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Topic: Waiting for Biopsy Results - Possible Recurrence

Forum: Not Diagnosed With a Recurrence or Metastases but Concerned —

Meet others concerned about developing a recurrence or metastases.

Posted on: Feb 10, 2020 12:29PM - edited Feb 10, 2020 02:48PM by Mudstick

Mudstick wrote:

Long story short - I had positive margins for DCIS after my skin sparing mastectomy in October 2018 for IDC/DCIS ER/PR+, HER2-. My Oncotype was 14 and with no nodal involvement, so no chemo recommended. Radiation was not recommended either - the doctor said that DCIS was "wimpy cancer". So, I've been on tamoxifen for the past year.

Unfortunately, I found a small lump near my scar this past Christmas (2019). I visited my surgical oncologist, who tried to be reassuring by saying 90% of the time these lumps are scar/fat necrosis. She sent me for an U/S and Mammogram that happened on January 27. The U/S tech noted there were actually 2 masses on top of one another (7mm and 3mm). The radiologist classified my imaging as BIRADS 3 (2-3% risk of malignancy) and recommended re-imaging in 6 months. Given my history (multifocal IDC, LVI and positive DCIS margins) - I was not comfortable waiting 6 months to see if anything changed.

They couldn't book my biopsy until March 13th (low priority). However, luckily I was booked for my Stage 2 DIEP surgery (scar revision, fat grafting) and my Plastic surgeon agreed to do an excisional biopsy while I was under general anesthetic. My surgery was last week (Feb 4th) and now I'm sitting on the waiting train, trying to focus on the 97% chance that this is benign.

I'm not really looking for advise I guess...just company from those who understand what its like to wait for results while trying not to go too crazy!

Dx at 43 (2018) with multi-focal IDC (1.7cm largest) + microinvasive DCIS 7.5 cm. LVI + Positive Anterior Margin for DCIS. Local Recurrence February 2020 Dx 9/2018, DCIS/IDC, Right, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 10/11/2018 Mastectomy: Right; Reconstruction (right): DIEP flap Hormonal Therapy 1/1/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 2/2020, IDC, Right, <1cm, Grade 2, ER+/PR+, HER2- (IHC) Surgery Lumpectomy: Right Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Feb 10, 2020 02:46PM smc123 wrote:

Stay busy and do anything that will distract yourself...binge watch something on Netflix or Amazon! While waiting for my test results I met friends for coffee, organized all of my family photos and exercised. Good luck!

Dx 2/1/2016, IDC, Left, Grade 3, ER-/PR-, HER2- Chemotherapy 2/23/2016 AC + T (Taxol) Surgery 8/1/2016 Lymph node removal: Underarm/Axillary; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Radiation Therapy 10/4/2016 Breast, Lymph nodes Surgery 4/3/2017 Reconstruction (left): Saline implant; Reconstruction (right): Saline implant
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Feb 10, 2020 03:29PM Mudstick wrote:

Thanks for your response smc12.

I'm certainly trying to stay busy and with 2 young kids, it's not too hard...however focusing at work is definitely a challenge :-)

Fingers, toes and everything crossed for a benign finding!!

Dx at 43 (2018) with multi-focal IDC (1.7cm largest) + microinvasive DCIS 7.5 cm. LVI + Positive Anterior Margin for DCIS. Local Recurrence February 2020 Dx 9/2018, DCIS/IDC, Right, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 10/11/2018 Mastectomy: Right; Reconstruction (right): DIEP flap Hormonal Therapy 1/1/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 2/2020, IDC, Right, <1cm, Grade 2, ER+/PR+, HER2- (IHC) Surgery Lumpectomy: Right Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Feb 11, 2020 08:25AM KBeee wrote:

Hoping your results come quickly and that all is benign. I hope you recover quickly from surgery.

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/26/2013 Mastectomy: Left, Right Chemotherapy 9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/23/2014 Reconstruction (left); Reconstruction (right) Surgery 1/29/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Surgery 2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Chemotherapy 3/31/2015 AC + T (Taxol) Radiation Therapy 8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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Feb 13, 2020 08:19AM Mudstick wrote:

Thanks kbee. Still waiting and torturing myself Loopy

I did get the mammo and u/s report, which briefly satisfied my desire for information....I'm praying I get a call before the weekend, so I can relax (or prepare) and enjoy it with a less scrambling, anxiety ridden brain!

