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Topic: Very worried about possible bone mets

Forum: Not Diagnosed With a Recurrence or Metastases but Concerned —

Meet others concerned about developing a recurrence or metastases.

Posted on: Nov 27, 2018 06:17AM

Esmerelda wrote:

Dear friends,

I've been lurking for a few weeks, after having been gone from this site for several years, trying to just move beyond this and focus on my girls (Originally diagnosed in 2012 - see more info below).

I'm sitting here this early morning, about to get my girls up for school (4 yo and 10 yo), and then I will be driving two hours for an appointment at Univ of Michigan for a clinic appointment. I feel so sad and hopeless. I just thought it was time for me to write and seek support from you dear people. We moved to a new home (same town) in late September, and in the midst of prepping our home to sell (beginning in August, my husband herniated a disc and was essentially out of the packing, moving, renovating, unpacking game until now - he had surgery three weeks ago. I ended up doing it ALL. And subsequently hurt my back as well. Many times over those long weeks, after putting in a new kitchen floor (!) or carrying too many boxes, etc., I could feel the back pain creep in. Fiinally I started pyhsical therapy at my husband's urging- we can't BOTH be down for the count! I've been in physical therapy now for over a month and I'm not really getting any relief.

I know when I tell that story, it absolutely sounds like a simply injury. Only my symptoms have really changed in the subsequent weeks and seem to be worsening. Earlier I might get a day of relief, but now it's everyday. I currently have a nagging, unending burning sensation in my tailbone. I have tingling in the toes on my left foot, and I have an occasional sharp twinge in my mid back vertebrae. I also feel a sensation in my sternum (not pain, really, just discomfort?), and an occasional burning sensation in the upper verterbrae, neck area. Oddly, when I sleep, all of these symptoms go away. I wake up with no pain/discomfort, but as soon as I get up they start in again and are there all day long, often worse by the end of the day. (Or maybe I'm just tired of it all by the end of the day.) Oh, and most recently - no pooping these last three days.

My crazy-worried thoughts tell myself this: I had bone mets all along - and the intense physicality of single-handedly moving our family just broke what what already weakened by bone mets, They were there - with no symptomology - and I overdid it and now vertebrae, coccyx, sacrum (?), are fractured, etc.

Is that a possibility? Can anyone offer me any wisdom or perspective? I don't have any scans scheduled yet. My onco wanted me to start with my PCP and an MRI, because they thought from my story it was injury induced. Well now these injuries don't feel the same - they feel ominous. (Burning tailbone and the rest???). I asked to see my onco first and today is the day. I am terrified. I don't know how to live with this. I don't know how to not live without feeling in utter despair from my girls losing their mother. I don't know that I can do this. Any help is welcomed and so appreciated. Thank you, thank you, thank you. (Currently sobbing at the keyboard.) <3

(Edited to add: since I'm seeing Oncologist today - what do you recommend I say or ask for??)

Jen Dx 3/29/2012, IDC, 2cm, Stage I, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 5/30/2012 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy 7/9/2012
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Dec 6, 2018 10:57AM vlnrph wrote:

From someone with a recent metastatic diagnosis, as you requested: yes, the unknown/waiting for results is harder than having a plan and being able to take action. Even in the worst case scenario, there is no reason to think that you're on your way out of this world anytime soon. My doctor gave me a time line of years, not months.

We have so many good therapies now, it's actually like treating a chronic disease. Lots of us continue our lives with minimal discomfort. It does take a while to cope with the shock and start to adjust to the reality but it is possible. I endured more than one PT session in tears, more from mental distress than pain.

With preteen girls, you are probably pretty young yourself - I wonder whether genetic counseling was ever suggested for you. The presence of a mutation could help determine future options, for instance PARP inhibitors are useful when a BRCA defect exists. Otherwise, the advice to create distractions is a good way to survive!

IDC too! 🎻💊👪🐩 🇫🇮 Rt MX+DIEP 4-2011; ALND 5-2011 d/t micromets; TC X 4; tamoxifen; lymphedema 9-2011; switch to letrozole 3-2014 for 1 yr; bone mets 8-2018: Zometa, rads to spine, Faslodex/Versenio Dx 3/7/2011, ILC, 2cm, Stage IIA, Grade 2, 1/25 nodes, ER+/PR+, HER2-
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Dec 6, 2018 11:02AM InnaB2018 wrote:

Esmeralda, 3 years ago I was happily dancing in Zumba class and made a wrong move somehow. Pain immediately shot down my legs and didn’t get better for 2 months. I took painkillers, went to acupuncture, etc. Nothing helped. An MRI showed a ruptured disk in my lower back that was pressing on my sciatica nerve. I had to have an emergency surgery to correct it and am now 95% pain free.

