We are 214,157 members in 82 forums discussing 152,651 topics.

Help with Abbreviations

Topic: Tinnitus, blurred vision..other weird symptoms

Forum: Not Diagnosed With a Recurrence or Metastases but Concerned —

Meet others concerned about developing a recurrence or metastases.

Posted on: Nov 4, 2017 07:57PM

swg wrote:

Right around the time I was diagnosed, I got a UTI. My dr. gave me Bactrim. I switched to Macrobid because it seemed to cause all kinds of problems, including Tinnitus.

Well, the tinnitus has gotten worse. And now my vision is very blurry, and my eyes are very irritated. And I have a weird twitching in my lip, as well as the feeling I'm being poked, from time to time, on various areas of my skin.

Of course now that I have BC I'm paranoid the cancer has spread to my brain or something. UGH.

I don't even know if any of this stuff is related to each other..or related to the cancer.

I haven't seen an oncologist yet and I'm supposed to get my pre-surgery tests-blood, EKG etc. soon so maybe I should just tell the dr who does those tests.

Anyone had any weird symptoms like this that turned out to be related to cancer?

thx

Dx 9/11/17. IDC grade 2, stage 1. 1.2cm. in right breast. ER+/PR+, HER2- 2nd tumor in right breast found 10/22/17. Dx 9/11/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Dx 10/23/2017, DCIS/IDC, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 11/28/2017 Mastectomy; Reconstruction (right): Tissue expander placement
Log in to post a reply

Page 5 of 6 (170 results)

Posts 121 - 150 (170 total)

Log in to post a reply

Jun 11, 2018 02:31AM jenjenl wrote:

I just went through this. I was on a conference call and half way thru my hearing changed. Then the ringing started. I waited 2 weeks then went to ENT. Basically I got some virus that attacked the nerves in my ear. They did steriod shots in my ear ( 5 days in a row) and did oral steroids. My hearing is better but still have ringing but I only notice it at night/bed time. I'm very happy it improved. I have a head MRI on Tuesday just to check. Thought I'd add my experience.

39 year old wife and mother of 2 children, ages 11 and 8. BRCA1+ (33 at dx) Dx 10/30/2012, IDC, Right, <1cm, Stage IIA, Grade 2, 1/15 nodes, ER-/PR-, HER2- Surgery 11/12/2012 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Chemotherapy 12/18/2012 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 4/21/2013 Prophylactic ovary removal Radiation Therapy 4/29/2013 Breast Surgery 7/22/2013 Mastectomy: Left Surgery 1/20/2014 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
Log in to post a reply

Jun 12, 2018 01:29AM Georgia1 wrote:

Thanks Jenjenl! Glad you had good treatment.

Cancer touched my breast so I kicked its ass. Dx 9/3/2017, ILC/IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Dx 10/10/2017, LCIS, Right, 0/1 nodes Surgery 10/10/2017 Lumpectomy; Lymph node removal: Right, Sentinel Radiation Therapy 11/27/2017 Whole-breast: Breast Hormonal Therapy 1/2/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Jun 12, 2018 05:09AM QuinnCat wrote:

I hear I’m going in head first, but unlike my friend up north who had a brain MRI, up to my waist, she only went up to her shoulders. Really? Valium in hand. Of the three others I know that had head MRIs, only one had a mask and that was decades ago. Are you in a smaller town that doesn’t have the latest equipment maybe? My head will be cradled they said. And I finally got the definition of an “open MRI” when still a tube—just a bigger tube and the tube is shorter than the standard MRI. Six foot long versus 4.5 foot long. Holds up to 300 lb person versus holding 500 lb person.

The other type, one disc on top of the other, open between. “They’d have to put the disc right on top of your face and you couldn’t turn your head at all.” Now wouldn't that be fun?!!!!!!


Jensen—did your hearing get better from the steroids? Is it just in one ear? (That seems to be key and the sudden part.)

Georgia..nothing, NOTHING could be worse than the breast MRI I got. Looking down was good -I agree, but it was a very last minute event for me in a department containing, probably, all the leftover MRI machines from Portland that modern facilities no longer wanted, in an old wing of OHSU. They had some makeshift prop my chest was on that directed every PSI on to one square inch of my breast bone. I was literally in pain throughout. I came out with a beat red face and I could barely breath from my sternum being pushed in. As bad as claustrophobia is, and I have it, that experience will never leave my brain.

