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Topic: Single spot on BS/MRI - any experience with this not being mets?

Forum: Not Diagnosed With a Recurrence or Metastases but Concerned —

Meet others concerned about developing a recurrence or metastases.

Posted on: Jan 1, 2019 03:23PM

Jsniffs wrote:

I'm almost 3 years from my original diagnosis and have felt great (no pain). Recently, an elevated alkaline phosphatase value triggered a bone scan which found a single vertebral hot spot. A follow-up MRI showed a spot highly suspicious for metastasis. I'm currently in waiting mode for biopsy / next steps. Has anyone been in this position where it turned out not to be mets? Any other thoughts / suggestions? Thanks!

Original dx at 36 while pregnant. My daughter and family give me hope. You never know what you can get through until you have to. Dx 1/2016, IDC, Right, Stage IIIA, 7/39 nodes, ER+/PR+, HER2- (IHC) Dx 12/2018, IDC, Stage IV, metastasized to bone, ER+/PR-, HER2-
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Jan 2, 2019 09:57AM KBeee wrote:

A friend had bone scan light up for rheumatic arthritis, but I do not believe she had follow up MRI.

Thinking of you and hoping for a benign cause. Keep us posted.

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/26/2013 Mastectomy: Left, Right Chemotherapy 9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/23/2014 Reconstruction (left); Reconstruction (right) Surgery 1/29/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Surgery 2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Chemotherapy 3/31/2015 AC + T (Taxol) Radiation Therapy 8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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Feb 10, 2019 04:17PM Jsniffs wrote:

Thanks KBeee for your response and support. Unfortunately, a biopsy determined it is mets. Luckily it is only a single spot currently. I am optimistic about treatment.

Original dx at 36 while pregnant. My daughter and family give me hope. You never know what you can get through until you have to. Dx 1/2016, IDC, Right, Stage IIIA, 7/39 nodes, ER+/PR+, HER2- (IHC) Dx 12/2018, IDC, Stage IV, metastasized to bone, ER+/PR-, HER2-
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Feb 11, 2019 12:38AM Mamasha wrote:

jsniffs I don’t know what to say so please let me send a virtual hug.

Dx 12/2016, IDC, Right, <1cm, 0/3 nodes, ER+/PR+, HER2- Surgery 1/4/2017 Lumpectomy: Right Radiation Therapy 2/6/2017
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Feb 11, 2019 08:24AM Jsniffs wrote:

Thank you so much Mamasha.

Original dx at 36 while pregnant. My daughter and family give me hope. You never know what you can get through until you have to. Dx 1/2016, IDC, Right, Stage IIIA, 7/39 nodes, ER+/PR+, HER2- (IHC) Dx 12/2018, IDC, Stage IV, metastasized to bone, ER+/PR-, HER2-
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Feb 11, 2019 10:51AM KBeee wrote:

Sorry you're dealing with that. Hoping it stays stable, or disappears, for years and years, and years.

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/26/2013 Mastectomy: Left, Right Chemotherapy 9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/23/2014 Reconstruction (left); Reconstruction (right) Surgery 1/29/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Surgery 2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Chemotherapy 3/31/2015 AC + T (Taxol) Radiation Therapy 8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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Feb 11, 2019 04:58PM pesky904 wrote:

Jsniffs, I'm so sorry to hear this news. Can I ask what your ALP level was when they sent you for the bone scan? Mine is also elevated and keeps rising for seemingly no reason.

​dx 6/17 stage III TNBC 6cm tumor Taxol 7-8/17 tumor grew to 10cm AC 9-10/17 tumor shrunk to 3cm DMX 11/17 expanders placed Rads 33 doses + cisplatin 1/18 Cisplatin discontinued due to SEs Xeloda 4-10/2018 Exch surgery 11/18
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Feb 12, 2019 08:57AM Jsniffs wrote:

pesky904, my ALP was 147 when my doctor wanted me to do the bone scan. It got as high as 165. It can be elevated for other reasons. I will hope for the best for you.

Original dx at 36 while pregnant. My daughter and family give me hope. You never know what you can get through until you have to. Dx 1/2016, IDC, Right, Stage IIIA, 7/39 nodes, ER+/PR+, HER2- (IHC) Dx 12/2018, IDC, Stage IV, metastasized to bone, ER+/PR-, HER2-
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Feb 14, 2019 10:06AM - edited Feb 14, 2019 10:08AM by pesky904

Thanks, Jsniffs. My ALP was normal at diagnosis and all through Taxol and AC. After my bmx, it skyrocketed to 377, then immediately started coming back down. It continued to go down all through rads/cisplatin and was back in normal range at the end of rads.

I started Xeloda 1.5 months after rads ended and ALP remained in normal range for first few cycles. It started to climb a tiny bit towards the end of Xeloda.

Since finishing Xeloda in late October, it has steadily climbed each time I get it tested. Last blood work was a month ago and it was 171. No idea why. I don't even take Tylenol because I know that can affect it.

I had a bone scan yesterday. I'm not overly worried, but hearing that your ALP was 165 was surprising. I thought with bone mets, it would be much higher, which is why I haven't really worried about my result of 171.

​dx 6/17 stage III TNBC 6cm tumor Taxol 7-8/17 tumor grew to 10cm AC 9-10/17 tumor shrunk to 3cm DMX 11/17 expanders placed Rads 33 doses + cisplatin 1/18 Cisplatin discontinued due to SEs Xeloda 4-10/2018 Exch surgery 11/18
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Feb 16, 2019 04:19PM Jsniffs wrote:

pesky904 - How did your bone scan go? I'm hoping for the best for you.