Dx at 43 (2018) with multi-focal IDC (1.7cm largest) + microinvasive DCIS 7.5 cm. LVI + Positive Anterior Margin for DCIS. Local Recurrence February 2020 Dx 9/2018, DCIS/IDC, Right, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 10/11/2018 Mastectomy: Right; Reconstruction (right): DIEP flap Hormonal Therapy 1/1/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 2/2020, IDC, Right, <1cm, Grade 2, ER+/PR+, HER2- (IHC) Surgery Lumpectomy: Right Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Feb 17, 2020 01:51PM Mudstick wrote:

My surgery happened 2 weeks ago (tomorrow) and I'm still waiting for biopsy results :-( I have a follow-up with the Plastic Surgeon on Wednesday morning and I'm really, really, hoping they will be available. Waiting is torture!

Dx at 43 (2018) with multi-focal IDC (1.7cm largest) + microinvasive DCIS 7.5 cm. LVI + Positive Anterior Margin for DCIS. Local Recurrence February 2020 Dx 9/2018, DCIS/IDC, Right, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 10/11/2018 Mastectomy: Right; Reconstruction (right): DIEP flap Hormonal Therapy 1/1/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 2/2020, IDC, Right, <1cm, Grade 2, ER+/PR+, HER2- (IHC) Surgery Lumpectomy: Right Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Feb 17, 2020 03:27PM ctmbsikia wrote:

I'd be hunting people down for waiting this long!!!!

Hoping all goes well!

I had a Birads 3 score on MRI last June. In Dec it was a 4 so I just had a biopsy and it was fat necrosis. I had those results via a phone call in less than 24 hrs. from the biopsy.


Dx 12/14/2017, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 1/16/2018, LCIS, Right Surgery 1/30/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/10/2018 Whole-breast: Breast Hormonal Therapy 6/25/2018 Arimidex (anastrozole)
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Feb 18, 2020 03:02PM Mudstick wrote:

Thanks for the support ctmbsikia! Glad your results were fast and B9 :-)

I called both the plastic surgeon's office and the surgical oncologist's office today - hoping for anything to ease my anxiety. I don't even care if its bad news, it's would be an answer that takes me out of this torturous limbo (OK - that isn't true. I care - I care a lot, but I'm losing it!!)

Both offices said my file indicated the biopsy is "Active - In progress". We had a holiday here on Monday and they said maybe that could be slowing things down.....but results generally take 2-3 weeks regardless. I checked my pathology report from my mastectomy in 2018 and it was finalized exactly 2 weeks after my surgery.

I wish I could just put the fear and anxiety in a little box and hide it for the next week so I don't have to deal with it.......

Dx at 43 (2018) with multi-focal IDC (1.7cm largest) + microinvasive DCIS 7.5 cm. LVI + Positive Anterior Margin for DCIS. Local Recurrence February 2020 Dx 9/2018, DCIS/IDC, Right, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 10/11/2018 Mastectomy: Right; Reconstruction (right): DIEP flap Hormonal Therapy 1/1/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 2/2020, IDC, Right, <1cm, Grade 2, ER+/PR+, HER2- (IHC) Surgery Lumpectomy: Right Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Feb 18, 2020 03:45PM ctmbsikia wrote:

Are you in the US or Canada? Or somewhere else?

I really hope you get answers at your appt. then.

Dx 12/14/2017, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 1/16/2018, LCIS, Right Surgery 1/30/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/10/2018 Whole-breast: Breast Hormonal Therapy 6/25/2018 Arimidex (anastrozole)
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Feb 18, 2020 04:12PM UpstateNYer wrote:

Hello Mudstick,

Playing the waiting game is the worst! I had positive margins twice after my lumpectomy last March. First margin positive for idc/dcis, second time for dcis only. Before I was to have my 3rd surgery, got kicked in the face with a high onco score, so needed chemo before they would do final surgery. Anyway, I was able to personally meet with my wonderful pathologist who went over my slides after first positive margins. She also "rushed" the final specimen (seeing it was my 3rd surgery and I asked her nicely ) for me. I had surgery on a Wednesday and had results the following Monday. She had 2 other pathologists look at my slides as well. There definitely is a protocol to the way specimens are to be processed and that can't be rushed. Unless your facility has a huge backlog of specimens to be processed, you should have had an answer within 10 days or so. I pray that you get negative results and I will keep you in my prayers.

