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Topic: Possible cording?

Forum: Not Diagnosed With a Recurrence or Metastases but Concerned —

Meet others concerned about developing a recurrence or metastases.

Posted on: Feb 12, 2020 08:00PM

berries wrote:

I have a long line of hard tissue/cording extending from my armpit to halfway down my arm and at the end of it is this tiny lump/ball that I can feel.

Has anyone experienced this before after a MX? Is this normal scar tissue or should I be concerned?

Dx 8/6/2019, DCIS/IDC, Left, 5cm, Stage IB, Grade 1, 4/4 nodes, ER+/PR+, HER2- Surgery 9/18/2019 Mastectomy: Left; Reconstruction (right) Chemotherapy 10/24/2019 AC + T (Taxol) Surgery 2/17/2020 Reconstruction (left): Silicone implant Radiation Therapy
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Feb 13, 2020 12:52AM MinusTwo wrote:

You should get a referral to a lymphadema certified & trained PT. Below is a link that should give you more info. They can take care of the cording and teach you how to do continuing MLD. Also check the BCO lymphadema section.

https://www.stepup-speakout.org/


2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Feb 13, 2020 03:31AM berries wrote:

thank you!

Is a lump common to form on your arm? Is this something I should be worried about being something else though? Ugh. I hate this feeling.

Dx 8/6/2019, DCIS/IDC, Left, 5cm, Stage IB, Grade 1, 4/4 nodes, ER+/PR+, HER2- Surgery 9/18/2019 Mastectomy: Left; Reconstruction (right) Chemotherapy 10/24/2019 AC + T (Taxol) Surgery 2/17/2020 Reconstruction (left): Silicone implant Radiation Therapy
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Feb 13, 2020 08:08AM Mudstick wrote:

Hi Berries,

It sounds a lot like cording...I had it shortly after my MX and it was such a painful and odd feeling. Like a fishing rope tied to my armpit and pulling down to my wrist. You could see a thin line in my armpit when I reached over my head. I went to a LE specialist and had physiotherapy. After about 3 or 4 sessions it resolved (thankfully). I hope you are able to get some help and relief soon.

Dx at 43 with multifocal (6 tumors), microinvasive (DCIS 7.5 cm) and invasive (largest = 1.7 cm), ductal carcinoma with LVI. Positive Anterior margin for DCIS Dx 9/2018, DCIS/IDC, Right, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 10/12/2018 Mastectomy: Right; Reconstruction (right): DIEP flap Hormonal Therapy 1/1/2019 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Feb 13, 2020 10:53AM berries wrote:

would a tiny lumpby the fold of my arm be cording too? I am in a bit of panic.

Dx 8/6/2019, DCIS/IDC, Left, 5cm, Stage IB, Grade 1, 4/4 nodes, ER+/PR+, HER2- Surgery 9/18/2019 Mastectomy: Left; Reconstruction (right) Chemotherapy 10/24/2019 AC + T (Taxol) Surgery 2/17/2020 Reconstruction (left): Silicone implant Radiation Therapy
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Feb 13, 2020 12:35PM rockymountaingirl wrote:

If the tiny lump is at the end of the cord, it's probably just a lumpy bit of cord. I second the suggestion that you find a physical therapist, preferably one who is experienced in dealing with lymphadema since he or she will likely have seen quite a bit of cording too. If the therapist can't answer your questions about your little lump to your satisfaction, then call your surgeon's office and explain what you are concerned about. It's hard enough to deal with BC; you don't need mysterious little lumps to drive you crazy.

Dx 3/8/2018, IDC, Left, 1cm, Stage IA, Grade 3, 0/3 nodes, ER-/PR-, HER2- Dx 4/24/2018, DCIS, Left, Stage 0 Surgery 4/24/2018 Lumpectomy: Left Surgery 5/15/2018 Lumpectomy: Left Chemotherapy 6/10/2018 Carboplatin (Paraplatin), Taxol (paclitaxel) Radiation Therapy 9/27/2018 Whole-breast: Breast
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Feb 13, 2020 10:08PM MinusTwo wrote:

Berries - there are just too many variables for us to predict. As Rocky says, after you see the LEPT, call your surgeon. Of if you are more comfortable calling the surgeon first, do that.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Feb 21, 2020 03:11PM KBeee wrote:

I have cording that goes far down my arm. I do see a PT who specializes in treating BC issues. It has helped.

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/25/2013 Mastectomy: Left, Right Chemotherapy 9/19/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/11/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/22/2014 Reconstruction (left); Reconstruction (right) Surgery 1/28/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Surgery 2/24/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Chemotherapy 3/30/2015 AC + T (Taxol) Radiation Therapy 8/24/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)

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