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Topic: Do you know anyone who NEVER had a recurrence?

Forum: Not Diagnosed With a Recurrence or Metastases but Concerned —

Meet others concerned about developing a recurrence or metastases.

Posted on: Jan 4, 2018 04:50PM

Triplepa wrote:

I just engaged in fb post (mistake!) where the group agreed that cancer always comes back...even if years later. I just finished chemo and surgery (50 hrs old, triple neg and brca2) and was told I have a great prognosis so was disagreeing with group. Then I started trying to think if I know anyone who has had cancer but then ultimately died old of something else and can't think of anyone. Freaking myself out. Does anyone have a good cancer free forever story?

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Jan 4, 2018 05:08PM wrenn wrote:

My aunt lived for 60 years and died of dementia very old.

I intend to die of something else even though I failed treatment and have triple neg metaplastic. :-)

there are many people who don't have a recurrence. Statistics on breast cancer do not say 100% rate of recurrence anywhere that I am aware of. Even if odds are shitty there are those who survive.

Metaplastic IDC Triple negative...Tumour is 1.5cm. BMX Aug. 16th. Chemo cancelled after one dose due to complications. Dx 7/25/2013, IDC, Left, 1cm, Stage IA, Grade 3, 0/6 nodes, ER-/PR-, HER2- Surgery 8/16/2013 Lymph node removal: Left, Sentinel, Underarm/Axillary; Mastectomy: Left, Right
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Jan 4, 2018 05:14PM Aries1 wrote:

Yes, my mother, 14 year survivor. She is 86.

Dx 8/18/2017, ILC/IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- Surgery 10/2/2017 Lumpectomy Radiation Therapy 12/4/2017 3DCRT: Breast Hormonal Therapy 1/31/2018 Arimidex (anastrozole)
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Jan 4, 2018 05:28PM sbelizabeth wrote:

Triplepa, such discussions are pretty silly. Women who have had a breast cancer diagnosis die of other causes without cancer ever being found again.

If I got hit by a bus a month after my treatment ended, would it be said I had been cured of breast cancer? If I was diagnosed at 40 years-old and lived to be 100, would it be correct to assume I had NOT been cured, I just didn't live long enough for mets to show up?

My mom will be 94 next month. She had a two separate mastectomies in her 60's, I think. No cancer ever again, at least not yet!

And that's just my mom. I know many older women who are many years out and have not been diagnosed with recurrence or mets. The study that was released earlier this year with the word "relentless" in the headline scared a lot of people, but no matter how you slice it, more women who have had breast cancer DO NOT have recurrence or mets than those who DO.


pinkribbonandwheels.wordpress.... Dx 10/20/2011, IDC, Left, 1cm, Stage IIIA, Grade 2, 6/28 nodes, ER+/PR+, HER2- Chemotherapy 12/15/2011 Adriamycin (doxorubicin), Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 4/18/2012 Mastectomy: Left Radiation Therapy 5/21/2012 Breast, Lymph nodes Hormonal Therapy 7/19/2012 Femara (letrozole) Surgery 4/15/2013 Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap
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Jan 4, 2018 06:36PM BellasMomToo wrote:

My aunt (mom's sister) was dx'd with BC at age 48. It has been 30 years and she is still cancer free! She is healthy and active -- she is basically the nanny to her two granddaughters, about 4 and 8 years old.

She told me I had to survive BC cause she did.

Dx'd at age 56. Tumor found by my annual mammogram -- cancer can grow fast! Dx 10/6/2016, IDC, Left, 2cm, Grade 2, 0/1 nodes, ER-/PR-, HER2+ (IHC) Dx 10/6/2016, DCIS, Left, Stage 0, ER+/PR- Targeted Therapy 11/2/2016 Herceptin (trastuzumab) Chemotherapy 11/2/2016 Carboplatin (Paraplatin), Taxotere (docetaxel) Targeted Therapy 11/2/2016 Perjeta (pertuzumab) Surgery 3/27/2017 Lymph node removal: Sentinel; Mastectomy: Left
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Jan 4, 2018 06:59PM muska wrote:

My great aunt had mastectomy in 1985. She will be 95 this year. Blind but no cancer and no Alzheimer's.

