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Topic: Possible 2nd Recurrence - Anyone with similar experience?

Forum: Not Diagnosed With a Recurrence or Metastases but Concerned —

Meet others concerned about developing a recurrence or metastases.

Posted on: Jan 30, 2020 10:06AM

mocame wrote:

I was dx with DCIS 12 years ago. I had a BMX and was told I had a 2% chance of getting the cancer back. In August of 2019, I was dx with IDC, stage 1. The lump was near the BMX scar. I had 6 weeks of radiation that ended 11/15/19 and put on Zoladex injections and Arimidex at the end of November. Was checked by my RO's PA on 12/17/19 and everything was fine. Two weeks ago, I noticed a small lump that I hadn't noticed before. It's not near the scar line. Then a couple days later a smaller lump showed up near that one. I decided I better look at my breast closer and found a 3rd lump on the opposite side of my breast from those two. I met with my BS today to look at them. The smaller one she is not concerned with. She said it looks like a raised hair follicle. The other 2 she is undecided. She said if I was a regular patient she wouldn't be concerned, but because it's me, she is a little more concerned than normal. She gave me the option of either watching them or get a punch biopsy of 1 of the 2 lumps. I chose the biopsy, which is scheduled in 2 weeks from now.

Has anyone experienced lumps so soon after radiation and while on an AI and injection? If so, what was the results? Was it cancer or something else? I'm an emotional wreck right now.

Dx 2/12/2008, DCIS, Stage 0, Grade 2, 0/2 nodes, ER+/PR- Dx 8/22/2019, IDC, Left, <1cm, Stage IA, ER+/PR+, HER2- Radiation Therapy 10/7/2019 Whole-breast: Breast Hormonal Therapy 11/29/2019 Zoladex (goserelin) Hormonal Therapy 12/6/2019 Arimidex (anastrozole)
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Jan 30, 2020 03:47PM MinusTwo wrote:

OMG - I'm so sorry you have to go through this yet AGAIN mocame. I had BMX for DCIS and then a recurrence in my lymph system 2 years later that turned out to be IDC. Yes, I know we are always at risk, but I hope these come back benign. I don't have any personal experience with what you are describing, but I'll keep you in my thoughts.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Jan 30, 2020 08:16PM Kamboka wrote:

mocame: you are in my thoughts and I'm praying that it will be a false alarm. Unfortunatley, you will go through an emotional roller coaster until you get some news. Hang in there!

Dx 1/4/2019, IDC, Left, 6cm+, Stage IIIA, Grade 3, 1/7 nodes, ER+/PR+, HER2- (FISH) Chemotherapy 3/15/2019 AC + T (Taxol) Dx 7/9/2019, DCIS, Left, Stage 0, Grade 3 Surgery 7/9/2019 Lumpectomy: Left; Lymph node removal: Sentinel, Underarm/Axillary Surgery 7/23/2019 Lumpectomy; Lymph node removal: Underarm/Axillary Radiation Therapy 10/2/2019 Whole-breast: Breast, Lymph nodes Hormonal Therapy 11/22/2019 Femara (letrozole)
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Jan 30, 2020 08:41PM choochoobella wrote:

Hi Mocame,

I didn't have radiation after my BMX, but I did develop quite a few lumps within a few inches of my scars in the year after surgery. I thought they might be a local recurrence, but I saw my breast cancer surgeon and they were all unconcerning lipomas (fatty lumps) that formed after my surgery.

Could it be that radiation caused fat necrosis that feels like lumps?

I found the information below at this link: https://www.medicalnewstoday.com/articles/319517.p...

Fat necrosis is a condition that occurs when a person experiences an injury to an area of fatty tissue. This can result in the fat being replaced with the oily contents of fat cells.

The term "necrosis" means the cells have died. Potential causes of fat necrosis include blunt trauma, surgeries, or radiation to a particular area of the body.

Areas of fat necrosis can feel like small hard tumors but they are not cancerous tissue.

I'm glad you scheduled a biopsy. Sending good karma your way that the biopsy shows it is not a recurrence.

Papillary thyroid cancer, stage IVa, surgery November 2009 Dx 12/7/2012, ILC, Both breasts, 1cm, Grade 1, 0/1 nodes, ER+/PR+, HER2- Surgery 12/20/2012 Lymph node removal: Left, Sentinel; Mastectomy: Left, Right Surgery 2/24/2013 Prophylactic ovary removal Hormonal Therapy 3/13/2013 Femara (letrozole)
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Jan 31, 2020 02:18PM KBeee wrote:

mocame, I am sorry you are dealing with this again. I have had some lumps since my recurrence. Thus fr they have been benign. I wish the same for you. Keep us posted.