The point of this story is: not every condition is cancer, but it doesn’t mean it’s less serious just because it’s not cancer. See a good orthopedic surgeon, take a good care of your back. The longer your nerve is inflamed, the worse are the chances for it to completely recover.

As I am writing this, I recalled that I thought that was the worst year of my life. Little did I know what was waiting for me down the road...

Dx 3/26/2018, IDC, Right, 3cm, Stage IIA, Grade 3, 1/18 nodes, ER+/PR+, HER2- Surgery 4/24/2018 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 6/1/2018 AC + T (Taxol) Radiation Therapy 10/7/2018 3DCRT: Breast, Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
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Dec 6, 2018 02:01PM MeToo14 wrote:

Hi Esmeralda, I'm so sorry you are having to go through this. I too am dealing with the same thing. I hope you have an answer soon. I hope your pain goes away soon.

35 when diagnosed. I had isolated tumor cells in my nodes and was told I am considered node negative, I do not. Dx 7/2014, IDC, 5cm, Stage IIIA, Grade 2, 2/3 nodes, ER+, HER2- Chemotherapy 7/14/2014 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 11/25/2014 Lumpectomy: Right; Lymph node removal: Right, Sentinel Surgery 12/26/2014 Lumpectomy: Right Chemotherapy 1/2/2015 Carboplatin (Paraplatin) Radiation Therapy 4/27/2015 Hormonal Therapy 7/19/2015 Aromasin (exemestane), Zoladex (goserelin)
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Dec 6, 2018 08:39PM bevin wrote:

esmeralda, I am so happy that you're having the tests. Praying all turns out well.

Hugs

Bevin

Age 45, Oncotype 11, Primary Tumor 2.1 cm, smaller satellite tumor nearby Dx 8/8/2010, IDC, 2cm, Stage II, Grade 3, 0/5 nodes, ER+/PR+, HER2- Surgery 8/10/2010 Lumpectomy: Right; Lymph node removal: Right, Sentinel Radiation Therapy 10/10/2010 Breast
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Dec 11, 2018 05:59PM Egads007 wrote:

Esmerelda....Hoping your imaging went well. Any news yet? Thoughts are with you!


"I base all my fashion choices on what doesn't itch" (Gilda Radner) Chemotherapy 3/20/2013 Doxil (doxorubicin), Taxol (paclitaxel) Surgery 8/23/2013 Lumpectomy: Right; Lymph node removal: Right Radiation Therapy 11/1/2013 Whole-breast: Breast, Lymph nodes Dx IDC, 4cm, Stage IIB, Grade 3, 0/2 nodes, ER+/PR-, HER2- Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Dec 11, 2018 07:05PM Esmerelda wrote:

Thank you so much for remembering, Egads007. I had to reschedule them to this Thursday night for the MRI, and early Friday morning for the bone scan - because my 4 year old came down with a fever and awful cold! So, I am struggling through the week in anxious waiting. Some days are ok, while others are awful and I’m holding back tears (my ability to be “ok” seems to be heavily influenced by whether the pain is present or acute or not.) Thank you so much for for your support.

Jen Dx 3/29/2012, IDC, 2cm, Stage I, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 5/30/2012 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy 7/9/2012
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Dec 12, 2018 03:04AM grainne wrote:

That is such bad luck! I hope your little one is ok now. What a desperately stressful time for you. Hang in there, girl......we are all behind you.

Just post if you feel overwhelmed....someone will reply. X

grainne Dx 2/1/2016, DCIS/IDC: Tubular, Left, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Hormonal Therapy 4/15/2016 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Dec 12, 2018 03:52PM Esmerelda wrote:

grainne - thank you so much for the encouragement! My girl is doing much better and will go to school tomorrow. It’s been tough dealing with my worries and being on 24 hour childcare duty this whole week. Not a lot of self care happening unfortunately. But a bunch of girlfriends who know I am struggling are coming over tonight. Tomorrow and Friday are the scans. Thank you for caring! It helps so very much.

Jen Dx 3/29/2012, IDC, 2cm, Stage I, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 5/30/2012 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy 7/9/2012
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Dec 13, 2018 06:13PM grainne wrote:

Thinking of you today and tomorrow. X

grainne Dx 2/1/2016, DCIS/IDC: Tubular, Left, 1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Hormonal Therapy 4/15/2016 Arimidex (anastrozole), Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Dec 13, 2018 06:34PM Esmerelda wrote:

Thank you, Grianne - just arriving at hospital now for the MRI. Bone scan tomorrow at 10am. Grateful for everyone here!