Dx at 54 Dx 5/9/2013, DCIS/IDC, Right, <1cm, Stage IIIA, Grade 3, 7/11 nodes, ER+/PR+, HER2- (FISH) Dx 6/13/2013, LCIS, Both breasts Surgery 6/13/2013 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 7/25/2013 AC + T (Taxol) Surgery 2/20/2014 Reconstruction (left); Reconstruction (right) Hormonal Therapy 3/12/2014 Arimidex (anastrozole) Radiation Therapy 3/23/2014 Breast, Lymph nodes, Bone
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Jan 4, 2018 07:05PM - edited Jan 4, 2018 10:27PM by ruthbru

The list is so long that I don't know where to begin. Some famous women who never had a recurrence are Nancy Reagan, Betty Ford, Shirley Temple Black, Sandra Day O'Connor, Cheryl Crow, Melissa Etheridge, Joan London...... A friend of mine who is a 40 plus year survivor (and had 3 children after her treatments), my aunt who had BC in her 50's and died at 88 without a recurrence, my next door neighbor's mom who just turned 90.....most people who are diagnosed with BC (and have the appropriate treatment) do NOT die from BC.

"Invisible threads are the strongest ties." Friedrich Nietzsche Dx 2/2007, Stage IIA, Grade 3, 0/11 nodes, ER+/PR-, HER2-
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Jan 4, 2018 08:15PM - edited Jan 4, 2018 08:25PM by farmerlucy

Yes, yes, yes! I spoke to a lady who had BC forty years ago. My grandmother had two different types in her fifties and died in her late eighties of heart disease. My DIL's Mom is BRCA1 pos. Had BC in her thirties. She found it herself. Said it was as big as a peach pit.Triple negative. She is around twenty years out. We share three granddaughters.

Dx at 51 after a preventive mx that wasn't. Oncotype dx 3. 3D tattoos from Vinnie! PTSD?? You are not alone! Surgery 2/21/2012 Prophylactic mastectomy; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Dx 2/24/2012, IDC, Right, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (FISH) Surgery 3/11/2012 Lymph node removal: Sentinel Surgery 7/22/2012 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy 4/10/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 4/14/2015 Prophylactic ovary removal
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Jan 4, 2018 08:19PM Falconer wrote:

My mom, dx'd 25 years ago, is now 76. No recurrence. Her claim to fame is not breast cancer survivor, but Class Wit, 1959.
Strong is the new strong. Dx at 45. Onco 16. Monthly Lupron shots Nov. 2016-December 2017 Dx 7/2016, IDC, Left, 1cm, Stage IB, Grade 2, 0/3 nodes, ER+/PR+, HER2- Dx 7/2016, DCIS, Left, 5cm, Stage 0, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 5/30/2017 Reconstruction (left): DIEP flap Surgery Lymph node removal: Sentinel; Mastectomy: Left Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Aromasin (exemestane), Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Jan 4, 2018 08:33PM PeachyJeanne wrote:

When I was first diagnosed, my best friend's aunt told me it has been 30 yrs since she was treated for breast cancer and I should not let it scare me. I can't say I wasn't still scared at what I was facing, but definitely less so.

Dx 4/27/2017, DCIS/IDC, Left, 2cm, Stage IIA, Grade 2, ER+/PR+, HER2+ (FISH) Dx 5/26/2017, DCIS/IDC, Left, <1cm, Stage IIA, Grade 2, ER+/PR+, HER2- Chemotherapy 6/21/2017 AC + T (Taxol) Surgery 11/19/2017 Mastectomy: Left; Reconstruction (left): Tissue expander placement Surgery 11/20/2017 Lymph node removal: Sentinel Hormonal Therapy 12/10/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Chemotherapy 1/24/2018 CMF Targeted Therapy 1/25/2018 Perjeta (pertuzumab) Targeted Therapy 1/25/2018 Herceptin (trastuzumab)
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Jan 5, 2018 12:22AM mustlovepoodles wrote:

Two aunts. Auntie Gladys was diagnosed with BC when she was 24, in 1912. Truly the Stone Age of cancer treatment. They knew practically nothing back then. Auntie had a mastectomy and was sent on her way. No follow-up of any kind. The family story was that she could never get married, because, you know, she was missing her breast (rolls eyes.)  She never had another bout of cancer.  Auntie Gladys lived well into her 90s and died of dementia. 

