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Topic: Painful lump between shoulder and neck and tingly arm now

Forum: Not Diagnosed With a Recurrence or Metastases but Concerned —

Meet others concerned about developing a recurrence or metastases.

Posted on: Nov 7, 2018 08:27AM

wallan wrote:

So... new symptoms.

I have a sore left shoulder area - in between my neck and shoulder is a painful lump. My arm feels heavier and weaker and I get pins and needles in my pinkie and ring finger on that side from time to time.

I am assuming its a muscle knot, or damage from my mastectomy/reconstruction. Its just weird that it shows up now. Of course I am obsessing about it.

On top of this, Arimidex is kicking my butt I think. I don't have joint pain, or hot flashes, but my GI is a mess. Heartburn, bloating, a bit of nausea from time to time and the poops from time to time. I have a great appetite. I am not fatigued. But the GI thing is a real drag. I am taking PPIs for excess acid and it helps but not with the bloating that comes and goes.

So, I guess I need TLC from you guys. Has anyone else had the sore shoulder thing with the tingly arm thing?

wallan

Dx 3/29/2004, IDC, Right, 6cm+, Stage IIIA, Grade 3, 2/18 nodes, ER+/PR+, HER2- Surgery 3/31/2004 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Chemotherapy 6/1/2004 AC + T (Taxol) Radiation Therapy 12/1/2004 Whole-breast: Breast, Lymph nodes, Chest wall Dx 1/25/2017, LCIS/DCIS/ILC/IDC/IDC: Mucinous/IDC: Cribriform, Left, <1cm, Stage IB, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 3/8/2017 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Fat grafting Hormonal Therapy Aromasin (exemestane), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Nov 7, 2018 08:43AM Lexica wrote:

Hi, wallan - sorry you're going through this. I have had a lot of neck and shoulder pain and tingling in my arm on my cancer side that my PT has deemed to be side effects of radiation and the tissues pulling on my ribs causing havoc really, but mostly increased tightness in my neck and shoulder muscles and some pinching of nerves. Occasionally, I'll get a tight muscle 'lump' but I can tell from the location that it is just muscle. Can you see a physical therapist? I still see the lymphadema/PT at my BC center.

Diagnosed at 34. Dx 7/2017, IDC, Left, 6cm+, Stage IIIC, Grade 3, 5/11 nodes, ER+/PR+, HER2- (IHC) Surgery 12/15/2017 Lymph node removal: Sentinel; Mastectomy: Left; Prophylactic mastectomy: Right Radiation Therapy 1/16/2018 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Aromasin (exemestane) Chemotherapy AC + T (Taxol)
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Nov 7, 2018 09:03AM wallycat wrote:

There's a nasty bug going around that causes the exact GI stuff you describe. Seems to last forever. Not sure there's anything to do for it but time. You can try DGL and it soothes and coats the GI; may help with the gas/bloat.

I notice that how I sleep affects my tingly arms/hands. The arimidex could be causing some joint issues in your spine and you're getting a pinched nerve. At least that is what it sounds like.

I'm so sorry you are going through this. I've had the GI stuff (so has DH) and it is no fun. PPIs have a ton of side effects; if you can get yourself on pepcid, it would be better for your overall health. It is also a type of antihistamine, which I know you were having allergy issues so may also help there.

(((((((((((Wallan))))))))


Dx 4/07 1 month before turning 50; ILC 1.8cm, ER+/PR+, HER2 neg., Stage 1, Grade 2, 0/5 nodes. Onco score 20, Bilateral Mast., tamoxifen 3-1/2 years, arimidex-completed 4/20/2012
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Nov 7, 2018 04:21PM wallan wrote:

Thanks Wallycat.

Pepcid is an antihistamine? That may be useful. The hives have calmed down but are not gone altogether. I take Reactine or Claritin every two days or so when they flare up. So the antihistamine helps. And the GP has me on wait list to see allergist now.

I wonder if my GI is due to allergies too. GP says no. Maybe it is a virus my GI issues.

Maybe I do have pinched nerve in neck from the Arimidex.


