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Topic: So worried- Bone Scan

Forum: Not Diagnosed With a Recurrence or Metastases but Concerned —

Meet others concerned about developing a recurrence or metastases.

Posted on: Jul 12, 2019 08:13AM

2019whatayear wrote:

I had a CT on Tuesday and that came back OK and then I had a bone scan yesterday - These tests were post BC surgery and were being done before I start chemo--scheduled to start on 7/24. Today my MO called and said the bone scan looked good BUT there is one tiny spot on my pelvis and so she wants an MRI done on the pelvis to see what it is. I'm so scared. I had a BMX 6/25 and the sentinel node came back w/micro mets. 8 other nodes were clear.

I scheduled the MRI for this Thursday, then got a call back from MRI dept that said they don't want to do MRI b/c I had BMX ( no reconstruction) on the 25th of June -- but like this week I already had a CT scan, Echo and a Bone Scan so why would an MRI be different. So I have to call my MO in the AM because I just missed them after I got the call re: MRI dept not wanting to do scan close to surgery.

I'm such a mess of worry. -

I found myself reading others signatures & comparing my dx to others. I decided to delete my info off my sig, b/c I felt like I was viewing people as their dx vrs. as individuals BRCA-2-BMX 6/25 -chemo 7/24 AC/T
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Jul 13, 2019 02:55AM KBeee wrote:

How frustrating that you're stuck in the middle waiting for calls while sick with worry. Have you have chemo, or are you on any medications? Have you had pelvic pain?

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/26/2013 Mastectomy: Left, Right Chemotherapy 9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/23/2014 Reconstruction (left); Reconstruction (right) Surgery 1/29/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Surgery 2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Chemotherapy 3/31/2015 AC + T (Taxol) Radiation Therapy 8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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Jul 13, 2019 03:26AM 2019whatayear wrote:

No chemo yet. The scan was a part of pre chemo testing, CT/Echo//Bone. The CT was fine. The MO said the bone scan was all good except for one 'tiny' spot on the pelvis and so since I have BC they want to do an MRI to check what it is. - No pain , no medications- supposed to have 1st chemo on 7/24. I had BMX 6/25- 2.2 cm mass, micro mets found in sentinel node - 8 other nodes clear, no cancer on right breast no cancer anywhere else in the left. I read my path report and FWIW no LVI found.

And I call first thing this AM. MO is out of office The staff said I should call my Brest Surgeon b/c MRI dept said no MRI until 6 wks post surgery. Call the BS office the doctor and nurse are out of the office for the day. So I have to wait until Monday to find out, 1. Do I really have to wait a few more weeks to get MRI? 2. Can I start the chemo b/4 the MRI is done? 3. Exactly how big is 'tiny'- and does that matter? I know it's not particularly instructive but I spend last night on google reading medical study abstracts--if only there was a magic google like that could tell me the spot isn't a met. *sigh* This blows!

Thanks for reading - if you have a magic wand please wave it over me so I can breathe :)

I found myself reading others signatures & comparing my dx to others. I decided to delete my info off my sig, b/c I felt like I was viewing people as their dx vrs. as individuals BRCA-2-BMX 6/25 -chemo 7/24 AC/T
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Jul 13, 2019 03:51AM pupmom wrote:

There are so many false positives with these tests. I got a completely clean CT, but the Bone Scan showed "something." My MO wrote it off. Eight years later I am fine!

Life is what happens while we're making other plans. Dx 10/18/2011, IDC, Right, 1cm, Stage IIA, Grade 1, 2/21 nodes, ER+/PR+, HER2-
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Jul 13, 2019 05:01AM 2019whatayear wrote:

thanks pupmom. At this moment I wish my MO would have written this off too. I really have scanxiety bad. :-)

I found myself reading others signatures & comparing my dx to others. I decided to delete my info off my sig, b/c I felt like I was viewing people as their dx vrs. as individuals BRCA-2-BMX 6/25 -chemo 7/24 AC/T
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Jul 13, 2019 07:12AM pupmom wrote:

You're welcome whatayear! It will get better with time. I was a basket case for about 2 years after diagnosis. Hug

Life is what happens while we're making other plans. Dx 10/18/2011, IDC, Right, 1cm, Stage IIA, Grade 1, 2/21 nodes, ER+/PR+, HER2-
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Jul 13, 2019 07:29AM FaithAndTrust wrote:

I had a CT scan followed by bone scan..when I got clean CT results my Onc said I was all clear no need to even wait for bone scan results..if CT was fine that was it as far as he was concerned ..

So try not to worry 😘

Dx 11/2014, ILC, Left, 1cm, Stage IIB, Grade 2, 2/8 nodes, ER+/PR+, HER2- Chemotherapy
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Jul 13, 2019 10:39AM 2019whatayear wrote:

Thank you for the reassurance. Wish my MO had said the same! One thing went my way today - thanks to the the best Radiology Tech, I was able to get the MRI scheduled for Wed AM - she explained to MRI dept. that I had no metal in my body or TE or anything just dissolving stitches so the waived their whole 'wait 6 weeks after surgery for an MRI' rule of thumb. So MRI Wed first thing and then late morning the port placement. It sounds very weird to say but I find I am saying to myself, I can't wait for this scan to be over and then hopefully I can just relax and get started on chemo. I am a very good patient when it comes to doing whatever they want me to do---but when it comes to waiting to get tested and getting test results- I turn into a hot mess! :-)

I found myself reading others signatures & comparing my dx to others. I decided to delete my info off my sig, b/c I felt like I was viewing people as their dx vrs. as individuals BRCA-2-BMX 6/25 -chemo 7/24 AC/T
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Jul 19, 2019 02:41AM 2019whatayear wrote:

Had the MRI yesterday and got the results just now. The spot is not suspicious. What a relief!!!!!!

I found myself reading others signatures & comparing my dx to others. I decided to delete my info off my sig, b/c I felt like I was viewing people as their dx vrs. as individuals BRCA-2-BMX 6/25 -chemo 7/24 AC/T
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Jul 19, 2019 08:28AM KBeee wrote:

Great news!

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/26/2013 Mastectomy: Left, Right Chemotherapy 9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/23/2014 Reconstruction (left); Reconstruction (right) Surgery 1/29/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Surgery 2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Chemotherapy 3/31/2015 AC + T (Taxol) Radiation Therapy 8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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Jul 19, 2019 08:35AM claireinaz wrote:

Congrats, I can feel your relief through the computer, really! So happy for you!

Claire in AZ

9/29/11 ILC, 2 c. stage II grade 1, ER/PR+ HER2-, 6/11 nodes, lumpectomy, DDAC x 4, Taxol x 12, 33 rads, Tamoxifen/arimidex/aromasin, BMX/immed recon 7/3/13 "In the midst of winter, I found in me an invincible summer.” Albert Camus
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Jul 19, 2019 11:19AM 2019whatayear wrote:

Thank you ladies, it was such a relief!

I found myself reading others signatures & comparing my dx to others. I decided to delete my info off my sig, b/c I felt like I was viewing people as their dx vrs. as individuals BRCA-2-BMX 6/25 -chemo 7/24 AC/T
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Jul 19, 2019 11:24AM Xxxxxxxxxxxxxxx wrote:

2019whatayear: 🍾🥂!!!!!

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