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Topic: How long is a cough "normal"?

Forum: Not Diagnosed With a Recurrence or Metastases but Concerned —

Meet others concerned about developing a recurrence or metastases.

Posted on: Dec 4, 2019 07:08PM

Jen2Mom wrote:

I just celebrated my one-year anniversary of my bi-lateral mastectomy but am so concerned about about this horrible cough I have had for almost 2 months. It started out as a diagnosis of bronchitis and I was given a round of antibiotics but it never improved. My pcp ordered an xray that was clear. After 2 more weeks I called my oncologist who said that sometimes it takes awhile to get over bronchitis and she gave me a round of prednisone. Here I am 2 weeks past the steroids still coughing. My pcp just called in a z-pack and said if I didn't improve to come in...at what point to I become concerned? I work at a school and the school nurse has listened to my chest and said it sounds clear. My cough is deep, semi-productive but I feel like almost 2 months is a long time...Clear chest, clear x-ray...do I push for a CT next????

Dx 9/28/2018, IDC, Right, <1cm, Stage IB, Grade 1, 1/12 nodes, ER+/PR+, HER2- (FISH) Surgery 11/16/2018 Lymph node removal: Right, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Radiation Therapy 1/21/2019 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy 3/11/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Posts 31 - 40 (40 total)

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Jan 12, 2020 09:45AM OTMom wrote:

AprilGirl, I'm so sorry you're dealing with that and that getting to a clear answer was such a struggle. I'm glad you seem to be responding to treatment so far.

I deleted an excessively whiny post yesterday, but I guess I'm wondering when I should be concerned or push for further investigation. I've had a cough since late Aug/early Sept. At some point in there I had a virus and then was treated for a sinus infection with a few rounds of antibiotics for persistent facial pain and cough. Some of this has helped, but facial pain and cough/shortness of breath continue. On the max dose of my steroid inhaler things improve, and I've been on asthma meds since this all started, which is atypical since my asthma is so mild that I have to take meds maybe a few weeks a year when I get a bad cold, and sometimes not at all for entire years. Each time I taper off I start to cough again and feel like I'm working hard to get a deep breath. My rescue inhaler seems only sometimes helpful and my doctor says everything sounds clear whenever she listens, which makes me feel like a massive faker. I had a sinus CT, which was clear, so maybe I'm getting TMJ-related nerve pain that is leading to the facial pain and headaches? (Never had TMJ before any of this but that's the best explanation I can come up with) My dentist wasn't much help yesterday either, and lectured me about how bad bisphosponates are. (Um, yes. I know. But I'm on ovarian suppression and already had osteoporosis, so what exactly am I supposed to do there?) I'm guessing the cough and breathing weirdness are worsening of asthma post-radiation or other fun side effects of anastrozole, but I am being followed for lung nodules, so every now and then that floats through my head and I don't know if I should be concerned or not. My last chest CT in early August showed everything holding steady and I'm not due for follow up with her until next August. But if it were anything other than asthma/inflammation it wouldn't respond to the steroid, right?

diagnosed at 41 Dx 11/15/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 12/4/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 1/13/2019 Whole-breast: Breast Hormonal Therapy 3/3/2019 Arimidex (anastrozole)
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Jan 12, 2020 10:49AM TB90 wrote:

OTMom: Sorry you have having trouble getting to the cause of your persistent symptoms. I agree that this sounds like something other than your typical asthma. My asthma sounds exactly like you described yours to typically be and I would be very frustrated if it suddenly changed so remarkably. I would suggest you see a pulmonary doctor. Whenever asthma cannot be well managed by meds, you deserve a re-evaluation. If radiation treatments are causing complications for example, this can be identified. Trouble getting a complete and deep breath causes so much anxiety. Please provide some relief for yourself by getting an accurate dx. Good luck

Dx 11/28/2013, DCIS, Grade 2 Surgery 12/18/2013 Mastectomy: Left Radiation Therapy 2/20/2014 Breast
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Jan 30, 2020 07:28PM moth wrote:

anyone have any cheerful reassuring things to say about false positives in chest xrays?

I've had the stupid lingering cough since early December. Saw my GP today and she sent me for a chest xray and soon after I got home from the imaging clinic I got a call from her that they see something they don't like and are recommending a CT scan. That will hopefully be scheduled for next week or the week after.