Original dx at 36 while pregnant. My daughter and family give me hope. You never know what you can get through until you have to. Dx 1/2016, IDC, Right, Stage IIIA, 7/39 nodes, ER+/PR+, HER2- (IHC) Dx 12/2018, IDC, Stage IV, metastasized to bone, ER+/PR-, HER2-
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Feb 27, 2019 10:21AM - edited Feb 27, 2019 10:22AM by svidaurre

Hi Jsniffs,

I hope this post finds you are doing well? This is my first time entering a breast cancer blog. If that's even the correct terminology? I finally completed my breast cancer reconstruction in November of 2018. At my first follow up appointment with my primary care MD he noted my ALP was 140's., all through chemo and radiation it never was above 102. Were your Calcium levels normal? Trying to not be to concerned, but chemo did a number on my liver (Fatty Liver) , although my LFT's were normal except for ALP? Take good care, and I'll be thinking about you,

Susan

December 2015, Stage III Ductal Carsinoma, chemo/radiation/surgeries

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Feb 27, 2019 11:24AM - edited Feb 27, 2019 11:26AM by pesky904

Hi JSniffs, I'm just seeing your post now. It's been crazy since my mom unexpectedly died at the end of January and my father unexpectedly died last week.

My bone scan showed an area of enhancement on the right proximal femur. I have an MRI scheduled for Monday. They don't seem very concerned at all about this solitary spot being a met. They said a single spot is "rarely metastasis." Unfortunately, you know all too well that it can be.

svidaurre, my ALP is also my only abnormal blood test. It's been steadily rising since I finished treatment in late October. Normal range is 46-136. My last blood work in January was 171. So it's not super elevated but it keeps rising a little each time it's tested. So far they think it's just elevated due to all the chemo I had. We'll see how my MRI turns out next week and if there is any correlation between the elevated ALP and the spot on my femur.

​dx 6/17 stage III TNBC 6cm tumor Taxol 7-8/17 tumor grew to 10cm AC 9-10/17 tumor shrunk to 3cm DMX 11/17 expanders placed Rads 33 doses + cisplatin 1/18 Cisplatin discontinued due to SEs Xeloda 4-10/2018 Exch surgery 11/18
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Feb 27, 2019 03:15PM swg wrote:

Sounds like you caught it early. I am wishing for the best for you!!

Dx 9/11/17. IDC grade 2, stage 1. 1.2cm. in right breast. ER+/PR+, HER2- 2nd tumor in right breast found 10/22/17. Dx 9/11/2017, IDC, Right, 1cm, Stage IA, Grade 2, 0/3 nodes, ER+/PR+, HER2- (IHC) Dx 10/23/2017, DCIS/IDC, Right, <1cm, Stage IA, Grade 1, 0/3 nodes, ER+/PR+, HER2- Surgery 11/27/2017 Mastectomy; Reconstruction (right): Tissue expander placement
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Mar 1, 2019 04:25PM svidaurre wrote:

Hi Pesky904,

I hope everything goes well with your MRI! I stopped listening to statistics when I first got diagnosed I told my husband 30% of all women that get mammograms need a diagnostic mammogram,

then I got the call and told my husband don't worry only 20% of those 30% need a biopsy, then I got the call, then I told him don't worry only 2% of all women that get biopsies have Cancer! Then we got the call lol, so I am trying to stay away from that this time!

Take care, Susan

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Mar 1, 2019 04:33PM pesky904 wrote:

Thanks for the pep talks, guys! Svidaurre, LOL, in this case I actually want to believe the stats because I think the statistics say a solitary spot on a bone scan has a low percent chance of being a met.

As JSniffs knows, a solitary spot can be a met though, so I am looking forward to getting it checked. Unfortunately, my MRI has been moved from Monday all the way out to March 13 due to a referral issue. Ugh.

​dx 6/17 stage III TNBC 6cm tumor Taxol 7-8/17 tumor grew to 10cm AC 9-10/17 tumor shrunk to 3cm DMX 11/17 expanders placed Rads 33 doses + cisplatin 1/18 Cisplatin discontinued due to SEs Xeloda 4-10/2018 Exch surgery 11/18
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Mar 1, 2019 05:50PM vlnrph wrote:

Pesky, both your mother and father passed away this year, less than a month apart? I hope you have siblings and friendsto lean on especially now since you have to wait another two weeks for your MRI! Please do something nice for yourself this weekend. You deserve it.

Susan, there may be a typo in your second paragraph. I think the estimate is that 20% of biopsies turn out to be cancer (80% are benign). Still, when one falls into the minority category, then for them it becomes 100%...

IDC too! 🎻💊👪🐩 🇫🇮 Rt MX+DIEP 4-2011; ALND 5-2011 d/t micromets; TC X 4; tamoxifen; lymphedema 9-2011; switch to letrozole 3-2014 for 1 yr; bone mets 8-2018: Zometa, rads to spine, Faslodex/Versenio Dx 3/7/2011, ILC, 2cm, Stage IIA, Grade 2, 1/25 nodes, ER+/PR+, HER2-
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Mar 1, 2019 06:03PM pesky904 wrote:

Yes, both my parents died suddenly in the last 3 weeks. It’s been an extremely rough start to 2019. I have to move this week because the relative I’ve been living with wants their “privacy” back so I have to move into someone’s basement for no. (I’m married but my husband left before I got diagnosed and completely disappeared after I got diagnosed.) I’m praying this mri is fine so I can find a job and start rebuilding my life from scratch.


​dx 6/17 stage III TNBC 6cm tumor Taxol 7-8/17 tumor grew to 10cm AC 9-10/17 tumor shrunk to 3cm DMX 11/17 expanders placed Rads 33 doses + cisplatin 1/18 Cisplatin discontinued due to SEs Xeloda 4-10/2018 Exch surgery 11/18

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