We are 214,045 members in 82 forums discussing 152,597 topics.

Help with Abbreviations

Topic: What do bone mets feel like? I'm worried

Forum: Not Diagnosed With a Recurrence or Metastases but Concerned —

Meet others concerned about developing a recurrence or metastases.

Posted on: Sep 11, 2018 04:10AM

elise24601 wrote:

Hello,

I haven't been on here for a while. Had several scares that turned out to be nothing. But I think my luck is running out now.

For 2 days I have had moderate achy pain/soreness in my hips, buttocks, lower back, upper thighs, and groin. No change in exercise habits, no injury, no other symptoms. My first thought: bone mets to the spine and/or pelvis. (My stats below suggest how high-risk I am).

I'm wondering if anyone can tell me what sensations they felt when their own bone mets were discovered - was the pain sharp or dull? Constant or intermittent? Did it respond to OTC meds or not? One side or both sides? Maybe this info could help me.

Dx 5/4/2016, IDC, Left, 4cm, Stage IIIC, Grade 3, 15/28 nodes, ER+/PR+, HER2- Surgery Mastectomy; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy Xeloda (capecitabine)
Log in to post a reply

Page 2 of 2 (39 results)

Posts 31 - 39 (39 total)

Log in to post a reply

Oct 11, 2018 07:18AM vampeyes wrote:

Wow things move fast over there! I wa at the doctor's yesterday and told if I don't hear from the booking people in 5 business days to call them. Lol

Here's to hoping the shot will relieve some of the pain for you Astrid!

Diagnosed at 41. Oncotype 21 Dx 9/20/2017, IDC, Left, 1cm, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery 10/18/2017 Lumpectomy: Left Surgery 11/15/2017 Lumpectomy: Left Radiation Therapy 1/29/2018 Whole-breast: Breast Hormonal Therapy 3/1/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Oct 11, 2018 06:05PM - edited Oct 11, 2018 06:06PM by Astrid

to be honest...I was amazed.. this is Peter Mac.. a very large public cancer specialist hospital. Wow!šŸ˜€

The waiting is soooo hard. I feel for you. How are your symptoms?

2002:IDC, double mast & double axilla clearance, chemo. 2003: recurrence left mast.IDC. rads. 2011:reconstruction 2012: recurrence right mast side ILC. rads. Left arm LE since 2003. Right arm LE dx 2016 LE left chest wall & mast.site dx late 2016.
Log in to post a reply

Oct 11, 2018 07:11PM vampeyes wrote:

Today I hurt, but I am a house cleaner. Got an email from my doctor that they are going to run some other tests, more blood work and a fecal (?) test. Sounds like good times, haha.

Diagnosed at 41. Oncotype 21 Dx 9/20/2017, IDC, Left, 1cm, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery 10/18/2017 Lumpectomy: Left Surgery 11/15/2017 Lumpectomy: Left Radiation Therapy 1/29/2018 Whole-breast: Breast Hormonal Therapy 3/1/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Oct 12, 2018 12:51AM Astrid wrote:

keep us posted, and let's hope you get your test very soon! bloods can be a good indicator,,maybe if high calcium etc...

2002:IDC, double mast & double axilla clearance, chemo. 2003: recurrence left mast.IDC. rads. 2011:reconstruction 2012: recurrence right mast side ILC. rads. Left arm LE since 2003. Right arm LE dx 2016 LE left chest wall & mast.site dx late 2016.
Log in to post a reply

Oct 12, 2018 06:21AM vampeyes wrote:

Will do. Let us know how the shot goes and if it helps with the pain at all.

xxx

Diagnosed at 41. Oncotype 21 Dx 9/20/2017, IDC, Left, 1cm, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery 10/18/2017 Lumpectomy: Left Surgery 11/15/2017 Lumpectomy: Left Radiation Therapy 1/29/2018 Whole-breast: Breast Hormonal Therapy 3/1/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Log in to post a reply

Oct 14, 2018 08:30PM TNMTNGAL wrote:

Has anyone had low absolute lymphocytes and low wbc but really high CRP levels?

