Meet others concerned about developing a recurrence or metastases.
Posted on:
Mar 3, 2020 03:00PM
- edited
Mar 3, 2020 03:02PM
by
alto
North MA / Boston for treatment
Joined:
Dec 2018
Posts:
231
Latest activity:
Oct 5, 2020
alto
wrote:
Yesterday, I felt a sore spot right at the edge of my mx scar (at the center/sternum). I can feel a little spherical lump when I press on the scar line, on the small side (baby pea or smaller).
I am hoping this is just a clogged pore. I see my PCP Thursday and have my 6-mo check up with my surgeon next week, so at least I don't have to wait long.
Anyone have a similar experience?
Diagnosed at 42. Had symptoms of Paget's for years prior to positive biopsy. No Tamox because low% ER.
Dx
11/2/2018, Paget's, Right, Stage 0, Grade 3, ER-/PR-, HER2+ (IHC)
Surgery
11/11/2018 Lumpectomy: Right
Dx
11/29/2018, DCIS/Paget's, Right, 1cm, Stage 0, Grade 3, ER-/PR-
Surgery
12/19/2018 Lumpectomy: Right; Lymph node removal: Sentinel
Dx
12/21/2018, DCIS, Right, 2cm, Stage 0, Grade 3, 0/2 nodes, ER-/PR-
Surgery
1/16/2019 Mastectomy: Right
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KBeee
Iowa
Joined:
Jul 2013
Posts:
5,051
Latest activity:
Sep 10, 2020
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Mar 5, 2020 05:31PM
KBeee
wrote:
Any changes should be checked. What did they have to say???
Karen.
Dx
8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC)
Surgery
8/26/2013 Mastectomy: Left, Right
Chemotherapy
9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Hormonal Therapy
12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Surgery
1/23/2014 Reconstruction (left); Reconstruction (right)
Surgery
1/29/2015 Lumpectomy: Right
Dx
2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH)
Dx
2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC)
Surgery
2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal
Chemotherapy
3/31/2015 AC + T (Taxol)
Radiation Therapy
8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall
Hormonal Therapy
Femara (letrozole)
alto
North MA / Boston for treatment
Joined:
Dec 2018
Posts:
231
Latest activity:
Oct 5, 2020
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Mar 5, 2020 10:42PM
alto
wrote:
I see my PCP tomorrow (sorry, originally thought it was Thursday, but the appointment is Friday). BS next week.
I'm thinking it's probably just a clogged pore. It was painful and lump-like that first day I noticed it, which is why I was concerned, but the area is much less sensitive now. I'll still have them take a look.
I feel lucky that the appointments were already made so I didn't have to question whether it was worth a check up.
Diagnosed at 42. Had symptoms of Paget's for years prior to positive biopsy. No Tamox because low% ER.
Dx
11/2/2018, Paget's, Right, Stage 0, Grade 3, ER-/PR-, HER2+ (IHC)
Surgery
11/11/2018 Lumpectomy: Right
Dx
11/29/2018, DCIS/Paget's, Right, 1cm, Stage 0, Grade 3, ER-/PR-
Surgery
12/19/2018 Lumpectomy: Right; Lymph node removal: Sentinel
Dx
12/21/2018, DCIS, Right, 2cm, Stage 0, Grade 3, 0/2 nodes, ER-/PR-
Surgery
1/16/2019 Mastectomy: Right
alto
North MA / Boston for treatment
Joined:
Dec 2018
Posts:
231
Latest activity:
Oct 5, 2020
Log in to post a reply
Mar 6, 2020 09:49AM
alto
wrote:
PCP got sick and had to cancel.
Diagnosed at 42. Had symptoms of Paget's for years prior to positive biopsy. No Tamox because low% ER.
