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Topic: Off the scale terrified

Forum: Not Diagnosed With a Recurrence or Metastases but Concerned —

Meet others concerned about developing a recurrence or metastases.

Posted on: Nov 17, 2019 08:10PM

lifeb4me wrote:

Hi Everyone,

I am so scared. I found a large lump under my collarbone, near my shoulder. It’s a place I don’t really touch, that’s why I didn’t find it earlier, I think. My arm was acting out, but I thought it was cording getting worse. My arm has never felt normal after the lumpectomy and SNB. So I went to my BS, who got really worried ordered scans and sent me to my MO. They are both talking like it’s a sure thing it’s a recurrence in the infraclavicular lymph node. He says if it’s not spread it’s “curable” and if not it’s controllable. That he has patients 16 years MBC. The scan tecs haven’t said anything, but one asked me what lesion the doctor was talking about in the scan order. I don’t know if that’s good, that she can’t see any metastasis or bad, there are do many. Well, I have recieved an alert that the results of the scintiography are on the portal. My MO said he was going to discuss the case at the tumor board last week and that the imaging center also participated and would input information, although the results wouldn’t be in yet. After the meeting he messaged me that we have to biopsy the lymph node, nothing more. Here’s my problem I don’t have the courage to open the result, I’m too scared there will be Mets, but I also am super anxious to get this over with. As long as I don’t know it’s not real, right? You are all so good at giving support, please help me. Ah, I haven’t told my husband or anybody yet, so I’m on my own right now.

Thank

Dx 8/29/2016, IDC, Left, 6cm+, Stage IIIA, Grade 3, 0/6 nodes, ER-/PR-, HER2+ (FISH) Chemotherapy 9/16/2016 AC + T (Taxol) Targeted Therapy 12/5/2016 Herceptin (trastuzumab) Targeted Therapy 12/5/2016 Perjeta (pertuzumab) Surgery 3/8/2017 Lumpectomy: Left; Lymph node removal: Sentinel Dx 12/5/2019, IDC, Left, 5cm, Stage IIIA, Grade 3, ER-/PR-, HER2- (IHC) Chemotherapy 12/16/2019 Carboplatin (Paraplatin), Taxotere (docetaxel) Chemotherapy Xeloda (capecitabine) Chemotherapy Chemotherapy Radiation Therapy 3DCRT: Breast, Chest wall
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Nov 17, 2019 09:23PM ps0705 wrote:

I'm sorry and hope it turns out to be "nothing". I found several lumps on the dx side after reconstruction including near my armpit. It turned out to be oil cysts, so it was benign. Try to keep yourself calm.

Hugs to you

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Nov 17, 2019 10:20PM WC3 wrote:

lifeb4me:

I'm so sorry you are going through this. You don't have to look at the results if you don't want to. It's perfectly ok to have the doctor deliver them in person if you would prefer that.

Dx 2018, IDC, Left, 3cm, Grade 3, ER+/PR+, HER2+ (FISH) Chemotherapy 6/1/2018 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 11/15/2018 Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Targeted Therapy Perjeta (pertuzumab) Targeted Therapy Herceptin (trastuzumab)
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Nov 18, 2019 01:40PM illimae wrote:

It’s scary but knowing really is the best thing. If it’s benign, great move on with less fear than you’re dealing with now. If it is mets, then you’ll discuss everything and come up with a plan, which should give you some feeling of control, hopefully. I’m sorry and wish you the best.

Diagnosed at 41 Stage IV De Novo Dx 11/16/2016, IDC, Left, 5cm, Stage IV, metastasized to bone, Grade 3, 3/13 nodes, ER+/PR-, HER2+ (IHC) Chemotherapy 1/1/2017 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 1/1/2017 Herceptin (trastuzumab) Targeted Therapy 1/1/2017 Perjeta (pertuzumab) Surgery 6/26/2017 Lumpectomy: Left; Lymph node removal: Underarm/Axillary Radiation Therapy 8/10/2017 Breast, Lymph nodes Dx 10/5/2017, IDC, Left, Stage IV, metastasized to brain Radiation Therapy 10/19/2017 External: Brain Radiation Therapy 4/18/2018 External: Brain Radiation Therapy 5/22/2019 External: Brain Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Nov 18, 2019 02:32PM ctmbsikia wrote:

Knowledge is power. Once you know what you are dealing with the fear will lessen. Take care wish you the best. My sister living with MBC and she’s doing great. Stable disease for 4 yrs so far.

Dx 12/14/2017, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 1/16/2018, LCIS, Right Surgery 1/31/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/11/2018 Whole-breast: Breast Hormonal Therapy 6/25/2018 Arimidex (anastrozole)
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Nov 21, 2019 08:28AM KBeee wrote:

I agree that knowledge is power. Once you know, you can make a plan. You will definitely should let hubby know either way.

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/25/2013 Mastectomy: Left, Right Chemotherapy 9/19/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/11/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/22/2014 Reconstruction (left); Reconstruction (right) Surgery 1/28/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Surgery 2/24/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Chemotherapy 3/30/2015 AC + T (Taxol) Radiation Therapy 8/24/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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Dec 30, 2019 06:43PM lifeb4me wrote:

Thank you for your kind words. I needed that and it gave me solace and courage. I am copying the post I wrote in Chemo September 2016. It is a recurrence but no Mets.

Well Everyone, I wish us all a very healthy 2020. I was fine until my 3 year checkup. I had been having some pain in my armpit, thought it was more cording. Suddenly I found a lump near my collarbone, next to the axila. My doctor got worried, ordered scans and it was a huge intrapectoral node. It wasn't noticed because it's outside the mammogram area. So, biopsy confirmed cancer is back, but TN this time around. I have started chemo again last December. This time I'm cold capping, hoping to save my hair. Silver lining, no Mets. It's not in the breast or anywhere else, just this one 5 cm lymph node. Don't accept mammograms only. Ask for scans

Dx 8/29/2016, IDC, Left, 6cm+, Stage IIIA, Grade 3, 0/6 nodes, ER-/PR-, HER2+ (FISH) Chemotherapy 9/16/2016 AC + T (Taxol) Targeted Therapy 12/5/2016 Herceptin (trastuzumab) Targeted Therapy 12/5/2016 Perjeta (pertuzumab) Surgery 3/8/2017 Lumpectomy: Left; Lymph node removal: Sentinel Dx 12/5/2019, IDC, Left, 5cm, Stage IIIA, Grade 3, ER-/PR-, HER2- (IHC) Chemotherapy 12/16/2019 Carboplatin (Paraplatin), Taxotere (docetaxel) Chemotherapy Xeloda (capecitabine) Chemotherapy Chemotherapy Radiation Therapy 3DCRT: Breast, Chest wall
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Jan 2, 2020 10:58AM KBeee wrote:

I am sorry to hear you are dealing with a recurrence, but thankful that there are no mets. I dealt with the same thing in 2015. (((HUGS))) Hoping you are tolerating chemo okay and that it kicks this beast to the curb once and for all!

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/25/2013 Mastectomy: Left, Right Chemotherapy 9/19/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/11/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/22/2014 Reconstruction (left); Reconstruction (right) Surgery 1/28/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Surgery 2/24/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Chemotherapy 3/30/2015 AC + T (Taxol) Radiation Therapy 8/24/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)

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