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/26/2013 Mastectomy: Left, Right Chemotherapy 9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/23/2014 Reconstruction (left); Reconstruction (right) Surgery 1/29/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Surgery 2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Chemotherapy 3/31/2015 AC + T (Taxol) Radiation Therapy 8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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Jan 31, 2020 04:07PM mocame wrote:

Thanks, KBeee. That's reassuring. I'm considering asking them to biopsy both lumps just for my piece of mind. We will see.

Dx 2/12/2008, DCIS, Stage 0, Grade 2, 0/2 nodes, ER+/PR- Dx 8/22/2019, IDC, Left, <1cm, Stage IA, ER+/PR+, HER2- Radiation Therapy 10/7/2019 Whole-breast: Breast Hormonal Therapy 11/29/2019 Zoladex (goserelin) Hormonal Therapy 12/6/2019 Arimidex (anastrozole)
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Jan 31, 2020 05:00PM ps0705 wrote:

mocame - I'm always surprised that offer "wait and watch" for anyone with a history of cancer, much less you who already had a recurrence. I feel if they had the choice for their own body anyone with medical experience would always chose biopsy. I think you made the right choice and am sending you positive thoughts and energy.

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Jan 31, 2020 05:14PM mocame wrote:

Thank you, ps0705! I think my BS said the "wait and watch" because if I was a regular patient, they wouldn't be too concerned about the lumps they saw. I, on the other hand, am not a normal patient. I always tell my husband that I want a dull, boring, and normal life. For some reason, that never happens for me. :)

Dx 2/12/2008, DCIS, Stage 0, Grade 2, 0/2 nodes, ER+/PR- Dx 8/22/2019, IDC, Left, <1cm, Stage IA, ER+/PR+, HER2- Radiation Therapy 10/7/2019 Whole-breast: Breast Hormonal Therapy 11/29/2019 Zoladex (goserelin) Hormonal Therapy 12/6/2019 Arimidex (anastrozole)
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Feb 6, 2020 04:40AM mocame wrote:

Well, I called my BS on Tuesday and said I want both lumps biopsied and she agreed. I saw my new MO today and I really like her! My old MO seemed to disappear. I was told three weeks ago, when I was a few days away from my appt. with my old MO, that she is no longer seeing patients and may never see patients in the future. Nobody, including the staff, knows what happened to her. Anyway, the new MO looked at my lumps and said that she would be surprised if they turned out to be cancer. We will see. She said that due to my recurrence history, I should stay on the Arimidex for AT LEAST 10 years. Ugh! She offered to give me a prescription for Effexor for the hot flashes but I said I wanted to wait and see if they, along with the hair loss, get better over the next couple months. She also suggested I get my ovaries out and was thrilled that I already had a consultation scheduled with a specific surgeon on Monday. She said he is very good, which is what I had already heard from a couple people. I'm supposed to get in to see my PCP to check my thyroid again. She said it could be contributing to my SEs. So, overall, it was a good appointment!

Dx 2/12/2008, DCIS, Stage 0, Grade 2, 0/2 nodes, ER+/PR- Dx 8/22/2019, IDC, Left, <1cm, Stage IA, ER+/PR+, HER2- Radiation Therapy 10/7/2019 Whole-breast: Breast Hormonal Therapy 11/29/2019 Zoladex (goserelin) Hormonal Therapy 12/6/2019 Arimidex (anastrozole)
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Feb 6, 2020 07:16AM KBeee wrote:

It sounds like you've got a rockstar new MO. Keep us posted on the biopsies. I'm with you. I'd want to know 100%.

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/26/2013 Mastectomy: Left, Right Chemotherapy 9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/23/2014 Reconstruction (left); Reconstruction (right) Surgery 1/29/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Surgery 2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Chemotherapy 3/31/2015 AC + T (Taxol) Radiation Therapy 8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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Feb 14, 2020 10:56AM mocame wrote:

I just got the results of my biopsies...It's not cancer! Yay! The nurse said it was inflammation. I'm wondering if it was from the radiation that I just finished up in November? I am so relieved!

Dx 2/12/2008, DCIS, Stage 0, Grade 2, 0/2 nodes, ER+/PR- Dx 8/22/2019, IDC, Left, <1cm, Stage IA, ER+/PR+, HER2- Radiation Therapy 10/7/2019 Whole-breast: Breast Hormonal Therapy 11/29/2019 Zoladex (goserelin) Hormonal Therapy 12/6/2019 Arimidex (anastrozole)
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Feb 15, 2020 07:10AM Yogatyme wrote:

mocame, so, so happy for you!! I just wanted to let you know that I had ovaries out last March and the surgery was a walk in the park in comparison to BMX. I had some tenderness for a few days but no real pain. I only had to use OTC Ibuprofen a few times and was back to work in a week. I could have gone back sooner but decided to take the time anyway. Again, so happy for you and glad you had those biopsies so you don’t have to worry!