Jen Dx 3/29/2012, IDC, 2cm, Stage I, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 5/30/2012 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy 7/9/2012
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Dec 13, 2018 07:30PM Novagirl wrote:

Esmeralda,

Ask for a CD of your bone scan. It’s easy to read on your own. The results are instant. I got results from the MRI and bone scan same day within hours. I have to wait 48 hours for my CT scan results.

Waiting is hell. Wishing you good resukts

First diagnosed at age 31 when my son was a year old. Xgeva, Ibrance, Femara 12/2018 Dx 5/30/2013, IDC, Left, 2cm, Stage IIB, Grade 3, 2/12 nodes, ER+/PR+, HER2- (FISH) Surgery 6/27/2013 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 8/30/2013 Herceptin (trastuzumab) Chemotherapy 8/30/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 1/28/2014 Breast, Lymph nodes Hormonal Therapy 3/30/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 6/20/2014 Fareston (toremifene) Dx 12/7/2018, IDC, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Targeted Therapy 12/22/2018 Ibrance (palbociclib) Hormonal Therapy 12/22/2018 Femara (letrozole), Zoladex (goserelin)
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Dec 14, 2018 05:30AM Esmerelda wrote:

Thank you, Novagirl! I definitely would not have thought of that! I will do that. Waiting IS hell. (Though I might have to screw up some courage to actuallylook at the bone scan myself. Fighting a ridiculous amount of fear these days.) You have been on my mind - I hope you are doing ok and are on your way to having a great plan in place. Wishing us all peace, peace, peace.

Jen Dx 3/29/2012, IDC, 2cm, Stage I, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 5/30/2012 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy 7/9/2012
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Dec 14, 2018 07:09AM Novagirl wrote:

Yes, this is all pretty scary, I know how you feel. Thank you for thinking about me. I’m just taking it one day at a time. I haven’t received my CT scan results back yet. I have a CT bone guided biopsy next week to to if it’s still horomone positive. My MO gave me zolodex to shit downy ovaries and xgeva shot for my bones. He thinks my treatment will be AI meds and radiation. Hopefully, that will knock this out. Stay strong! Thinking of uou

First diagnosed at age 31 when my son was a year old. Xgeva, Ibrance, Femara 12/2018 Dx 5/30/2013, IDC, Left, 2cm, Stage IIB, Grade 3, 2/12 nodes, ER+/PR+, HER2- (FISH) Surgery 6/27/2013 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 8/30/2013 Herceptin (trastuzumab) Chemotherapy 8/30/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 1/28/2014 Breast, Lymph nodes Hormonal Therapy 3/30/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 6/20/2014 Fareston (toremifene) Dx 12/7/2018, IDC, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Targeted Therapy 12/22/2018 Ibrance (palbociclib) Hormonal Therapy 12/22/2018 Femara (letrozole), Zoladex (goserelin)
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Dec 14, 2018 10:08AM Esmerelda wrote:

All, I am so scared. I can’t stop crying. I was able to watch part of the bone scan as it was happening on a screen to my right, from about mid-spine down to toes, and I saw significant uptake (if that’s the right term) in my tailbone. Very, very bright white compared to everything else. I am feeling devastated. Is there any hope? Could there be any other explanation? I should have never have looked over at that scan... I am so, so scared. I don’t know how to get through this. How do you get through this???? And it’s christmas. And my sweet girls, who are only age 4 and 10... How do I get thorough this? Please help me....

Jen Dx 3/29/2012, IDC, 2cm, Stage I, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 5/30/2012 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy 7/9/2012
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Dec 14, 2018 10:14AM pupmom wrote:

Esmerelda, you do NOT know what that means! It could be an injury. Please don't jump the gun before talking with your doctor! (((HUGS)))

Life is what happens while we're making other plans. Dx 10/18/2011, IDC, Right, 1cm, Stage IIA, Grade 1, 2/21 nodes, ER+/PR+, HER2-
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Dec 14, 2018 10:19AM - edited Dec 14, 2018 10:20AM by MeToo14

Esmeralda, I'm si sorry you are scared. Like pupmom said, you don't know. You saw from the side, it could just be totally normal. Your bladder us right there and that lights up and could be what you are seeing. Hugs