Take care. Pat

Into every life a little rain must fall Dx 2/6/2019, DCIS/IDC, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER+/PR+, HER2- (FISH) Dx 2/8/2019, IDC, Right, <1cm, Stage IA, Grade 3, ER+/PR-, HER2- (FISH) Surgery 3/20/2019 Lumpectomy: Right Surgery 4/2/2019 Lumpectomy: Right Chemotherapy 5/7/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 8/6/2019 Lumpectomy Hormonal Therapy 9/5/2019 Arimidex (anastrozole) Radiation Therapy 9/10/2019
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Feb 18, 2020 04:22PM Mudstick wrote:

Thanks for the replies and thoughts ctmbsikia & UpstateNYer!

I am in Canada - so the public health system is likely slower than most US hospitals. I read the hospital website and they process 400 specimens and 2500 slides per day :-( I'm also certain I was not flagged as a high priority :-)

I'm having a glass of wine after work today. Screw it.



Dx at 43 (2018) with multi-focal IDC (1.7cm largest) + microinvasive DCIS 7.5 cm. LVI + Positive Anterior Margin for DCIS. Local Recurrence February 2020 Dx 9/2018, DCIS/IDC, Right, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 10/11/2018 Mastectomy: Right; Reconstruction (right): DIEP flap Hormonal Therapy 1/1/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 2/2020, IDC, Right, <1cm, Grade 2, ER+/PR+, HER2- (IHC) Surgery Lumpectomy: Right Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Feb 18, 2020 04:53PM UpstateNYer wrote:

Mudstick,

Enjoy that glass of wine. You go, girl. Hoping and praying for negative pathology for you. Try to keep busy and do some things you really enjoy. I know , easier said. If I had everything to do over, I would have worried less. As someone on one of these forums quoted, "worry doesn't take the sorrow from tomorrow, it takes the strength from today". Positive sunny thoughts.🙏 🔆

Into every life a little rain must fall Dx 2/6/2019, DCIS/IDC, Right, 1cm, Stage IA, Grade 3, 0/1 nodes, ER+/PR+, HER2- (FISH) Dx 2/8/2019, IDC, Right, <1cm, Stage IA, Grade 3, ER+/PR-, HER2- (FISH) Surgery 3/20/2019 Lumpectomy: Right Surgery 4/2/2019 Lumpectomy: Right Chemotherapy 5/7/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 8/6/2019 Lumpectomy Hormonal Therapy 9/5/2019 Arimidex (anastrozole) Radiation Therapy 9/10/2019
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Feb 18, 2020 11:52PM - edited Feb 18, 2020 11:53PM by Xtra

@Mudstick I am thinking of you! I hope you get your call soon!

Dx 5/24/2019, IDC, Right, 1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- (FISH) Surgery 6/18/2019 Mastectomy: Left; Reconstruction (left): Silicone implant Surgery 6/19/2019 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Silicone implant
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Feb 18, 2020 11:54PM - edited Feb 18, 2020 11:54PM by Xtra

This Post was deleted by Xtra.
Dx 5/24/2019, IDC, Right, 1cm, Stage IA, Grade 1, 0/1 nodes, ER+/PR+, HER2- (FISH) Surgery 6/18/2019 Mastectomy: Left; Reconstruction (left): Silicone implant Surgery 6/19/2019 Lymph node removal: Sentinel; Mastectomy: Right; Reconstruction (right): Silicone implant
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Feb 19, 2020 11:05AM Mudstick wrote:

Had my follow-up with the plastic surgeon this morning. No biopsy results yet - but I figured that would be the case. She tried to be very re-assuring and said that the mass she took out was just a cyst and not to worry. I told her I can't stop worrying until I get the definitive results. Then she floored me and said it could take up to 4 weeks!!! Shoot me now...I'll be fit to be tied waiting that long!