Yogatyme Surgery 3/2/2019 Prophylactic ovary removal Dx 7/19/2019, IDC: Papillary, Right, <1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 8/12/2019 Mastectomy: Left, Right
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Feb 16, 2020 06:27AM mocame wrote:

Thank you, Yogatyme! Good to know. My surgery is scheduled for a Tuesday and the gyno surgeon said I should be ready to go back to work on Monday. My HR manager thought that was too soon. We will see. I also have a cyst in my vagina that they are also taking out so I hope that doesn't hinder me going back to work on Monday. I need all the paid sick time I can get because I will need another surgery, probably in the fall, to replace my implant that ruptured.

Dx 2/12/2008, DCIS, Stage 0, Grade 2, 0/2 nodes, ER+/PR- Dx 8/22/2019, IDC, Left, <1cm, Stage IA, ER+/PR+, HER2- Radiation Therapy 10/7/2019 Whole-breast: Breast Hormonal Therapy 11/29/2019 Zoladex (goserelin) Hormonal Therapy 12/6/2019 Arimidex (anastrozole)
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Feb 19, 2020 07:43AM Mimiraffo wrote:

I found this site invaluable and a real anchor when I was first diagnosed in 2011 with stage II.

Nine years later and here I am. I've skin stuck to my rib. I feel pain and I have a breast clinic appointment next Wednesday. I was signed off from oncology 3yrs ago. All I can do is wait and see. I had a double mastectomy and no reconstruction as I developed a blood clot in my heart which was caused by the indwelling portacath that was used to administer chemotherapy or Tamoxifen that I had only started using. I'm grand, no cardiac complaints despite 1.6cm blob waving back at me.

Of course I'm concerned this is some sort of chest wall rib recurrence or something. All I can do is wait and see..........thought I'd never be in a breast clinic again! Ah shure, wait and see....

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Feb 19, 2020 05:27PM MinusTwo wrote:

Mimi - holding you in my thoughts. So sorry your back again. My first diagnosis was also 2011. Hope the breast clinic can give you good news.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Feb 21, 2020 01:18PM KBeee wrote:

Mocame, great news!

Mimi, do keep us posted. Hoping all is okay. scary stuff.

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/26/2013 Mastectomy: Left, Right Chemotherapy 9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/23/2014 Reconstruction (left); Reconstruction (right) Surgery 1/29/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Surgery 2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Chemotherapy 3/31/2015 AC + T (Taxol) Radiation Therapy 8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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Feb 22, 2020 12:48PM mocame wrote:

Mimi, let us know how everything is going!

Dx 2/12/2008, DCIS, Stage 0, Grade 2, 0/2 nodes, ER+/PR- Dx 8/22/2019, IDC, Left, <1cm, Stage IA, ER+/PR+, HER2- Radiation Therapy 10/7/2019 Whole-breast: Breast Hormonal Therapy 11/29/2019 Zoladex (goserelin) Hormonal Therapy 12/6/2019 Arimidex (anastrozole)
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May 17, 2020 02:55AM jcp wrote:

mocame, hello this is JCP. I'm very happy that your biopsies were negative! Fantastic news! I had br ca 2005. I wanted to ask you something. My onc took me off the letrozole hormonal blocker about two years ago bc my bones were getting worse due to the femara. I was on tamoxifen for like 10 months and then was switched to letrozole for a total of 10.5 years on both blockers. I wanted to continue on then but bc of bone loss they said I really had to stop. I saw your dr said at least 10 years. My dr had said to me there was no additional benefit from what they've seen from being on it for more than 10 years. I see your dr said at least 10, so that makes me wonder. My bones have improved since I've been off so I was thinking maybe I could go back on . Someone said due to osteoporosis on this site they were postmenopausal but went on tamoxifen due to bones. Thank you for listening. I go on Thursday for a ct scan of chest. My xray showed an area of calcification and the asthma dr referred me to pulmonologist who ordered one. Finally getting it on Thursday. Very happy for you!!! Please keep me in prayers that ct scan is normal. Thank you! .9mm , er+ pr+ her2neu negative. Lumpectomy, no nodes, grade 2 oncotype in 2005 18. Chemo AC , rads whole breast

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