Aunt Ann was diagnosed when she was 43, back in the 1970s. Still pretty primitive, but Aunt Ann was included in one of the early trials at Johns Hopkins that used mastectomy, radiation AND chemo to treat. Back then they didn't use anti-hormonals. In fact, they didn't really understand how estrogen and progesterone affected BC, and HER2 hadn't been discovered.  Aunt Ann never had a BC recurrence. She lived to her 80s and died of lung cancer, a victim of second hand smoke.(her lung cancer was not connected with breast cancer.) 

Oncotype 23. Positive for PALB2 & Chek2 gene mutations. My breasts are trying to kill me! Dx 7/20/2015, DCIS/IDC, Right, 1cm, Stage IA, Grade 3, 0/2 nodes, ER+/PR-, HER2- Surgery 8/20/2015 Lumpectomy Surgery 9/3/2015 Lumpectomy: Right Chemotherapy 10/19/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 2/4/2016 Prophylactic mastectomy: Left, Right Surgery 10/19/2016 Hormonal Therapy Femara (letrozole) Surgery
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Jan 5, 2018 01:01AM over70 wrote:

Yes. My mother lived 30years after having a mastectomy and radiation in 1977. She died at 94yrs of a stroke

Dx 11/10/2016, DCIS, Left, 4cm, Stage 0, Grade 3, ER-/PR- Surgery 12/8/2016 Mastectomy; Reconstruction (left): Tissue expander placement Surgery 5/24/2017 Reconstruction (left): Silicone implant Dx 12/5/2017, DCIS, Right, 2cm, Stage 0, Grade 3, ER+/PR+ Surgery 1/2/2018 Mastectomy; Reconstruction (right): Tissue expander placement Surgery 6/4/2018 Reconstruction (right): Silicone implant
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Jan 5, 2018 01:45AM Katwal wrote:

I know several people, not to mention people in my own family. Yes, there are also two members of my family who died young due to mets, but there were many more who died of other causes in their eighties and nineties. I intend to be in the latter group. Don't let fear rob you of living.


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Jan 5, 2018 01:58AM marijen wrote:

Nancy Reagan’s cancer didn’t come back.

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Jan 5, 2018 03:01AM JesusIsmylight wrote:

my grandmother, braca 1 positive. Had BC age 25, had a mastectomy and sent on her way. Had three children right after, lived to ripe old age 87.

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Jan 5, 2018 03:16AM Rrobin0200 wrote:

jesusismylife.. my grandmother had the exact situation, but was diagnosed at age 35. Had a baby after her diagnosis and mastectomy, and lived cancer free for the rest of her life. She passed at age 85.

Dx 3/6/2017, DCIS, Left, 1cm, Stage 0, Grade 3, 0/4 nodes, ER-/PR- Surgery 3/31/2017 Mastectomy: Left; Prophylactic mastectomy: Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Jan 5, 2018 03:55AM Traveltext wrote:

triplepa, I'm guessing you want to hear about TN survivors, not just any bc survivors. Check the signatures of people like wrenn (above) to find out who is in your situation and are doing well many years later. Or perhaps go to the TN forum discussions and ask your question there. To date their is no cure for this disease and we are all subject to differing recurrence odds. Certainly, though, survival is the most common outcome in this era of new drugs and targeted treatments.


NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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Jan 5, 2018 08:00AM Meow13 wrote:

My husband's great aunt was diagnosed when she was 60 and died at age 100. Breast cancer never came back. She had a lumpectomy followed by radiation we think.

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Jan 5, 2018 10:12AM anotherNYCGirl wrote:

My Mom had a mastectomy in 1976, when she was 68 years old. She was one month short of her 99th birthday when she passed away. No chemo or radiation, she lived in her own apartment until the end, and drove her car until she was at least 95!