Dx
11/2/2018, Paget's, Right, Stage 0, Grade 3, ER-/PR-, HER2+ (IHC)
Surgery
11/11/2018 Lumpectomy: Right
Dx
11/29/2018, DCIS/Paget's, Right, 1cm, Stage 0, Grade 3, ER-/PR-
Surgery
12/19/2018 Lumpectomy: Right; Lymph node removal: Sentinel
Dx
12/21/2018, DCIS, Right, 2cm, Stage 0, Grade 3, 0/2 nodes, ER-/PR-
Surgery
1/16/2019 Mastectomy: Right
alto
North MA / Boston for treatment
Joined:
Dec 2018
Posts:
231
Latest activity:
Oct 5, 2020
Log in to post a reply
Mar 12, 2020 08:14PM
alto
wrote:
I saw the breast surgeon for my regular check-up and she didn't think it was a recurrence, so I'll just make sure it heals up.
Diagnosed at 42. Had symptoms of Paget's for years prior to positive biopsy. No Tamox because low% ER.
Dx
11/2/2018, Paget's, Right, Stage 0, Grade 3, ER-/PR-, HER2+ (IHC)
Surgery
11/11/2018 Lumpectomy: Right
Dx
11/29/2018, DCIS/Paget's, Right, 1cm, Stage 0, Grade 3, ER-/PR-
Surgery
12/19/2018 Lumpectomy: Right; Lymph node removal: Sentinel
Dx
12/21/2018, DCIS, Right, 2cm, Stage 0, Grade 3, 0/2 nodes, ER-/PR-
Surgery
1/16/2019 Mastectomy: Right
KBeee
Iowa
Joined:
Jul 2013
Posts:
5,051
Latest activity:
Sep 10, 2020
Log in to post a reply
Mar 19, 2020 06:31PM
KBeee
wrote:
Keep an eye on it and take pictures every day or so; it will allow you to compare to see if it is changing.
Karen.
Dx
8/5/2013, IDC, Right, 1cm, Grade 2, 0/1 nodes, ER+/PR+, HER2- (IHC)
Surgery
8/26/2013 Mastectomy: Left, Right
Chemotherapy
9/20/2013 Cytoxan (cyclophosphamide), Taxotere (docetaxel)
Hormonal Therapy
12/12/2013 Tamoxifen pills (Nolvadex, Apo-Tamox, Tamofen, Tamone)
Surgery
1/23/2014 Reconstruction (left); Reconstruction (right)
Surgery
1/29/2015 Lumpectomy: Right
Dx
2/2/2015, IDC, Right, 1cm, Grade 2, 0/0 nodes, ER+/PR-, HER2- (FISH)
Dx
2/25/2015, IDC, Right, 1cm, Grade 3, 0/13 nodes, ER+/PR-, HER2- (IHC)
Surgery
2/25/2015 Lumpectomy: Right; Lymph node removal: Right, Sentinel, Underarm/Axillary; Prophylactic ovary removal
Chemotherapy
3/31/2015 AC + T (Taxol)
Radiation Therapy
8/25/2015 Whole-breast: Breast, Lymph nodes, Chest wall
Hormonal Therapy
Femara (letrozole)
alto
North MA / Boston for treatment
Joined:
Dec 2018
Posts:
231
Latest activity:
Oct 5, 2020
Log in to post a reply
Mar 19, 2020 08:18PM
alto
wrote:
Thank you. I did and will. I have so many scary pictures of my chest - in various stages of diagnosis and surgery - on my phone. :)
It is a great tip to snap photos so you can show your doctor what you're talking about.
Diagnosed at 42. Had symptoms of Paget's for years prior to positive biopsy. No Tamox because low% ER.
Dx
11/2/2018, Paget's, Right, Stage 0, Grade 3, ER-/PR-, HER2+ (IHC)
Surgery
11/11/2018 Lumpectomy: Right
Dx
11/29/2018, DCIS/Paget's, Right, 1cm, Stage 0, Grade 3, ER-/PR-
Surgery
12/19/2018 Lumpectomy: Right; Lymph node removal: Sentinel
Dx
12/21/2018, DCIS, Right, 2cm, Stage 0, Grade 3, 0/2 nodes, ER-/PR-
Surgery
1/16/2019 Mastectomy: Right