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Topic: What do bone mets feel like? I'm worried

Forum: Not Diagnosed With a Recurrence or Metastases but Concerned —

Meet others concerned about developing a recurrence or metastases.

Posted on: Sep 11, 2018 04:10AM

elise24601 wrote:

Hello,

I haven't been on here for a while. Had several scares that turned out to be nothing. But I think my luck is running out now.

For 2 days I have had moderate achy pain/soreness in my hips, buttocks, lower back, upper thighs, and groin. No change in exercise habits, no injury, no other symptoms. My first thought: bone mets to the spine and/or pelvis. (My stats below suggest how high-risk I am).

I'm wondering if anyone can tell me what sensations they felt when their own bone mets were discovered - was the pain sharp or dull? Constant or intermittent? Did it respond to OTC meds or not? One side or both sides? Maybe this info could help me.

Dx 5/4/2016, IDC, Left, 4cm, Stage IIIC, Grade 3, 15/28 nodes, ER+/PR+, HER2- Surgery Mastectomy; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel) Chemotherapy Xeloda (capecitabine)
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Posts 31 - 37 (37 total)

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Oct 11, 2018 07:18AM vampeyes wrote:

Wow things move fast over there! I wa at the doctor's yesterday and told if I don't hear from the booking people in 5 business days to call them. Lol

Here's to hoping the shot will relieve some of the pain for you Astrid!

Diagnosed at 41. Avatar made me smile thought I would share the smile. Dx 9/20/2017, IDC, Left, 1cm, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery 10/18/2017 Lumpectomy: Left Surgery 11/15/2017 Lumpectomy: Left Radiation Therapy 1/29/2018 Whole-breast: Breast Hormonal Therapy 3/1/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Oct 11, 2018 06:05PM - edited Oct 11, 2018 06:06PM by Astrid

to be honest...I was amazed.. this is Peter Mac.. a very large public cancer specialist hospital. Wow!šŸ˜€

The waiting is soooo hard. I feel for you. How are your symptoms?

2002:IDC, double mast & axilla clearance, chemo. 2003: recurrence left mast.IDC. rads. 2011:reconstruction 2012: recurrence right mast side ILC. rads.
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Oct 11, 2018 07:11PM vampeyes wrote:

Today I hurt, but I am a house cleaner. Got an email from my doctor that they are going to run some other tests, more blood work and a fecal (?) test. Sounds like good times, haha.

Diagnosed at 41. Avatar made me smile thought I would share the smile. Dx 9/20/2017, IDC, Left, 1cm, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery 10/18/2017 Lumpectomy: Left Surgery 11/15/2017 Lumpectomy: Left Radiation Therapy 1/29/2018 Whole-breast: Breast Hormonal Therapy 3/1/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Oct 12, 2018 12:51AM Astrid wrote:

keep us posted, and let's hope you get your test very soon! bloods can be a good indicator,,maybe if high calcium etc...

2002:IDC, double mast & axilla clearance, chemo. 2003: recurrence left mast.IDC. rads. 2011:reconstruction 2012: recurrence right mast side ILC. rads.
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Oct 12, 2018 06:21AM vampeyes wrote:

Will do. Let us know how the shot goes and if it helps with the pain at all.

xxx

Diagnosed at 41. Avatar made me smile thought I would share the smile. Dx 9/20/2017, IDC, Left, 1cm, Grade 2, 0/3 nodes, ER+/PR+, HER2- (FISH) Surgery 10/18/2017 Lumpectomy: Left Surgery 11/15/2017 Lumpectomy: Left Radiation Therapy 1/29/2018 Whole-breast: Breast Hormonal Therapy 3/1/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Oct 14, 2018 08:30PM TNMTNGAL wrote:

Has anyone had low absolute lymphocytes and low wbc but really high CRP levels?

My CRP 83.1

Wbc 3

Absolute lymphocytes 648


Any information would be greatly appreciated!!

Live today on purpose!! Surgery 10/21/2009 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left, Right Dx 11/12/2009, DCIS/IDC, Left, 3cm, Stage IIB, Grade 3, 14/22 nodes, ER+/PR+, HER2+ (FISH) Chemotherapy 1/21/2010 TAC Radiation Therapy 7/29/2010 Whole-breast: Breast, Lymph nodes, Chest wall Targeted Therapy 10/31/2010 Herceptin (trastuzumab) Hormonal Therapy 12/1/2010 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic ovary removal; Reconstruction (left): Latissimus dorsi flap, Nipple reconstruction, Nipple tattoo, Silicone implant, Tissue expander placement; Reconstruction (right): Latissimus dorsi flap, Nipple reconstruction, Nipple tattoo, Silicone implant, Tissue expander placement
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Oct 14, 2018 11:00PM Astrid wrote:

No T. gal, I have not, but hopefully someone here will have info for you.

when do you see your specialist or Doc. next?

2002:IDC, double mast & axilla clearance, chemo. 2003: recurrence left mast.IDC. rads. 2011:reconstruction 2012: recurrence right mast side ILC. rads.

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