Log in to post a reply

Jun 12, 2018 06:00AM sas-schatzi wrote:

OH Quinn the thought about the sheet thing,

Well. no clue tinnitus is gone this moment. rare over 20 years. . I tested talking to Donnie. If it had an affect.. No it didin't. I'm eating leftovers and my ears keep popping. NO clue. Tinnitus is almost no percptible...

Why?

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
Log in to post a reply

Jun 12, 2018 07:12AM sas-schatzi wrote:

Well.....no answer..... it's quiet......20 years of noise.. it's quiet...............Should be joyious. Waiting for the ..........noise. Trying to figuire out why the noise isn't there

Will see what the morning bringings

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
Log in to post a reply

Jun 12, 2018 07:17AM Meow13 wrote:

Mine is the right ear too. I had a sinus mri not one for the ear. Might need to get it checked out afain.

Log in to post a reply

Jun 12, 2018 04:49PM QuinnCat wrote:

Someone asked about my "dying cat." Good news. She is no longer dying. What could have been cancer or IBD (based on ultrasound) was I switched her food in early April and she appears to have had an allergic reaction in her gut. I figured that one out on my own after $1000 in tests and Vet visits. The Vet, nor I, asked "did I change her food recently?"

Oh well, let's all hope all of our dx for tinnitus is this easy.

Sas - it's quiet????? Seriously??? OMG - maybe talking about tinnitus is the cure LOL. Hoping it stays gone!!!!

Two miracles down..many more to go.

Log in to post a reply

Jun 12, 2018 05:10PM Meow13 wrote:

Quinn, IBD irritable bowel disease? My mom's cat has that I know high dollar vet bills. We love embrace pet insurance. Our cats are less than 5 years old though. My male big boy white persian had to have eye surgery, $2500 smackers, embrace paid 80%. I pay about $700 a year for my 2 cats.

Log in to post a reply

Jun 13, 2018 12:49AM QuinnCat wrote:

Meow - I should consider for my two 4 year-olds. I'm sure the older they get, the more expensive the premium. I always worry "what will they pay." IBD - Inflammatory bowel disease. Her small intestine mucosa is swollen. She had a bit of a setback today. Still not sure she doesn't have cancer.

Ok - for all of us hating those MRIs, I found this post on an Acoustic Neuroma Facebook group:


7.5 hours MRI !!!! Under general anesthesia!!! I can't even.....


Log in to post a reply

Jun 13, 2018 05:05PM sas-schatzi wrote:

Quinn, the noise is back. UGH. Sure wish I knew why it was quiet the other day. .....Good news about your cat. .....Odd description on the MRI's 7 hours? General anesthesia?

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
Log in to post a reply

Jun 13, 2018 06:24PM - edited Jun 13, 2018 06:25PM by Meow13

Quinn, they will not cover pre existing conditions. So when Mom and I got the kittens we put them on, after 1st year the premium went down. I think I start at $850 now it's $700 for my 2 cats a year. The female hardly used hers but I did use the $200 wellness care each year. Basically covers her annual and all shots. They paid for them to be spayed and neutered. My male cat ran up a huge bill, close to $3000 for his eye surgery, they paid 80%. All his special prescription dental chews they pay 80%. I have a $5000 maximum/year each cat. My Mom's cat had irritable bowel disease and came close to the$5000 maximum per year. It was all the tests to weed out other causes for his symptoms. As long as you keep the coverage going I believe they will continue to cover my cat's eye issues and Mom's cat IBD.

Also the teeth cleaning was $600 for my female, it came out of her wellness. So AI did have to pay that bill.

They have different plans. The really have been worth it for us. Embrace pet insurance.

Log in to post a reply

Jun 15, 2018 05:08PM - edited Jun 15, 2018 06:32PM by QuinnCat

had my MRI. The power for the whole building went out 2/3 way thru my procedure. I had taken Valium and that did nothing for my anxiety, just made me feel yuck. I could see the lights go out and then reappear (probably the generator) through the cloth over my eyes. Then they pulled me out into the lit room and they left the room with my head locked in. A few minutes of that (with that cagey thing over my face and head cradled) I started getting extremely anxious. Pushed buzzer and said I can't just be in this thing for who knows how long-full on claustrophobia! They tried to talk me into staying but I had to go pee too, so they relented. Good thing as the power apparently went out 10 minutes later and I sat in the lobby chair for at least 20 minutes waiting to go back in. Because it cut out a session I had to have another picture and repeat 9 minutes of it (this was all before contrast). Funny, at that point it was better being IN THE MACHINE hearing the noise after lying on the table outside being locked in. Perspective.