My CRP 83.1

Wbc 3

Absolute lymphocytes 648


Any information would be greatly appreciated!!

Live today on purpose!! Surgery 10/20/2009 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left, Right Dx 11/12/2009, DCIS/IDC, Left, 3cm, Stage IIB, Grade 3, 14/22 nodes, ER+/PR+, HER2+ (FISH) Chemotherapy 1/21/2010 TAC Radiation Therapy 7/29/2010 Whole-breast: Breast, Lymph nodes, Chest wall Targeted Therapy 10/31/2010 Herceptin (trastuzumab) Hormonal Therapy 12/1/2010 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Latissimus dorsi flap, Nipple reconstruction, Nipple tattoo, Silicone implant, Tissue expander placement; Reconstruction (right): Latissimus dorsi flap, Nipple reconstruction, Nipple tattoo, Silicone implant, Tissue expander placement
Log in to post a reply

Oct 14, 2018 11:00PM Astrid wrote:

No T. gal, I have not, but hopefully someone here will have info for you.

when do you see your specialist or Doc. next?

2002:IDC, double mast & double axilla clearance, chemo. 2003: recurrence left mast.IDC. rads. 2011:reconstruction 2012: recurrence right mast side ILC. rads. Left arm LE since 2003. Right arm LE dx 2016 LE left chest wall & mast.site dx late 2016.
Log in to post a reply

Oct 28, 2018 01:33PM Kattis894 wrote:

I am also experiencing some lower back pain but have been brushing it off since I recently started a new exercise routine. They did do a complete body "scan" checking the bones once my treatment was completed and I was in pain back then as well. They found nothing. The Letrozol treatment was the cause of my "bone pain" then so now I am telling myself to wait until I am in total pain and not freak out. However not sure what the pain is suppose to feel like really. That is hard. How and when are you suppose to be alarmed? A friend of mine passed away recently in another type of cancer and it has made me freak out about everything once again...:( Keep us posted how it goes!

ER+100%,, PR+85%, Her2+++100%, Ki65 30% went down to 6%, Hormon treatment 10 years, Zometa every 6 months for 3 years Dx 7/7/2016, DCIS/IDC, Right, 6cm+, Stage IIB, Grade 2, 0/3 nodes, ER+/PR+, HER2+ (FISH) Chemotherapy 7/25/2016 Cytoxan (cyclophosphamide), Ellence (epirubicin), Fluorouracil (5-fluorouracil, 5-FU, Adrucil) Targeted Therapy 10/2/2016 Herceptin (trastuzumab) Chemotherapy 10/2/2016 Taxol (paclitaxel) Targeted Therapy 10/2/2016 Perjeta (pertuzumab) Surgery 12/18/2016 Mastectomy: Right Hormonal Therapy 1/2/2017 Femara (letrozole) Radiation Therapy 1/17/2017 Whole-breast: Breast, Chest wall Surgery 6/18/2017 Reconstruction (left)
Log in to post a reply

Nov 5, 2018 09:04PM RedemptiveSufferer wrote:

Kattis, it's good seeing you on here (but am sorry you're on here). You may not remember me, but we were on the same thread for those who had mastectomies in Dec. 2016. I've since changed my profile pic.

I too have had some concerns. I've had traveling bone discomfort for at least 6 months. It's mostly in my ribs and a spot to the right of my spine, which sometimes burns. I also get strange sensations in different bones/shoulder in my left arm and had a couple of quick, shooting pains in my upper right femur. I see the oncologist next week and will bring it to her attention then. I've not said anything to her sooner because when I brought up a bruised feeling in my sternum about a year ago she brushed it off because of my early stage/diagnosis. This time I'll request (demand if needed) a bone scan. That's something I never had, and I know some women get them automatically after a BC diagnosis.

Author of Joy Is Contagious...Cancer Isn't: 12 Women Share How Faith Shaped Their Breast Cancer Journey Dx 11/4/2016, ILC/IDC, Left, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 12/6/2016 Mastectomy: Left; Reconstruction (left): Tissue expander placement Hormonal Therapy 2/19/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 4/26/2017 Reconstruction (left): Saline implant

Page 2 of 2 (39 results)