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Topic: Local reoccurrence after mastectomy?

Forum: Not Diagnosed With a Recurrence or Metastases but Concerned —

Meet others concerned about developing a recurrence or metastases.

Posted on: Feb 12, 2020 03:42PM - edited Feb 12, 2020 03:45PM by fifi67

fifi67 wrote:

Looking for some advice please? I was diagnosed with ER/PR + HER2 neg IDC in March 2019. I had 2 unsuccessful lumpectomies (didn't get clear margins) followed by a mastectomy with immediate implant reconstruction in July last year. Lymph nodes were clear. I had a few post operative complications with cellulitis and skin allergies but by Sep last year all had resolved. I didn't have Chemo (oncotype score was 13) or radiotherapy but have been on tamoxifen since August. Just before Christmas I noticed a pale pink, round patch of skin under my mastectomy scar close to the cleavage area. This patch of skin became increasingly redder, inflamed and puffy and my initial worry was that it could be cellulitis again. There is also some 'peau d'orange' surrounding it. I saw my breast cancer surgeon in late and she prescribed antibiotics which I took for approx 5 weeks but there has been no real improvement. I have been seeing her regularly since Christmas but to date she has been unable to tell me what's causing it. I also saw a dermatologist who gave me betnovate cream to use but it didn't do anything either. Anyway at my last consultation my BC surgeon decided to ultrasound my breast which showed inflammation under the area in question however the radiographer also noticed that I had an enlarged lymph node on my BC side and decided to biopsy it. I am due to get the results this Friday and am in a panic that this red patch of skin could be a local reoccurrence in the skin. I am experiencing occasional darting pains in my breast but they come and go. I also have some breast lymphodema so I'm not sure if this could be contributing to the redness? I am wearing a compression bra during the day and notice that the redness seems to get worse at the end of the day.

I'm wondering if anyone has had a local reoccurrence that started like this?


Dx 3/29/2019, LCIS/DCIS/IDC, Right, 1cm, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 4/8/2019 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 5/13/2019 Lumpectomy: Right Surgery 7/1/2019 Mastectomy: Right; Reconstruction (right): Silicone implant Hormonal Therapy 8/15/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 4/2/2020 Reconstruction (right): Silicone implant
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Feb 13, 2020 08:32AM buttonsmachine wrote:

I'm sorry you're going through this. Can you ask your surgeon for a punch biopsy of the skin? It is an easy biopsy, and then you'll have some definitive answers, and hopefully some peace of mind.

My local recurrence in the skin was different from how yours sounds, but it's always good to be cautious when it comes to breast cancer.

Diagnosed at 32. Local recurrences in skin one year later due to needle seeding at initial biopsy. Dx 8/2016, IDC, Right, Stage IA, Grade 3, 0/2 nodes, ER+/PR+, HER2- Dx 10/2017, IDC, Right, Grade 3, 2/12 nodes, ER+/PR+, HER2-
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Feb 13, 2020 08:53AM Lisey wrote:

Also, consider looking up Breast Implant Illness. It is a real thing and some have symptoms just like yours.

Oncotype =20, ER 95%, PR 5%, ki67= 30%, Mammoprint = Low, Blueprint = Luminal A!!!! TEs= Iron Bra of Death - not worth all the complications for foobs that I'll never feel. Flat and fealess now. Dx 5/11/2016, IDC, Right, 1cm, Stage IA, Grade 2, 0/6 nodes, ER+/PR+, HER2- Surgery 6/1/2016 Lymph node removal: Sentinel Surgery 6/14/2016 Mastectomy: Left, Right; Reconstruction (left): Tissue expander placement; Reconstruction (right): Tissue expander placement Surgery 7/6/2016 Mastectomy: Left, Right Hormonal Therapy 7/14/2016 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Feb 13, 2020 09:18AM fifi67 wrote:

Thank you. I think a skin biopsy is the next step. At this stage whether it’s good or bad news I just want answers!

Dx 3/29/2019, LCIS/DCIS/IDC, Right, 1cm, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 4/8/2019 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 5/13/2019 Lumpectomy: Right Surgery 7/1/2019 Mastectomy: Right; Reconstruction (right): Silicone implant Hormonal Therapy 8/15/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 4/2/2020 Reconstruction (right): Silicone implant
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Feb 13, 2020 09:19AM fifi67 wrote:

Yes, thanks Lisey. I’ll do that.

Dx 3/29/2019, LCIS/DCIS/IDC, Right, 1cm, Grade 2, 0/3 nodes, ER+/PR+, HER2- Surgery 4/8/2019 Lumpectomy: Right; Lymph node removal: Sentinel Surgery 5/13/2019 Lumpectomy: Right Surgery 7/1/2019 Mastectomy: Right; Reconstruction (right): Silicone implant Hormonal Therapy 8/15/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 4/2/2020 Reconstruction (right): Silicone implant
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Feb 21, 2020 03:10PM KBeee wrote:

Hoping you are able to get a punch biopsy. Keep us posted.

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/26/2013 Mastectomy: Left, Right Chemotherapy 9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/23/2014 Reconstruction (left); Reconstruction (right) Surgery 1/29/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Surgery 2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Chemotherapy 3/31/2015 AC + T (Taxol) Radiation Therapy 8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)

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