Was it Georgia waiting for her MRI results???

Sas—sorry it is back 😥. Sometimes I think mine is gone but it's just being obscured by other noises. While in the MRI machine I could hear it and surprisingly all the MRI noises were landing on my other ear. I guess that means I have lost hearing

Log in to post a reply

Jun 15, 2018 06:40PM nonomimi5 wrote:

Quinncat - I am sorry the experience was so chaotic, but happy for you that it's over. I too asked for something to relieve my anxiety. They gave me 2 Xanax to be taken 30 minutes before. I took one when I got to the front desk, and another right before the MRI just in case the first one wore off during the MRI. I also had adult diapers on in case I had to go pee. I never did, but it gave me a little peace of mind.

Dx 3/23/2018, DCIS/IDC/IDC: Tubular, Right, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Surgery 4/30/2018 Lumpectomy; Lymph node removal Radiation Therapy 5/28/2018 Breast Hormonal Therapy 7/1/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Jun 16, 2018 08:29AM sas-schatzi wrote:

OH Quinn, bummer experience, Murphy's Law in Spades. ............For me no two days are similar. Which is good. Some days loud, some days right or left loud, some days kinda quiet. Never have I returned to the first year. of the roar. Thank goodness.

Since I strtaed the flonase for the lava flow from the left sinus. It's been softer. No clue if there is connection. Just enjoying the sofness. It's more like very very soft evening on the porch

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
Log in to post a reply

Jun 16, 2018 07:49PM Georgia1 wrote:

Hi there QuinnCat, and thanks for checking in on me. I got the MRI results on Thursday, and there was no tumor or other mechanical problem in either ear, which is great. However, there's no real cure for the tinnitus as you know. My doctor is ok with me taking taurine and magnesium (which do seem to have helped) but all the doctors agree I should stay on Tamoxifen despite the likelihood it is making the tinnitus worse. So that's my deal. On the upside I also got my breast MRI results and no evidence of disease!

One of the ENTs did suggest sound masking, which I think is what Sas-Schatzi was telling us about. He says every day we should listen to music without lyrics (so classical or jazz), for 30 minutes, with headphones, at a volume that is low enough that we can still hear the ringing. After a month, he says, our brains will have learned to tune out the noise. I'm going on vacation on Wednesday but plan to try that when I get back.

All best wishes to you all.


Cancer touched my breast so I kicked its ass. Dx 9/3/2017, ILC/IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Dx 10/10/2017, LCIS, Right, 0/1 nodes Surgery 10/10/2017 Lumpectomy; Lymph node removal: Right, Sentinel Radiation Therapy 11/27/2017 Whole-breast: Breast Hormonal Therapy 1/2/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Jun 17, 2018 04:10AM nonomimi5 wrote:

Georgia - Congrats on your mammo results. Have a great vacation

Dx 3/23/2018, DCIS/IDC/IDC: Tubular, Right, 2cm, Stage IIA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Surgery 4/30/2018 Lumpectomy; Lymph node removal Radiation Therapy 5/28/2018 Breast Hormonal Therapy 7/1/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Jun 18, 2018 04:48AM QuinnCat wrote:

Georgia-what a relief! Congratulations!!!!!!

I finally posted on an Acoustic Neuroma FB group asking questions. Had a great telephone conversation with a woman on a National AN board. No dx of AN (have no idea what MRI showed yet), but wanted to talk to others to see if my symptoms fit. There is no one set of symptoms, nor order of symptoms, nor many predictable outcomes, though most, if not all, lose their hearing because of the surgery. I could go on with scary other details, but since I’m not there yet, if at all......the cure is worse than the disease, but the disease could kill you if it grows large enough. Older is better!!! How about that?


Non- diapers? I just say I gotta go pee!!! Lol

Sad-I’m getting use to the noise I guess. As long as it doesn’t get louder. It sounds loud now, but nighttime is like that.

Log in to post a reply

Jun 18, 2018 06:24AM sas-schatzi wrote:

Quinn let's drop back.