Dx 1998, DCIS, Stage 0 Surgery 3/18/1998 Lumpectomy: Left Dx 6/2000, ILC, Stage IA, 0/3 nodes, ER+/PR+, HER2- Surgery 7/11/2000 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 8/1/2000 CMF Hormonal Therapy 2/11/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 2/12/2001 Breast Hormonal Therapy 2/12/2006 Femara (letrozole) Dx 2/2014, ILC, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 3/25/2014 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 5/2/2014 AC + T (Taxol) Surgery 11/20/2014 Reconstruction (left); Reconstruction (right) Surgery 1/14/2015 Reconstruction (right): Tissue expander placement Surgery 5/28/2015 Reconstruction (right): Latissimus dorsi flap, Silicone implant Surgery 2/22/2016 Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction
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Jan 5, 2018 12:52PM KBeee wrote:

I probably know about 50 people who never had their cancer come back. Do not let people without knowledge scare you with statements like that.

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/25/2013 Mastectomy: Left, Right Chemotherapy 9/19/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/11/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/22/2014 Reconstruction (left); Reconstruction (right) Surgery 1/28/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Surgery 2/24/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Chemotherapy 3/30/2015 AC + T (Taxol) Radiation Therapy 8/24/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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Jan 5, 2018 01:19PM HollyDollyD wrote:

I have 3 friends - 17 years free, 10 years free and 7 years free. The statistics show that cancer DOESN'T always come back. From the Komen website: "The lifetime risk of a second primary contralateral breast cancer is about 40-65 percent for women with a BRCA1/2 mutation [112].". The risk is lower if you do not have BRCA1/2.

So there you go. Even if you are high risk, it's still not everyone - not by a long way - and think about how medicine advances. In 10 years we should have even more answers. Stay positive, work your lifestyle changes and have hope.

Sending you love,

Holly

“Courage is the most important of all the virtues because without courage, you can't practice any other virtue consistently.” ― Maya Angelou
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Jan 5, 2018 02:14PM - edited Jan 5, 2018 02:18PM by Shellsatthebeach

Yes, my grandmother. She was diagnosed in her early 40s in the 1950s and told to get her affairs in order. She was told she had about 6 months. She had both breast removed. She ended up living 35+ years with no recurrence of cancer. She died of a stroke.

Dx 3/2017, IDC, Left, 3cm, Stage IIIB, Grade 2, ER+, HER2- Surgery 8/28/2017 Lymph node removal; Mastectomy: Left Dx 9/15/2017, DCIS/IDC, Left, Stage IIIB, Grade 3, 6/10 nodes, ER+/PR+, HER2+ Targeted Therapy 9/24/2017 Herceptin (trastuzumab) Radiation Therapy 10/17/2017 Breast, Lymph nodes, Chest wall Targeted Therapy Perjeta (pertuzumab) Chemotherapy AC + T (Taxotere)
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Jan 6, 2018 06:34AM - edited Jan 6, 2018 06:37AM by dtad

Hi everyone. My dear friend was diagnosed with lobular breast cancer 15 years ago. Her tumor was 5 cm and she had 5 positive lymph nodes! She refused chemo but took an aromatase inhibitor for 5 years. She's been NED since her diagnosis. Another happy story

Shellsatthebeach...did your grandmother have any other treatment besides surgery

Dx 3/20/2015, IDC, Left, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Dx 4/10/2015, ILC, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Surgery 5/21/2015 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Jan 6, 2018 09:08AM JO-5 wrote:

A pastor friend dx with brain cancer given 2 years to live at most.....over 20 years still going strong.

A pair of sisters dx with bc .. mastectomies..in about 1980. They are over 90.....no recurrence.

A male friend with bone cancer..on meds...but over 25 years and doing well.

A lady in our town..dx with bc /mastectomy/Arimidex over 17 years .... doing well.

Problem is we, especially on a cancer board like this usually only hear the bad stories. People go on with their lives and many stop posting when they don't have a recurrence.

JO-5

Org dx 04 lumpectomy rads arimidex stage 1 grade 3 no nodes er+pr+her- 2014 rads induced angiosarcoma, wide excision 2015 angio recurrence, rt mast. Lat flap, 1/3 flap went necrotic, skin graft leg to chest Seeing dr every 3 to 6 months.
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Jan 6, 2018 10:28AM stephilosphy00 wrote:

Thank you for all these encouragig stories!! These are what I really need now.