HUGS back.

wallan

Dx 3/29/2004, IDC, Right, 6cm+, Stage IIIA, Grade 3, 2/18 nodes, ER+/PR+, HER2- Surgery 3/31/2004 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Chemotherapy 6/1/2004 AC + T (Taxol) Radiation Therapy 12/1/2004 Whole-breast: Breast, Lymph nodes, Chest wall Dx 1/25/2017, LCIS/DCIS/ILC/IDC/IDC: Mucinous/IDC: Cribriform, Left, <1cm, Stage IB, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 3/8/2017 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Fat grafting Hormonal Therapy Aromasin (exemestane), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Nov 7, 2018 05:11PM - edited Nov 7, 2018 05:12PM by wallycat

Yes, the pepcid is a type of antihistamine. It also doesn't (typically) cause the rebound heartburn when you try to come off of it and it also doesn't thin bones nor contribute to dementia risk (oh joy!). It is also more immediate and probably cheaper to take.

The DGL can be ordered on line; I've yet to find it at any drugstore on the vitamin shelf.

And yes, depending on what you're allergic to, it could easily contribute to GI distress. And you could also be developing new-to-you allergies...gluten? soy? milk? seafood? Isn't this fun?!! NOT! Just from what I'm reading on line, I'm leaning towards a bug. Still, even the antihistamines you've been put on might cause a delay in allergic response. Never ends, does it. I also know that some people on Zyertec (so why not claritin) get a horrible itch/withdrawl response when they stop the meds, so if you are alternating, that may be just enough to contribute to some unidentified crap.

Try sleeping on a different pillow for a few nights and see if that helps or does something different for you.

Dx 4/07 1 month before turning 50; ILC 1.8cm, ER+/PR+, HER2 neg., Stage 1, Grade 2, 0/5 nodes. Onco score 20, Bilateral Mast., tamoxifen 3-1/2 years, arimidex-completed 4/20/2012
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Nov 7, 2018 05:58PM Falconer wrote:

Hey, Wallan, so sorry you're feeling lousy. I too have similar symptoms in my neck and shoulder. I was finally recommended by my BS to see a cancer rehab specialist after trying everything else. Is there someone like that in your area? I'm in NY and will travel toNJ to see him at the end of this month. ❤️

Strong is the new strong. Dx at 45. Onco 16. Monthly Lupron shots Nov. 2016-December 2017 Dx 7/2016, IDC, Left, 1cm, Stage IB, Grade 2, 0/3 nodes, ER+/PR+, HER2- Dx 7/2016, DCIS, Left, 5cm, Stage 0, Grade 3, 0/3 nodes, ER+/PR+, HER2- Surgery 5/30/2017 Reconstruction (left): DIEP flap Surgery Lymph node removal: Sentinel; Mastectomy: Left Radiation Therapy Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Aromasin (exemestane), Femara (letrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Nov 8, 2018 04:54AM bevin wrote:

I have similar issue though my lump is more near shoulder blade area anout 3 inches down from neck. I get trigger point injections in my shoulder and down the blade every 3 months. This is done by neurologist office. Helps immensely. I believe they use a combo of steroids and pain medication.you might want to check out options like that. Good luck to you.

Age 45, Oncotype 11, Primary Tumor 2.1 cm, smaller satellite tumor nearby Dx 8/8/2010, IDC, 2cm, Stage II, Grade 3, 0/5 nodes, ER+/PR+, HER2- Surgery 8/9/2010 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 10/9/2010 Breast
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Nov 9, 2018 07:11PM KBeee wrote:

I have a lot of numbness in my hand which drives me crazy! I have seen a shoulder specialist too. They seem to think the shoulder pain and numbness are unrelated to each other...they suspect numbness is radiation damage and shoulder pain is an "old" injury. I am guessing all of mine is related to radiation, but hoping you get answers for yours.

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/26/2013 Mastectomy: Left, Right Chemotherapy 9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/23/2014 Reconstruction (left); Reconstruction (right) Surgery 1/29/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Surgery 2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Chemotherapy 3/31/2015 AC + T (Taxol) Radiation Therapy 8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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Nov 10, 2018 11:51AM wallan wrote:

Hey Kbeee:

Funny thing is, I didn't have radiation on this side.

I see GP next week so I will ask. If I but a compression sleeve on it goes away.

Maybe its lymphedema.... I have no swelling though.

wallan


Dx 3/29/2004, IDC, Right, 6cm+, Stage IIIA, Grade 3, 2/18 nodes, ER+/PR+, HER2- Surgery 3/31/2004 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Chemotherapy 6/1/2004 AC + T (Taxol) Radiation Therapy 12/1/2004 Whole-breast: Breast, Lymph nodes, Chest wall Dx 1/25/2017, LCIS/DCIS/ILC/IDC/IDC: Mucinous/IDC: Cribriform, Left, <1cm, Stage IB, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 3/8/2017 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Fat grafting Hormonal Therapy Aromasin (exemestane), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Nov 12, 2018 04:04PM KBeee wrote:

Symptoms like that are so annoying!!!