Start date?

Onset of symptoms after which drug or event?

Describe loudness with an adjective?

0-10 scale?

Variations of noise?

Anything make it better?

Anything make it worse?

History of aspirin use?

History of NSAIDS use?

Hearing loss hx?

Chronic sinus?

Head trauma?

Barotrauma (pressure)


Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
Log in to post a reply

Jun 18, 2018 06:31AM sas-schatzi wrote:

Supposing that this could be a template of questions.. My vertigo started with head trauma. Knocking heads in the middle of the night. It, also, improved over time.It wasn't funny that it had to be in the medical record that way. But Oh well.

Probably, other questions that could be added to the template. They were off the top of my head., Cut & paste to a box. easier reference

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
Log in to post a reply

Jun 18, 2018 07:03AM - edited Jun 18, 2018 07:03AM by sas-schatzi

Georgia, reminds me of a story I think I related here pages ago. I awoke at 8:50 in the morning to seriously loud music. I went ot the back deck and listened. Thought it rude that someone would be playing something so loud in the morning. Realized fairly quick it was inside my head.

Never heard the tune before. Then after a time it faded into swing music that I recognized. Glenn Miller. Horns a blazing. It did get softer. Thank you dear Lord. It lasted till 10:50. 2 hours flat.

I was suspicious? I googled tinnitus and music. Found a site by a doc. Musical Ear Syndrome(MES). He explained that what I was having was normally termed a hallucination. He was working towards getting it renamed as MES. He explained that it was more common than the medical & psych community were accepting of, and that folks didn't want to report it b/c it was called a hallucination. He has since been successful in doing that, as I took a re-look a few years later out of curiosity.

I only had one recurrence, but it was so soft I had trouble determining the tune. I think it was Frosty the Snowman.

What's a hoot about the first experience is about a couple or so weeks after the first experience, I turned the channel to Jazz. I heard the song that started the original hallucination. I was able to catch the name on the screen and research it. "New Caldona" by Louis Jordan, 1946. I'm an old movie buff, but couldn't trace it to any old movies or movie tracks. So, it was mystery as to why it was in my head.

It hasn't happened since those two events. Thankfully, between Louis Jordan and Glenn Miller those two hours might have been good for a concert, but not good in the morning. Also, thankful for it not repeating itself.

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
Log in to post a reply

Jun 18, 2018 11:37PM - edited Jun 18, 2018 11:48PM by QuinnCat

Quinn let's drop back.

Start date?

Around XMAS day - came with annual allergies to the conifer Incense Cedar. One of the worst 2 years in 35 years here. Cedar allergies are gone by mid-February so I logically thought this would go away too. Never did...have had 24/7 It was like a one for one allergy and tinnitus.

Onset of symptoms after which drug or event?

I usually never take anything for this allergy (my only allergy) but took benedryl, allegra? and zyrtec every day when this started. It was a bad year and my eyes itchiness was driving me crazy. I've read about Zyrtec and people complaining about Tinnitus. Perhaps it could be drug related. But I've stopped the drugs a long time ago....this year later....around Feb 20 (I know because my hiking partner was in Hawaii when I noticed the cedar not affecting me anymore).

I changed my diet on XMAS day too. I consistently make a small pizza from scratch almost everyday. i'm not a big bread eater, so all of a sudden I am having more white flour - i.e. gluten than normal. I've even wondered if this was a reaction to gluten. My trigger fingers are also back since my diet change. One day I ate bread, not pizza, great bread - best bread outside of SF, so had more than usual and I my whole right hand was a trigger mess. That really got me thinking about gluten. But why just one ear?

The effect of a gluten-free diet on a patient complaining of severe tinnitus.

I also found this:

"Is gluten a neurotoxin?Gluten Causes Nerve Damage. Another study links nerve damage to glutensensitivity. Gluten has been identified as a potential neurotoxin, and many with gluten sensitivity do not manifest symptoms of classic celiac disease, but instead develop nerve damage."

Describe loudness with an adjective?

Noticeable when sitting down and watching TV, or lying in bed. Use to sound like sitting on a commercial airplane flight, now has a little whistle with it.

0-10 scale?

