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Sep 6, 2019 10:30AM
Many MOs do not do routine scans for the fear that the scans themselves can cause cancer. The standard of care is generally not to do them, since the studies have shown that outcomes are the same as far as overall length of survival when scans are done versus not done.
That being said, those studies are from the 1990s. They were 2 small studies from Europe. They do not take into account all of the current day treatments we have, and it totally and completely irks me that the standard of care for monitoring so many patients is based on such old, small studies. I pick my battles, and just go with the "no monitoring", but the lack of current studies annoys me.
In the meantime, write down any worrisome symptoms in the notes on your phone. Keep a symptom log. Note the date it starts. When you add a new symptom, if old ones have cleared up, mark them with an X, rather than deleting them. This allows you to discuss symptoms you've had at your appointments, and seeing how many have resolves is reassuring. If any persist for 2 weeks, call. It's nice having the information on when it started documented. This is my system and it has worked well for me.
8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC)
8/25/2013 Mastectomy: Left, Right
9/19/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
12/11/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
1/22/2014 Reconstruction (left); Reconstruction (right)
1/28/2015 Lumpectomy: Right
2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH)
2/24/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal
2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC)
3/30/2015 AC + T (Taxol)
8/24/2015 Whole-breast: Breast, Lymph nodes, Chest wall