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Nov 20, 2019 08:37AM
Jody, it is very hard to understand how cancer can be missed and then bam, you have Stage IV disease.
I, too, had DCIS in 2006..close margins, grade 4, mastectomies, reconstruction. One year later, cancer returned in the remaining breast tissue. So implant removed, radiation to chest wall and tamoxifen.
My MO suspected it had spread in 2006 or 2007, but he said he couldn't treat on a hunch. All scans, blood work - showed no disease. He told me you just can't put someone on chemo without evidence. But he knew. For 10 years, I had yearly blood work and tumor markers. Even if I had a random liver MRI or CT scan or PET - the tumor has to be big enough to be seen on scans. Plus, not everyone has reliable tumor markers. So..ah. what a mess.
10 years later, breast cancer found in liver. So how was I diagnosed? I couldn't breathe. The liver tumor cells had migrated to lung arterioles. No xray, or scan could pick up those tiny tumor cells -a VQ scan confirmed it.
A part of me thinks if he did chemo back then, I wouldn't be in this situation. But also, if he did, and the mets still occurred, I would not have been able to take the chemo that saved my life. I realize I had 10 years of wonderful treatment free life..daughter married, grandkids, ran a marathon.
So you are right, try to move forward. The past cannot be undone.
Join us on the Stage IV threads. Peruse the topics..so many!
Yes, the future is unknown, try to plan goals - some for this week, some for later. Keep going.
(2006 and 2007 DCIS) Oct 2016 Stage IV, widespread liver mets with pulmonary tumor emboli syndrome, IDC, ER+PR-HER2-, Oct 2016 AC, Jan 2017 Ibrance Letrozole, NEAD since Oct 2017.