I have no idea how to judge that. It got louder after the audiologist poked around in there and never went back to the lower volume. .It's doable if the alternative is AN or cancer or immune disease. I'm not thinking about suicide because of it (I hear it drives some people to suicide). It is just 24/7. Once it started, never stopped. I had intermittent tinnitus before that....in both ears, but more so in this ear and I remember more of that intermittent stuff before the full-time stuff. Sadly, I cannot remember if that was pre-allergy or not.

Variations of noise?

As described above.

Anything make it better?

Other than distraction, no.

Anything make it worse?

Audiologist poking around trying to get a seal.

History of aspirin use?

I rarely get headaches. Since seeing the ENT I've had very slight headaches every day so I take low dose aspirin. Not everyday..maybe once or twice a week. 3-4 aspirin (low dose). But I take aspirin and never tylenol.

History of NSAIDS use?

I take Celebrex on occasion, but it's been a few months now.

Hearing loss hx?

Lost some hearing in tinnitus ear in 2005 standing next to a bass during an INXS concert without earplugs. Had an ocean in my ear that night and fullness. Have used the other ear for telephone since. I expressed a 30% difference in my hearing between ears to ENT. My hearing test only showed a slight difference and I had better word recognition with the bad ear - go figure. The ENT took that as "sudden sensicneurol hearing loss," with emphasis on "sudden" saying what I perceived counted more than what the hearing test measured. Problem is, I'm not sure what I have is sudden or what I've had since 2005. Sudden with tinnitus >>> Acoustic Neuroma and Immune-mediated disease. I also have had some balance issues, but I think that started with chemo. (I have permanent neuropathy in my feet, but at one point, my whole body, in retrospect.) The headaches came after I saw the ENT.

I think what might have happened vis a vis noticing the hearing differential more so lately was that my bursitis in right hip has made it difficult to sleep on right side (when my good ear would be exposed), so recently I've noticed I can't hear my XM radio at night and constantly changing the volume when I turn over from bad hip to ok hip. I can only stay on the bad hip for a few minutes and its the side I prefer to sleep on. I usually don't lie on my left side (with bad ear exposed), so I'm just noticing this hearing loss more, though I've had this hip thing since early 2017, so not sure if the dramatic difference was only recently observed (really bad memory) or has been this way since early 2017? Or perhaps, the tinnitus made my hearing out of right ear worse. Or my hip became worse at the end of 2017 (it's the worst today from too many days in a row hiking). Too many variables there.

From XMAS to after Incense Cedar allergies should have been gone (usually early Feb), I assumed it was allergies and then after that fluid stuck in my ear. ENT saw no fluid. I'm not sure how conclusive that is - can he see every speck of fluid in my inner ear?

Chronic sinus?

Never

Head trauma?

Never

Barotrauma (pressure)

Never

Log in to post a reply

Jun 22, 2018 04:19AM - edited Jun 22, 2018 05:40AM by sas-schatzi

Quinn Lets start in reverse. Building an answer. Not sure where it will go, I'm following breadcrumbs. I will be saving as I go. So check back for the words "I'm done"

Barotrauma:"Barotrauma: Trauma caused by rapid or extreme changes in air pressure, especially affecting enclosed cavities within the body such as the middle ear (otic barotrauma), the sinuses (sinus barotrauma), and the lungs (pulmonary barotrauma).

See also: Otic barotrauma; Sinus barotrauma; and Pulmonary barotrauma." web med or medicine net

Otic barotrauma--Middle ear: A part of the ear that consists of the eardrum (tympanic membrane) and, beyond it, a cavity (tympanum). This cavity is connected to the pharynx (nasopharynx) via a canal known as the Eustachian tube. The middle ear cavity also contains a chain of three little bones, the ossicles (the malleus, incus, and stapes), which connect the eardrum to the internal ear. The middle ear communicates with the pharynx, equilibrates with external pressure, and transmits the eardrum vibrations to the inner ear.

Sinus barotrauma: Sinus troubles, particularly with pain and a feeling of pressure, due to changing atmospheric pressures, as when going up or down in a plane.

Also called aerosinusitis or barosinusitis.

Diagnosing ear barotrauma https://www.healthline.com/health/ear-barotrauma#complications

While ear barotrauma may go away on its own, you should contact a doctor if your symptoms include significant pain or bleeding from the ear. A medical exam may be required to rule out an ear infection.

