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Topic: Bone met sisters please weigh in here!

Forum: Not Diagnosed With a Recurrence or Metastases but Concerned —

Meet others concerned about developing a recurrence or metastases.

Posted on: Jun 6, 2018 10:32PM

CIW wrote:

How sensitive have CT scans been to picking up your bone mets? I have had hip and low back pain (on one side) very consistent with bone met pain for months now. My oncologist is mildly concerned but not overly since I am not that far out of diagnosis or chemo. Both an x-ray and CT came back normal. I have heard MRIs are a better test, but I cannot have one since I still have my expander. I am just not sure whether to feel confident this pain is nothing or to be more concerned

Dx 7/21/2017, DCIS/IDC, Right, 3cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR+, HER2- Surgery 8/7/2017 Lymph node removal: Sentinel; Mastectomy: Right Chemotherapy 9/18/2017 AC + T (Taxol)
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Jun 8, 2018 11:00PM KBeee wrote:

A bone scan is most often used. Hoping the pain eases

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/26/2013 Mastectomy: Left, Right Chemotherapy 9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/23/2014 Reconstruction (left); Reconstruction (right) Surgery 1/29/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Surgery 2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Chemotherapy 3/31/2015 AC + T (Taxol) Radiation Therapy 8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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Jun 8, 2018 11:53PM exbrnxgrl wrote:

I have never had a bone scan for mets, but do have PET scans. That is how my bone met was found and then confirmed by biopsy. i do not now nor have i ever had bone pain, so pain may or may not mean something. best wishes.

Bilateral mx 9/7/11 with one step ns reconstruction. As of 11/21/11, 2cm met to upper left femur Dx 7/8/2011, IDC, Left, 4cm, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Surgery 9/7/2011 Lymph node removal: Left; Mastectomy: Left, Right; Reconstruction (left); Reconstruction (right) Dx 11/2011, IDC, Left, 4cm, Stage IV, Grade 1, 1/15 nodes, mets, ER+/PR+, HER2- Hormonal Therapy 11/21/2011 Arimidex (anastrozole) Radiation Therapy 11/21/2011 Bone Hormonal Therapy 6/19/2014 Femara (letrozole)
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Jun 9, 2018 06:53AM vampeyes wrote:

I had a CT done that came back showing 3 small spots on my spine, had a bone scan done and that came back "Likely degenerative disease or tiny bone islands". CT also found spot on my lung and will follow up in 6 months with another CT. Hope this helps. For the pain try magnesium, I use natural calm and have to say my wrist and back pain are some days nil. I am also doing Yoga to help with pain. Also, if you are on Tamoxifen or any of the AI's they could also be causing the pain.


Diagnosed at 41. Oncotype 21 Dx 9/20/2017, IDC, Left, 1cm, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery 10/18/2017 Lumpectomy: Left Surgery 11/15/2017 Lumpectomy: Left Radiation Therapy 1/29/2018 Whole-breast: Breast Hormonal Therapy 3/1/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

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