Dx at 29. Original mass 2.5 cm. Biopsy MRI and PET/CT confirmed 1 node involved. Ki-67 score 7.5%. ER100% PR100%. Genetic testing negative. Restaged to stage IIA post surgery. Chose to do 6 cycles of Xeloda to prevent recurrence!! Dx 11/9/2016, DCIS/IDC, Left, 2cm, Stage IIB, Grade 3, 1/3 nodes, ER+/PR+, HER2- Chemotherapy 11/18/2016 AC + T (Taxol) Surgery 5/10/2017 Lymph node removal: Sentinel; Mastectomy: Left Hormonal Therapy 5/21/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 7/11/2017 Aromasin (exemestane) Radiation Therapy 7/12/2017 Whole-breast: Breast, Lymph nodes, Chest wall Surgery 4/3/2018 Prophylactic mastectomy: Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy Zoladex (goserelin)
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Jan 6, 2018 07:40PM Outfield wrote:

A sort of step-grandmother in-law who died in her late 90's, at least 30 years after diagnosis. I didn't know her, but the step-in-laws sent me her foobs.

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Jan 7, 2018 12:00AM - edited Jan 7, 2018 12:02AM by ruthbru

A good friend of mine was diagnosed with ovarian cancer, which has a very dire prognosis, 38 years ago while she was still in college. After a year of intense treatments; she has gone on to live a very happy, busy, interesting, productive life without ever having a recurrence (she was her young oncologist's first patient and he still calls her every year just to check in.......he is almost as delighted as she with how things turned out).

My grandfather was diagnosed with stomach cancer when he was in his 60s (back in the 1950s). Doctors removed 3/4 of is stomach and sent him home to die......which he did....30 years later.....had an anerysm at the age of 93.

"Invisible threads are the strongest ties." Friedrich Nietzsche Dx 2/2007, Stage IIA, Grade 3, 0/11 nodes, ER+/PR-, HER2-
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Jan 7, 2018 12:25PM SavedbyGrace1972 wrote:

Well I here is how I think of cancer,

I think of it as an opportunist, it waits for an opportunity to strike again. Lies dormant. Some for years. Some for months. Some forever. With the right treatment, health regimens it may never come back. But one thing I do know is we all have a different story. Just like in life. Everyone takes different paths. Some choose college, military, jobs, marriage, kids, rent, purchase etc. So just like life cancer may or may not affect everyone, it may or may not return. I guess what I am trying to say is, we just have to enjoy the second chance we get once we have NED. No evidence of disease and try not to worry about it returning.

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Jan 7, 2018 12:58PM stephilosphy00 wrote:

I think most of those women who never had a recurrence are those didn't have node involvement, right? Do you guys know anyone who has node invovlment but never had recurrence?

Dx at 29. Original mass 2.5 cm. Biopsy MRI and PET/CT confirmed 1 node involved. Ki-67 score 7.5%. ER100% PR100%. Genetic testing negative. Restaged to stage IIA post surgery. Chose to do 6 cycles of Xeloda to prevent recurrence!! Dx 11/9/2016, DCIS/IDC, Left, 2cm, Stage IIB, Grade 3, 1/3 nodes, ER+/PR+, HER2- Chemotherapy 11/18/2016 AC + T (Taxol) Surgery 5/10/2017 Lymph node removal: Sentinel; Mastectomy: Left Hormonal Therapy 5/21/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 7/11/2017 Aromasin (exemestane) Radiation Therapy 7/12/2017 Whole-breast: Breast, Lymph nodes, Chest wall Surgery 4/3/2018 Prophylactic mastectomy: Right; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy Zoladex (goserelin)
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Jan 7, 2018 03:28PM marijen wrote:

That's a good question Steph, I would like to know too.

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Jan 7, 2018 03:33PM Traveltext wrote:


Not just node involvement. To be scientific I'd suggest we need stage, grade, cancer type, etc of all long-term survivors for this discussion to be meaningful.


NED breast and prostate cancer. More on Male BC

Dx 03/14, IBC, Lgth. 2cm, Stge IIIB, Gde 2B, ER+/PR+, HER2- ; FEC x3, Taxol x3; Mx & 2/23 nodes; Rads x 33; now on tamoxofin.

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