Many times ear barotrauma can be detected through a physical exam. A close look inside the ear with an otoscope can often reveal changes in the eardrum. Due to pressure change, the eardrum may be pushed slightly outward or inward from where it should normally sit. Your doctor may also squeeze air (insufflation) into the ear to see if there is fluid or blood buildup behind the eardrum. If there are no significant findings on physical exam, often the situations you report that surround your symptoms will give clues toward the correct diagnosis.

/////////////////////////////////////

The next link has to do with different ways barotrauma can occur, but the info is to lengthy to bring here.
https://www.american-hearing.org/disorders/barotra...

/////////////////////////////////////////////////////////////////////////////

From Wikipedia

See next post
Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
Log in to post a reply

Jun 22, 2018 05:10AM - edited Jun 22, 2018 05:43AM by sas-schatzi

Quinn, One thing that hit me in the face was your description that your tinnitus was worse after the ENT or audiologist was trying to get a seal. If he was trying to get a seal. Think about pressure changes. Think about the popping of a jar seal. In the readings, it discusses the rapid change of pressure that can cause the eardrum to curve in or curve out. That rapid change in curvature causes a change within the ear. Already forgot the names. BUT not the concept. Please read the selections. See what applies. Your thought that exam did something applies.

Your exposure at the concert. Which ear? Makes a difference. If it's the side you have tinnitus, that is real connector.

What my review now shows. is my chronic sinusitus is a real culprit in my hearing and tinnitus problems. No one ever brought that up before. It was treated as an "Oh well, you have sinusitus".

Plus, I have a very severe Eustachian tube problem. Also, ignored. Many articles describe plane or diving as the problem for Eustcahian tube dysfunction. ME, changes in sea level barometric pressure, changes in building pressure, pain medication(I go almost deaf with). On a plane will go completely deaf without taking pseudofed beforehand.

Anywhooses, there's way to much to know and we just want relief. I mentioned a few posts ago that I started Flonase out of desperation for the chronic sinus lava flow. It's helped a lot. Not sure if it was before that or coincident to the first week, the noise on the left is lighter. I'm using the drug more left than right nostril. I may start to use it both side for awhile, and see what happens.

But not to confuse you my Tinnitus is 20 years old. Started intermittently with a cold. Then became constant at a roar. The roar last for a year but became one sided for enough time that concern for a neuroma, a MRI was done. Then returned to bilateral. The roar softened. Over the next 19 years it's never the same in intensity, quality, or character. But I will take what it is this past few years over any previous years. Definitely current time over any other time. The change now is related to the flonase.based on today's readings

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
Log in to post a reply

Jun 22, 2018 09:40AM - edited Jun 22, 2018 09:42AM by sas-schatzi

Quinn, Ahhah now hours later and your trigger fingers popped into my head. Except I couldn't remember if it was here, paleo, or Insomniacs.

IT's you.

Are you on AI's? You like me don't have our info on here. I actually encourage that folks don't have their info on here. But moments like this, I want and need to know. Plus, your hip scenario. Are they AI associated?

There is a new thread on Paleo. I asked Egads to start it. She is a star. Knowledgeable, witty, supportive. I give her great accolades.

What does this mean for you. Study her thread.I think it will help. I'm the idiot here. I was led to the paleo diet in 2015 when I studied the Microbiome. It's in black and white. The body does better on a diet like Mediterranean or Paleo. I will link you to the microbiome research if you like.

On the hip thing. my ortho gave me injections (NOT steroids) in the knees when the AI's caused such pain. It was good. Tried to keep from using more superlative words. Let me describe the pain. Close to 10. Felt like the pain was a radiating bubble around the knee. Hmm hadn't used that analogy before, it's highly accurate. The shot's fixed it. It's a new thing. Now old b/c they were new in 2010. What I have no clue is are they using them for the hip. I wouldn't hesitate for one second if they are using it.

The trigger hand thing--------------AI's. I quit Arimedex --2009 apr-end of nov. Horrible crippling pain. Then Femara jan to feb 2010, Them Aromasin possibly 2011 till 2013. TRULY fuzzy on that. The key is I quit it too, b/c of QOL. One issue was the beginning of trigger fingers. Especially the thumbs. But the overall total body pain and insomnia was the big issues.

Hahahahha it's 4:32 am. This is not insomnia. I've just allowed myself to get out of cinque. Commonly referred to as poor "sleep hygiene" Old term. If you aren't old --duh you don't get it.