35 when diagnosed. I had isolated tumor cells in my nodes and was told I am considered node negative, I do not. Dx 7/2014, IDC, 5cm, Stage IIIA, Grade 2, 2/3 nodes, ER+, HER2- Chemotherapy 7/14/2014 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 11/25/2014 Lumpectomy: Right; Lymph node removal: Right, Sentinel Surgery 12/26/2014 Lumpectomy: Right Chemotherapy 1/2/2015 Carboplatin (Paraplatin) Radiation Therapy 4/27/2015 Hormonal Therapy 7/19/2015 Aromasin (exemestane), Zoladex (goserelin)
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Dec 14, 2018 11:07AM Novagirl wrote:

Esmeralda, I know this is so scary. I wouldn’t worry, I looked over at the screen too but I don’t think the study is complete until the scan is over. Does that makes sense? Hang in thte

First diagnosed at age 31 when my son was a year old. Xgeva, Ibrance, Femara 12/2018 Dx 5/30/2013, IDC, Left, 2cm, Stage IIB, Grade 3, 2/12 nodes, ER+/PR+, HER2- (FISH) Surgery 6/27/2013 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 8/30/2013 Herceptin (trastuzumab) Chemotherapy 8/30/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 1/28/2014 Breast, Lymph nodes Hormonal Therapy 3/30/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 6/20/2014 Fareston (toremifene) Dx 12/7/2018, IDC, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Targeted Therapy 12/22/2018 Ibrance (palbociclib) Hormonal Therapy 12/22/2018 Femara (letrozole), Zoladex (goserelin)
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Dec 14, 2018 11:25AM Esmerelda wrote:

Thank you so much for responding, Pupmom and Metoo14. What's so hard is that that damn uptake spot corrresponds with my pain in my tailbone. And it just screamed at me: cancer! Cancer! Metoo14, you are right it could have been my bladder maybe???... I looked online at other bladder images on bone scan - large, centered in the pelvis - and so maybe that was what I saw. But my pain! My pain completely drives my fear and thinking. I HATE THIS.

They told me the scan could last anywhere from 30 min to over an hour. Well, mine lasted a little less than 30, and at the end, the technician came in the room and said we were done and she just needed to see if the doctors wanted any further pictures. She returned two minutes later to say they didn’t and we were good. And that was it. So... I realize I am living in CRAZYTOWN right now, but maybe the fact that the scan was shorter than it could have been and they didn’t need any further pictures is a good sign???? I am trying to take some good cues from anything! (Oh my god, I am feeling so crazy. Thank you, sisters, for helping me through this.

Jen Dx 3/29/2012, IDC, 2cm, Stage I, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 5/30/2012 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy 7/9/2012
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Dec 14, 2018 11:35AM Esmerelda wrote:

Thank you, novagirl, you are such a comfort. Thank you! I went ahead and got a CD of both scans, per your advice - thank you for suggesting it! None of our computers at home have disc drives anymore, but st least I have the discs myself for if/when. Grateful to you.

Jen Dx 3/29/2012, IDC, 2cm, Stage I, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 5/30/2012 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy 7/9/2012
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Dec 14, 2018 11:47AM pupmom wrote:

Your pain could be from a lot of things besides cancer, and they would all show up on imaging. I had stuff show up on CTs and bone scans. All turned out to be nothing. Did they tell you when you'll get results?

Life is what happens while we're making other plans. Dx 10/18/2011, IDC, Right, 1cm, Stage IIA, Grade 1, 2/21 nodes, ER+/PR+, HER2-
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Dec 14, 2018 12:08PM Esmerelda wrote:

Thank you, pupmom. They said 24-72 hours.... sigh.

Jen Dx 3/29/2012, IDC, 2cm, Stage I, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 5/30/2012 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy 7/9/2012
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Dec 14, 2018 12:25PM pupmom wrote:

It will be over before you know it! Hug

Life is what happens while we're making other plans. Dx 10/18/2011, IDC, Right, 1cm, Stage IIA, Grade 1, 2/21 nodes, ER+/PR+, HER2-
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Dec 14, 2018 01:03PM Esmerelda wrote:

Just got bone scan results - negative for metastic disease!!!!! Trying to let this sink in. Still waiting on MRI results...

Jen Dx 3/29/2012, IDC, 2cm, Stage I, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 5/30/2012 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy 7/9/2012
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Dec 14, 2018 01:16PM pupmom wrote:

YAAAAY! (Dare I say I told you so, lol) Winking

Life is what happens while we're making other plans. Dx 10/18/2011, IDC, Right, 1cm, Stage IIA, Grade 1, 2/21 nodes, ER+/PR+, HER2-
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Dec 14, 2018 01:17PM MeToo14 wrote:

That is wonderful!!!!!