Grrrrrrr

Dx at 43 (2018) with multi-focal IDC (1.7cm largest) + microinvasive DCIS 7.5 cm. LVI + Positive Anterior Margin for DCIS. Local Recurrence February 2020 Dx 9/2018, DCIS/IDC, Right, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 10/11/2018 Mastectomy: Right; Reconstruction (right): DIEP flap Hormonal Therapy 1/1/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 2/2020, IDC, Right, <1cm, Grade 2, ER+/PR+, HER2- (IHC) Surgery Lumpectomy: Right Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Feb 19, 2020 11:31AM ctmbsikia wrote:

Good grief!!! You're gonna need a bigger glass of wine!

Dx 12/14/2017, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 1/16/2018, LCIS, Right Surgery 1/30/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/10/2018 Whole-breast: Breast Hormonal Therapy 6/25/2018 Arimidex (anastrozole)
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Feb 21, 2020 02:07AM beep7bop wrote:

Well hoping all comes back good for you. The waiting is awful. I am having a problem also. Had my reconstruction surgery December 31, 2019. I am seeing breast surgeon this Tuesday for a peanut size mass. I think it might be a node. But it didn't show on ultrasound, which I thought was good but they are sending me back to breast surgeon for biopsy.

Dx 3/11/2019, ILC/IDC, Both breasts, 1cm, Stage IA, Grade 2, ER+/PR+, HER2- Surgery Lymph node removal: Sentinel; Mastectomy: Left, Right
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Feb 25, 2020 03:57PM Mudstick wrote:

Hi beep7bop - sorry for the late response! How did your appointment go with your surgeon? I'm hoping that because it is early after your surgery, that the lump you are feeling is fat necrosis or scaring.

I made a complaint to the Patient Advocacy section of my hospital and received a call from an Adviser today. She checked my chart and my results are still NOT ready. Today makes it 3 weeks since my surgery and biopsy....she was going to follow-up with the Pathology Lab and get back to me (although she didn't say when). She thought the Lab had seen an unusual increase in samples and was running in a backlog. This combined with the many different stains they apply to breast samples, it could be why it is taking longer than expected. I just want to move forward....

Dx at 43 (2018) with multi-focal IDC (1.7cm largest) + microinvasive DCIS 7.5 cm. LVI + Positive Anterior Margin for DCIS. Local Recurrence February 2020 Dx 9/2018, DCIS/IDC, Right, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 10/11/2018 Mastectomy: Right; Reconstruction (right): DIEP flap Hormonal Therapy 1/1/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 2/2020, IDC, Right, <1cm, Grade 2, ER+/PR+, HER2- (IHC) Surgery Lumpectomy: Right Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Feb 25, 2020 04:51PM - edited Feb 25, 2020 04:51PM by Oceanbum

Wow, Mudstick, I'm sorry it's taking so long to get your biopsy results. That must be so frustrating. I remember waiting 4 days for my results - both times - and it seemed like an eternity! I can't imagine waiting 3 weeks. You have more patience than I do, probably more than most people. Lol I'm sending you hugs and prayers for good results.

Becky ~ "Sometimes we're tested not to show our weaknesses, but to discover our strengths." Surgery 11/2/2000 Dx 3/6/2017, IDC, Right, <1cm, Stage IA, Grade 1, ER+/PR+, HER2- Dx 3/21/2017, IDC, Left, 1cm, Stage IA, Grade 3, ER+/PR+, HER2+ Targeted Therapy 4/21/2017 Perjeta (pertuzumab) Targeted Therapy 4/21/2017 Herceptin (trastuzumab) Chemotherapy 4/21/2017 Carboplatin (Paraplatin), Taxotere (docetaxel) Surgery 9/5/2017 Lymph node removal: Sentinel; Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Hormonal Therapy 9/25/2017 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Targeted Therapy 10/3/2017 Herceptin (trastuzumab) Surgery 12/15/2017 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Surgery 4/20/2018 Reconstruction (left): Fat grafting; Reconstruction (right): Fat grafting Hormonal Therapy 12/6/2018 Arimidex (anastrozole) Surgery 6/7/2019 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant
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Feb 25, 2020 09:11PM ToughCookie101 wrote:

That is stressful Mudstick. But hang in there!! I hear ya regarding the slow medical system. I live in Canada too and although I am thankful to have been blessed with a great medical team, I have had some pretty long waits since my diagnosis, and I am a pain in the butt and constantly (but kindly) call the hospital when I am waiting for results or an appointment. When I was waiting for an ultrasound recently one of the booking clerks said she felt like we were becoming best friends, haha


After I was diagnosed on my left breast (after a birads 5), I had a non-palpable birads 4 mass found in my right breast during my MRI. It was biopsied and it turned out to be benign (a pash tumor). I am now going for fat grafting in March, and at the same time they will excise and test three small lumps that I recently found on the left side. They were already images and they also weren’t overly concerned by them however recommended follow-up imaging in six months I would rather them gone.

