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Topic: anyone have breast cancer metastasized to uterus?

Forum: Not Diagnosed With a Recurrence or Metastases but Concerned —

Meet others concerned about developing a recurrence or metastases.

Posted on: Apr 22, 2018 11:59AM

iowagirl wrote:

I am worried. I had breast cancer, stage 1, grade 3 in 2013. Lumpectomy, chemo and rads. I have been taking tamoxifen since then. I have been having pap smears annually even though I am 65, an age when paps are generally considered no longer needed. But they are still recommended for me due to a combo of some abnormal cells resulting in a LEEP procedure in 2003 and knowing that tamoxifen can cause uterine cancer (though not often). Just learned there are abnormal cells in my recent Pap, no HPV, and no cancer cells, but my understanding is that doesn't mean there is no cancer and that cancer in the uterus can only be diagnosed by a biopsy of uterine cells.

So I am going in for a transvaginal ultrasound Tuesday, and a colcoscopy a couple weeks after that. Has anyone out there been thru something similar?

In my first cancer experience, I learned that for me, waiting for outcomes was worse than finding out what was going on, even if it wasn't good news. If it's bad news I make a plan and don't look back. But the waiting is hard.



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Apr 22, 2018 09:17PM bevin wrote:

Yes. I have. I had some abnormal cells. I tjink they called it lcis. Squamous cells. I had some sort of laser surgey to clear it. For some reason, I seem to have frequent issues. Glad we have the annual Pap.

How are you doing?

Age 45, Oncotype 11, Primary Tumor 2.1 cm, smaller satellite tumor nearby Dx 8/8/2010, IDC, 2cm, Stage II, Grade 3, 0/5 nodes, ER+/PR+, HER2- Surgery 8/10/2010 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 10/10/2010 Breast
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Apr 23, 2018 09:25AM iowagirl wrote:

Hello, Bevin,

Thanks so much for writing. It was reassuring to hear your outcome.

I'm doing better. I will have the ultrasound tomorrow, and that will answer some questions.

Rebecca


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Apr 23, 2018 11:39AM Tanya_Djamila wrote:

iowagirl

I had stage 3 14 years ago and then last year cancer had Mets to bones uterus and ovaries.

I was treated with tamoxifen arimidex radiation and athrymaicin 14 years ago.

This time I had surgery June 2017 to remove the tumor on my ovaries it was supposed to be laparoscopy but the tumor was too involved and they had to open me up where they found cancer in the uterus as well. Full hysterectomy at 59.

By the way I had Pap smears regularly mammograms blood work etc and nothing revealed the cancer.

The cancer was found in my spine after a back injury. They did a biopsy while I had khyphoplasty.

I hope everything goes well.

Tana

Dx 8/19/2003, ILC, Right, 6cm+, Stage IIIA, metastasized to bone/other, 28/28 nodes, ER+, HER2+ (IHC) Dx 4/19/2017, Stage IV, metastasized to bone/other, 0/0 nodes, ER+, HER2+ (IHC) Hormonal Therapy 6/20/2017 Faslodex (fulvestrant)
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Apr 23, 2018 12:12PM iowagirl wrote:

Dear Tanya,

It was so kind of you to write. There is a great sisterhood among those of us who have had breast cancer. I'm awfully sorry yours came back. How are you doing now?

My test is first thing tomorrow so at least the first stage of waiting will be over. It is a rollercoaster, isn't it?


Rebecca

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Apr 24, 2018 03:46PM iowagirl wrote:

So I had my ultrasound today. Endometrial lining is 19.61 mm and in postmenopausal women they like it to be under 12, so I go back in next week for a colcospocy and biopsy. It's a concern because of me taking tamoxifen, but still not very likely. Fingers crossed. Anyone have experience with this?


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Apr 24, 2018 08:23PM KBeee wrote:

Hoping it all comes back clear. Tamoxifen is notorius for thickening hte uterine lining.

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/26/2013 Mastectomy: Left, Right Chemotherapy 9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/23/2014 Reconstruction (left); Reconstruction (right) Surgery 1/29/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Surgery 2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Chemotherapy 3/31/2015 AC + T (Taxol) Radiation Therapy 8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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May 27, 2018 11:30AM Kell001 wrote:

hi

Awaiting surgery to see if bc has spread to my ovaries or potentially a second cancer. Hopefully, no cancer at all!!

Surgery is June 6.

I was on Tamoxifen 10 years.

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May 27, 2018 08:12PM iowagirl wrote:

My abnormal Pap smear, followed by ultrasound, biopsy and D and C all turned out well. No cancer, just a situation to monitor. I was diagnosed in 2013 and have been on Tamoxifen since then.

I so hope that like in my situation, they find no cancer at all. Waiting is so hard and cancer so scary. You are in my thoughts.


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May 28, 2018 03:24PM Kell001 wrote:

Thank you for your reply. I am new to this board so I am learning how to navigate.


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May 31, 2018 11:20AM KBeee wrote:

iowagirl, glad to hear your good news!

Kell001, Hoping yours comes back benign. Let us know.

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/26/2013 Mastectomy: Left, Right Chemotherapy 9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/23/2014 Reconstruction (left); Reconstruction (right) Surgery 1/29/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Surgery 2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Chemotherapy 3/31/2015 AC + T (Taxol) Radiation Therapy 8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)

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