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Topic: I am scAred.

Forum: Not Diagnosed With a Recurrence or Metastases but Concerned —

Meet others concerned about developing a recurrence or metastases.

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Posted on: Feb 19, 2020 01:03PM

Weneke6 wrote:

I was stupid. I really thought I had beat this. Though, everyday I come to they board and read, I really thought... Three years ago I had DCIS, lumpectomy, radation and and now Tamoxifen. Clean margins, small. No issues.

Today I found a hard finger tip sized something deep into the breast in the incision. This nearly destroyed everything three years ago.. and I have a nine year old.....

I called the doctor and am waiting back....

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Feb 19, 2020 01:21PM Yogatyme wrote:

Scary, of course. Remember that it could be scar tissue, cyst, fibroadenoma or something else benign. It’s good you called the doctor so you can get this looked at and hopefully they’ll get you in soon. I think once you have breast cancer, any change triggers the fear of recurrence/metastasis. Try to distract yourself (most of us have limited success with that, but any worry free moment is worth it.) Hoping for a worry free outcome for you

Yogatyme Surgery 3/3/2019 Prophylactic ovary removal Dx 7/19/2019, IDC: Papillary, Right, <1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 8/13/2019 Mastectomy: Left, Right
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Feb 19, 2020 01:24PM - edited Feb 19, 2020 01:25PM by ctmbsikia

So sorry you are scared. May I ask if you are being followed by an oncologist? There's no use of calling yourself stupid. Cancer doesn't discriminate and it's no ones fault. It just happens. There are many benign things it could be even 3 years out. Hang in there, good call reaching out to the Doc, to get answer soon as to what it is. Best wishes to you. Take care.

Dx 12/14/2017, DCIS/IDC, Left, 4cm, Stage IIB, Grade 2, 1/2 nodes, ER+/PR+, HER2- Dx 1/16/2018, LCIS, Right Surgery 1/31/2018 Lumpectomy: Left; Lymph node removal: Sentinel Radiation Therapy 4/11/2018 Whole-breast: Breast Hormonal Therapy 6/25/2018 Arimidex (anastrozole)
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Feb 19, 2020 02:43PM Weneke6 wrote:

Thank you for the kind words.

Yes, I am being followed. I am at Mayo, now being followed by my medical oncologist. Mammo in October was clean.

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Feb 19, 2020 02:57PM PiperKay wrote:

Fingers crossed!!

Dx 11/2018, IDC, Right, <1cm, Stage IB, Grade 3, 0/7 nodes, ER-/PR-, HER2- (FISH) Surgery 12/10/2018 Lumpectomy: Right; Lymph node removal: Right, Sentinel Chemotherapy 1/17/2019 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Radiation Therapy 4/24/2019 Whole-breast: Breast
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Feb 19, 2020 04:24PM Mudstick wrote:

I know the fear first hand of finding a lump after surgery and then having to wait for answers. It really is horrible. I hope you get seen very soon and get reassurance and/or answers to the lump you've felt. Let us know how everything goes.

Dx at 43 (2018) with multi-focal IDC (1.7cm largest) + microinvasive DCIS 7.5 cm. LVI + Positive Anterior Margin for DCIS. Oncotype Score = 14. Local Recurrence February 2020 Dx 9/2018, DCIS/IDC, Right, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 10/11/2018 Mastectomy: Right; Reconstruction (right): DIEP flap Hormonal Therapy 12/31/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 2/2020, IDC, Right, <1cm, Grade 2, ER+/PR+, HER2- (IHC) Hormonal Therapy Femara (letrozole), Zoladex (goserelin) Surgery Lumpectomy: Right Radiation Therapy Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Feb 19, 2020 05:42PM MinusTwo wrote:

I agree with the above posters. Most likely scar tissue, cyst, cording. Waiting is really hard. Please do let us know.

Also when you get a chance, if you go to My Profile and add your prior diagnosis and treatment we will be better able to respond to your questions.

2/15/11 BMX-DCIS 2SNB clear-TEs; 9/15/11-410gummies; 3/20/13 recurrance-5.5cm,mets to lymphs, Stage IIIB IDC ER/PRneg,HER2+; TCH/Perjeta/Neulasta x6; ALND 9/24/13 1/18 nodes 4.5cm; AC chemo 10/30/13 x3; herceptin again; Rads Feb2014
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Feb 20, 2020 02:46PM wallycat wrote:

I also had a big lump, fingertip is an accurate description. Mine was a fatty thingie and not a recurrence. I had bmx not lumpectomy but scar tissue is scar tissue....