All that to say that I understand your fear, and the waiting sucks. Odds are it is benign. I hope you hear back really soon!!

Diagnosed at 33 after finding my lump myself. Dx 11/15/2017, IDC, Left, 2cm, Grade 3, 0/1 nodes, ER+/PR+, HER2- Surgery 1/31/2018 Lymph node removal: Sentinel; Mastectomy: Left; Reconstruction (left): Tissue expander placement Chemotherapy 4/3/2018 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Surgery 12/5/2018 Prophylactic mastectomy: Right; Reconstruction (right): Tissue expander placement Surgery 12/16/2018 Reconstruction (right) Surgery 3/31/2019 Reconstruction (right) Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone), Zoladex (goserelin)
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Feb 26, 2020 10:01AM Mudstick wrote:

Thanks for the kind words and support and understanding Smile.

I made a complaint (politely) to the patient advocacy group at the hospital about the length of turn around time and anxiety it is causing me. An advisor called back and said she checked my chart and there are still no results, so she would follow up with the Pathology Lab and get back to me. She did say she thought they were in back log, and the current wait time has been longer than usual :-( I leave for a work related trip this weekend, so I'm really, really hoping that my results are in before I leave!

Dx at 43 (2018) with multi-focal IDC (1.7cm largest) + microinvasive DCIS 7.5 cm. LVI + Positive Anterior Margin for DCIS. Local Recurrence February 2020 Dx 9/2018, DCIS/IDC, Right, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 10/11/2018 Mastectomy: Right; Reconstruction (right): DIEP flap Hormonal Therapy 1/1/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 2/2020, IDC, Right, <1cm, Grade 2, ER+/PR+, HER2- (IHC) Surgery Lumpectomy: Right Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Feb 26, 2020 11:37AM moth wrote:

This is really crazy stuff you guys. I'm in Canada too and I guess today I'm writing this down in my gratitude journal - my doctors often get a verbal report from patho or radiology within 24hr. Sometimes it's literally less than a couple hours. I barely got home from the scans & was making a cup of tea when my dr called me with results.

One other thing I appreciate about my doctors & I'd encourage you to ask your drs to do this too - ask them to "assume the worst from this test" Where would you most likely send me next? CT? Surgeon? ultrasound? whatever it is - BOOK it now. It's easier to cancel and there are always people waiting for last minute / urgent / STAT appointments, rather than getting results and then trying to book the next thing.

Mudstick - fingers crossed for you for speedy and benign results!!

Seriously???? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." nevertellmetheodds2017.tumblr.... Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/13/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/18/2020 Tecentriq (atezolizumab)
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Feb 26, 2020 11:56AM Mudstick wrote:

That is a great idea moth !! I wish I had said something like this to the SO and PS during this journey. I will keep that tip in my back pocket from now on :-)

I feel like my initial diagnosis in 2018 moved rapidly (BIRADS 5) and had biopsy, Surgical consult, MRI and all pathology completed within 2 weeks. This time, I feel like there is a very low sense of urgency from the doctors. Especially the plastic surgeon, who performed the excisional biopsy during my Stage 2 DIEP recon....

I was looking in my patient portal today and noted that the surgical notes don't actually state a biopsy was performed (notes entered by a student, not the primary surgeon). They only report the scar revision, fat grafting and removal of 3 moles.....that is kinda freaking me out right now.

I have an incredible recurring history of mistakes being made. Some of my medical chart recorded the wrong breast, my wrong age, wrong surgeon etc. I seem to get lost in systems - hotel and restaurant reservations go missing or aren't recorded, my biopsy/pathology sample to send for Oncotype testing was "lost/misplaced" for over 2 weeks in the hospital and it took a month to get my results . I feel like I have an invisibility cloak sometimes!

