Join Us

We are 217,694 members in 84 forums discussing 160,686 topics.

Help with Abbreviations

Topic: 14 Years Post DCIS - Scared

Forum: Not Diagnosed With a Recurrence or Metastases but Concerned —

Meet others concerned about developing a recurrence or metastases.

Posted on: Feb 4, 2020 10:53AM

redspark3 wrote:

Hi There. I had dcis in 2006 in my right breast that was extensive multi centric and multi focal, and had to have a mastectomy after failing to get clean margins. After my mastectomy, I had radiation on my chest wall, because I was told that due to my margins, it wasn’t an “if” but a “when” it would come back, and my options would be much worse. The RO assured me that it was minimal damage to my lungs, but, only six months after I finished radiation did I need an inhaler for the first time in my life to get rid of a bad cough. I had a CT scan and at that time they told me my lungs were clear. But, I now use a steroid inhaler full time along with my rescue inhaler. I have been short of breath for the past six or so months and I have also been having pain in my right shoulder blade. I have a CT scan scheduled for Monday, but, I am terrified that it is cancer. I thought I would come on here, because it helped me so much in the past. Thanks for reading

Mastectomy, 28 radiation treatments. No boost Dx 1/19/2006, DCIS, Right, 2cm, Stage 0, Grade 2, 0/1 nodes, ER+/PR+
Log in to post a reply

Page 1 of 1 (5 results)

Posts 1 - 5 (5 total)

Log in to post a reply

Feb 4, 2020 02:33PM Moderators wrote:

Hi redspark3,

We're so sorry you're back here and worrying. We just wanted to share that we're thinking of you and sending our very best for good results on Monday. We know the waiting can be hard, but we're all right here for you. Please let us know what you find out!

--The Mods

To send a Private Message to the Mods: community.breastcancer.org/mem...
Log in to post a reply

Feb 4, 2020 10:42PM redspark3 wrote:

Thank you so much, I greatly appreciate that! Yes, I agree, the waiting and unknowing is the worst. I wish I had never had that radiation.

Mastectomy, 28 radiation treatments. No boost Dx 1/19/2006, DCIS, Right, 2cm, Stage 0, Grade 2, 0/1 nodes, ER+/PR+
Log in to post a reply

Feb 6, 2020 09:10AM KBeee wrote:

Keep us posted! Hoping you get good news.

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/26/2013 Mastectomy: Left, Right Chemotherapy 9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/23/2014 Reconstruction (left); Reconstruction (right) Surgery 1/29/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Surgery 2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Chemotherapy 3/31/2015 AC + T (Taxol) Radiation Therapy 8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
Log in to post a reply

May 1, 2020 02:38AM - edited May 1, 2020 02:39AM by jcp

Redspark3, i can totally relate. It has been 14 and a half years since my br ca dx of IDC, grade 2, stage 1, E+, P+. HAD lumpectomy and chemo Ac and rads to whole breast right side. Well I had been having asthma issues so finally went to asthma allergy specialist and they did a standard chest xray . Well there is an area of calcification seen on left side near hilar region where everything comes together in chest . Referred to pulmonologist and she just ordered ct scan of chest. . So afraid. I hope you are doing ok now. Sincerely JCP





Log in to post a reply

May 11, 2020 02:53AM jcp wrote:

redspark3, I hoped pray all is okay. I have a CT scan this week. JCP

Page 1 of 1 (5 results)