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Nov 26, 2019 03:50PM
Hey, Wendy. I'm so glad I logged in today and found your response! Somehow connecting with someone else in the midst of this.... well, it just feels better. I'm so sorry, though, for what you've been through, especially as young as you are! (I'm 62.)
Let me check and make sure I understand correctly--- You were diagnosed as Stage 3, though your info indicates a 1 cm tumor-- oh, it's because of the nodes, right? I was so lucky-- My biggest tumor was 2.5 cm, but the nodes were clear. With the new results, it sounds like they have found a primary gynecological cancer as well, in your lungs, although they can't find gyn cancer actually in your gyn system, right? That's a helluva situation to go through!
I had 6 rounds of carboplatin/Taxol, because one of my tumors was HER2+. I had a really tough time with it, b/c I developed nausea and vomiting that we had trouble getting under control. But my onc worked with me till we found a medication that did control the n/v pretty well. I wish you well with it-- Apparently most folks react better to it than I did.
So I'm facing the possibility of a similar surgery, although there's still a chance that the ovarian cyst isn't cancer. They can't tell until I have it removed, and they'll get the biopsy results while I'm still in surgery. So I'll wake up and find out whether or not I really did have ovarian cancer and how extensive the surgery really was. He said he would do the debunking immediately if they find ovarian cancer.
The thought of waking up to this news is totally depressing to me. I go completely back and forth on this..... At times I think that cyst is only 1.5 cm and most likely is just a cyst. But I know that HER2+ tumors are more likely to metastasize to the ovaries, and because I'm post-menopausal, having a cyst at all is odd. And then I get completely panicked.
I seem to do best if I just focus on something else, like work, although that's really difficult. My oncologist hasn't talked with me at all since the tumor marker came up positive, and I find myself kind of unreasonably mad at him. I cope better when I have all possible information, and this time I have far less than when the breast cancer was diagnosed.
Do you have any idea how they will treat the lung met? Will they do surgery? I don't really know anything about that treatment other than what you've already shared. Do you have any children who are affected by this? I'm praying that it's not another cancer, for my 24 y/o daughter's sake. I don't have a genetic cause for all of this (they've done the workup), but I know it must be hard on her. I have a son, too, up in DC, who's having a hard time with all of this.
Please know you are in my prayers. Here's hoping the carboplatin/Taxol scares the heck out of that lung met and destroys it completely!!! I will try to figure out how to PM, which is a bit beyond my current technical skills. I'd like to chat more......
5/5/2018, ILC/IDC, Both breasts, 2cm, Stage IIA, Grade 3, 0/2 nodes, ER+/PR+, HER2+ (FISH)
7/25/2018 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Silicone implant, Tissue expander placement; Reconstruction (right): Silicone implant, Tissue expander placement
9/6/2018 Carboplatin (Paraplatin), Taxotere (docetaxel)
1/8/2019 Herceptin (trastuzumab)
1/9/2019 Perjeta (pertuzumab)