I'm trying to remain positive, but the frustration is leaking into me. I'm more irritable and snappy with the family and really struggling to focus on my work.

Dx at 43 (2018) with multi-focal IDC (1.7cm largest) + microinvasive DCIS 7.5 cm. LVI + Positive Anterior Margin for DCIS. Local Recurrence February 2020 Dx 9/2018, DCIS/IDC, Right, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 10/11/2018 Mastectomy: Right; Reconstruction (right): DIEP flap Hormonal Therapy 1/1/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 2/2020, IDC, Right, <1cm, Grade 2, ER+/PR+, HER2- (IHC) Surgery Lumpectomy: Right Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Feb 28, 2020 08:23AM Mudstick wrote:

Well, my instincts were right to be concerned. Pathology results show a recurrence :-(

I meet with my surgical oncologist on March 9th to discuss plans etc. I'm not at devastated as I thought (not yet anyway) - I was preparing for the worst.

Dx at 43 (2018) with multi-focal IDC (1.7cm largest) + microinvasive DCIS 7.5 cm. LVI + Positive Anterior Margin for DCIS. Local Recurrence February 2020 Dx 9/2018, DCIS/IDC, Right, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 10/11/2018 Mastectomy: Right; Reconstruction (right): DIEP flap Hormonal Therapy 1/1/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 2/2020, IDC, Right, <1cm, Grade 2, ER+/PR+, HER2- (IHC) Surgery Lumpectomy: Right Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Feb 28, 2020 12:31PM moth wrote:

Sorry to hear that Mudstick :(

hang in there. hope your MO comes up with the most excellent plan for you.

Will you be having CT scans of chest and abdomen?

Seriously???? “Sometimes the future changes quickly and completely and we’re left with only the choice of what to do next." nevertellmetheodds2017.tumblr.... Dx 12/2017, IDC, Left, 1cm, Stage IA, Grade 3, 0/5 nodes, ER-/PR-, HER2- (IHC) Surgery 12/12/2017 Lumpectomy: Left; Lymph node removal: Sentinel Chemotherapy 2/13/2018 AC + T (Taxol) Radiation Therapy 8/13/2018 Whole-breast: Breast Dx 2/2020, IDC, Stage IV, metastasized to liver/lungs, Grade 3, ER-/PR-, HER2- Chemotherapy 3/18/2020 Taxol (paclitaxel) Immunotherapy 3/18/2020 Tecentriq (atezolizumab)
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Mar 1, 2020 12:18PM Mudstick wrote:

Thanks Moth - I hope so too!!!

I don’t know what is in store yet for testing or treatment...I’ll hear a bit next week, but only from the Surgical Oncologist....

Dx at 43 (2018) with multi-focal IDC (1.7cm largest) + microinvasive DCIS 7.5 cm. LVI + Positive Anterior Margin for DCIS. Local Recurrence February 2020 Dx 9/2018, DCIS/IDC, Right, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 10/11/2018 Mastectomy: Right; Reconstruction (right): DIEP flap Hormonal Therapy 1/1/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 2/2020, IDC, Right, <1cm, Grade 2, ER+/PR+, HER2- (IHC) Surgery Lumpectomy: Right Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Mar 5, 2020 05:29PM KBeee wrote:

Mudstick, I am sorry to hear you are dealing with a recurrence. PM if you have questions. I've traveled that road. ((((HUGS))))

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/26/2013 Mastectomy: Left, Right Chemotherapy 9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/23/2014 Reconstruction (left); Reconstruction (right) Surgery 1/29/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Surgery 2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Chemotherapy 3/31/2015 AC + T (Taxol) Radiation Therapy 8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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Mar 6, 2020 01:31PM Mudstick wrote:

Thanks for your kindness and support KBee. I've read your experience on these boards and it's been super helpful.

I’m anxious to speak with my Surgical Oncologist on Monday. I don’t have answers with respect to hormone receptors and my margins for the excisional biopsy stated “at least 1mm”. So, I’m wondering if they will want to go back in and do a wider excision. I’d also like to figure out what imaging or other testing is in my future.