Keep us posted. We're sending good thoughts and waiting is always the worst. Best to you.


Dx 4/07 1 month before turning 50; ILC 1.8cm, ER+/PR+, HER2 neg., Stage 1, Grade 2, 0/5 nodes. Onco score 20, Bilateral Mast., tamoxifen 3-1/2 years, arimidex-completed 4/20/2012
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Feb 20, 2020 07:35PM Weneke6 wrote:

Thank you all.

I feel like an overreacting fool.

It was scar tissue. I had a U/s and then talked to the doctor. All good.

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Feb 20, 2020 07:48PM Wigging2000 wrote:

so glad to hear your good news!!!!

Dx 10/31/2018, IDC, Left, 1cm, Stage IA, Grade 2, 0/1 nodes, ER+/PR+, HER2- (FISH) Surgery 11/30/2018 Lymph node removal: Sentinel; Mastectomy: Left, Right Dx 12/6/2018, LCIS/DCIS, Left, Stage 0, 0/1 nodes Surgery 12/7/2018 Reconstruction (left): Silicone implant; Reconstruction (right): Silicone implant Hormonal Therapy Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
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Feb 20, 2020 08:17PM Yogatyme wrote:

Wonderful news!!! You weren’t an overreacting fool.... you were just scared like we all are when we find a lump! So happy for you!!

Yogatyme Surgery 3/3/2019 Prophylactic ovary removal Dx 7/19/2019, IDC: Papillary, Right, <1cm, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 8/13/2019 Mastectomy: Left, Right
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Feb 20, 2020 08:36PM - edited Feb 20, 2020 08:37PM by Micmel

could totally be fat necrosis. I had the same thing happen to Me with my scar area. Try to relax. It was hard as a rock as well didn't move a bit. But scar tissues can cause adhesions as well. Sending you well wishes

Edited to say Yayayay!!!!!

Everyone has to dance, they just don’t know what song they will get. Dx 1/22/2016, IDC, Left, 4cm, Stage IV, metastasized to bone, Grade 2, 13/35 nodes, ER+/PR-, HER2- Chemotherapy 2/9/2016 AC Surgery 6/20/2016 Lymph node removal: Left, Underarm/Axillary; Mastectomy: Left Chemotherapy 7/19/2016 Abraxane (albumin-bound or nab-paclitaxel) Targeted Therapy 11/6/2016 Ibrance (palbociclib) Surgery Chemotherapy Chemotherapy Hormonal Therapy Arimidex (anastrozole)
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Feb 20, 2020 09:46PM Mudstick wrote:

Yay! So happy for you :-) You are definitely not an overreacting fool - the fear of recurrence rears its ugly head, causing fear and anxiet and there isn't too much we can do about it until we get answers to settle our nerves!

Dx at 43 (2018) with multi-focal IDC (1.7cm largest) + microinvasive DCIS 7.5 cm. LVI + Positive Anterior Margin for DCIS. Oncotype Score = 14. Local Recurrence February 2020 Dx 9/2018, DCIS/IDC, Right, Stage IA, Grade 2, 0/5 nodes, ER+/PR+, HER2- Surgery 10/11/2018 Mastectomy: Right; Reconstruction (right): DIEP flap Hormonal Therapy 12/31/2018 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Dx 2/2020, IDC, Right, <1cm, Grade 2, ER+/PR+, HER2- (IHC) Hormonal Therapy Femara (letrozole), Zoladex (goserelin) Surgery Lumpectomy: Right Radiation Therapy Chemotherapy Cytoxan (cyclophosphamide), Taxotere (docetaxel)
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Feb 21, 2020 03:22PM KBeee wrote:

Never overreacting. You must check out any changes. I am glad you were able to feel it and get it checked.

Karen. Dx 8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC) Surgery 8/26/2013 Mastectomy: Left, Right Chemotherapy 9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel) Hormonal Therapy 12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone) Surgery 1/23/2014 Reconstruction (left); Reconstruction (right) Surgery 1/29/2015 Lumpectomy: Right Dx 2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH) Dx 2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC) Surgery 2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal Chemotherapy 3/31/2015 AC + T (Taxol) Radiation Therapy 8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall Hormonal Therapy Femara (letrozole)
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Apr 29, 2020 11:07PM - edited Apr 29, 2020 11:08PM by jcp

Great news on results of ultrasound, Mudstick!

JCP

I am so worried right now with my CT scan being scheduled b/c chest xray had calcification on it.

I read that could be mets or not. I am very scared.


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