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/26/2013 Mastectomy: Left, Right Chemotherapy 9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/23/2014 Reconstruction (left); Reconstruction (right) Surgery 1/29/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Surgery 2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Chemotherapy 3/31/2015 AC + T (Taxol) Radiation Therapy 8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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15 hours ago wallan wrote:

I can't believe I am having more symptoms... I think and hope its from the Arimidex side effects.

I have had dry lady parts.. no biggie really, I just treat with Replens. But lately, a turn for a worsening condition has developed.

Not only do I have constant burning pain deep inside, that even Replens irritates, I have bleeding. The thing is, I had a complete hysterectomy and oophorectomy first bout of BC so its not coming from my uterus or cervix. I have no urinary issues.

The bleeding is bright red with a few clots but its not alot. Just enough to worry me now. I will go see my GP tomorrow since this started Friday. It also hurts more if I walk for too long.

As for the tingly arm and lump - the tingly arm is really helped if I put on a compression sleeve. In fact, it clears up. If I wear a compression sleeve for a few days, then take it off, all symptoms gone. The lump has gone down too. Yeah!!

Sigh.... I really really am hoping the symptoms are SE. I can deal with that.

Anyone else experience this?

wallan

Dx 3/29/2004, IDC, Right, 6cm+, Stage IIIA, Grade 3, 2/18 nodes, ER+/PR+, HER2- Surgery 3/31/2004 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Chemotherapy 6/1/2004 AC + T (Taxol) Radiation Therapy 12/1/2004 Whole-breast: Breast, Lymph nodes, Chest wall Dx 1/25/2017, LCIS/DCIS/ILC/IDC/IDC: Mucinous/IDC: Cribriform, Left, <1cm, Stage IB, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 3/8/2017 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Fat grafting Hormonal Therapy Aromasin (exemestane), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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13 hours ago KBeee wrote:

The good news on that compression sleeve symptoms is that they are likely caused by lymphedema and not cancer; my MO always stresses that cancer symptoms do not come and go; they come and stay. I have to repeat that to myself often.


The bleeding is obviously something that needs to be assessed and addressed. Hopefully there's an explanation and easy answer to it. How frustrating to have symptoms like that. Always is so scary! Let us know what the doc says. (((HUGS)))

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/26/2013 Mastectomy: Left, Right Chemotherapy 9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/23/2014 Reconstruction (left); Reconstruction (right) Surgery 1/29/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Surgery 2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Chemotherapy 3/31/2015 AC + T (Taxol) Radiation Therapy 8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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8 hours ago wallycat wrote:

The vagina without hormones becomes very friable and can easily bleed. At some point, moisturizers, no matter how good, may be ineffective and you may need to try vagifem or e-string therapy. Since you have no uterus, I'm assuming they took the cervix too....pain plus the bleeding convinces me it is atrophy that is worsening. I'm so sorry you are dealing with this.


Dx 4/07 1 month before turning 50; ILC 1.8cm, ER+/PR+, HER2 neg., Stage 1, Grade 2, 0/5 nodes. Onco score 20, Bilateral Mast., tamoxifen 3-1/2 years, arimidex-completed 4/20/2012
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7 hours ago wallan wrote:

Hi ladies:

Thank you for your responses.

Wallycat - I have looked up vaginal atrophy as I suspected this. How bad can it get? Do you know?


wallan

Dx 3/29/2004, IDC, Right, 6cm+, Stage IIIA, Grade 3, 2/18 nodes, ER+/PR+, HER2- Surgery 3/31/2004 Lymph node removal: Right, Underarm/Axillary; Mastectomy: Right Chemotherapy 6/1/2004 AC + T (Taxol) Radiation Therapy 12/1/2004 Whole-breast: Breast, Lymph nodes, Chest wall Dx 1/25/2017, LCIS/DCIS/ILC/IDC/IDC: Mucinous/IDC: Cribriform, Left, <1cm, Stage IB, Grade 2, 0/4 nodes, ER+/PR+, HER2- Surgery 3/8/2017 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Fat grafting Hormonal Therapy Aromasin (exemestane), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)

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