Back to trigger fingers. Once I went off the AI's the clicking and catching stopped. The worst was the right thumb.Took several years for AI stuff to go away. Obviously, I have no idea if they caused long term damage. .

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
Log in to post a reply

Jun 23, 2018 07:39PM QuinnCat wrote:

Sas - you might be on to something with the audiologist thing. There are many things that happened, coincidentally, also, to this tinnitus even starting, almost to the day:

Diet change - way more gluten. Way more and all at once. Two years I discovered I was (newly) egg intolerant. Maybe chemo changed me?

Allergy medications - started taking zyrtec, allegra and benedryl daily. Never have done anything close to this. Zyrtec has been anecdotally connected to tinnitus in some. Sadly, I stopped all of those meds mid-February and the tinnitus still there.

Allergy itself - worst year for Incense cedar in my 25 years of getting this allergy. Sneezing and itchy eyes - no runny nose or sinus issues. I never ever get sinus issues. I've never bothered taking any allergy medications that consistently for this allergy until this year.

Exemestane - almost 6 years.

Yes, hearing insult in same ear as tinnitus, but hearing insult was in 2005.


I have stopped gluten totally as of 6 days. Interestingly, the headaches I was having daily for last month or so ARE GONE on second day of no gluten. The tinnitus has been quieter, though only slightly, so I could attribute to wishful thinking too. Jury out on that. We have a new bakery in town. Tempted to test the gluten-free idea today :)

Still no word on MRI - Geez, I know I should be calling them at this point, but fear is a powerful thing.

See the orthopedist on hip this Wednesday. I know I have bursitis from MRI and an evulsion (from memory on MRI report) involving gluteus medius.


Log in to post a reply

Jun 24, 2018 02:44AM - edited Jun 24, 2018 02:47AM by sas-schatzi

WOHOOoo Quinn. Hope all your thoughts are true. Yeyahwhonininywhopdedoo. Let's see what time and your analysis tells.

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
Log in to post a reply

Jun 24, 2018 03:46AM sas-schatzi wrote:

Quinn, while it may not fit your scenario yet, please, consider, putting the new Paleo thread in your favorites. Egads thread.

Egads has much reading material.

In a later post, I connected to what I call the Weight thread. (I will link it) I had this Hypothesis on weight gain an cancer--BC. In the mean time I studied the microbiome. HUGE. Page 3 has my discussion regarding the microbiome and insulin resistance.. I say my discussion b/c others offered their thoughts with out reading the study. It was an amazing study.

If you are a science junckie reading from the beginning is way fun. If you read the study about the Vensuzeulan(sic) aboriginal group, you will understand humans determent over millennia of living with their environment

My fun as a nurse of since 1974, living with a man who never could afford healthcare, never understood healthcare, and couldn't be bothered with health care. He b/c of his HVAC work------ rips skin, slices skin, rips nails---he wraps wounds with Bounty and duct tape, or just gray tape, or black tape. I've seen bone on him, I've seen slices that I thought would take at least 10 or more stitches. Duct tape. No scar. NO INFECTION. He works in dirt constantly. Really bad dirt..

But he even recognizes bad stuff, If he gets into molds he's careful. Not likely CDC careful. but he knows whats bad. He strips in the garage and clothes goes into the washer with bleach When he walks through the garage door naked , I don't have to ask how his day was.

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
Log in to post a reply

Jul 3, 2018 10:11PM Georgia1 wrote:

QuinnCat, any news on the MRI?

Cancer touched my breast so I kicked its ass. Dx 9/3/2017, ILC/IDC, Right, <1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Dx 10/10/2017, LCIS, Right, 0/1 nodes Surgery 10/10/2017 Lumpectomy; Lymph node removal: Right, Sentinel Radiation Therapy 11/27/2017 Whole-breast: Breast Hormonal Therapy 1/2/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Jul 4, 2018 01:37AM sas-schatzi wrote:

Quinn ditto thought to Georgia's

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".
Log in to post a reply

Jul 4, 2018 01:43AM sas-schatzi wrote:

Quinn ditto thought to Georgia's

Life's journey is not to arrive at the grave safely in a well preserved body, but rather to skid in sideways, totally worn out shouting "holy crap....what a ride".

Page 5 of 6 (170 results)