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Topic: High ALP

Forum: Not Diagnosed With a Recurrence or Metastases but Concerned —

Meet others concerned about developing a recurrence or metastases.

Posted on: Jan 14, 2020 03:28PM

grade1teachr wrote:

I was diagnosed 5 years ago. My ALP level was 132 last year and my oncologist was not concerned. Now it is 152. I have to see him later this week. I am very worried because everything I see online says that means bone or liver mets. Has anyone had this number go up and it not be mets? Please don't tell me any bad stories--I am looking for someone else who had this and it turned out to be nothing.

All of my other bloodwork was fine.

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Jan 14, 2020 10:26PM Moderators wrote:

Hi there, grade1teacher,

We're so sorry you find yourself here with this worry! We're sure other members will be around to share their insight/experience, but we just wanted to welcome you to our community, and we hope you find the support and guidance you need!

The Mods

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Jan 15, 2020 01:53PM KBeee wrote:

I know of 2 friends whose liver numbers went very high due to Tamoxifen. Are you on that or any other medications? Cholesterol drugs can affect those numbers sometimes too.

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/26/2013 Mastectomy: Left, Right Chemotherapy 9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/23/2014 Reconstruction (left); Reconstruction (right) Surgery 1/29/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Surgery 2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Chemotherapy 3/31/2015 AC + T (Taxol) Radiation Therapy 8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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Jan 15, 2020 08:37PM grade1teachr wrote:

Thanks, KBeee!

I am on Arimidex and Lipitor. I hope that is the cause! I have to see the MO tomorrow.

Thanks so much!

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Jan 15, 2020 08:48PM Jojo0529 wrote:

I think if your calcium is normal it may be the meds. Especially Arimidex im

ONCO 17 ....ki-67 25% miotic 1. Dx 7/30/2015, IDC, Right, 2cm, Stage IIA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Surgery 8/19/2015 Lymph node removal: Sentinel; Mastectomy: Left, Right; Prophylactic mastectomy: Left Chemotherapy 9/2/2015 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 11/30/2015 Arimidex (anastrozole) Surgery 1/10/2016 Prophylactic ovary removal; Reconstruction (left): Silicone implant, Tissue expander placement; Reconstruction (right): Silicone implant, Tissue expander placement
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Jan 15, 2020 11:50PM Halfabanana wrote:

My ALP is being followed by my gastroenterologist, as it has been consistently elevated for the last few years. It has, at times, been almost 200. He sent me for a bone scan a couple of years ago, which showed only arthritis, and last year I had a liver biopsy which was clear. I have ALP tested every three months, and it is always on the high end. I also have yearly abdominal ultrasounds to keep an eye on things. I asked if it could just be my “normal”, and he said no, that it is an indicator of something brewing that has just not become evident yet. My other liver numbers are all in normal range.My mother died of cryptogenic liver disease, so I am thinking that it may be an indicator of some similar problem for me, just not yet symptomatic.

Dx 10/24/2012, DCIS, 6cm+, Stage 0, ER+, HER2- Surgery 12/5/2012 Mastectomy: Right; Reconstruction (right): DIEP flap Dx 12/17/2012, IDC, <1cm, Stage IA, Grade 2, 0/2 nodes, ER+/PR+, HER2- Hormonal Therapy 1/20/2013 Arimidex (anastrozole) Surgery 10/24/2013 Reconstruction (right) Surgery 12/26/2013 Reconstruction (right): Nipple reconstruction
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Jan 16, 2020 09:00AM BevJen wrote:

My ALP went up for a period of time, from a relatively low normal up to around your 152 range. I had had a liver procedure (microwave ablation) in that interim, but other than that, nothing else was going on. My number has gone back to my historical low after about 6 months at the high. My internist is actually more interested in that number than my oncologist. Have you checked it out with your internist?

Dx 11/2003, ILC, Left, Stage IIIC, ER+/PR+, HER2- Dx 6/2006, ILC, Stage IV, metastasized to other, ER+ Dx 5/2019, ILC, Stage IV, metastasized to liver, ER+/PR+, HER2- Surgery 7/4/2019 Targeted Therapy 7/31/2019 Ibrance (palbociclib) Radiation Therapy Surgery Lymph node removal: Left, Sentinel; Mastectomy: Left, Right; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Chemotherapy TAC Hormonal Therapy Faslodex (fulvestrant) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery Lymph node removal; Mastectomy; Reconstruction (left): Pedicled TRAM flap; Reconstruction (right): Pedicled TRAM flap Hormonal Therapy Femara (letrozole)
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Jan 17, 2020 02:01PM Moderators wrote:

Grade1teacher -- any updates after seeing your MO?

Thinking of you!

--The Mods

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Jan 19, 2020 08:22PM grade1teachr wrote:

No update yet. He wasn't very worried about it. He said a number of things can cause it to rise and since that higher reading was done by my primary at a different lab, he didn't want to compare the two--said it was apples to oranges. He did my bloodwork and I am waiting for him to call.


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Feb 8, 2020 09:14PM grade1teachr wrote:

Well, my MO never called, but I was able to go in and read my results. MY ALP was back in the normal range, so I feel much better.

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Feb 11, 2020 07:19AM KBeee wrote:

Great news!

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/26/2013 Mastectomy: Left, Right Chemotherapy 9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/23/2014 Reconstruction (left); Reconstruction (right) Surgery 1/29/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Surgery 2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Chemotherapy 3/31/2015 AC + T (Taxol) Radiation Therapy 8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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Feb 11, 2020 08:12PM grade1teachr wrote:

Thanks!


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