That had to be awful. My nystagmus only kicks in when I focus on something. It makes eye exams a nightmare :p


Dx 9/11/17. IDC grade 2, stage 1. 1.2cm. in right breast. ER+/PR+, HER2- 2nd tumor in right breast found 10/22/17. Dx 9/11/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Dx 10/23/2017, DCIS/IDC, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 11/27/2017 Mastectomy; Reconstruction (right): Tissue expander placement
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Nov 27, 2017 10:42AM swg wrote:

BTW my neurologist's office called..MRI IS NORMAL.

WOOT WOOT

Dx 9/11/17. IDC grade 2, stage 1. 1.2cm. in right breast. ER+/PR+, HER2- 2nd tumor in right breast found 10/22/17. Dx 9/11/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Dx 10/23/2017, DCIS/IDC, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 11/27/2017 Mastectomy; Reconstruction (right): Tissue expander placement

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