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Aug 8, 2018 10:57AM
Ispy, I'm sorry you're not getting what you need from your medical providers. That is very frustrating. I hope it's resolved to your satisfaction soon!
My plan so far is surgery 8/17 to remove the tumor at the scar line, approx 1" of skin around the scar, and Level I and Level II lymph nodes. Assuming nothing new pops up in surgery, I will get a new implant and be done with surgeries (hopefully FOREVER!) I will do radiation, but I don't know how much or how long; consultation with RO 8/22. Chemo is a maybe, I believe depending on the extent of lymph node involvement. MO says no right now, BS says don't be so sure... They were of the same inclination last time, and I went with MO. This time, Dr. Wallace gets final say. And I've dumped Tamoxifen for Zoladex and Arimidex. I've had my first Zoladex shot, and it wasn't too bad. If I handle menopause well, I'll probably ditch the ovaries in 12-18 months and skip the shots. I have a pelvic US tomorrow to confirm a mass on my ovary is benign. I will not miss them at all!!!!
I get through this one silver lining at a time. For surgery, I've lost weight since reconstruction in Oct '16 so lefty is bigger than righty. I was starting to consider when I would go back for a revision; I guess the time is now... Because of the inch of skin being removed, the nipple will be lower, but I'm the only one who sees them, so whatever! :)
Fingers crossed that Kaiser comes through for you!
12/12/2015, DCIS, Left, 6cm+, Stage 0, Grade 3, 0/6 nodes, ER+/PR+, HER2-
12/12/2015, IDC, Left, 6cm+, Stage IIB, Grade 2, 0/6 nodes, ER+/PR+, HER2-
1/27/2016 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Silicone implant
10/14/2016 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
7/17/2018, IDC, Left, <1cm, Stage IIB, Grade 2, 18/18 nodes, ER+/PR+, HER2-
7/29/2018 Zoladex (goserelin)
7/29/2018 Arimidex (anastrozole)
8/17/2018 Lymph node removal: Left; Reconstruction (left): Silicone implant
9/12/2018 AC + T (Taxol)
12/25/2018, Stage IV, metastasized to bone
1/28/2019 Whole-breast: Breast, Lymph nodes, Chest wall, Bone
Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)