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Feb 26, 2020 11:56AM
That is a great idea moth !! I wish I had said something like this to the SO and PS during this journey. I will keep that tip in my back pocket from now on :-)
I feel like my initial diagnosis in 2018 moved rapidly (BIRADS 5) and had biopsy, Surgical consult, MRI and all pathology completed within 2 weeks. This time, I feel like there is a very low sense of urgency from the doctors. Especially the plastic surgeon, who performed the excisional biopsy during my Stage 2 DIEP recon....
I was looking in my patient portal today and noted that the surgical notes don't actually state a biopsy was performed (notes entered by a student, not the primary surgeon). They only report the scar revision, fat grafting and removal of 3 moles.....that is kinda freaking me out right now.
I have an incredible recurring history of mistakes being made. Some of my medical chart recorded the wrong breast, my wrong age, wrong surgeon etc. I seem to get lost in systems - hotel and restaurant reservations go missing or aren't recorded, my biopsy/pathology sample to send for Oncotype testing was "lost/misplaced" for over 2 weeks in the hospital and it took a month to get my results . I feel like I have an invisibility cloak sometimes!
I'm trying to remain positive, but the frustration is leaking into me. I'm more irritable and snappy with the family and really struggling to focus on my work.
Dx at 43 (2018) with multi-focal IDC (1.7cm largest) + microinvasive DCIS 7.5 cm. LVI + Positive Anterior Margin for DCIS. Local Recurrence February 2020
9/2018, DCIS/IDC, Right, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2-
10/11/2018 Mastectomy: Right; Reconstruction (right): DIEP flap
1/1/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
2/2020, IDC, Right, <1cm, Grade 2, ER+/PR+, HER2- (IHC)
Cytoxan (cyclophosphamide), Taxotere (docetaxel)