35 when diagnosed. I had isolated tumor cells in my nodes and was told I am considered node negative, I do not. Dx 7/2014, IDC, 5cm, Stage IIIA, Grade 2, 2/3 nodes, ER+, HER2- Chemotherapy 7/14/2014 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 11/25/2014 Lumpectomy: Right; Lymph node removal: Right, Sentinel Surgery 12/26/2014 Lumpectomy: Right Chemotherapy 1/2/2015 Carboplatin (Paraplatin) Radiation Therapy 4/27/2015 Hormonal Therapy 7/19/2015 Aromasin (exemestane), Zoladex (goserelin)
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Dec 14, 2018 01:58PM KBeee wrote:

Great news!

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/26/2013 Mastectomy: Left, Right Chemotherapy 9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/23/2014 Reconstruction (left); Reconstruction (right) Surgery 1/29/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Surgery 2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Chemotherapy 3/31/2015 AC + T (Taxol) Radiation Therapy 8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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Dec 14, 2018 02:04PM Esmerelda wrote:

Thank you, pupmom, Metoo and Kbeee!!! After thinking “cancer” for weeks, I have a lot of “undoing” to do in my mind and with my thoughts... holy cow.

Metoo, you are in my mind and on my heart, we are with you. And Novagirl, thank you for reaching out and offering support. The women on this forum never cease to amaze and inspire me. I am so grateful!

Jen Dx 3/29/2012, IDC, 2cm, Stage I, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 5/30/2012 Mastectomy: Right; Prophylactic mastectomy: Left; Reconstruction (left): DIEP flap; Reconstruction (right): DIEP flap Hormonal Therapy 7/9/2012
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Dec 14, 2018 03:14PM Novagirl wrote:

yay Esmeralda! I’m so happy! Your MRI results will most likely be good too

First diagnosed at age 31 when my son was a year old. Xgeva, Ibrance, Femara 12/2018 Dx 5/30/2013, IDC, Left, 2cm, Stage IIB, Grade 3, 2/12 nodes, ER+/PR+, HER2- (FISH) Surgery 6/27/2013 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Targeted Therapy 8/30/2013 Herceptin (trastuzumab) Chemotherapy 8/30/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 1/28/2014 Breast, Lymph nodes Hormonal Therapy 3/30/2014 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Hormonal Therapy 6/20/2014 Fareston (toremifene) Dx 12/7/2018, IDC, Stage IV, metastasized to bone/lungs, ER+/PR+, HER2- Targeted Therapy 12/22/2018 Ibrance (palbociclib) Hormonal Therapy 12/22/2018 Femara (letrozole), Zoladex (goserelin)
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Dec 14, 2018 05:13PM InnaB2018 wrote:

Congrats, Esmeralda! Now you have to see an orthopedic surgeon to get rid of your tailbone pain.

Dx 3/26/2018, IDC, Right, 3cm, Stage IIA, Grade 3, 1/18 nodes, ER+/PR+, HER2- Surgery 4/24/2018 Lymph node removal: Right, Sentinel, Underarm/Axillary; Mastectomy: Left, Right; Prophylactic mastectomy: Left; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 6/1/2018 AC + T (Taxol) Radiation Therapy 10/7/2018 3DCRT: Breast, Lymph nodes, Chest wall Hormonal Therapy Arimidex (anastrozole)
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Dec 15, 2018 09:26AM anotherNYCGirl wrote:

WONDERFUL WONDERFUL NEWS, JEN!!!

We've all been in your shoes and completely understand how you were/are feeling. Now BREATHE and enjoy your family, - and the holidays!!

I hope you find a way to alleviate the pain, - and I bet that this relief will ease some of it!

Hugs from NYC!!

Dx 1998, DCIS, Stage 0 Surgery 3/18/1998 Lumpectomy: Left Dx 6/2000, ILC, Stage IA, 0/3 nodes, ER+/PR+, HER2- Surgery 7/11/2000 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 8/1/2000 CMF Hormonal Therapy 2/11/2001 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Radiation Therapy 2/12/2001 Breast Hormonal Therapy 2/12/2006 Femara (letrozole) Dx 2/2014, ILC, Grade 3, 0/3 nodes, ER-/PR-, HER2- Surgery 3/25/2014 Lymph node removal: Left, Right; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Chemotherapy 5/2/2014 AC + T (Taxol) Surgery 11/20/2014 Reconstruction (left); Reconstruction (right) Surgery 1/14/2015 Reconstruction (right): Tissue expander placement Surgery 5/28/2015 Reconstruction (right): Latissimus dorsi flap, Silicone implant Surgery 2/22/2016 Reconstruction (left): Fat grafting, Nipple reconstruction; Reconstruction (right): Fat grafting, Nipple reconstruction

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