Plus discuss Oncotype testing and the MO’s recommendation regarding chemo....

I’m 99.99% sure of radiation, since I didn’t have it during my first party.

Focusing on the positive and looking forward to determining the plan!

Dx at 43 (2018) with multi-focal IDC (1.7cm largest) + microinvasive DCIS 7.5 cm. LVI + Positive Anterior Margin for DCIS. Local Recurrence February 2020 Dx 9/2018, DCIS/IDC, Right, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 10/11/2018 Mastectomy: Right; Reconstruction (right): DIEP flap Hormonal Therapy 1/1/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 2/2020, IDC, Right, <1cm, Grade 2, ER+/PR+, HER2- (IHC) Surgery Lumpectomy: Right Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Mar 19, 2020 06:29PM KBeee wrote:

Mudstick, how did your appointment go? I first met with an MO at a major medical clinic. That doc recommended no chemo for me, and refused to do the Oncotype, even when I said I'd pay for it. They insisted it was just some cancer my docs had missed, but my gut said otherwise. I met with a local oncologist after that. This MO was new for me (had fired previous local MO who told me to ignore a lump). This new MO agreed with me, and ordered Oncotype (which insurance covered in full) and it came back quite high. After that, major medical clinic agreed that chemo was in order. What is your plan now?

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/26/2013 Mastectomy: Left, Right Chemotherapy 9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/23/2014 Reconstruction (left); Reconstruction (right) Surgery 1/29/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Surgery 2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Chemotherapy 3/31/2015 AC + T (Taxol) Radiation Therapy 8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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Mar 19, 2020 06:52PM Mudstick wrote:

Thanks for sharing your experience KBee.

So far I’ve had my re-staging imaging, and just heard today that both the CT and bone scan were clean. Phew. My RO is recommending radiation, but is discussing with the rumour board whether to radiate the node area or not. My planning is currently booked for April 2nd.

I don’t meet with my MO until March 31....no hormone markers available yet either.

Thanks for checking in 😊

Dx at 43 (2018) with multi-focal IDC (1.7cm largest) + microinvasive DCIS 7.5 cm. LVI + Positive Anterior Margin for DCIS. Local Recurrence February 2020 Dx 9/2018, DCIS/IDC, Right, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 10/11/2018 Mastectomy: Right; Reconstruction (right): DIEP flap Hormonal Therapy 1/1/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 2/2020, IDC, Right, <1cm, Grade 2, ER+/PR+, HER2- (IHC) Surgery Lumpectomy: Right Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Apr 10, 2020 01:25PM Kimmh012 wrote:

hello Mudstick, just wondering how your doing? ... I am schedule for scans Monday 4/13, mammo, ultrasound and another Chest CT. 3/22/19, little over 1 year ago I was diagnosed TPBC, stage 2b, grade 3 blah blah... I found a hard spot/lump a little over a week ago, same breast opposite side. Mad as hell because my Chest CT Jan 2020 for RADS said everything was normal, and #3 Lumpectomy Nov 6, 2019 pathology said NED, now I have a damn grape. Not sure on treatment as I had both Chemo Regimes last year (2 rounds Taxotere C/H/P, 4 rounds AC).

Hope all is well!

~ALWAYS AN ADVENTURE~ Dx 3/22/2019, IDC, Left, 2cm, Stage IIA, Grade 3, 1/1 nodes, ER+/PR+, HER2+ (FISH) Surgery 4/2/2019 Lumpectomy: Left; Lymph node removal: Sentinel Surgery 4/30/2019 Lumpectomy: Left Dx 5/1/2019, DCIS, Left, 1cm, Stage 0, Grade 3, 1/1 nodes, ER+/PR+, HER2+ (FISH) Chemotherapy 5/12/2019 Carboplatin (Paraplatin), Taxotere (docetaxel) Chemotherapy 6/23/2019 AC Chemotherapy 9/16/2019 Taxotere (docetaxel) Targeted Therapy 9/17/2019 Herceptin (trastuzumab) Surgery 11/5/2019 Lumpectomy Radiation Therapy 1/12/2020 Whole-breast: Breast, Lymph nodes Hormonal Therapy 2/29/2020 Arimidex (anastrozole) Hormonal Therapy 4/27/2020 Aromasin (exemestane)

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