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Topic: Single spot on BS/MRI - any experience with this not being mets?

Forum: Not Diagnosed With a Recurrence or Metastases but Concerned —

Meet others concerned about developing a recurrence or metastases.

Posted on: Jan 1, 2019 09:23AM

Jsniffs wrote:

I'm almost 3 years from my original diagnosis and have felt great (no pain). Recently, an elevated alkaline phosphatase value triggered a bone scan which found a single vertebral hot spot. A follow-up MRI showed a spot highly suspicious for metastasis. I'm currently in waiting mode for biopsy / next steps. Has anyone been in this position where it turned out not to be mets? Any other thoughts / suggestions? Thanks!

Dx 1/2016, IDC, Right, Stage IIIA, 7/39 nodes, ER+/PR+, HER2- (IHC) Dx 12/2018, IDC, Stage IV, metastasized to bone, ER+/PR-, HER2-
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Jan 2, 2019 03:57AM KBeee wrote:

A friend had bone scan light up for rheumatic arthritis, but I do not believe she had follow up MRI.

Thinking of you and hoping for a benign cause. Keep us posted.

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/26/2013 Mastectomy: Left, Right Chemotherapy 9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/23/2014 Reconstruction (left); Reconstruction (right) Surgery 1/29/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Surgery 2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Chemotherapy 3/31/2015 AC + T (Taxol) Radiation Therapy 8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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Feb 10, 2019 10:17AM Jsniffs wrote:

Thanks KBeee for your response and support. Unfortunately, a biopsy determined it is mets. Luckily it is only a single spot currently. I am optimistic about treatment.

Dx 1/2016, IDC, Right, Stage IIIA, 7/39 nodes, ER+/PR+, HER2- (IHC) Dx 12/2018, IDC, Stage IV, metastasized to bone, ER+/PR-, HER2-
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Feb 10, 2019 06:38PM Mamasha wrote:

jsniffs I don’t know what to say so please let me send a virtual hug.

Dx 12/2016, IDC, Right, <1cm, 0/3 nodes, ER+/PR+, HER2- Surgery 1/3/2017 Lumpectomy: Right Radiation Therapy 2/5/2017
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Feb 11, 2019 02:24AM Jsniffs wrote:

Thank you so much Mamasha.

Dx 1/2016, IDC, Right, Stage IIIA, 7/39 nodes, ER+/PR+, HER2- (IHC) Dx 12/2018, IDC, Stage IV, metastasized to bone, ER+/PR-, HER2-
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Feb 11, 2019 04:51AM KBeee wrote:

Sorry you're dealing with that. Hoping it stays stable, or disappears, for years and years, and years.

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/26/2013 Mastectomy: Left, Right Chemotherapy 9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/23/2014 Reconstruction (left); Reconstruction (right) Surgery 1/29/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Surgery 2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Chemotherapy 3/31/2015 AC + T (Taxol) Radiation Therapy 8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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Feb 11, 2019 10:58AM pesky904 wrote:

Jsniffs, I'm so sorry to hear this news. Can I ask what your ALP level was when they sent you for the bone scan? Mine is also elevated and keeps rising for seemingly no reason.

​dx 6/17 stage III TNBC 6cm tumor Taxol 7-8/17 tumor grew to 10cm AC 9-10/17 tumor shrunk to 3cm DMX 11/17 expanders placed Rads 33 doses + cisplatin 1/18 Cisplatin discontinued due to SEs Xeloda 4-10/2018 Exch surgery 11/18
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Feb 12, 2019 02:57AM Jsniffs wrote:

pesky904, my ALP was 147 when my doctor wanted me to do the bone scan. It got as high as 165. It can be elevated for other reasons. I will hope for the best for you.

Dx 1/2016, IDC, Right, Stage IIIA, 7/39 nodes, ER+/PR+, HER2- (IHC) Dx 12/2018, IDC, Stage IV, metastasized to bone, ER+/PR-, HER2-
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Feb 14, 2019 04:06AM - edited Feb 14, 2019 04:08AM by pesky904

Thanks, Jsniffs. My ALP was normal at diagnosis and all through Taxol and AC. After my bmx, it skyrocketed to 377, then immediately started coming back down. It continued to go down all through rads/cisplatin and was back in normal range at the end of rads.

I started Xeloda 1.5 months after rads ended and ALP remained in normal range for first few cycles. It started to climb a tiny bit towards the end of Xeloda.

Since finishing Xeloda in late October, it has steadily climbed each time I get it tested. Last blood work was a month ago and it was 171. No idea why. I don't even take Tylenol because I know that can affect it.

I had a bone scan yesterday. I'm not overly worried, but hearing that your ALP was 165 was surprising. I thought with bone mets, it would be much higher, which is why I haven't really worried about my result of 171.

​dx 6/17 stage III TNBC 6cm tumor Taxol 7-8/17 tumor grew to 10cm AC 9-10/17 tumor shrunk to 3cm DMX 11/17 expanders placed Rads 33 doses + cisplatin 1/18 Cisplatin discontinued due to SEs Xeloda 4-10/2018 Exch surgery 11/18
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58 minutes ago Jsniffs wrote:

pesky904 - How did your bone scan go? I'm hoping for the best for you.

Dx 1/2016, IDC, Right, Stage IIIA, 7/39 nodes, ER+/PR+, HER2- (IHC) Dx 12/2018, IDC, Stage IV, metastasized to bone, ER+/PR-, HER2-

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