I'm trying to hang on to hope that this just everyone being cautious but jeeeeez, it's really made me worried and upset

Feb 2020 - Stage IV, mets to lung, liver, mediastinal lymph. Dx at 50 in Dec 2017; Left, IDC, 1.7 cm, Stage I, Grade 3, 0/5 nodes, very weakly ER+, being treated as TNBC Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast
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Jan 30, 2020 09:25PM TB90 wrote:

Moth: It is not a false positive. It is an undiagnosed result. Chest X-rays are very unspecific. So something is going on, but at this point it could be anything. My husband was also told they were very concerned about his chest X-ray. I went into panic mode. The CT scan showed pneumonia. It is so scary and I hate what the process of diagnosis puts people through. It is torture. My dr told me, it’s not cancer till they tell you it’s cancer. And it wasn’t. But for us it was. We will never be the same. Try to not go there. Impossible at times, but lots of hope still. Choose hope when you can and enjoy those fleeting moments. Ask for hugs when you can’t.

Dx 11/28/2013, DCIS, Grade 2 Surgery 12/18/2013 Mastectomy: Left Radiation Therapy 2/20/2014 Breast
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Jan 30, 2020 09:51PM moth wrote:

TB90 - thank you for your kind words and helping me see this in a different way! I'm really encouraged by your post. I will write out these words & put them where I can see them: "It is an undiagnosed result. Choose hope"
thank you

Feb 2020 - Stage IV, mets to lung, liver, mediastinal lymph. Dx at 50 in Dec 2017; Left, IDC, 1.7 cm, Stage I, Grade 3, 0/5 nodes, very weakly ER+, being treated as TNBC Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast
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Jan 31, 2020 03:17PM KBeee wrote:

Moth, Can you see the actual report on a patient portal or something? It might give more information. Hoping you get a benign answer soon.

OTMom, Time to get back to the pulmonologist. I hope you get relief.


Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/25/2013 Mastectomy: Left, Right Chemotherapy 9/19/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/11/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/22/2014 Reconstruction (left); Reconstruction (right) Surgery 1/28/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Surgery 2/24/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Chemotherapy 3/30/2015 AC + T (Taxol) Radiation Therapy 8/24/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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Jan 31, 2020 04:19PM moth wrote:

Kbee - no, there's no patient portal to access these results here. Whatever they saw they called my dr directly and gave her a prelim voice report and she called me right away. She was very generic in what she reported to me & said let's wait to see what the CT says. I'm booked for the CT on Thursday morning. Doing my best to just ignore all this & pretend it's not happening.

Feb 2020 - Stage IV, mets to lung, liver, mediastinal lymph. Dx at 50 in Dec 2017; Left, IDC, 1.7 cm, Stage I, Grade 3, 0/5 nodes, very weakly ER+, being treated as TNBC Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/14/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast
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Feb 1, 2020 11:19AM - edited Feb 1, 2020 11:21AM by margo53

I also have been dealing with a cough. Did anyone have lung irritation from TC? Mine started as dry cough around time of 2 nd chemo.... mentioned to MO at third chemo.... all he asked was if I was coughing anything up which I'm not. A few days later, had slightly bloody sinus drainage when blowing nose ( sorry for TMI).... so MO sent ZPac which helped a little..... no more blood, but now have more of long coughing spells lasting 15 or so exhausting minutes, several times a day....seems to be brought on when I move around...

Today is a little different and feels like a tickle on left side of my throat causing a cough every 3 minutes or so..... so tired of coughing.....4 th and final TC is supposed to be this Monday.... I can't seem to find anything in Dr Google about lung irritation from chemo..... what should I ask for before last chemo

I have not had radiation yet

Margo Dx 8/13/2019, IDC, Left, <1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR-, HER2- Surgery 9/23/2019 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 12/2/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy Breast
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Feb 1, 2020 05:26PM Yogatyme wrote:

Margo, I had an aggrevating cough for several weeks and one night noticed some reflux which I’ve never had. Took Prilosec OTC for 2 weeks.....cough completely resolved.

Yogatyme Surgery 3/3/2019 Prophylactic ovary removal Dx 7/19/2019, IDC: Papillary, Right, <1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 8/13/2019 Mastectomy: Left, Right
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Feb 1, 2020 08:27PM margo53 wrote:

thanks yoga, I will try that

Margo Dx 8/13/2019, IDC, Left, <1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR-, HER2- Surgery 9/23/2019 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 12/2/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy Breast

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